THIRD READING

Bill No: SCR 130

Author: Fuller (R)

Introduced: 4/9/18

Vote: 21

SUBJECT: California Congenital Diaphragmatic Hernia Awareness Month

SOURCE: Author

DIGEST:

This resolution designates April 2018 as California Congenital Diaphragmatic Hernia Awareness Month.

ANALYSIS: This resolution makes the following legislative findings:

Congenital diaphragmatic hernia (CDH) occurs when the diaphragm fails to fully form, allowing abdominal organs to migrate into the chest cavity and preventing lung growth.
Babies born with CDH endure extended hospital stays in intensive care with multiple surgeries. CDH patients often endure long-term complications, including pulmonary hypertension, pulmonary hypoplasia, asthma, gastrointestinal reflux, feeding disorders, and developmental delays.
CDH survivors sometimes endure long-term mechanical ventilation dependency, skeletal malformations, supplemental oxygen dependency, enteral and parenteral nutrition, and hypoxic brain injury.
CDH is treated through mechanical ventilation, a heart and lung bypass, which is commonly known as extracorporeal membrane oxygenation (ECMO), machines, and surgical repair. Surgical repair is often not a permanent solution for CDH and can lead to reherniation and require additional surgery.
Infants born with CDH have a high mortality rate, ranging from 20 to 60 percent, depending on the severity of the defect and interventions available at delivery.
CDH has a rate of occurrence of 1 in every 2,570 live births worldwide. CDH affects over 1,600 babies each year in the United States.

This resolution:

Designates April 2018 as California Congenital Diaphragmatic Hernia Awareness Month.
Encourages that steps should be taken to: (1) raise awareness of and increase public knowledge about CDH; (2) inform all Californians about the dangers of CDH, especially those groups that may be disproportionately affected by CDH or that have lower survival rates; (3) disseminate information on the importance of quality neonatal care of CDH patients; (4) promote quality prenatal care and the use of ultrasounds to detect CDH in utero; and (5) support research funding of CDH to improve screening and treatment for CDH, discover the causes of CDH, and develop a cure for CDH.
Calls upon the people of California, interest groups, and affected persons to promote awareness of CDH, take an active role in the fight against this devastating birth defect, and observe California Congenital Diaphragmatic Hernia Awareness Month with appropriate ceremonies and activities.

Related/Prior Legislation

SR 32 (Fuller, 2017) designated April 2017 as California Congenital Diaphragmatic Hernia Awareness Month. The resolution was adopted by the Senate.

SCR 124 (Fuller, Resolution Chapter 38, Statutes of 2016) designated April 2016 as California Congenital Diaphragmatic Hernia Awareness Month.

SR 23 (Fuller, 2015) declared the month of April 2015 as California Congenital Diaphragmatic Hernia Awareness Month. The resolution was adopted by the Senate.

FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No

SUPPORT: (Verified 4/16/18)

None received

OPPOSITION: (Verified 4/16/18)

None received

Prepared by: Jonas Austin / SFA / (916) 651-1520

4/18/18 15:23:07

**** END ****

SCR 130: California Congenital Diaphragmatic Hernia Awareness Month.

Senate Floor

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