Hearings

Assembly Budget Subcommittee No. 2 on Human Services

March 26, 2025
  • Corey Jackson

    Legislator

    Good afternoon and welcome. This is the Assembly Budget Subcommitee 2 on Human Services. Today we'll be discussing critical issues regarding Developmental Services for individuals with intellectual and developmental disabilities and rehabilitation services for those with occupational challenges, including blindness, traumatic brain injury and other disabilities. Before we invite our first panel, let me just make a few remarks.

  • Corey Jackson

    Legislator

    I'd like to first pause for a minute and reflect on all the progress we've actually made together. It has been through your work, those of you who are in this room, advocates and through education, both of others and Members of this Committee, those who have sat on this Committee past and present, that California is leading in many areas of providing services to our most vulnerable populations.

  • Corey Jackson

    Legislator

    While we know what it means to have progress in this space, we must be active participants to show up and to also hold the line. We have to make sure that we continue to support those who continue to travel here to tell their stories, to talk about the challenges that they face.

  • Corey Jackson

    Legislator

    They have been invaluable to this Committee, and we continue to look forward to hearing all those affected in these subject areas in the future. Also, I want to make sure that we understand that we still have a long ways to go to. We still have much to do.

  • Corey Jackson

    Legislator

    And when we feel like we're about to make progress, sometimes we just can't catch a break and some other disaster happens in California and all those things. But it's important for this Committee to know, no matter what happens in this state, things that we can't control, we will not forget you.

  • Corey Jackson

    Legislator

    We will not forget the work that we still need to do. And we will not forget the dedication, the discipline and the courage we may have to press forward even when it seems that it may be impossible to do in one year or the other.

  • Corey Jackson

    Legislator

    I want to also make sure that we understand that these issues continue to be complicated, but through collaboration, through great communication and some downright grit, we will continue to make progress in years, both large and small. So I want to thank everyone for being here.

  • Corey Jackson

    Legislator

    I want to make sure that everyone knows that public comment will be at the conclusion of all the issues and each person will have two minutes and there will be an audible beep at the two minute mark. There will be no votes taken in today's hearing.

  • Corey Jackson

    Legislator

    And so I'm going to ask the first panel to take their seats and you may introduce yourself. We are going to do this a little bit out of order on issue number one, but we were going to we're going to start off with the Department of Rehabilitation and then we are going to do the Department Developmental Services.

  • Corey Jackson

    Legislator

    And then we are going to do the LAO and then we will do the our advocates after that. Okay. And Chief Deputy Director, you may begin when you're ready.

  • Victor Duron

    Person

    Thank you so much. Assemblymember Jackson. So again, my name is Victor Dur0n. I'm the Chief Deputy Director for the Department of Rehabilitation. But today I'm here on behalf of the California Health and Human Services Agency, where for the last year I had the great privilege of serving as the Project Director for the Master Plan for Developmental Services.

  • Victor Duron

    Person

    So I'm going to to get us started, do a little bit of level setting about what the Master Plan was and the process we undertook over the past year and really spend some time talking about how this has been truly a community driven and community centered effort.

  • Victor Duron

    Person

    We began this effort last March, so it's been just over a year. And while the Department of Health and Human Services or while the Health and Human Services Agency with the Department of Developmental Services, the Department of Rehab and others provided resources and created space, this truly was an effort driven with and by community.

  • Victor Duron

    Person

    The recommendations in the Master Plan are a reflection of the diverse voices of community and their vision for a future for Californians with developmental disabilities.

  • Victor Duron

    Person

    This Master plan was rooted in several key principles including consistency and accessibility to services for all people, equity, recognizing that different communities experience different outcomes and different access to services, and most of all, community engagement. The community engagement really was central to this effort and it showed up in a variety of different ways.

  • Victor Duron

    Person

    We established a steering Committee with 38 Members that represented a diverse range of perspectives, principally people who benefit from services. We engaged in 45 different community engagement sessions up and down the state with diverse ranges of communities, cultural disability specific, issue specific communities.

  • Victor Duron

    Person

    We held two public comment sessions at every Committee meeting and a public comment meeting at every work group. We established five work groups with nearly 100 Members collectively from the community, representing a diverse range of ethnic, racial, socioeconomic, geographic and disability type to make sure that we had a wide range of perspectives.

  • Victor Duron

    Person

    And we also ensured that we used the stakeholder engagement and the public comment to lift up any issues that arose. That despite these really diverse communities that we pulled together may not have come up through that collective wisdom as well. So all of this truly was centered in how do we ensure that voices of community are heard.

  • Victor Duron

    Person

    To further ensure that this was led by voices of community, we had five workgroups that each had two co chairs. And in each of those work groups, the co chair was a family Member of a person with a developmental disability and very importantly, a person with a developmental Disability.

  • Victor Duron

    Person

    Truly a leader with a developmental disability who knows firsthand what is best for them, what they need, and how their life can be the most self determined and autonomous as possible. On Friday we will publish the final draft of the master plan.

  • Victor Duron

    Person

    There was an initial draft published on the 12th and the final will come out this Friday. And in that you will see a number of things. You will see about 170 recommendations across a wide range of topics and I'll very quickly go over the five main topic areas covered.

  • Victor Duron

    Person

    We open with equity, how we center this system, inequity, supporting choices of people with developmental disabilities, ensuring access to essential services, building up that workforce that supports the system, enhancing accountability and transparency in the system and looking to the future of the Developmental Services system. You will also see in the report a commitment to plain language.

  • Victor Duron

    Person

    I think it's perhaps, I would venture to say it might be the most readable government report you will have an opportunity to read and hopefully will set a new precedent for how we can communicate in plain language moving forward.

  • Victor Duron

    Person

    And you will see a really clear vision for the future of the Developmental Services system driven by the diverse voices of communities that stand to benefit from it.

  • Pete Cervinka

    Person

    Thank you, Mr. Chair. Pete Chervinka. I'm the Director at the Department of Developmental Services and just ditto to everything he said. Really appreciative to the people in the community that lent their time and expertise and then also to Victor himself and the cast of many people that contributed to that work.

  • Pete Cervinka

    Person

    Bringing it to a conclusion in name on Friday. The obvious question then is what happens next here to tell you today that the master plan is going to be embedded in all of the work that we do going forward. It's going to be a key part of the information.

  • Pete Cervinka

    Person

    And precisely because government is supposed to implement what people want. And that master plan is a reflection of what the community wants for the future of development disability services in California. There are some questions in your agenda and I'm going to explain why I'm not going to answer it quite the way the question was asked.

  • Pete Cervinka

    Person

    There was a question about roadmap for its implementation. And you know, really, I think the answer lies in what I said before. We're not prioritizing services for people with autism over employment opportunities, for people who want employment opportunities, as we do work on those topics. The master plan is of course going to inform that work.

  • Pete Cervinka

    Person

    And those are just two of of course, many examples. So there isn't perhaps a roadmap and a timetable for that. Mr. Chair, you alluded in your opening remarks to some difficult times ahead. And we'll talk about some of those things in future panels.

  • Pete Cervinka

    Person

    But it's, I think, an important point in time for us to recognize that the voice of the community here has been heard, has been document is going to be retained, but it's not just a plan on a shelf, but actively referred to in terms of all of the work that we're doing across the spectrum of services and supports.

  • Pete Cervinka

    Person

    I would also extend appreciation to Secretary Johnson of the Health and Human Services Agency and her team. They have an ongoing expressed commitment to ensuring that other departments within the agency and entities in state government beyond our Department and agency will also be included as they are needed there.

  • Pete Cervinka

    Person

    You know, Victor alluded to a number of the themes in the Master plan and I think it's important to always remember that while dds, Department of Developmental Services is often first thought of when it comes to developmental disabilities, the people's experience with government goes well beyond what a single Department provides.

  • Pete Cervinka

    Person

    So whether we talk about transportation, housing, healthcare services, education, there's lots of work to be done and we'll talk about employment in another panel again today. So there's lots of work to be done beyond the confines, if you will, of the Department and Regional Centers as well.

  • Pete Cervinka

    Person

    There are a few themes that I took away from the master plan and I would share them here with you today in the vein of talking a little bit about things in the short term and longer term, longer term perhaps first is a little harder to predict.

  • Pete Cervinka

    Person

    We have an entire panel on federal happenings later today in the agenda, but it's a good example. Between that and you mentioned La Wildfire Response and another panel again later today, there are things that come up that sometimes create competing priorities for time, attention and resources. So it's really difficult, difficult in the face of some uncertainties to prepare a long term plan.

  • Pete Cervinka

    Person

    What I will say is that themes from the master plan, things that we commonly think about equity has been a long running conversation, kind of basic fairness, access to programs, timely transition to services, more understandable processes for people, more understandable information to people.

  • Pete Cervinka

    Person

    There is a boatload of work already underway that can still be informed by the Master Plan before it's concluded. Things for example, like standardizing the intake process across Regional Centers. So there's some really important work to be done that can, I'm sorry, work underway that can be informed by the master plan.

  • Pete Cervinka

    Person

    And there may be new work that we want to start and future work that we couldn't today yet envision. And obviously there's gradations of simplicity to complexity, resource availability and other concerns that need to factor into that. So I can't promise you a plan for implementation of the Master Plan from the Administration.

  • Pete Cervinka

    Person

    What I can tell you is that we take very seriously the voice of the community and the effort people put into it. We plan to make use of it on an ongoing basis.

  • Pete Cervinka

    Person

    There's a list I brought, but I won't read to you, of 15 different efforts we have underway where the voice of the community is involved in the public process, but also more importantly and your agenda references this.

  • Pete Cervinka

    Person

    And I appreciate that twice a year we're going to invite the Committee from the Master Plan back together to go through the recommendations and not just for the Department to say what's being done on them, but also to hear what's being being done. The Administration and the Legislature without offense, doesn't have a monopoly on the ability to take action on these things.

  • Pete Cervinka

    Person

    So using that twice a year convening of the Committee holds us all accountable for making sure there is progress to report on something and existing statute requires in March every year starting next year a report to the Legislature on the Master Plan and its implementation. So there's a variety of commitments there that I've outlined to you.

  • Pete Cervinka

    Person

    But I just want to close again with gratitude to the Committee community and the effort they put into development of the plan itself. Happy to answer questions or hear from other panel.

  • Corey Jackson

    Legislator

    Thanks. Thank you very much LAO.

  • Karina Hendren

    Person

    Karina Hendren with the Legislative Analyst Office Just wanted to start by noting that on March 5th the LAO published our analysis that addresses the Master Plan's development and implementation process. The hearing for today's agenda does include excerpts from that analysis and then the full text is also available on our website.

  • Karina Hendren

    Person

    And we wrote the analysis in the anticipation that the Legislature would receive the Master Plan in late March. Again, it came out on March 5th and so the Master Plan draft hadn't actually been published at that time.

  • Karina Hendren

    Person

    But we are talking about the overall process and implementation and the analysis is intended to give the Legislature some guiding questions that it could ask, for example, in the hearing today in thinking about the Master Plan.

  • Karina Hendren

    Person

    So we want to start our comments by noting that this Subcommitee adopted budget related legislation last year regarding legislative intent for the development of the Master plan and that legislative intent was that the Master Plan be developed as a cross departmental and multi agency effort.

  • Karina Hendren

    Person

    And today we recommend that the Subcommitee ask the Administration to explain the extent to which the development of the plan over the course of the past year has aligned with the legislative intent outlined in that legislation and these recommended questions are included at the top of page 10 of today's hearing agenda.

  • Karina Hendren

    Person

    Next, we want to note that the master plan includes recommendations for some significant policy changes, including changes to the Lanterman Act. For example, one recommendation would call for amending the Lanterman act so that people with IDD can choose to leave the school system at age 8 rather than at age 22.

  • Karina Hendren

    Person

    The master plan also includes recommendations that would require significant budget changes, for example, increasing SSP payments or updating provider rates. There are also several recommendations that call for changes in departments other than dds. As the Director noted, this is a system where individuals are served by multiple departments.

  • Karina Hendren

    Person

    Some of those are even outside of the Cal HHS agency. And if implemented, several of these recommendations would represent fundamental changes to the existing Developmental Services system. And finally, as the Administration noted, the master plan reflects recommendations developed by the community. This is following a process that was established in statute.

  • Karina Hendren

    Person

    The recommendations do provide valuable information about opportunities to improve the experiences of individuals and their families who received Developmental Services in accordance with statute. The Administration didn't filter any of the recommendations for feasibility in terms of legal or budget constraints. And the Administration also did not comment on any of the policy merits of the proposed recommendation.

  • Karina Hendren

    Person

    And as a result, the plan is not necessarily ready to implement in its current stage. For example, there are some recommendations that could potentially overlap with each other or overlap with efforts that are already underway by the Administration. There are some recommendations that could potentially be constrained by existing laws and regulations.

  • Karina Hendren

    Person

    And so to address this, what we're recommending is more information from the Administration on how these recommendations could be translated into a more feasible or actionable set of budget and policy proposals for the Legislature to consider.

  • Karina Hendren

    Person

    And so we think that the Legislature really needs the administration's expertise when it comes to addressing maybe some of those legal constraints or changes to. To statute that might be needed, or thinking about staffing changes, for example, issues directives to Regional Centers.

  • Karina Hendren

    Person

    Kind of just more that nitty gritty detail of what is needed to actually put this in place. And again, the Administration holds that expertise.

  • Karina Hendren

    Person

    And so we're recommending that the Legislature work with the Administration to provide that technical expertise on what it would take to take these recommendations from the community and actually translate them into implementable policy and budget proposals. Thank you. oh, sorry. My colleague also had a quick comment.

  • Mark Newton

    Person

    Yes, good afternoon, Dr. Jackson and Committee staff. Mark Newton with the Legislative Analyst Office.

  • Mark Newton

    Person

    Just wanted to speak just very briefly in response to the Department directors DDS Department director's comments about priorities and Maybe difficulties in having a roadmap going forward, given the difficulty perhaps of judging across various priorities for the system, of not being able to say one priority is more important than the other.

  • Mark Newton

    Person

    Maybe I'd like to comment on that because I think our view is that the community has done really excellent work here in providing information that really can inform the Legislature and the Administration sort of going forward and you don't want to sort of lose momentum with that.

  • Mark Newton

    Person

    The recommendations are very, very wide ranging, as was mentioned, 170 recommendations covering a whole slew of different sort of policy priorities. Many involving, you know, could potentially involve, you know, major, major funding requests, major changes to policy that is in current law.

  • Mark Newton

    Person

    And I think going forward, what we would view as being very helpful, I think, to the advancement of all the work that's been done is to have perhaps some focus and I guess a plan for going forward.

  • Mark Newton

    Person

    And in terms of priorities, we do think it is important for the Administration to take a first look at being informed by what the community has presented, but provide the Legislature with its long term vision of changes within the Developmental Services system based on all the recommendations that the community has brought forward and letting the Legislature know, you know, what types of activities would it like to effectuate first and the changes that are necessary and you think to sort of to continue the momentum.

  • Mark Newton

    Person

    But you need to have some focus in a plan because it's quite unwieldy what's been presented, but it's, it's very valuable information. But you need to have sort of focus and sort of a plan of what you're working towards.

  • Mark Newton

    Person

    And I think the trailer Bill legislation that the agenda sort of mentions I think could be a good step forward or so. But just wanted to add those additional comments and really happy to respond to any questions of the Committee.

  • Corey Jackson

    Legislator

    LAO, you have got to stop telling us to focus and you've got to stop telling us to be responsible. This is not going to work. This is not going to work. Thank you all very much. Organization representatives, please come on up for issue number one. I have integrated Community Collaborative. I have Association of Regional Center Agencies. I have Disability Rights California, come on up.

  • Corey Jackson

    Legislator

    And we will start with Integrated Community Collaborative.

  • Oscar Mercado

    Person

    Good afternoon, Chairman, Dr. Jackson and Members of the Assembly. My name is Oscar Mercado and I am honored to speak today. As a self advocate, Director of Community Programs for the Integrated Community Collaborative and a Committee Member for the Master Plan for Developmental Services, I want to begin by thanking this Subcommitee for the chance to speak today.

  • Oscar Mercado

    Person

    We've heard from the department that there will be two stakeholder meetings moving forward. While that is the step in the right direction, this is not the way to really move forward.

  • Oscar Mercado

    Person

    I want to be sure that there is a legitimate concern that despite the tremendous effort and engagement that went into developing this plan, that there's a potential risk that it could be sitting on a shelf, forgotten, underutilized or selectively implemented in ways that do not reflect the needs of our community.

  • Oscar Mercado

    Person

    We have to ensure that this does not happen and I believe in order to fulfill that promise of the Master Plan, we should take immediate and concrete steps to avoid that. Categorize and prioritize all 170 recommendations covering everything from service accessibility to equity and funding.

  • Oscar Mercado

    Person

    But without a structured process to prioritize and classify these recommendations, progress will be slow, unfocused and fragmented. Establish a Stakeholder Implementation Committee. Just as the Master Plan on Aging has dedicated stakeholder group overseeing its execution, we must create a similar committee for the Master Plan on Developmental Disabilities.

  • Oscar Mercado

    Person

    This committee should include self advocates, families and community leaders who will monitor and ensure transparency, hold agencies accountable for ongoing commitments, and identify challenges and solutions to prevent delays in execution. Improve accessibility and community engagement. This Master Plan provides a pivotal opportunity to shift from a compliance driven system to one that is truly person centered.

  • Oscar Mercado

    Person

    Equity is only possible if we listen to the community. The individuals and families directly impacted by these systems, Regional Centers and organizations profiting from serving the developmental disability community cannot dictate the priorities. The Master Plan must prioritize the impact it will have on individuals with developmental disabilities.

  • Oscar Mercado

    Person

    The community implores that their comments and input must be included in this process, not just written down on paper. Some recommendations that the community and I feel very passionate about are improving the Self Determination Program to ensure it fulfills its promise of providing a person centered choices.

  • Oscar Mercado

    Person

    As a participant in the program, I can attest that SDP person provides more freedom of choice and helps me become more independent, thus being a tremendous game changer in my life. Number two, providing compensatory services to people and families whose Regional Centers have wrongfully denied or delayed the services they need.

  • Oscar Mercado

    Person

    I went on without services during the toughest moments of my life. Had I been provided support at the time of my greatest needs, my life in progress would be very different.

  • Oscar Mercado

    Person

    Expanding Choices for Service Coordinators Enabling families and clients to have control over who manages their care Choosing our own service coordinators expands the potential for quality service coordination. Honoring the individual dignity of the human person Implementing robust accountability performance measures to ensure accurate, high quality service delivery.

  • Oscar Mercado

    Person

    Right now the system operates without meaningful consequences for poor performance, leaving families vulnerable and having to face constant barriers just to attain services for their child. The submission of the Master Plan is not the finish line. It is a starting point.

  • Oscar Mercado

    Person

    The responsibility now lies with all of us to ensure that this plan leads to real, measurable change in the lives of individuals with disabilities and their families. As a self advocate, I feel that this plan is about creating meaningful change.

  • Oscar Mercado

    Person

    For too long there has been an outcry from the community highlighting the cracks in the system that that cause people to fall through them. This is our chance to make things right, to create a system that prioritizes people over policies and paperwork.

  • Oscar Mercado

    Person

    I urge everyone here present policymakers, agencies and community advocates to seize this moment and fix the system which requires a great need of repairing. People's lives are at stake and we must ensure we do everything in our power to make this right with community engagement and collaboration.

  • Oscar Mercado

    Person

    Thank you for giving me this time to speak and may God bless you.

  • Amy Westling

    Person

    Good afternoon, My name is Amy Westling. I'm the Executive Director of the Association of Regional Center Agencies and I'm here today speaking on behalf of the state's 21 Regional Centers, but also as one of the Co Chairs of the Lanterman Coalition.

  • Amy Westling

    Person

    First off, thank you to the Chair Members and staff staff for the opportunity to speak today and particularly to Nicole for the thoughtful and comprehensive agenda and we know these things don't right themselves and really appreciate it. Shout Out.

  • Amy Westling

    Person

    I've had the honor over the last year of being a Member of the Master Plan Committee and want to share with you some of the thoughts and reflections that I've had as a part of that process.

  • Amy Westling

    Person

    First and foremost, what I will leave with is the appreciation for the work throughout the process that went into prioritizing and supporting the authentic voices of our self advocates. For too long we have relied upon others to speak for and on their behalf, including professionals.

  • Amy Westling

    Person

    And really shout out to Victor and his team for reminding us all this needs to be a priority and for doing an artful job in ensuring that their voices were heard and were central to the process.

  • Amy Westling

    Person

    What we heard from our self advocates was that people value California's service system and want to lead its continued evolution, including making services easier to navigate.

  • Amy Westling

    Person

    Many expressed appreciation for their service coordinator, but the sense that too much time is spent on administrative functions and these are all things that as professionals we know from an objective perspective, but hearing it from the people we're here to support is really impactful.

  • Amy Westling

    Person

    ARCA supports many of the elements of the plan and wanted to call out a couple that stood out as foundational for future work. First, the recommendation to clearly define equity. Everything we do in this system is supposed to be based in equity, and this entire plan was written through the lens of equity.

  • Amy Westling

    Person

    But when we say equity in our system, we don't have a clear definition of what we mean by that and how we measure it and relatedly identifying outcomes. So what is it that this system system is supposed to be doing for people and how do we know when it's doing what it sets out to do?

  • Amy Westling

    Person

    So identifying the outcomes, establishing the data elements to measure them, developing an IT system to collect information about that systematically, and funding a structure to support them, including not leaving people with high support needs behind, which we can often inadvertently do.

  • Amy Westling

    Person

    As Director Chervenka said, many current initiatives are underway to enhance consistency and predictability in the service system, and we feel that the Committee meeting a couple of times a year would be a good opportunity to make sure that those initiatives are taking hold and also to reflect on their progress.

  • Amy Westling

    Person

    We know that change is important, but that it can take time. One of the things that Mr. Duran said throughout the process is that at times this process felt that it was moving too quickly and at other times it felt it was moving too slowly.

  • Amy Westling

    Person

    And so a good balance needs to be found to not change too many things at once, but really to be thoughtful in our progress and then to reflect on is it doing what we hoped it would do. Additionally, thought needs to be given into how best to balance consistency with person centeredness.

  • Amy Westling

    Person

    This was another theme that resonated throughout the Master Plan Document. Additionally, as Ms.

  • Amy Westling

    Person

    Hendren said, some of the recommendations, such as changes to eligibility standards would require statutory and or regulatory changes and that that would provide us all an opportunity to partner with the Legislature, but also to get additional public comment about what those things should look like.

  • Amy Westling

    Person

    There was a lot of public comment in this process, but as discrete elements move forward, there are certain things where the public will want to weigh in in a more targeted way and so those statutory or regulatory changes may provide that opportunity quickly.

  • Amy Westling

    Person

    Funding sufficiency is required to ensure access as a robust workforce is needed to meet people's needs as they define them. We heard from people frustration about service delays resulting from insufficient providers and challenges that result from that.

  • Amy Westling

    Person

    There was thought about the expansion of the role of Regional Centers to include working with their communities to enhance disability awareness and accommodation, which we're in strong support of.

  • Amy Westling

    Person

    But we recognize that would mean either the work that's currently being done would need to pivot or that there would need to be a way to prioritize that in a different way. Ongoing work should include engagement with other Systems. I believe Ms. Hendren mentioned that as well as Director Trevenka.

  • Amy Westling

    Person

    And we're glad to hear that this is an area where there'll be additional focus because it really is one of the foundational things that will help improve people's experience with not just the Developmental Services system, but with state government as a whole. Overall.

  • Amy Westling

    Person

    Appreciate the opportunity to continue to work together to strengthen the service delivery system and to use the robust community feedback that we've received and will continue to receive to inform our work. Thank you so much.

  • Vivian Haun

    Person

    Thank you and good afternoon. My name is Vivian Haun. I'm a senior policy attorney at Disability Rights California and I also have a sibling who has autism and is served by the Regional Center system. As we've heard, the master plan covers a lot of ground.

  • Vivian Haun

    Person

    I'd like to focus on two key themes that have recurred throughout the plan and then offer a suggestion for what to prioritize next. First, many of the recommendations focused on our system's capacity to carry out essential case management duties.

  • Vivian Haun

    Person

    When people with IDD and their family Members ask for more navigators, for service coordinators to have more authority or more administrative support, or to have more choices about whom they can get service coordination from, what they're really saying is we aren't able to get this kind of service coordination we need from the service coordinator staff that we currently have.

  • Vivian Haun

    Person

    When people ask for more transparency around how to get an exception to a purchase of service policy that sets a 30 hour cap on respite, or when they call for there to be more consistent understanding across Regional Centers as to what constitutes a generic service, what they're really saying is we aren't able to get the service coordination we need under the policies and procedures we currently have.

  • Vivian Haun

    Person

    Ultimately, what all these recommendations highlight is the considerable gap between the level of service coordination that people need and deserve from the system and the level of service coordination that they're currently able to get. Years of underinvestment and a laissez faire approach to capacity building have left Regional Centers without some of these essential case management elements.

  • Vivian Haun

    Person

    Elements like staffing that meets clients needs, modern IT and data collection capabilities, standardized protocols for the most critical decision points and workflows, and most of all, elements like strong direction and a compelling vision from the Department on how to do this all in ways that are consistent not just consistent across Regional Centers, but consistent with people's goals for their own lives and consistent with the policy priorities and guiding principles of California's health and human services system.

  • Vivian Haun

    Person

    Without sufficient infrastructure or expectations for service coordinators, it has become increasingly difficult and sometimes it can feel nearly impossible for people to get the kind of high quality service coordination that they not only need and deserve, but are entitled to. Service coordination is the first service. It's the first service that people in our system ever get.

  • Vivian Haun

    Person

    As the gateway to all the other services a person might need, it is foundational to everything we do. If we want people with idd, their families and our entire system to thrive, not just survive, then high quality, racially equitable and truly person centered service coordination is not a nice to have. It's a must have.

  • Vivian Haun

    Person

    Another key thread running throughout the Master Plan is our system's long standing culture of only focusing on the developmental disability and failing to see a single with other support needs that fall outside of the system as part of its responsibility too.

  • Vivian Haun

    Person

    For too long our regional center system has operated like an island, an inward looking system that historically has placed little priority on coordinating or co planning with other systems or on helping other systems better understand how to work with regional centers and with the people they serve.

  • Vivian Haun

    Person

    As a result, our system's capacity to collaborate effectively with other systems that also serve people with IDD is minimal at best.

  • Vivian Haun

    Person

    And this showed up in master plan recommendations that called out things like the shortage of health care, behavioral health and dental providers who know how to serve people with idd, the inability of people with IDD with housing issues to get the help they need from either our IDD or housing systems, and the gaps between the Regional Center, child welfare and criminal justice systems that allow too many of our most vulnerable people slip through the cracks.

  • Vivian Haun

    Person

    Our needs and our systems are interdependent. There are too many big problems to solve. We can't do it alone. No system can. We have to move away from the island mentality of the past and prioritize what I would call language and cultural exchange with other service systems.

  • Vivian Haun

    Person

    We'll never be good at solving shared problems together without more people who are bilingual or know how to translate or how to bridge those cultural differences. Where does this lead in terms of what would I suggest that the Department focus on next? My money is on fixing generic resources. It kills a lot of birds with one stone.

  • Vivian Haun

    Person

    It's an opportunity to collaborate with other systems and build more of that cross system familiarity. It builds capacity for better service coordination since linking to services and other systems is such a core component of what service coordination is supposed to be.

  • Vivian Haun

    Person

    While some changes in statute might be necessary, there's a lot that can be accomplished administratively without changes to statute through directives and guidance to Regional Centers. Getting generic services right gets to the core of what we do as a system and it also meets the current moment.

  • Vivian Haun

    Person

    I've often heard it said that the Regional Center system is a gap filling system. It was designed to step in and step up when other systems have failed or cannot cover certain needs.

  • Vivian Haun

    Person

    In today's world, in light of all the federal uncertainty and potential threats to other public benefits and services like Medi, Cal, Calfresh, Social Security, special education, housing vouchers, the list goes on and on.

  • Vivian Haun

    Person

    I don't know how we can truly be a gap filling system if we don't have an accurate and clear understanding up to date, timely understanding of the shape and the depth of the gaps that must be filled. And that's something that I would recommend as a one way to move forward.

  • Vivian Haun

    Person

    Thank you so much for your time and consideration.

  • Corey Jackson

    Legislator

    Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance we have nothing further to add. However, we'll note that any recommendations originating from the Master Plan would need to follow the normal budget process.

  • Unidentified Speaker

    Person

    Thank you.

  • Corey Jackson

    Legislator

    Thank you very much for that. First, I want to thank you all for the tremendous work that you've done. It seems to me that future departmental endeavors, not just within the Health and Human Services Agency, but across the government of California, can really learn from the type of community driven input that has been done.

  • Corey Jackson

    Legislator

    So I want to commend you for that and commend all of those who've participated in this process. Certainly a lot of hard work has been done and even harder work still remains to be done.

  • Corey Jackson

    Legislator

    And one of the things that I have that I think is also essential is number one, Director Savinka, congratulations on your role and I've thoroughly enjoyed our conversations. I thoroughly enjoy your clarity and frankness as well. That's how I like it and your commitment to this work.

  • Corey Jackson

    Legislator

    One thing that I think is the challenge though, and I agree with the LAO, but I would just add one caveat and that is we are going, we need to prepare for a transition Administration.

  • Corey Jackson

    Legislator

    And with that means that we have to create a sense of consistency and predictability, which means that as a Legislature, we're going to need to take some steps to ensure that not only the Legislature but the IDD community as well as the broader community knows what direction we're trying to head in.

  • Corey Jackson

    Legislator

    And while I have full confidence in your work, I believe that if we don't chart a path forward with a roadmap led by the Legislature until we know who the next administration is going to be and give them time to be consumers of the document and those type of things and have our own interactions, whoever they may be, that we do need to make sure that we start to codify some of these things similar to what we've done in the Department of Aging with the Master Plan of Aging.

  • Corey Jackson

    Legislator

    And so all that to say is that I look forward to continued conversations on this. Tell me though, administration, what do you believe or how do you believe that the master plan went? I look forward to seeing it and consuming it on my own. You know, that's what I do during the holidays. I read your reports.

  • Corey Jackson

    Legislator

    But how do you believe the Master Plan is going to help with what I think has been in every report I've ever seen, no matter what the subject is, no matter what the population is, and that is the huge barriers of departments operating in silos. What do you believe?

  • Corey Jackson

    Legislator

    How do you believe the Master Plan is going to help with cross developmental collaboration? Either one of you? Depends on whoever wants to give it a shot.

  • Unidentified Speaker

    Person

    Absolutely. Thanks again for the comments. You know, this question of government silos goes a very long way. People come to government seeking help. They don't come to government because they actually enjoy going to six different departments to get the help that they need. This concept of horizontal integration modeled after concept of social determinants of health.

  • Unidentified Speaker

    Person

    I mean, this is a long running conversation in California government. The fact is we appropriate money for specific programs in specific departments. We also as government don't tend to have broad based metrics for knowing whether we're doing what we're doing makes a difference for people.

  • Unidentified Speaker

    Person

    It's easy for me to tell you I serve X hundreds of thousands of people, but it's much harder to come to an agreement on the metrics that we use to decide whether to their lives are better off as a result of having received those services or some of those services, what have you.

  • Unidentified Speaker

    Person

    You understand the point with the master plan? I think first and foremost it's an affirmation that the lives of people with Developmental disabilities go well beyond just the two departments that you have here. Right. So this is really a cross system conversation. We've been asked already. I mentioned Secretary Johnson.

  • Unidentified Speaker

    Person

    She invited us later in April to once the report is out to brief the agency wide on the contents of the master plan with this particular focus on what it means for them and their implementation. And I suspect similar engagements will happen at another level of government following that.

  • Unidentified Speaker

    Person

    So I think if anything it's reaffirmed that need to have that conversation. But I think it's also focused. You know, frankly the experience of individuals and families is really driven here. You heard disability rights, our colleague talk about some of these concepts.

  • Unidentified Speaker

    Person

    The need for more community navigators, more assistance figuring out where to go to get what you need. Government shouldn't be that complicated for people seeking help. And so the creation of no wrong doors, our Department of Aging is chasing that one with us in strong support behind them.

  • Unidentified Speaker

    Person

    I think it's a conversation that I think only got re energized by the master plan. I can't tell you recommendation 30 is going to lead us there. But what I can tell you is that it's certainly going to inform what it is that people want from us.

  • Unidentified Speaker

    Person

    And it's on us then to figure out how do we better integrate behavioral health into it. We'll talk later today about the lowest project life outcome improvement system. We don't have fundamental data or the ability to track fundamental data in our system across case management and fiscal. And that's kind of a prerequisite for metrics.

  • Unidentified Speaker

    Person

    And so there's a conversation to be had around our rate structure and the quality Incentive improvement program and its 10% role in the 90:10 rate structure and what measures we select there for provider quality of what people get. So I think the conversation is long running, better informed certainly by the master plan.

  • Unidentified Speaker

    Person

    But I think it's a long running government conversation about how best to deliver services to people in a kind of no wrong door, one stop shop. Pick the right term for that aspect.

  • Corey Jackson

    Legislator

    Absolutely. Advocates, do you have anything that you would like to add in terms of.

  • Vivian Haun

    Person

    I think one thing that struck me as I have looked over the last few years at some of the large initiatives as Director Trevenko was just mentioning this concept of whole person care that we need to break down the silos as you said, and get past our turfiness to really put people at the center.

  • Vivian Haun

    Person

    There have been a lot of statewide initiatives lately that have aimed to do just that. Things like system of care reform from the child welfare system The California Youth Behavioral Health Initiative. Sorry, too many acronyms. But these are all examples, along with the Master Plan for Aging, of big initiatives that try to get at big problems.

  • Vivian Haun

    Person

    Lots of different components with lots of different people contributing from across deployment. And they tried to do it together. When I look at their materials, what I've often seen in the past is DDS's name on the materials. But I see very, very little evidence of DDS really playing or regional centers playing a huge role.

  • Vivian Haun

    Person

    And I see very little evidence of people with IDD being considered very much in those initiatives. So it feels to me like in the past we historically as a system have not prioritized showing up for those other systems.

  • Vivian Haun

    Person

    And one of the things that I constantly heard in the Master Plan process from many different committee and work group members is where are the other departments? Where are the other departments? Can we hear from them? Can they be part of this plan planning process too?

  • Vivian Haun

    Person

    And I think one way to get people to show up for us is to show up for them. A good way of getting a, having a helpful neighbor neighbor is to be a helpful neighbor.

  • Vivian Haun

    Person

    So I think that there is, there's been some historical priorities or maybe lack of priorities that I hope the master plan has very clearly called out. We have to prioritize things differently. We have to move away from the way things did before. And now is the time to start.

  • Corey Jackson

    Legislator

    Thank you. Did you.

  • Amy Westling

    Person

    Yeah. I would just add that on a state level, like at the top, in terms of program administration, there are a lot of silos. But what we've seen is that at the local levels there have been ways to work through some of those things.

  • Amy Westling

    Person

    And so you see in some communities, some really great work that we could draw upon to perhaps spread more widely. Unfortunately, what that tends to mean at the local level is that there is a regional center Executive Director or member of their executive team and a like minded person who oversees another local department.

  • Amy Westling

    Person

    So it may be child welfare, it may be a local health plan, and they come together and build strong systems locally. But those systems, in all honesty, have tended to be very based on that relationship between those two people or those two organizations that align at a moment in time.

  • Amy Westling

    Person

    So all too often when somebody retires or somebody gets promoted or changes positions, those systems that are too fragile to sustain. So really some intentional work at the state level. And encouraged to hear Director Trevanka say that there is going to be an upcoming briefing for other Department directors on the Master Plan.

  • Amy Westling

    Person

    And have heard Secretary Johnson talk about her interest in greater systems integration. And so we're really encouraged to see that work going forward.

  • Corey Jackson

    Legislator

    Thank you for that. A couple of things that I want to do as we wrap this up is, number one, LAO, I really want us to continue to talk about and see if we can get some recommendations on what are some things the Legislature can do to continue to chip away at this. No, wrong door. Right.

  • Corey Jackson

    Legislator

    What are some legislative things we might need to do to allow for this type of information sharing? Right. I have learned the hard way that a lot of times there might be different laws that are currently in place or different practices that have prevented programs from talking to each other in one way or another.

  • Corey Jackson

    Legislator

    And so I would like for you to work with me and my staff on that. Secondly, I really want to use this year's budget process to begin to chart the course of how we move forward here as a Legislature with a Master Plan.

  • Corey Jackson

    Legislator

    And so I would like for like to see if LAO is willing to help us draft some trailer Bill Language that will first come to my Committee staff that really seeks to say, well, what could be next to at least pave the way and set the foundation for what I believe will probably be, well, what I know will be this Committee.

  • Corey Jackson

    Legislator

    It's my intention that this Committee has more concrete priorities within the master plan in the next budget cycle. But until then, how do we be able to have a roadmap or a foundation set for as we go into next year when we have time to really digest the Master Plan?

  • Corey Jackson

    Legislator

    That could include providing requirements for the administration to provide additional analysis and reporting on the Master Plan. It could also include providing cost and benefits for near term priorities in the Master Plan. But I really want to make sure that we again, how do we get from 2025 to 2027, 2028? Right.

  • Corey Jackson

    Legislator

    I think that's going to be a key transition point that the Legislature is going to have to fill in that gap. And so I want to make sure that we are prepared for that and we're starting with that in this budget process. Does that sound amenable to LAO?

  • Karina Hendren

    Person

    Karina Hendren, LAO. Yes, definitely sounds amenable.

  • Corey Jackson

    Legislator

    Okay. Thank you very much. I really want to thank this panel. I'm so excited about the future, so excited to digest it myself. I wasn't playing.

  • Corey Jackson

    Legislator

    I do read these things during holidays and looking forward to continuing to listen from you all, listen from the stakeholders who participated in this master plan process so that I can continue to be as helpful as possible. Thank you all very much for your time.

  • Corey Jackson

    Legislator

    We'll now move on to Issue number two, the Employment First Office and Competitive Integrated Employment. Please come on up. All of those who are supposed to participate in this issue. That includes our administration partners, State Council on Developmental Disabilities, Progressive employment concepts. And Ms. Cooper. You may begin when you're ready.

  • Debra Cooper

    Person

    All right. Good afternoon, Chair Jackson. My name is Deborah Cooper. I'm an Assistant Secretary with the California Health and Human Services Agency. Thank you for the opportunity to speak with you today about the efforts that the State is coordinating to help individuals achieve competitive integrated employment.

  • Debra Cooper

    Person

    The Administration applauds the passage of SB639drazo from 2021 and supported the phasing out of subminimum wage. As of January 1st of this year, there are no longer any individuals in California receiving sub minimum wage under a 14C certificate.

  • Debra Cooper

    Person

    While a momentous achievement, this is only one step in the long standing work that the Administration is doing to support individuals with intellectual and developmental disabilities who want to work to help them find, attain and maintain competitive integrated employment opportunities.

  • Debra Cooper

    Person

    These efforts for supporting competitive integrated employment are reflected in the current and ongoing efforts led by DOR and DDS in partnership with other state entities and stakeholders to provide a variety of employment services for Californians with the most significant disabilities.

  • Debra Cooper

    Person

    The budget act of 2023 established the Office of Employment first to be housed in the California Health and Human Services Agency agency effective July 1, 2024. The 2023 Budget act also included $1 million beginning in 2024 for the establishment of this office the following year in order to solve a $47 billion deficit.

  • Debra Cooper

    Person

    The enacted 2024 budget included a permanent reduction of $1.5 billion in vacant positions and a 7.95% reduction in operational budgets to state agencies and departments in 2024. 25 as part of the government efficiency drills, Cal HHS reduced our budget by $1 million for establishing the Office of Employment First.

  • Debra Cooper

    Person

    The difficult decision to include this office as part of the operations efficiencies was twofold.

  • Debra Cooper

    Person

    One, the Office had not yet been set up and staffed and 2 we knew that aligning with the objectives of the office, Cal HHS would continue to work in concert with DDS and DOR to assist individuals with IDD to find and maintain competitive integrated employment.

  • Debra Cooper

    Person

    Cal HHS will advance the goals of the office by coordinating employment support services across all agencies and departments and developing strategies to partner with other entities committed to creating integrated employment opportunities.

  • Debra Cooper

    Person

    We will work with DDS and DOR to evaluate data collection systems to gauge how we measure success and to monitor our progress as subminimum wage was phasing out DOR and dds.

  • Debra Cooper

    Person

    Each designated an existing executive level staff Member to serve as dedicated leadership to advance the ending of subminimum wage and successfully transition and expand employment and other opportunities for adults with IDD. Working together along with Cal HHS, the Department successfully tracked and transitioned individuals out of subminimum wage.

  • Debra Cooper

    Person

    Going forward, Cal HHS, DDS and DOR have several ongoing and new projects aimed at assisting individuals to attain employment and incentivizing employers to hire individuals with IDD. For instance, DDS Coordinated Career Pathways Pilot provides person centered career planning by a career pathway Navigator and customized employment specialists.

  • Debra Cooper

    Person

    Additionally, their paid internship program increases the vocational skills and abilities of individuals who choose through their individual program plan to participate in a paid internship. DOR's existing employment services already only support competitive integrated employment outcomes.

  • Debra Cooper

    Person

    Further, DOR is conducting a five year research project on the topic of subminimum wage to competitive integrated Employment designed to offer a range of services to test new service delivery practices and establish evidence based approaches to vocational service delivery that addresses future needs.

  • Debra Cooper

    Person

    These are just a few of many initiatives aimed at enhancing and expanding employment opportunities for individuals with with IDD. Victor Duran and Ernie Cruz from DOR and DDS can provide additional details on specific initiatives within their respective departments. I want to assure you that improving access to competitive integrated employment is an Administration priority.

  • Debra Cooper

    Person

    This coordinated approach amongst the departments in CALHHS right sizes the use of state resources for the task at hand. Rather than committing ongoing resources to establish an additional governmental structure, the Administration's approach leverages existing expertise, coordination, collaboration and partnership between both departments.

  • Debra Cooper

    Person

    Each organization plays a unique role in expanding statewide capacity, providing education and information and assisting with the development or refinement of services.

  • Debra Cooper

    Person

    The Administration, through the Executive leadership assigned to this effort from DDS and DOR will continue to engage with partners like State Council and other stakeholders on the needed efforts to support competitive integrated employment and to fully realize employment first in California. Thank you.

  • Ernie Cruz

    Person

    Good afternoon, Dr. Jackson, committee members, and staff. I'm Ernie Cruz, Deputy Director, Department of Developmental Services. During the last year, DDS has been focused on closely monitoring the transition of individuals from sub-minimum wage, with sub-minimum wage ending on January 1, 2025.

  • Ernie Cruz

    Person

    We worked closely with Regional Centers and initiated the monthly reporting process to track the transition of individuals. Not all 2,000 plus individuals we were tracking achieved competitive integrated employment. To those that did, credit must be given to service providers working closely with Regional Centers and for advocating and working with employers to transition individuals from sub-minimum wage to minimum wage or above.

  • Ernie Cruz

    Person

    Moving forward, the department aims to continue working closely with advocates and the community, other departments, Regional Centers, and service providers to increase opportunities and avenues for competitive integrated employment outcomes for individuals we serve.

  • Ernie Cruz

    Person

    The new standardized Individual Program Plan that went into effect on January 1, 2025 will provide the department insight into the number of individuals who have employment identified as an objective or life area in their IPP. The department will continue to promote and track utilization and outcomes of the new Coordinated Career Pathways Service.

  • Ernie Cruz

    Person

    This person-centered approach to Coordinated Career Pathways and the level of expertise and experience needed to offer this service provides an opportunity to achieve successful CIE outcomes. The department is evaluating these outcomes ongoing.

  • Ernie Cruz

    Person

    As part of rate reform implementation, a new job development service and corresponding rate has been added to the Supported Employment Individual Service to go along with a job coaching rate. This is a higher rate with enhanced staff qualification and requirements. This service provides individualized staff time to assist an individual with all activities involved in preparing for and securing competitive integrated employment.

  • Ernie Cruz

    Person

    Fiscal year 23-24 saw the largest utilization of the paid internship program, with over 3,100 paid internships and expenditures of over $20 million, surpassing the previous year of close to 2,600 internships and $16 million. Each paid internship offers an opportunity for our system to make inroads with a business.

  • Ernie Cruz

    Person

    The department will be working closely with Department of Rehab and looking for opportunities for both departments to engage these businesses and provide additional information about the benefits of employing the individuals we serve and the supports that are available to individuals to help them succeed in their job.

  • Ernie Cruz

    Person

    Information, education, and training is another important area of focus for the department and offers an opportunity to work closely with our partner agencies. Benefits counseling continues to be an area where continuous ongoing training is required.

  • Ernie Cruz

    Person

    Getting this information to service coordinators at Regional Centers and to individuals and families is very important in overcoming fears and hesitancy in losing benefits. The department will continue to put together different employment-related trainings for Regional Centers and team up with partner departments based on the topic.

  • Ernie Cruz

    Person

    One of the next training topics that the department is working to schedule is on CalABLE accounts. CalABLE accounts have provisions for individuals who are employed that allow for contributions above the annual limit without affecting eligibility for benefits. Efforts to improve employment outcomes will also be informed by the Master Plan for Developmental Services being released this Friday.

  • Ernie Cruz

    Person

    The recommendations in the Master Plan, along with other concepts to improve communication, the range of employment services, and monitoring and oversight will be important moving forward. Engagement with individuals served and learning about their experiences in employment will inform these concepts, including concepts such as developing an employment roadmap, having a no wrong door approach to support from departments, exposure to apprenticeships, project search, and other programs. Thank you.

  • Victor Duron

    Person

    Thank you, Dr. Jackson. Victor Duron, again, for--this time with my Department of Rehabilitation hat, Chief Deputy Director. So I'll be brief. My colleagues have shared much about--

  • Corey Jackson

    Legislator

    Are you the mailman and the custodian too? What's going on here?

  • Victor Duron

    Person

    I've talked to my boss about that other duties assigned--

  • Corey Jackson

    Legislator

    Something's going on. Something's wrong.

  • Victor Duron

    Person

    So I'll be brief. My colleagues here have shared much about DOR's role, but I'll begin by just reiterating that the Department of Rehabilitation, we serve people of all disability types and we only pursue competitive integrated employment outcomes. However, our focus and our attention to the IDD community and particularly individuals in sub-minimum wage goes back years long before the law phasing out sub-minimum wage.

  • Victor Duron

    Person

    We've been partnering with HHS, the State Council on Developmental Disabilities, and of course our colleagues at DDS for years to carry out this work and move towards that vision of competitive integrated employment for all individuals. Since 2016, we have been offering what is known as Career Counseling Information and Referral, or CCINR, which is a targeted information and referral service specifically for people in sub-minimum wage.

  • Victor Duron

    Person

    Every single person that we are--that is known to us to be in sub-minimum wage has received this service, and since we launched that, 1,801 individuals who have received the service have chosen to enroll in DOR services, and so far, 792 of those individuals have achieved a competitive integrated employment outcome, and of course we continue to serve the others and continue striving towards that goal of achieving CIE for everyone who pursues our services.

  • Victor Duron

    Person

    And as has been alluded to, our partnerships have only been strengthened by this endeavor. We are working with DDS and with our local partners to share data, develop local planning agreements, cross-refer between our programs, explore new ways of developing strategies to support individuals who would have otherwise gone into sub-minimum wage. As Dr. Cooper pointed out, we have regular convening of our executives from the two departments to meet and strategize about the work that we're doing.

  • Victor Duron

    Person

    And we also have two pilot projects currently about the midway point, one in Orange County and one in San Diego, that are specifically looking at and researching new models that serve people with developmental disabilities who would have otherwise gone into sub-minimum wage settings so that we can test new strategies moving into the future. And I appreciate the time and look forward to your questions.

  • Aaron Carruthers

    Person

    Thank you, Chair, Dr. Jackson. I'm Aaron Carruthers. I'm the Executive Director of California State Council on Developmental Disabilities. The State Council is an independent entity that exists to really disrupt systems to make it more effective, more efficient, more agile, and more accountable to people with developmental disabilities and their families.

  • Aaron Carruthers

    Person

    In one area where people with developmental disabilities want to see better results is in employment, and when we at the State Council ask the public, ask adults with developmental disabilities, what do you want us working on? For the past ten years, the number one answer among adults with developmental disabilities is employment. I want a job.

  • Aaron Carruthers

    Person

    I want to work, I want to contribute. And about ten years ago, California became an employment-first state, which means regardless of severity, the highest priority is competitive integrated employment. Now we've used that word, but what does it mean?

  • Aaron Carruthers

    Person

    It means real work for real pay in the community, in the real world. Despite people's desire and despite a vision in the law stating this is what the outcome, the ten-year employment rate stays about the same for adults with developmental disabilities, right around 15%. Sometimes it goes up to 17, sometimes down to 13.

  • Aaron Carruthers

    Person

    Let's just hover around 15. So when California is in good times, is in bad times: right around 15. Hundreds of millions of dollars invested into supports and services, still right around 15, so we need to do something different if we want a different outcome. Part of the lack of the results is the systems itself.

  • Aaron Carruthers

    Person

    No fault of anybody here at the table; just we humans can make things very complicated. So I want to show you a chart, a visual, and I'm happy to give the sergeant examples to share. You don't have to see the details on the chart to get the message. What this is is this is the user's experience.

  • Aaron Carruthers

    Person

    So if I'm a person with developmental disability and I want to get a job, this is how I navigate the system. The blue dots on here are DDS. The green dots are Department of Rehabilitation. And so the takeaways are one: the complexity, the complexity of the system. It's hard for anybody to get a job.

  • Aaron Carruthers

    Person

    Clearly, getting a job and job supports for a person with developmental disabilities is sort of like chutes and ladders or maybe like stops and dead ends because the second thing I'd like to point out is that there's really only one route here that leads to a job, and that's the one over here.

  • Aaron Carruthers

    Person

    The rest are stop signs and dead ends and people either getting frustrated and leaving the process or getting stuck in some place that doesn't result in them getting employment. You're just stuck in a training program forever. You don't get out. So the third thing to notice is really these two boxes over here; this is what people typically do when looking for a job.

  • Aaron Carruthers

    Person

    So we're looking for job, we apply, it's captured here in these two boxes. Everything else is what somebody with developmental disability needs to go through. It's all complexity. So getting better outcomes is not the responsibility of one entity or one department.

  • Aaron Carruthers

    Person

    Better outcomes come from looking across departments for better coordination and possibly, possibly simplicity. The number one recommendation in the State Council's 2023 report on how to phase out sub-minimum wage was to create an Employment First office. We've ended sub-minimum wage. No one's paid sub-minimum wage in California. This is a huge policy win.

  • Aaron Carruthers

    Person

    We pause, we take them and we get them, this matters. Additionally, there's now 1,117 adults with developmental disabilities who are earning minimum wage who were earning sub-minimum wage before. Again, huge outcome. As Assistant Secretary Dr. Cooper pointed out, that's step one, though. We're only in phase one. Phase two is getting people into competitive integrative employment, and to do that, we need to do something different because we're not getting any different results.

  • Aaron Carruthers

    Person

    An Employment First office outside of any single implementing department would have the ability to coordinate among departments for efficiency, have the ability to reach across state functions, to say, Labor Agency, Department of Education. I know my colleagues here work with them closely. Very good people. They are deeply committed to this outcome, but the ability to get the right outcome is bigger than any one person.

  • Aaron Carruthers

    Person

    It's simply beyond their control. So--and we know evidence of this. Despite best efforts, there's no consensus on state level goals or ways to achieve alignment. We hear a lot of activities. These are really good efforts, but are they coordinated and are they aligned toward competitive integrated employment across departments? Instead, DDS, Department of Rehab, Education launch their own initiatives and oftentimes with mental coordination. I believe the next speaker will give her experience on those multiple efforts.

  • Aaron Carruthers

    Person

    So despite these efforts, there are still systemic structure--barriers that are bigger than, again, any one initiative. The biggest barrier is that the payment system itself is inverted. It doesn't pay the best for the best practices that we know about. We heard good amplification of two important initiatives of Coordinated Career Pathways and the paid internship program.

  • Aaron Carruthers

    Person

    Both of those are paid the lowest. So we can see this because when people left sub-minimum wage, where do they go? They went largely into day and look-alike programs and they went into community integrated training programs. Those have the higher reimbursement and payment rates. So things are inverted and things are flipped.

  • Aaron Carruthers

    Person

    So good people trying to get--are still doing good things but getting the same results, 15%, and it's time to do something different. An Employment First office would have the ability to analyze the barriers like the rate structures, see how efforts in different departments can be coordinated, reach out to Labor Agency, Education, as I mentioned before, get consensus on goals. There's a lot they can do, but one more opportunity want to make sure that we pay attention to, which is the Master Plans, plural, need coordination.

  • Aaron Carruthers

    Person

    So the Master Plan in Developmental Services and the Master Plan in Career Education both both give nods to each other. The Department of Developmental Services gives a nod to employment. Career Education touches on disability. These are major efforts that need focus and attention to make sure their goals and initiatives maximize employment outcomes for adults with developmental disabilities. So thank you very much. State Council stands ready to be a partner to achieve people with developmental disabilities' number one priority: employment.

  • Carole Watilo

    Person

    Hi, Dr. Jackson and members of the committee. Thank you for letting me be here today. I appreciate your comments, Dr. Jackson, on the need for a roadmap and to break down the silos, and that's what I'd like to talk about.

  • Carole Watilo

    Person

    My name is Carole Watilo, and I'm the Executive Director of a small nonprofit here in Sacramento, Progressive Employment Concepts, which my husband and I founded 30 years ago this year. I am also a member of the board of California APSE, and I come to this work having grown up with five nieces and nephews, now adults in their late 30s and 40s, who use all of the services we're talking about here today.

  • Carole Watilo

    Person

    What I have experienced as a family member and a service provider, I feel, is a result of the lack of a comprehensive statewide vision for employment services for individuals with intellectual and developmental disabilities. As we have heard, our system is very large and the number of--in it--the number of people served in it continues to grow.

  • Carole Watilo

    Person

    As a result, our system is overly cumbersome for individuals and families to navigate, especially in the areas of employment. It is also difficult for providers to navigate. Having served on a fair number of work groups, committees, task force, member organizations, subcommittees, group, group, groups, with a great number of wonderful people who are working on important issues and really want to see changes happen.

  • Carole Watilo

    Person

    However, when one thing that many of us have found is there's a lack of coordination of all of these efforts. I have literally been in a work group meeting with representatives from the different state departments talking about employment and gone into another work group meeting later that day with different members of the same state agencies who don't know about the other work group.

  • Carole Watilo

    Person

    And I don't say this to be disrespectful--DDS, DOR, Department of Ed, these are big departments with many roles to play, and I understand how this happens, but it also demonstrates the need for a focused office to oversee employment if we are to see changes in the outcomes.

  • Carole Watilo

    Person

    While many of the outcomes of these work groups are good things like Coordinated Career Pathways Navigation Services--it's a good step--however, if we lack services to navigate to, then we will still not see the outcomes we want and that people deserve.

  • Carole Watilo

    Person

    To note, the LAO in their March 5th Budget summary referenced that 600 people transitioned from sub-minimum wage to community integration training programs. This service came to being over the last couple decades as a need for services for individuals that we're not succeeding in other employment or community-focused services.

  • Carole Watilo

    Person

    However, this service is not even in the new rate study service descriptions. Tailored Day Services were also designed to meet a need for individual services focused on employment, postsecondary ED options, and to help people gain skills in the context of inclusive communities, but the hours restrictions and the low rate of reimbursement, not commensurate with what it takes to provide the service well to all individuals, has led to low utilization.

  • Carole Watilo

    Person

    So where will these individuals get support to find and maintain employment? The Employment First Office. We were all very eager to work toward the creation of an Employment First office housed in CalHHS where the efforts of multiple state agencies and their respective committees and initiatives could be viewed through the lens of Employment First.

  • Carole Watilo

    Person

    As envisioned and described, the Employment First Office would track, analyze, and publicize utilization and outcomes, establish and improve mechanisms for measuring success and drive quality improvement, identify and disseminate best practice, make recommendations for legislative, regulatory, and policy changes consistent with Employment First and based on the collection of data and known best practice. The E1O office gives us the opportunity to really streamline a lot of these individual siloed processes.

  • Carole Watilo

    Person

    The times we're living in, it's imperative that we are using our resources effectively and efficiently. We currently, and in the new rate study, pay more for services that have no intended outcome of employment. That is not to say that they are not good and beneficial services. However, California has said it's an employment-first state.

  • Carole Watilo

    Person

    If this is true, then our output of resources should reflect this. And I do understand that there's a cost associated with the Employment First office and with adjusting rates to be commensurate with skills needed to provide employment services well. There is also a return on that investment.

  • Carole Watilo

    Person

    In my small agency, the people we support last year made $719,000 in income, paid around $92,000 in taxes, and lessened their dependence on Social Security, and they felt like contributing members of their society. Their self-esteem improved, they made friends, were less isolated, they bought things and participated in our economy.

  • Carole Watilo

    Person

    This is the return on investment we want from our tax dollars. In closing, we need to do things differently if we want the outcomes to change. All of the lovely areas that were mentioned and all of the things that we are working on in the different departments and in the different Regional Centers across the state are wonderful, but they're still siloed, which leaves individuals and providers still struggling to keep up. We know what it takes to help people get and maintain employment.

  • Carole Watilo

    Person

    There are models to follow. However, we all have to be moving in the same direction and we need resources allocated intentionally on the outcomes we want to see. An Employment First office gets us all moving collectively in the right direction. Services such as CCP coupled with Tailored Day Services or a new community inclusion employment service will advance employment for Californians with intellectual and developmental disabilities. Thanks for your time.

  • Corey Jackson

    Legislator

    Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance. Nothing further to add.

  • Corey Jackson

    Legislator

    LAO?

  • Karina Hendren

    Person

    Thank you, Dr. Jackson. Karina Hendren with the LAO. First, we don't have any comments on the Office of Employment First, but we do have comments on the phase out of sub-minimum wage. So SB 639 of 2021, this has already been referenced. Just as a reminder, what SB 639 did is it established legislative intent that employees working under sub-minimum wage should transition into competitive integrated employment.

  • Karina Hendren

    Person

    And to this end, we recommend that the Legislature ask DDS to provide regular updates on the status of individuals who recently transitioned out of sub-minimum wage and whether they've been placed into competitive integrated employment.

  • Karina Hendren

    Person

    We've heard that the Administration is committed to finding placements for these individuals and we think that a particular focus is warranted for the approximately 13% of individuals identified by the department who have not yet started new services, and the Legislature could use its oversight authority to track whether these individuals have found alternative services and ideally placements in competitive integrated employment.

  • Karina Hendren

    Person

    This will help ensure that the implementation of SB 639 aligns with legislative intent, and as noted in the agenda, the LAO would be happy to assist with SRL or any language to effectuate that oversight. We also had a comment on Coordinated Career Pathways. This is a new service that's been mentioned a few times. As the Administration noted, this is a new service that requires a higher level of skill among the DSPs who provide it.

  • Karina Hendren

    Person

    We've heard from stakeholders that there is some interest among both Regional Centers and providers in receiving technical assistance so that they can provide this new service effectively, and so we're recommending that the Legislature could ask the Administration whether there's capacity to provide this technical assistance so that this new service can reach its intended potential in helping individuals secure competitive integrated employment.

  • Corey Jackson

    Legislator

    Thank you very much. Dr. Sharp-Collins.

  • Lashae Sharp-Collins

    Legislator

    Thank you guys so much for bringing forth this, this information. I've learned a lot, so thank you so much. I think it was Aaron, when you were talking about the new model and the pilot programs. I'm out of San Diego, so I just wanted to know if you can give me just a little bit more insight in regards to who you're working with. Is it the Regional Centers or who are you working with down there in regards to the pilot and how long has it been going on and what is it?

  • Aaron Carruthers

    Person

    I did speak to pilot programs in San Diego or specific ones.

  • Lashae Sharp-Collins

    Legislator

    Correct. Okay.

  • Aaron Carruthers

    Person

    Thank you.

  • Lashae Sharp-Collins

    Legislator

    Okay, so it was--it's the person that does everything. All right, it's Victor.

  • Victor Duron

    Person

    Thank you so much for the question. So one of our two pilots is in collaboration with the San Diego Community College District, and so we are enrolling individuals with developmental disabilities who are identified as individuals who might have otherwise gone into sub-minimum wage settings to provide a variety of different supports.

  • Victor Duron

    Person

    So the regular employment services, trying out other individualized supports, going through training, vocational training programs, and then we are working with San Diego State University's research foundation--sorry--San Diego State University's Research Foundation Interworks Institute to provide program evaluation and technical assistance, and we'll also be working with UCLA's Tarjan Center for additional technical assistance on employer engagement.

  • Victor Duron

    Person

    And if your office would like additional information on the work that we're doing in San Diego and that particular pilot, my team would be happy to pull some additional data together for you. Absolutely.

  • Corey Jackson

    Legislator

    Let me just make a few comments and then I have some requests from the Administration. We are very concerned with the actions that have been taken with the Employment First Office, and this committee really finds it extremely disrespectful to virtually kill an office that was negotiated by two co-equal branches of government.

  • Corey Jackson

    Legislator

    It is not acceptable for us to find out without any communication, any collaboration on this item. It is clear that we cannot continue on with the status quo when it comes to this. And we find it very difficult to continue to engage in agreements on budgets only to find that the Administration seeks to do something different.

  • Corey Jackson

    Legislator

    It damages the future trust of the budget process and it needs to stop. And so we remain committed to ensuring that the Employment First Office finally gets implemented and we're not going to stop until this gets done.

  • Corey Jackson

    Legislator

    This is definitely not a budget issue because we're only talking about $1 million when we have seen the Administration propose additional funding for what I would argue less important things in the hundreds of millions of dollars at the same time. It is wrong and we will not remain silent on this issue. We expect this office to get done.

  • Corey Jackson

    Legislator

    So I am asking the Administration a detailed timeline and the process to implement the statutory mandates for the Employment First Office. We're simply asking to follow the law, and we ask that we get this information by May 14th.

  • Corey Jackson

    Legislator

    Additionally, we are requesting a quarterly update on the individuals per each department involved previously in sub-minimum wage positions and where they are transitioning to starting at a date certain. And we suggest that this reporting starts July 1, 2025 and then occur every quarter thereafter.

  • Corey Jackson

    Legislator

    For DDS, we are also requesting information on how technical assistance to Regional Centers--we also request information on how technical assistance to Regional Centers for the Coordination Career Pathways is occurring. It's important that we get this right. When we make a budget agreement, people are making plans, stakeholders and members of the IDD community are given expectations, and so we will maintain a priority of consistency and predictability.

  • Corey Jackson

    Legislator

    And most importantly, when we say we're going to do something, we are going to get it done. And if we believe that it cannot be done, then we are going to re-engage in the communication and collaboration process in order to make this happen. So with that, thank you very much for this panel.

  • Corey Jackson

    Legislator

    Let's bring up issue number three. Respite services utilization trends and issues. We're also looking for the San Diego Regional Center.

  • Mark Klaus

    Person

    Right here.

  • Corey Jackson

    Legislator

    Oh, right there. Department of Developmental Services. Right there. Somebody's missing. No. Okay, we got everyone. Okay. Alright. DDS, you may begin when you're ready.

  • Michi Gates

    Person

    Thank you. Good afternoon and thank you for the opportunity to participate in this discussion on respite. I'm Michi Gates, the Chief Deputy Program Director. Chief Deputy Director of Program Services at DDS. My title is too long and I still don't have it down.

  • Corey Jackson

    Legislator

    At least you only have one title because before.

  • Michi Gates

    Person

    I know. Yeah, I haven't started custodial duties yet. Respite is a commonly used service for individuals served by the Regional Center and their families. Many families whose children live in the family home utilize respite for temporary care and supervision for their son or daughter. And this allows the family to take a break from the constant supervision and care.

  • Michi Gates

    Person

    For today, I will focus on in home respite, which is used far more than out of home respite. The majority. There are different ways in which in home respite can be provided. The majority by far are provided through an option called agency respite.

  • Michi Gates

    Person

    But it is also provided through participant directed options employer of record, which is done through agencies. And for those in the self determination program, respite is also available. These different options do offer flexibilities for families to recruit and select respite providers that fit their particular family needs.

  • Michi Gates

    Person

    For example, families may want to choose relatives or close friends, people who understand their culture, speak their language, and who have an existing trusting relationship. On page 19 in the agenda, you will see there is a graph at the top of the page regarding in home respite.

  • Michi Gates

    Person

    And you can see that over time from fiscal year 16-17 through fiscal year 23-24, that the overall number of individuals who used in home respite has increased, as have the total expenditures. So the money spent on respite over that same time period, the caseload of those receiving respite steadily increased from 85,000 to 150,000.

  • Michi Gates

    Person

    And that's a reasonable increase given overall caseload growth. But you'll see that total expenditures had a much more dramatic increase from 310 million to 1 billion per fiscal year over that time period.

  • Michi Gates

    Person

    In fiscal year 23-24, 34% of the individuals, so that's 150,000 individuals out of a total of 440,000 individuals served, receive services from the Regional Center system through respite services.

  • Michi Gates

    Person

    And the demographics of that 34% by race are 46% Hispanic, 21% white, 11% Asian, 14% in the other category, and 8% black. By language, 75% spoke English, 21% Spanish, and 4% consisted of Chinese, Vietnamese and other combined.

  • Michi Gates

    Person

    Overall, based on the expenditures, the amount of in home respite services being provided is greater for individuals who are Hispanic, followed by Asian and black. Individuals who are white appear to be using slightly less respite on average.

  • Michi Gates

    Person

    Access to respite services begins with knowing about the service that it exists and discussing the need with their Regional Center service coordinator. Regional Centers have a primary role in informing individuals and families in the community about respite services.

  • Michi Gates

    Person

    The Department is also actively working to improve information available to individuals and families, such as the new guide to California's Regional Center services system, which is now available on our website in seven languages.

  • Michi Gates

    Person

    Relatively new services and supports such as enhanced Regional Center service coordination, the 1 to 40 caseload ratio and coordinated family support services can increase opportunities to identify specific needs and provide support with accessing those services. There are workforce shortages in the system.

  • Michi Gates

    Person

    I think that's well known in particular, rural areas may lack a sufficient worker pool to hire from. There may be a lack of workers who speak the family's language and understand their culture. Respite agencies who hire family identified workers expand the range of options for families to be able to hire someone they know and trust.

  • Michi Gates

    Person

    The department's development of a standardized vendorization process may also lead to greater ease with bringing on new vendors and agencies. The standardized respite support tool and procedures will also offer consistency. Regional Centers will be trained and begin to use these in January of 26.

  • Michi Gates

    Person

    Uniform process across the Regional Centers offers transparency and the ability to compare data on authorizations and utilization to better identify trends and access issues. Thank you.

  • Mark Klaus

    Person

    Good afternoon. Chair Dr. Jackson and Committee Member Dr. Colin Sharp from San Diego. My name is Mark Klaus. I'm the Executive Director of the San Diego Regional Center. San Diego Regional Center serves two counties, San Diego and Imperial counties, two neighboring counties that are distinctly different in demographics and opportunities. And Dr.

  • Mark Klaus

    Person

    Gates mentioned a number of the items, but I wanted to provide a little insight, I guess into San Diego. Looking at our numbers the last quarter we had approximately 11,150 individuals or about 27% of the families that we support in San Diego County with authorizations for respite.

  • Mark Klaus

    Person

    The utilization in San Diego is actually almost mirrors the statewide averages just in terms of utilization authorizations, you know. But we are also seeing slight increases in utilization, which is good. You know, getting the authorization to receive those services is wonderful.

  • Mark Klaus

    Person

    But actually receiving those services is even more important in Imperial, where 86% of the county identifies as Hispanic, many of those families being monolingual Spanish speakers. We support about 4,500 individuals in Imperial County. Half. Over half of the families that we support, individuals are receiving respite services.

  • Mark Klaus

    Person

    You know, the average growth in Imperial to our caseloads reaching out to families is over 8.5% this year. We're trending a 13% increase. And families served. Dr. Gates mentioned a number of the different options that are available to families.

  • Mark Klaus

    Person

    One that is kind of a combination of family directed and agency, or participant directed and agency is utilized by one of our largest vendors in Imperial County. They support just over 900 families year to date. 95% of the families in Imperial county are. They're using, excuse me, 87% utilize this combination of agency and family directed.

  • Mark Klaus

    Person

    So the families reach out to the agency, the providers, and say, you know, here's a staff person we would like you to hire. We don't want to go through the paperwork. We don't want to go through everything that we need to do.

  • Mark Klaus

    Person

    If would you hire them and would you be our, you know, essentially the employer of record, so to speak. So 87% of the families in Imperial County have chosen that model. The utilization of respite hours for those 87% of the families is 95%.

  • Mark Klaus

    Person

    They're getting services, which is much different than many of the other communities where there's a labor shortage. So it's reaching out to our communities, trying to find out what they want, what they prefer. And Dr. Gates also mentioned, you know, access, you know, in staffing from a staffing agency perspective is difficult.

  • Mark Klaus

    Person

    The other challenges with respite are two other types of respite. Not just standard respite, but also behavioral respite and medical respite services are very challenging to get providers. And the other for many of our families is transportation. You know, those in rural communities that have limited access to providers if they're not family specific.

  • Mark Klaus

    Person

    I'll use Imperial again as an example. If you live in the north part of Imperial county in Nyland, there's not a lot of providers out there, not a lot of vendors, so that transportation and I know DDS and others are looking at how that rate can support families to get the services they need.

  • Mark Klaus

    Person

    One of the idea is to improve services. As Dr. Gates mentioned, the Senate Bill 138, the standardized assessment tool, I think will be helpful.

  • Mark Klaus

    Person

    To me, it's also outreach, Regional Centers, community based partners, organizations working together, not just educating families in terms of the services that are available, but also marketing to potential providers, potential service providers, you know, and to me, you know, it's community engagement.

  • Mark Klaus

    Person

    It's meeting people where they are, when they're there, and being a part of the community to continue to spread this information. So appreciate the opportunity.

  • Corey Jackson

    Legislator

    Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance. Nothing further to add.

  • Corey Jackson

    Legislator

    LAO.

  • Karina Hendren

    Person

    Karina Hendren LAO, no comments at this time.

  • Corey Jackson

    Legislator

    Any questions for or comments from committee members on this item.

  • Corey Jackson

    Legislator

    Doctor Sharp-Collins.

  • Lashae Sharp-Collins

    Legislator

    Yeah. When it comes to, comes down to respite, one of my questions now considering, you know, issues with ICE and other things happening. So when a child is no longer, I guess is now moving to temporary custody, I just want to make sure.

  • Lashae Sharp-Collins

    Legislator

    How is that outreach being done to the family or someone else who's taken in that child? Is that the eligibility is, is it being transferred over? I'm just wondering, curious about how that process is, especially coming out of Imperial Valley. That's, you know, it's different and their needs are a little bit more different.

  • Lashae Sharp-Collins

    Legislator

    So I'm just wondering how are we dealing with those families that are being displaced?

  • Mark Klaus

    Person

    We're. We're providing at this point. Dr. You know, we're providing information to families. We have not had any families put in that situation at this point. But I. Imperial is a very close knit community. It's a very small community. And I think that speaks a lot to the respite services, the utilization of that respite.

  • Mark Klaus

    Person

    There's trust in hiring your own staff from your own community that looks like you, that has, that speaks your language versus calling up an agency and saying, send me somebody tomorrow.

  • Mark Klaus

    Person

    I don't, you know, I wouldn't feel comfortable having somebody that I've never met before caring for my child or grandchild, but calling my neighbor or, you know, a friend that I work with, you know, that that circle of trust is a lot.

  • Mark Klaus

    Person

    And that's why we see the successes, you know, in many of our communities in San Diego. But it's easier to identify in Imperial because it's separate, so to speak. Yep.

  • Corey Jackson

    Legislator

    We set this panel to emphasize just how important we need to continue to focus on respite services. This is hard, stressful ruling work in the name of love. And we have got to continue to find. I'm glad we have an increase in respite services.

  • Corey Jackson

    Legislator

    I know it also puts other pressures, but it's a good problem to have because people taking care of their loved ones is essential. And without respite services, it's hard for them to do it in a healthy way. Bad things happen when you don't get enough sleep or no sleep or no sleep.

  • Corey Jackson

    Legislator

    I'm thinking about my own mother when it comes to this and then my own breaks in the legislature. I'm finding ways to go to give some respite for my own mother who's taking care of her mother with dementia. Right.

  • Corey Jackson

    Legislator

    And a difference that it makes to be able to get regular sleep, to be able to eat properly, to be able to get Some fresh air and exercise makes a world of difference in the care of the people that they care about. We're going to continue to bring this issue up.

  • Corey Jackson

    Legislator

    We're going to continue to find ways for us to continue to give people the respite care that they need because they're doing all of society a great benefit. Thank you very much to this panel.

  • Mark Klaus

    Person

    Thank you.

  • Michi Gates

    Person

    Can I just add one thing too?

  • Corey Jackson

    Legislator

    Oh please, please.

  • Michi Gates

    Person

    I forgot to mention that the standardized family support tool that the department is developing, which will be done very soon, also contains standardized assessment for personal assistance and daycare as well.

  • Michi Gates

    Person

    So the tool will not only help with consistency and transparency about respite and how much respite, but also with those two other rather related, though very different services as we know that sometimes, you know, things can get lumped in under respite that aren't necessarily respite.

  • Michi Gates

    Person

    And I think it's helpful to really, you know, very specifically identify the needs and and make sure the individual and family is getting services specific to those needs. So. But yes, respite is absolutely vital to maintaining families, keeping them together. And that is huge, hugely important.

  • Corey Jackson

    Legislator

    See, that's the problem with making more comments. Now, I have a question.

  • Michi Gates

    Person

    I took that risk.

  • Corey Jackson

    Legislator

    They should teach you a lesson. Actually, my question is for the Regional Center. What are we doing? See what happens. That's what happens. Guilty by association. That's what that is.

  • Corey Jackson

    Legislator

    Do we have targeted questions that we ask clients to identify whether they are in need of respite services because they may not even know it exists or is possible? What are we doing to ask them, you know, how are you. Are we asking them? Are you getting regular sleep or do you need additional assistance?

  • Mark Klaus

    Person

    You know, those are individual discussions with each family, you know, with the service coordinator. What are your needs? You know, we go through those basic questions. What kind of supports do you need? What's your.

  • Mark Klaus

    Person

    The standard IPP process, which is also a new process that all Regional Centers are utilizing, ask some very specific questions in terms of immediate needs as well as future needs and future planning for families as well.

  • Corey Jackson

    Legislator

    Do they incorporate simple questions like, how is your sleep patterns?

  • Mark Klaus

    Person

    I don't know if that one's in there. Honestly.

  • Michi Gates

    Person

    That's, yeah.

  • Corey Jackson

    Legislator

    So, I mean, when I'm having a bad day, I ask myself, did you eat, Corey? Because you might be a danger to other people if you haven't eaten. Right? I mean, sometimes I think we get. So I'm not saying this is you, but I'm just

  • Mark Klaus

    Person

    So clinical

  • Corey Jackson

    Legislator

    Correct that sometimes we just don't ask the human questions, right?

  • Corey Jackson

    Legislator

    Because sometimes people may not. If you ask my mom, are you getting enough sleep? She might say, oh, I'm fine. Right. And in my mind I'm like, you lying. Right. Sorry, mom, sorry. I would encourage us to think just on the human level. Right.

  • Corey Jackson

    Legislator

    And by the way, you may already be asking these, but I would encourage you to check and all of members of ARCA to check to make sure that we're just asking the basic questions about what it means to be healthy.

  • Corey Jackson

    Legislator

    Because sometimes when you have a open ended question, which is the proper way to do so, most of your questions should be open ended. Right. And so that you give them time and you're not trying to guide the conversation in a certain direction. No doubt about that.

  • Corey Jackson

    Legislator

    But on certain questions, some questions just need to be asked that I would just encourage us to make sure that we're doing. Because those who are taking care of loved ones, they're superheroes. And many of them will not complain and won't tell you when they may need help. Right. They're just dedicated to getting it done.

  • Corey Jackson

    Legislator

    And so I would just like to provide that feedback.

  • Michi Gates

    Person

    And I think that's the efforts that we're trying to make that is at the core is asking those kinds of questions. When the service coordinator meets with the individual and family.

  • Michi Gates

    Person

    And so that's behind the standardized IPP that the Department created that all the Regional Centers are using that is very person centered and outcome oriented, it will get to those questions.

  • Michi Gates

    Person

    All of the training that service coordinators receive that help them to know how to ask those kinds of probing questions, if it's not volunteered, how they can continue to ask those questions to get to those issues.

  • Michi Gates

    Person

    Also the person centered thinking training, which is now something that all Regional Centers participate in that really focuses on identifying the those needs and doing a better analysis and having that better conversation and developing that.

  • Michi Gates

    Person

    That trusted relationship between the service coordinator and the individual and family so that they won't withhold information or say, zero yeah, everything's fine. Yeah.

  • Mark Klaus

    Person

    How's your day? It's a great day. And some days aren't so great, but the answer is, I'm having a good. It's a good day.

  • Corey Jackson

    Legislator

    Absolutely. And is this the process? Do you have additional question?

  • Corey Jackson

    Legislator

    Okay.

  • Corey Jackson

    Legislator

    Absolutely.

  • Mark Klaus

    Person

    Yeah.

  • Michi Gates

    Person

    Yes.

  • Mark Klaus

    Person

    Absolutely.

  • Michi Gates

    Person

    That's absolutely. The Regional Center is also participating in the cultural sensitivity training to, you know, help with identifying what are those cultural issues that may be part of that.

  • Corey Jackson

    Legislator

    Conversation and what part of your process assesses for the most complex behavioral medical needs.

  • Michi Gates

    Person

    Besides the individual program plan and the planning team meeting.

  • Corey Jackson

    Legislator

    Right. I mean, what part of that process helps too? Is it just through your, you know, I'm sure that sometimes there may be a new issue that arises. Yes. And how are we assessing in the times when there's follow up. Right. When there might be an emergence of a more complex behavioral health need or things like that?

  • Corey Jackson

    Legislator

    What's that process look like?

  • Michi Gates

    Person

    Yeah, there's, I mean, there's formal assessments. If you know, for example, there's a new mental health issue or a new behavioral issue, there are formal assessments and providers that can be used to assess for that.

  • Michi Gates

    Person

    But also, just within the person centered thinking process, there are tools that are provided to just assist with the conversation, how to focus on that individual and putting that individual and their needs at the center of the conversation and also giving them and the family that voice to lead and drive the conversation, services and supports and the goals and dreams that they have for their life.

  • Michi Gates

    Person

    So there anything from the informal just again, establishing that relationship, building that trust, knowing how to have that conversation and that probing conversation when needed to formal assessments that can be provided by Clinicians.

  • Mark Klaus

    Person

    And I think a lot of that is that building those relationships. Some of those are longer term behavioral or family needs. Some of them are short term. In working with a family this morning, single mom, two children served by San Diego Regional Center is expecting her third child. You know, do you need anything else? No, I'm fine.

  • Mark Klaus

    Person

    We're like, are you sure you don't need anything else? Well, it'd be nice to get a little more respite so I can get, you know, my, my medical appointments done. Great.

  • Mark Klaus

    Person

    You know, that's, I don't know, short.

  • Mark Klaus

    Person

    Nine months is short term, but that's a shorter term fix that helps. That helps support that, that family, that mother and those children.

  • Corey Jackson

    Legislator

    Well, sometimes it's that extra day that determines. Yeah. Whether, you know, it's under those extreme long term pressures. There's too many possibilities of the caregiver even going into a state of crisis. Right. And we want to prevent that, prevent that from happening. Thank you so much for this panel. Unless you have another call. Thank you.

  • Corey Jackson

    Legislator

    Thank you, Doctor.

  • Mark Klaus

    Person

    Talk later.

  • Corey Jackson

    Legislator

    Was I supposed to read this? Oh, okay.

  • Corey Jackson

    Legislator

    I was like, oh, did I miss some?

  • Corey Jackson

    Legislator

    Did I miss your. What you were saying? Okay, now we'll bring up issue number four, aging individuals in the Developmental Services system. We'll bring up the director as well as Disability Voices United.

  • Corey Jackson

    Legislator

    You may begin when you're ready.

  • Pete Cervinka

    Person

    Mr. Chair and Members, I'd actually like to defer the beginning of this based on the questions in the agenda to my co-panelist next to me, if that's okay with the Chair.

  • Corey Jackson

    Legislator

    Yes, I hear an icon is in the house.

  • Sherry Novick

    Person

    Well, and so what that means is that he's going to have a chance to answer every criticism I have of the Regional Center system.

  • Pete Cervinka

    Person

    I'm stunned she would have criticism, sir.

  • Sherry Novick

    Person

    Well, Honorable Chair, Members, it's really a pleasure to be here. Nicole, I want to particularly applaud your staff work on the preparation for this because I know what that takes. My daughter is 33 years old and I had her when I was working right over there across the hall from 447, which was our hearing room for the Assembly Human Services Committee, which I worked for through two Member, two chairmanships.

  • Sherry Novick

    Person

    It was in the days of quick turnaround of Members. My daughter was born with a congenital very unusual syndrome that includes both developmental and physical disabilities. So we've lived through this. She's now 33. I will tell you, I am now 72. Kind of shocking, but I think we fit the description of what I'm supposed to do in this panel. And I think I might be the age of your mother's mother.

  • Corey Jackson

    Legislator

    I plead the fifth.

  • Sherry Novick

    Person

    You know, where I would start is that we need to remember that when a person ages, what their life is now directly affects what it will be when they age. If a person with IDD has never learned to participate in the community, make friends, hasn't ever had a position or job that makes them feel a sense of belonging, if they lived in a community that was not accepting, if they were totally unintegrated into the community, if they've had to rely primarily on their parents for their primary emotional and personal support, all of that predicts a bad outcome for when they age.

  • Sherry Novick

    Person

    As we engage in person centered planning, we have to remember that what we're doing today when our children are young adults creates the foundation for their future as well. So for instance, to the question of conservatorships. There are about 50,000 Regional Center clients who are conserved in California.

  • Sherry Novick

    Person

    Over half of them are conserved by strangers who are not in their family. These are public guardians, professional conservators, service providers, DDS, and in some cases the Regional Centers themselves. Conservatorship is a legal mechanism that significantly limits individual rights and choices.

  • Sherry Novick

    Person

    The person with IDD loses the right to make their own choices even when... Now they may have a good conservator who consults with them, but they don't have the right to that, right. So even when they have been able to make decisions in the past with support.

  • Sherry Novick

    Person

    So I was very pleased to see that supported decision making was highlighted in the master plan recommendations because it's a mechanism in current statute, and we're starting to see it in other states as well, that recognizes that individuals can choose support to teams that will help them make their decisions. And these teams are legally built in to a relationship that clarifies the roles and responsibilities.

  • Sherry Novick

    Person

    You know, as much as we fear that our kids will end up with a conservatorship or in a situation where someone has control over their lives who doesn't know them, who doesn't respect them, who doesn't really know that this is a person who does a lot of things and cares about a lot of things, we still often as parents turn to conservatorship because we just don't know what else exists.

  • Sherry Novick

    Person

    I think most families... Now this I hope is changing and I think this is something that I think the Regional Center is taking very seriously. But most families, you know, when parents are getting old, I'm not that old yet, in 15 or 20 years, I might say this. But when parents are getting old, they really feel desperate and so they just want to make sure their kids are safe. Right. So if they haven't had that ongoing support to build community, to build relationships, to ensure that their child feels connected, they're likely to make a decision that they would rather not.

  • Sherry Novick

    Person

    So that comes back to the major point that what we're doing now with our kids in integrating them into the community matters a lot. To the question, I'm trying to address the questions. To the question about what happens when our children's needs become too difficult to address on a daily basis.

  • Sherry Novick

    Person

    I think we tend to think of this as being kids living at home. But I want to remind us that that is not necessarily the case. It's, you know, as parents, we think about and worry about our kids no matter where they are, whether they've got a developmental disability or not.

  • Sherry Novick

    Person

    I know for those of us in the room with kids, but when we're in a situation where we are the glue between all the silos. We are not even, the glue we provide isn't even always recognized by the service providers working with our kids, but we are in fact the glue. We have to really look at that role as we're planning for our kids futures and the systems that work with our kids have to look at that role also. Because I think they forget that there's somebody in the background gluing things together.

  • Sherry Novick

    Person

    The one last point I would make is, you know, I laud the developmental DDS for their new webpage. I hadn't seen it until recently about aging and disabilities. And you know, there are a lot of resources on that page and there are a lot of generic services mentioned on that page. And that is great.

  • Sherry Novick

    Person

    And it makes me very nervous because what we're doing is expanding the number of silos and generic services that have to be weaved together to make this work for our kids. I tracked the master plan process closely. I think it was a great process in many ways.

  • Sherry Novick

    Person

    DVU was involved. But I never really saw many of the other agencies that I would have liked to see there participating. And some of them, of course, aren't even under Health and Human Services. Right. So all of that just adds up to the need to really think cross system and recognize that we've not done a good job of managing those processes.

  • Pete Cervinka

    Person

    Thank you, Mr. Chair and Members. And to my colleague on the panel, I would simply say ditto. I mean, there's no substitute for lived experience in describing what the solutions or options are for people. Whether or not you have a child with developmental or intellectual disabilities, I think the question is always, what happens to them when I'm no longer able to take care of them?

  • Pete Cervinka

    Person

    It's a logical question. I would add family supports. We know once mom and dad can't do it anymore, a sibling may step in and take care of somebody. It may be hired strangers. So family supports, community supports, inclusion in the community. Critically important. An understanding of health and other health, behavioral health, other needs that somebody might have may dictate the care that they need once the parents are no longer able to do it. So it's obviously a very individualized decision making process.

  • Pete Cervinka

    Person

    And it has to do both with the socioeconomic status of the family as well as all of those other factors. I appreciate the agenda, page 22. We didn't provide a sum to that, but it's 76,000 people over the age of 40 receiving services through Regional Centers in California. That's the sum of the colored graphs at the top.

  • Pete Cervinka

    Person

    So this is a fairly significant portion of the population. What I will additionally share are a couple of things. One, the new statewide... Sorry, try not to use too many acronyms. The new statewide individual program plan includes, at age 18, questions about future planning. Kind of, who are the people closest to you to ensure...

  • Pete Cervinka

    Person

    You know, obviously it's an optional section, but it's there in that it's forced to be asked, but can be skipped if necessary. But it's forced at certain points in the process to be asked so that it's actively considered. It also includes a section about emergency notifications.

  • Pete Cervinka

    Person

    Very often in a number of other state programs, including one of our larger generic services, the In Home Supportive Services Program, this is kind of a mandatory piece where you're identifying what happens in an emergency. The people on that page are often the people that you end up relying on as well.

  • Pete Cervinka

    Person

    They're the closest, most important people to you in your life. So all of that's true. I would also add we will be coming to the community and some work has already been done on this led by members of our staff at the Department. Alternatives to conservatorship are really important. Supported decision making is obviously there. Guardianship, limited conservatorships, conservatorships.

  • Pete Cervinka

    Person

    Conservatorship is not the only option available to people. And I think it's important that we educate people about what those available options are. That document is being developed. We expect to get community input on it. After all, they're the audience for it and should have input. So I think those things are there. And something, frankly, to the cross system nature of it. Once we have that available, I think it's also going to be taken on the road with school districts.

  • Pete Cervinka

    Person

    We often hear at age 18 or 22, school districts encouraging parents, particularly as they get older, to consider a conservative for their soon to be graduate. That's not necessarily the most appropriate thing. And I think there's room to educate cross system as well. So it's a big deal. It's a very individualized decision.

  • Pete Cervinka

    Person

    The trigger points in the conversation are there through the individual program plan. Sorry, I keep trying to say IPP. And you know, I think, you know, there's a lot there. I'll also acknowledge in your agenda on page 23, there's a discussion as well about coordinated family supports.

  • Pete Cervinka

    Person

    And that program and future planning is service number four within that program as well. So there are some options to get support there. But that clearly doesn't reach everybody, given the scope of that service particularly. So thanks for your attention to this. It's something we hear quite a bit about, including in the master plan development process.

  • Corey Jackson

    Legislator

    Absolutely. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance. Nothing further to add.

  • Corey Jackson

    Legislator

    LAO.

  • Karina Hendren

    Person

    Karina Hendren, LAO. Nothing from us either.

  • Corey Jackson

    Legislator

    Director, do we, when the master plan comes out, will it include this specific population in terms of members of the IDD community who are aging or becoming in the aging community?

  • Pete Cervinka

    Person

    I fully expect there to be recommendations that both touch on this directly and indirectly.

  • Sherry Novick

    Person

    I wonder if I could add one more point because the Director is right that these are very individualized decisions, plans, and that's what person centered planning is about. But what can't be individualized is our assurance that there will be equity across.

  • Sherry Novick

    Person

    So, you know, the question of data and ability to actually know what the outcomes are, you know, amongst our population came up earlier and it's really important. It's going to be so easy to sort of shuffle these old people to the side. It happens to old people already in our society. Right.

  • Sherry Novick

    Person

    So it's really going to be important to see are the Regional Centers across the system, are the outcomes the same? Are families taking the various options at the same rate? How does it vary? Because it's not just, it's very individual planning and it's also individual to the relationship with that Regional Center. So I think it'll be extremely important to monitor what's happening to this population over time with real data.

  • Corey Jackson

    Legislator

    Absolutely. I want to be clear. There's going to be, there's two, this hearing specifically, this panel is specifically for the IDD individual who is aging. Right. And then next month we'll be talking about the caregiver who's aging and what services and supports we can begin to provide.

  • Corey Jackson

    Legislator

    Again, one of the main priorities of this Committee is really, as we know, our aging population is going to continue to grow. How are we making sure that our systems are going to be adjusting to that growing need? And based upon that population shift, what services should we be starting to plan on expanding? Because it'll be a growing percentage of that service than it may be today. Right.

  • Corey Jackson

    Legislator

    So we want to continue to think about these things and continue to make sure that we're not waiting until we're facing a crisis in a certain situation where maybe now we don't have enough providers for a specific service or now we don't have the proper amount of funding to be able to make sure that that service had.

  • Corey Jackson

    Legislator

    It might be a growing number of medical type services. Right. In most cases. And certainly more respite services as well, when you're thinking about it. So again, we want to continue to make sure that we're focused on this area intentionally on those that are aging, both on the client side and the caregiver side as well. Any additional questions or comments from Committee Members? Seeing none. Thank you so very much. Thank you. Next we'll move to issue number five, rate reform implementation and quality incentive payments updates and issues.

  • Corey Jackson

    Legislator

    And Mr. Director, your begin when you are ready.

  • Pete Cervinka

    Person

    All right, thank you. Just for the record on the last item, coordinated family supports is on page 24, not 23. So apologies to the committee on Rate Reform, Quality Incentive Program and Provider Directory. There is a definitely a lot that we can talk about here. So I appreciate the discussion in the agenda.

  • Pete Cervinka

    Person

    My high level recap of this rate reform has been a long time coming. Legislature requested a report in 2016 and 2019. It was delivered and the first investment came in the budget in 2022 with subsequent steps January of 24 and about 10-12-13 weeks ago. They go by fast now.

  • Pete Cervinka

    Person

    In January of 25 was the third and final implementation step of rate reform in California. Obviously in the intervening time there have been changes in cost factors, inflation of course being a big one. We had a single year of almost 9%.

  • Pete Cervinka

    Person

    I don't need to lecture this committee about the cost of insurance in California, but that's a big deal for transportation providers and others in our system. So what I will say is that and the statute for implementation of rate reform gives the department the authority to continue to review and update rate models.

  • Pete Cervinka

    Person

    And we already know that there are a number of issues with rate models that may require subsequent adjustment. We've made some, we've done some tweaks to the employment program, for example.

  • Pete Cervinka

    Person

    And so there's a trailer bill statutory proposal to align both the methodology for rate model implementation to be written directives from the department versus specific numbers in the statute, but also an adjustment for employment support services to also include a one to two ratio and to clean up the use of service codes, which was another goal of rate reform so that both profit and nonprofit providers of those services can both be in the same service code.

  • Pete Cervinka

    Person

    So there's, you know, some boring technical nuance to it all backing up for just a moment. This is an incredible multi billion dollar investment in California's service provider network not only to maintain it but to expand it in the face of rising caseload. And of course, the service providers employ people to actually provide the service.

  • Pete Cervinka

    Person

    So we're talking about a major workforce investment as well. Both of these are really unprecedented in our system. For a long time we were operating under rate freezes and doing funny machinations to make sure that services are getting to people.

  • Pete Cervinka

    Person

    The conversation that we had about respite services and barriers to it was actually the subject of a state auditor report a couple years ago. And the number one barrier was not having enough people willing to provide it for the wage that was offered.

  • Pete Cervinka

    Person

    So, you know, rate reform absolutely helps with that, but it needs to also be maintained investment with the cost of living. And so last year the legislature passed and the governor signed legislation that requires every two year revisiting of the rate models and an update on what they should be.

  • Pete Cervinka

    Person

    Note I didn't say that it promises the appropriation for the higher cost, but at least we know what we need to do in order to maintain both the service provider network and the workforce that it works for. The rate models include what we call a 9010 structure.

  • Pete Cervinka

    Person

    There's a 90% of the model base rate, and the remaining 10% is known as the quality incentive increment for the rate that has to be earned based on the quality of the service being provided by the service provider.

  • Pete Cervinka

    Person

    There's a long conversation that can be had about the history and development of the quality incentive program that determines that 10%. Needless to say, there's some basic fundamental investments that need to be made in our system, primarily in data collection, but also baselining what's actually happening in our system.

  • Pete Cervinka

    Person

    So for the last couple of years, the quality incentive program has been standalone outside the rate payments based on, for example, completing a workforce, a direct support professional workforce survey to find out how many people are employed, how much they're making, what languages they speak, basically surveying their capacity to serve people across California.

  • Pete Cervinka

    Person

    For this year, the quality incentive piece is 100% determined by provider's validation of basic information about them in California's first ever provider directory.

  • Pete Cervinka

    Person

    Up to this point, vendorizations of service providers by Regional Centers were done in a centralized database at each Regional Center, and we didn't have a single statewide view of how many providers there are in our system. So there's another long, complicated conversation to be had about that.

  • Pete Cervinka

    Person

    We are learning through this experience that we think we have around 3,400 or 3,500 providers in the sense of an agency with about 16,500 vendorizations in the provider directory as of last Friday, it looks like roughly 60% of providers have validated their information.

  • Pete Cervinka

    Person

    And given that we've spent a year outreaching to the provider community to get them involved in that provider directory, we're going to be increasingly looking at other options, including pausing their ability to submit bills to us until they call the help desk to get it squared away. So we are working on it.

  • Pete Cervinka

    Person

    What you heard from me one. Historic, massively important investment. Two, there's a lot of bumps that still need to be ironed out and we're working on it. Three, we appreciate that when folks raise concerns about that they get directed to us so that we know we're working on the right stuff to get it fixed.

  • Pete Cervinka

    Person

    And four, December 31st is the magic date coming up, December 31st, nine months from now, the magic date for services providers and Regional Centers to align their rates with the rate models based on the individuals being served and the service acknowledgement form that agrees that the services being provided by a particular provider are aligned with particular service codes and the rates for them.

  • Pete Cervinka

    Person

    There are additional features in the rate model implementation. The rates across California, one of the goals was to standardize them or as I say, squash the bell curve together on both ends a little bit. There are providers who are making more than the rate models would call for.

  • Pete Cervinka

    Person

    They have a hold harmless in current law that ends at the end of the day on June 30, 2026 the end of budget year. So there are some features in there. We think about 13% of our providers qualify for that hold harmless.

  • Pete Cervinka

    Person

    That number is growing as we get more providers between the 90% and 100% of the four rate models. And now you're just going to be glad that I'm stopping talking because it got really technical.

  • Barry Jardini

    Person

    So thank you, Mr. Chair, Director Cervinka, I was nerding out with you, so it's all. It's all good for me. Good afternoon. I'm Barry Jardini. I'm the Executive Director at the California Disability Services Association. We represent 120 providers who serve individuals with intellectual and developmental disabilities throughout the state.

  • Barry Jardini

    Person

    I'm here today in that capacity, but also as one of the three co chairs of the Lanterman Coalition, which is a coalition of statewide and regional organizations that come together really, to protect the fundamentals of the Lanterman act in California. Appreciate all the work that went into building the agenda today.

  • Barry Jardini

    Person

    I know you've already been called out once, Ms. Vasquez, but thank you again for a very comprehensive agenda that really lays out the issues particularly well. I've been here, asked here today to speak about some of the key issues and findings as we deal with rate model implementation and the quality incentive program.

  • Barry Jardini

    Person

    Director Trevinka did a really nice job, I think, of quickly summarizing kind of the history of how we got here. And I just want to reinforce a couple of key points, especially in light of some of the challenges that we're potentially going to experience at the federal level with federal funds, et cetera.

  • Barry Jardini

    Person

    It's really important to recognize what happens when funding is cut from our system. Back in 2008, when we had rate cuts and rate freezes. It has taken us 17 years to January 1st of this year before we get back to a point where rates are meant to be sustainable and paid at a sustainable rate.

  • Barry Jardini

    Person

    It takes a long time and time doesn't just tick over and we're waiting. People's lives are impacted every day when that happens. People with intellectual and developmental disabilities don't get the services that they need. They go on wait lists for services because providers can't hire staff.

  • Barry Jardini

    Person

    Workforce gets paid less than they should to do vital and important work to support people with intellectual and developmental disabilities. So these are things that have tangible, meaningful impacts on people's lives that are destabilizing. To steal your kind of framing for a lot of this, Dr. Jackson, these are things that matter a lot.

  • Barry Jardini

    Person

    And we are very excited that the legislature took this up, calling for a rate study, ultimately putting in place a five year plan, then a four year plan, then ultimately a four and a half year plan to get us to full funding. Director Cervinka correctly notes that we are finally there on January 1st, 2025.

  • Barry Jardini

    Person

    I would just say that in stages 1 and 2, which we needed to do, you know, an iterative process, we still weren't fully funded. Right. And we are still now just in the process of trying to shake all this out. 16,000 vendorizations three and a half thousand provider agencies.

  • Barry Jardini

    Person

    There has been a tremendous amount of work that has gone into trying to right size everyone's rates and get everyone to where they should be. That work is ongoing. I want to commend the department and the Regional Centers who have done kind of herculean efforts to try to get us there.

  • Barry Jardini

    Person

    It has been bumpy without question, but I will say that there's been a lot of responsiveness and openness to feedback from the department and it has been very much appreciated by the provider community flexibility as we try to make sure everyone gets what they deserve in terms of rates so that not.

  • Barry Jardini

    Person

    Not so that they can fill their coffers so that they can serve individuals with intellectual and developmental disabilities is the key.

  • Barry Jardini

    Person

    And again, appreciate that the Department has taken on a few services that we've already recognized, have some mistakes in the rate models and also an openness to discuss issues that still need to be addressed on an ongoing basis. I mentioned it's a.

  • Barry Jardini

    Person

    It's been a big task and the other component that Director Cervinka spoke to was this 9010 structure. And I just want to make sure everyone is on the same page. We have a couple of new members of the subcommittee and welcome by the way, welcome to our world.

  • Barry Jardini

    Person

    I don't want to presume one way or the other, but the 9010 structure, I don't want any misunderstanding. 100% of the rates was what was determined to be sustainable.

  • Barry Jardini

    Person

    The structure for the 9010 was a component of the acceleration plan that ultimately has a perfectly laudable and commendable intent, which is to make sure that as we're increasing rates, we're pushing for quality, that we're not just paying for any service, that we are paying to make sure people are not, are getting quality services that meaningfully impact and relate to their needs and wants in their lives.

  • Barry Jardini

    Person

    But 100% is again meant to be the sustainable level. And a 10% quality incentive payment, if not achieved is a very draconian sort of drop off. And it is a penalty structure the way that we've done this in California. And it is a bit out of line with some of the best practices for value based payments.

  • Barry Jardini

    Person

    So I would, I would urge us all to consider long term whether that's the structure we're looking for for the 9010 and whether there want to be any revisions so that we make sure that we're not destabilizing services as we pursue quality in our services.

  • Barry Jardini

    Person

    The provider directory as a foundational measure has been broadly available to providers, as Director Cervinka indicated.

  • Barry Jardini

    Person

    While we are continuing to try to make sure everyone updates that information, which is a critical component, it seems basic, but frankly to be able to know where services are, what people are offering, and then ultimately to be able to grow that into something meaningful for individuals so that they can see what services are available, so that we can not only use it for data on our, on the administration's end and from the back end, but really make it community focused and community friendly forward so that people can choose the services and they're not relying necessarily on someone else telling them what might be available, they can do some of that research themselves.

  • Barry Jardini

    Person

    It's going to be a really important tool and we're excited that it's, you know, going to be the qualifying measure for the 18, 18 months. Beyond that the question about what becomes that 10% qualifying metric is super important.

  • Barry Jardini

    Person

    We need to make sure it is broadly available because if we, as we work towards individualized outcomes measures, which is the goal, it's complicated stuff. No state in this, in the nation has figured out exactly how to measure outcomes in our system.

  • Barry Jardini

    Person

    We know that investment in workforce and investment in rates is a great quality metric when people have stable and consistent services with direct support professionals who are well trained and adequately supported. We see great outcomes. We know that to be true. But that's not alone enough.

  • Barry Jardini

    Person

    I'm not suggesting we don't continue pushing for excellence in all ways, but we do know that full funding is foundational to making sure that happens. I want to touch on I mentioned I'm here on behalf of Lanterman Coalition.

  • Barry Jardini

    Person

    We have put forward a stakeholder proposal that was sponsored by Assemblymember- Assemblymember Nguyen to do some technical cleanup on the rate study, which is all about maximizing the investment that we have made as a state and the impact and stabilizing services.

  • Barry Jardini

    Person

    So as Director Cervinka mentioned and I've mentioned, there are some services that, you know, we haven't gotten 100% right or need some fixes as we go forward. Some assurances about making sure billing. I mean this is some technical nerdy stuff.

  • Barry Jardini

    Person

    I was nerding out with Director Cervinka earlier and I'm, I'm not going to go too far in the weeds here, but there are some things like maintaining billing units as we transition into new services, making sure that hold harmless doesn't destabilize the system.

  • Barry Jardini

    Person

    As we approach that June 30, 2026 deadline, make sure that we have a process to build rates for innovative services. Ms. Swatila on the employment panel spoke to Community Integrated Training Program that doesn't have a rate model at this point.

  • Barry Jardini

    Person

    There are other great programs that have been offered to individuals with IDD because that's what they need and what they want for their lives that don't currently have a rate model.

  • Barry Jardini

    Person

    We want to make sure there's a process in place to build those rate models out and make sure that they are going to be available in the long run to them. And then I think Ms. Swatila also mentioned Taylor Day Services, which is an individualized service that also allows that making sure that that rate is right size.

  • Barry Jardini

    Person

    So those are some of the components of that stakeholder proposal. These are things that we believe to be cost neutral at least in budget year and we would pursue to try to again maximize the impact and stabilize services. And happy to answer any more questions that the subcommittee has on that point.

  • Barry Jardini

    Person

    I will finally note, just with a little bit of appreciation for this committee and for the partnership that has happened between the legislature, the department's partnership and the Regional Centers and really all the stakeholders, ultimately the families and family members who work together to make this happen. Our system only works if everyone's pushing in the same direction.

  • Barry Jardini

    Person

    We're all here for the same purpose, which is to make sure people with intellectual and developmental disabilities live full, inclusive lives as any Californian will. And so it's often, I mean, this hearing in some ways is about trying to figure out where the cracks are. But there are life changing and life affirming services happening every day.

  • Barry Jardini

    Person

    And some of that has happened because of the partnerships between the legislature, the leadership, the administration, and everyone else in the system who's so committed to it. So just a moment to acknowledge. A lot of great work and a lot of the strength and support of the legislature has facilitated meaningful things in people's lives.

  • Barry Jardini

    Person

    So I just want to close with that. Thank you.

  • Teresa Anderson

    Person

    Well, my co presenters up here really teed up the workforce, the importance of the workforce for me, didn't they? Good afternoon Dr. Jackson, committee members and committee staff. My name is Teresa Anderson. I'm the Executive Director for the California Policy Center for Intellectual and Developmental Disabilities. Thank you for the opportunity to share findings from our recent report.

  • Teresa Anderson

    Person

    Over the last year, we undertook an extensive look at the impact of the DSP workforce shortage on individuals with IDD and their families. We conducted surveys, focus groups and interviews across the state with individuals served by the Regional Center system, their family members, direct support professionals, Regional Center vendors, and Regional Center service coordinators.

  • Teresa Anderson

    Person

    We also used existing state and national data sets, policy research, analysis of state and national workforce initiatives, initiatives, and some other, you know, state level data to really inform the report that we produced. I was asked to share key findings from our report and how they relate to sufficient rates and quality incentives.

  • Teresa Anderson

    Person

    There are many significant key findings in the report, but the findings I want to highlight today are that the DSP workforce shortage is severely limiting choices and opportunities for people with IDD, where they live, who they live with, what services they can access, where they work, if they get to go to work at all, as well as many other life choices.

  • Teresa Anderson

    Person

    64% of the individuals reported staff turnover in the last 12 months. 20% reported six or more staff leaving. And it was also reported that staff turnover, especially high levels of staff turnover and frequent turnover, increased feelings of sadness, fear, anxiety and overall disruption in people's lives. Low pay is the number one reason DSPs leave their job.

  • Teresa Anderson

    Person

    Focus group and interview participants all reported that there's a serious disconnect between there's a serious disconnect between what they get paid and the level of skill required for the job. Nearly half of the DSPs reported working two or more jobs just to make a living.

  • Teresa Anderson

    Person

    And this is another really important theme that continually came up in the focus groups and the interviews, the new sector set minimum wages. In fact, food and healthcare are really having a ripple effect on the DSP workforce shortage because DSPs are feeling very, very devalued.

  • Teresa Anderson

    Person

    Providers are concerned that they will lose DSPs or that the DSP job will become the second job. Individuals, families and service coordinators all shared the same concern of losing the DSPs.

  • Teresa Anderson

    Person

    And as we think about provider rates and sufficient rates in the context of workforce development and workforce stability, we have to think about a rate structure that provides enough flexibility to account for DSP's experience and training.

  • Teresa Anderson

    Person

    Because a DSP who has been working for many years and has a lot of experience shouldn't be making a dollar or two more an hour than someone who's brand new to the field. And this is very common, which is why it's likely why we see a significant drop in retention around the three year mark.

  • Teresa Anderson

    Person

    Provider rates in quality incentives are an equally important part of the discussion related to workforce because it's important to ensure that you're incentivizing the right things. For example, research shows that turnover and vacancy rates are a factor in quality.

  • Teresa Anderson

    Person

    However, it also shows that vacancy rates and turnover tend to increase, and sometimes significantly in tight labor markets or where there are workforce shortages. So we want to be very mindful about what we're incentivizing. We don't want to incentivize keeping DSPs that might not be a good fit for the job.

  • Teresa Anderson

    Person

    We also don't want to penalize providers for things that may be out of their control, like people seeking higher paying jobs. But we can incentivize other things and things that we should think about. Can we incentivize reductions in turnover, vacancy rates, or increase training opportunities or efforts that directly impact retention?

  • Teresa Anderson

    Person

    I don't claim to, and I definitely don't have the answers to all those questions. But I do know it's critical to make sure that we are incentivizing the right measures to avoid unintended consequences. Finally, I was also asked to discuss how the DSP workforce shortage relates to issues and concerns around equity.

  • Teresa Anderson

    Person

    And this is such an important part of the conversation as we think about equity. And I know we talked earlier that or you heard earlier that we don't have a definition, we don't really know what equity is.

  • Teresa Anderson

    Person

    But when we're looking at families and people served, some important findings were that 58% of the families reported that their family Members, Members with IDD, were not able to access all of the services authorized in their IPP.

  • Teresa Anderson

    Person

    Sorry, Individual Program Plan As a result of the DSP workforce shortage, there's a growing concern that aging caregivers are disproportionately impacted by the DSP workforce shortage as they're increasingly providing substantial support and care for their sons or daughters, and many of whom have very complex needs. You talked about sleep and you talked about food.

  • Teresa Anderson

    Person

    And so many of these aging caregivers are, you know, running really low on both because they're providing so much care. In terms of issues and concerns of equity, we cannot overlook the reality that the greater the workforce shortage, the greater the inequity, especially for individuals that need higher levels of support.

  • Teresa Anderson

    Person

    And one indicator of this is that the alarming number of there's an alarming number of service providers that reported they're no longer able to accept individuals that require one to one because they simply just do not have the staff.

  • Teresa Anderson

    Person

    So I'll just close by saying that there are so many incredible quotes from people who shared their experiences with us. But I would like to share this quote from a father that I interviewed, and he said, think about what it costs not to invest in this workforce. Parents can't work, so you lose there.

  • Teresa Anderson

    Person

    People have to seek higher levels of care when it becomes a crisis, so you lose there. And people with disabilities lose their Independence, which is the greatest loss of all. Thank you for your time.

  • Corey Jackson

    Legislator

    Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of. Finance Nothing further to add.

  • Corey Jackson

    Legislator

    LAO.

  • Karina Hendren

    Person

    Thank you, Dr. Jackson. Karina Hendren, LAO. We have a couple of comments on the quality incentive payments. So first, the Director and Mr. Giardini mentioned the new provider directory. This is the first time that DDS is going to have a statewide view of all the providers across the state. Thank you, Dr. Jackson. Karina Hendren, LAO we have a couple of comments on the quality incentive payments. So first, the Director and Mr. Jardini mentioned the new provider directory. This is the first time that DDS is going to have a statewide view of all the providers across the state.

  • Karina Hendren

    Person

    And we think this could provide really valuable information about areas where there might be gaps in access to services in different parts of the state. Currently, there is no requirement for the Department to publish any kind of analysis or report on what it finds from the provider directory.

  • Karina Hendren

    Person

    So what we're recommending is that the legislature could consider directing DDS to produce this type of report so that the legislature has clear and transparent findings on what is shown in the provider directory. And that way the legislature can better consider where it might want to invest resources to address any gaps in service availability.

  • Karina Hendren

    Person

    Second, we wanted to talk about beyond the provider directory and kind of thinking more about quality incentives in the long term.

  • Karina Hendren

    Person

    So there is chapter legislation that establishes legislative intent that the quality incentive program should be a tool to provide individual outcomes and the quality of services to this end we've identified some questions that the subcommittee could ask the administration on its progress towards moving towards these individual outcome measures. This is not an easy process. As Mr.

  • Karina Hendren

    Person

    Jardini noted, there is not currently any state that has individual level outcome measures in its Developmental Services system. But the questions that we've identified could help the legislature provide oversight to ensure that individual level outcome measures are in place with the in accordance with the date established in statute.

  • Karina Hendren

    Person

    And this will help ensure that the quality incentives program is implementing, or rather implemented according to legislative intent.

  • Corey Jackson

    Legislator

    Thank you very much. Questions, comments from committee members Dr. Sharp-Collins.

  • Lashae Sharp-Collins

    Legislator

    One of the questions that it could have been answered, but I didn't catch it, is how would the administration keep the legislature informed about decisions on the quality incentive payments leading up to July 1, 2026? That's. That's one question.

  • Pete Cervinka

    Person

    Thanks for the question. I was going to back cleanup and you're helping me do it. We since since the enactment of the statute, we have had a quality incentive work group established. Initially, they met monthly. They're now on a quarterly cadence. All of those meetings and their materials are archived on our website. Archived

  • Pete Cervinka

    Person

    sounds like it's hard to find. It's on our Stakeholder Events page under past. It's not that archived, including our most recent one in March. Additionally, we as a Department brief legislative staff every quarter and we talk about QIP in that forum. Not every single time, but when we have things that we think may be material.

  • Pete Cervinka

    Person

    Additionally, we will own as a Department, we don't necessarily always follow statute as closely as we should, but proposed measures are actually supposed to be published and released for public comment in April 1st of every year. We're going to miss that date again this year. But we are transparent about those measures.

  • Pete Cervinka

    Person

    I will also share that we're not as far along with these measures as we would like to be. You've heard me say earlier the measure this year was validate your corporate ownership information in a statewide provider directory. I don't think there's anybody in the room that would say that's a wonderful quality measure. Let's do that again.

  • Pete Cervinka

    Person

    But if you don't know who you're paying, the rest of it's kind of not meaningful. Right. So yes, it's a foundational investment in the system. Appreciate the comment from our colleagues at the lao. You know, if this was easy, some other state would have done it first.

  • Pete Cervinka

    Person

    We're, we're getting to get there, but nobody else has done it because it's not an easy thing to do. And you run Quickly into things like you're a supported employment provider and you're supporting five people in employment. What's the individual level outcome measure you're going to use to set their rate for the entire year?

  • Pete Cervinka

    Person

    Is it based on an 80% satisfaction rate? Somebody's survey on a bad day? Is it the tenure of four of the five people in the placement you've supported them in? There's a lot to think about. And so what's in control of the provider has obviously got to be part of the equation. We call that a attribution.

  • Pete Cervinka

    Person

    But the rates also have to be valid and reliable if CMS is going to approve our rate structure for rate setting purposes. Meaning we need to get the same answer from the same person in the same situation on different days. Right. Survey has to be reliable, it has to be accurate.

  • Pete Cervinka

    Person

    So the answers, people, you know, the questions we ask need to result in valid answers. Like are we asking questions about the thing we're actually trying to measure or are we capturing proxies for it? It. So there's a lot to think through on that in four steps of quality measure development.

  • Pete Cervinka

    Person

    The first is data collection and we find ourselves there mostly. Then goal setting. Once we have the data, where are most people? What's reasonable? What's a decent expectation? Is it 70% of the bell curve? Not to pick on bell curves. They're one measure. And then, you know, is Everybody over that 70% mark?

  • Pete Cervinka

    Person

    You know, is that a quality measure? And do we, is it year two? Is it 72%? Like, how do we move that over time and then to get to individual level outcomes. Good grief. Tie that with what I said about rate setting. This is not simple. So just in that one explanation.

  • Pete Cervinka

    Person

    Hopefully you're still nerding out with me. Thanks.

  • Lashae Sharp-Collins

    Legislator

    I, I had one more if you didn't mind, because I, I missed the very first panel that talked about the master plan and. But I continue to hear the, the conversation that we don't have definition for equity.

  • Lashae Sharp-Collins

    Legislator

    So equity is not already infused in the creation of the master plan or the revision of the master plan or what is there, has there been any, any form of definition presented that maybe we just haven't agreed upon? I'm just trying to get to that point because I have a definition for equity.

  • Lashae Sharp-Collins

    Legislator

    But I'm just wondering, has there been anything at all?

  • Pete Cervinka

    Person

    I'll take that as the Administration Member up here. The master plan talked about equity. It's one of the big frames. Achieving equity, I think has a lot of different definitions.

  • Pete Cervinka

    Person

    We would intend to follow Our agency's definition, equity, and that's not quite yet finalized, but I think at its core, people who are similarly situated with similar needs, receive similar services, is a pretty straightforward simplistic answer. And equity is not just based on a race. It can be based on age.

  • Pete Cervinka

    Person

    It can be based on disability, diagnosis, medical condition. And the other one that we find ourselves talking a lot about is where somebody lives, kind of the residence type. Right? So if you're in assisted living, it costs presumably a lot more than if you're still at home in mom and dad's bedroom. Right.

  • Pete Cervinka

    Person

    And so we see those kinds of things, then we can also talk about it in terms of equity and expenditures. We can talk about it in equity of outcomes. You may have a better Doctor than I do, so your outcome is going to be better, even though it costs the same.

  • Pete Cervinka

    Person

    And we can also talk about it in terms of things like timeliness of access to services. So how long was your intake process versus my intake process when we're similarly situated, but maybe in different geographies across California?

  • Pete Cervinka

    Person

    So there's lots of ways to talk about that, or access to services, meaning now that we know you're eligible and we've approved you for this, how long does it take to find somebody to give that service? So there's lots of ways we could measure equity.

  • Pete Cervinka

    Person

    In my mind, I think about it really, that simplistically, two identical people with identical needs getting roughly the same thing and resulting in the same outcome. More importantly.

  • Lashae Sharp-Collins

    Legislator

    Thank you. Thank you. I'm heading up a Bill on behalf of our Black Caucus priorities as well, which is AB766, which is diversity, equity, inclusion, and access us. And so this is why I'm asking even more. So is there a formal definition or are we just throwing things around?

  • Lashae Sharp-Collins

    Legislator

    Or whichever, because I appreciate you indicating that DEIA for me, is not just about race. And that's typically too often where the conversation goes. It's just about race, and it's not.

  • Lashae Sharp-Collins

    Legislator

    And so what I wrote down, too, as a definition is that it's to ensuring that everyone, regardless of the disability, has a fair and just opportunity to access resources, services, and opportunities to achieve their full potential and live a fulfilling life. And looking at that is focused on everything you just said.

  • Lashae Sharp-Collins

    Legislator

    And you and I are in full agreeance of focusing on needs, addressing the disparities, and promoting inclusion and et cetera. That's how I see diversity, equity, inclusion, and access.

  • Lashae Sharp-Collins

    Legislator

    And I'm hoping that we can, you know, can continue to work to finalize that formal definition, because as you do any type of financial analysis, are you doing program services analysis and all of that, all these components should be through that work.

  • Lashae Sharp-Collins

    Legislator

    And everything that I do, even as an educator in other avenues, come from an equitable lens. And we know that there's no one size fit all model approach to anything that we do. We have to keep that in mind as we move forward. And you hit it right on the nail.

  • Lashae Sharp-Collins

    Legislator

    So I appreciate your own response from the top of your head in regards to how you see that, and I'm hoping that other colleagues that you have can start to see it that way as well. This work, it is essential to us. It's important to our quality of life.

  • Lashae Sharp-Collins

    Legislator

    And I hope that we can get this done so we can make sure as we continue on in this process that everything that we're talking about is going to reflect that moving forward. So thank you.

  • Teresa Anderson

    Person

    Can I add one comment to that? I really appreciate that. And I think when we're looking at that, we also carry that into workforce development. Right. Do we reach into the community, do we develop, you know, where we're seeing the inequities, where we're seeing challenges in the workforce?

  • Teresa Anderson

    Person

    How are we connecting with those communities to really build that workforce and develop that workforce in those communities? I think that's a really important piece to consider and looking at equity, looking through that lens as we think about workforce and workforce development and stability. So thank you very much.

  • Corey Jackson

    Legislator

    Wow, that was a sexy equity discussion. Have mercy. All right. Got me all excited. All right. All right. Okay. So a couple of things, Elio. Again, as we begin to try to chart the course so that we can continue across administrations, we want to rely on your expertise.

  • Corey Jackson

    Legislator

    So we're going to ask you for some assistance sense to work with our Subcommitee before we share it with Administration and our Senate partners to think about trailer Bill Language on two subjects.

  • Corey Jackson

    Legislator

    Number one, as we were talking about language on information from the provider directory being reported to provide insight into system gaps and these, and then number two, reporting and codification of the pending quality incentive payment details. And so if that is possible, we would love to get that. Is that possible?

  • Karina Hendren

    Person

    Karina, Hendra and Lao.

  • Corey Jackson

    Legislator

    Yes, thank you very much.

  • Corey Jackson

    Legislator

    I mean, obviously, as we are engaging in this new frontier, that we are not only trying to reach our goals and create, ensure that we have some stability as we implement it, not trying to make a lot of changes along the way, but at the same time, how do we make sure that possible unintended consequences that we may see coming?

  • Corey Jackson

    Legislator

    How can we begin to Address those now before it actually becomes right. Well, I know we're already talking about a fragile system here, and the last thing we want to do is making sure that we are not losing service providers and that we're not losing these services.

  • Corey Jackson

    Legislator

    And so I would like us to continue to think about as we go through this budget process this year. How. Do we make sure that we keep the system stable as we're going through this unchartered territory at the same time. Right. And so looking forward, further discussions along the way. Thank you all very much for being here.

  • Lashae Sharp-Collins

    Legislator

    Thank you.

  • Corey Jackson

    Legislator

    Issue number six. And it's not even five o'clock. You all are welcome. Issue number six, Life Outcomes Improvement System Automation funding issues and timeline for completion. Director, this. That's right. At this point, the Director is not going anywhere until we adjourn. Director, please start us off.

  • Pete Cervinka

    Person

    All right. Thanks for the extended opportunity to hang with the rest of you IT projects. Everybody's favorite subject. I think I said this in my opening remarks about the master plan.

  • Pete Cervinka

    Person

    And if I didn't say it here, one of the major themes coming out of the master plan is we need more better information and we need more, better access to information and we need more ways to access that information. So essentially the ugly story and appreciate again, Nicole Vasquez's agenda for laying it out.

  • Pete Cervinka

    Person

    So I don't have to read it back to you. Essentially what we're after here is to replace two legacy systems in California, our 1984 case management system. You laugh. It ain't funny. I was a baby.

  • Corey Jackson

    Legislator

    I wasn't born yet. Mr. Jackson, out of order, out of order.

  • Lashae Sharp-Collins

    Legislator

    In that case. I was a toddler.

  • Pete Cervinka

    Person

    Anyway, it's all protected, but you chose to say it yourself, so you've waived her protection. And then our 1985, that year. I'm making it up, but it's pretty darn close. Fiscal system. They are two systems that have served California well, that were designed when we've served way fewer people than we do today. Yeah.

  • Pete Cervinka

    Person

    Black font, black screen, green font. I mean, this should help for those of you that at least have seen that much. Apologies if you haven't. I have. But, you know, you're too old when. Anyway, you know, everything that we do is about the lives of people.

  • Pete Cervinka

    Person

    And the information we have about those people is kind of the fundamental first for what it is we're able to do either for them or to improve what they're getting. So case management system of record, vitally important. It's so Darnold that among the Regional Centers. There are actually now several other case management systems in use.

  • Pete Cervinka

    Person

    None of them have the full functionality that you would want if you were designing a system from scratch today, knowing what you need to do to get the job done. And all of them still have to do transfers of data into the state system of record. I call it the state System of record.

  • Pete Cervinka

    Person

    It's called SANDIS S A N D I S. It stands for San Diego Information System. Mark Claus earlier his Regional Center in San Diego runs that statewide system of record. Our Department gets a monthly download of that data into our data warehouse. And we continue to struggle, as you might imagine, after passing data through multiple hands.

  • Pete Cervinka

    Person

    Data quality, data consistency across Regional Centers are all problems. Couple that with the fact that the uniform financial system equally as old, all the money is handled separately and outside of that system. And so there's matching routines that happen if we want to produce. And how much did we spend on Pete in the last year?

  • Pete Cervinka

    Person

    That's a manual process to get that. Unless the Regional Center has figured out a different system that they can do it in. Other problems that this entails too. One, the two really ought to be together. You should, you know, I can't begin to explain how cost and case management functions became separate. They shouldn't be.

  • Pete Cervinka

    Person

    They should be together. So we've been embarked on a two year planning process already collecting what we call business requirements that we would use to inform a solicitation for a proposal from the vendor community. A critical part of that analysis also is what we call the AS is analysis. That is, what do we do today?

  • Pete Cervinka

    Person

    What data do we have? How is it used? Where does it go? What are those workflows? Because more important than any IT project is the underlying organizational change management of the people using the system.

  • Pete Cervinka

    Person

    And if you can't explain to them how they do something today and how it's going to be different tomorrow, you're already set up for failure. So as is, and what we call the to be or what we want it to be are the two phases. The to be has been worked on fairly significantly.

  • Pete Cervinka

    Person

    I want to thank primarily Regional Centers for their input on this. Their staff has been in 220 meetings. But we're not 100% sure that we got all of the input from them that we need. I know we didn't get it within the Department.

  • Pete Cervinka

    Person

    So this month we're wrapping up the last of our internal engagements with 150 Members of our team across the Department and all the functionalities relooking and validating that in fact, what the system is going to be able to do has been fully informed by the experience of folks at the Department.

  • Pete Cervinka

    Person

    We're going back to revalidate those updated assumptions with Regional Centers. And then as I mentioned at the end of January in a message to the community, we'll be coming to the community for additional input on what they want to be able to do.

  • Pete Cervinka

    Person

    And when I say community, I mean both service providers, because we talked about money, but more importantly individuals and families. So in terms of future functionalities, I'll just leave you with a couple simple ones. You know, don't share HIPAA data. In response to this laugh if you want to, we may have a mobile app for our healthcare.

  • Pete Cervinka

    Person

    There is no mobile app for Regional Center services. Right. So when families want a copy of their individual program plan, they call and leave a voicemail or send an email to their service coordinator.

  • Pete Cervinka

    Person

    What we want to do is join at least the last century, if not this one, and give people a place to log in, get their own information, see their own information, look at their upcoming meetings, message their service coordinator.

  • Pete Cervinka

    Person

    Have that be part of their case management record so that when the service coordinator changes or goes on vacation, it's not in that email inbox over there somewhere. Same thing for service providers. We're doing it right now in a service provider directory. That's going to be a core function as well of the system.

  • Pete Cervinka

    Person

    You can imagine the list of service providers and their vendorizations where they offer services is going to have to be part of that system. So we want it all in one place. And that's really what we're after here. We had lessons learned from 15 years ago in a failed system. We don't want to repeat it.

  • Pete Cervinka

    Person

    We want to bring people along with us. And frankly, we think after 15 years of technological innovation, there's got to be some low, no code solutions out there there that don't leave us capture with a single vendor for this.

  • Pete Cervinka

    Person

    But also don't make it prohibitively expensive as we ask people to manually customize millions of lines of code to get what we want. So yeah, you know, I may be dreaming, but we're dreaming big.

  • Pete Cervinka

    Person

    They call it Pete's Project or Lois Life Outcome Improvement System because we want people also in the name of the system to remember the whole purpose of what we're doing is to improve the life outcomes of the people that we support. There are other details in there.

  • Pete Cervinka

    Person

    We've had some smaller projects that were taking their requirements and putting them into this primarily around fiscal. There's a discussion in your agenda about the reimbursement system project. That's just the money piece between our Department and Department of Healthcare Services, but that really ought to be part of the integrated complete financial project.

  • Pete Cervinka

    Person

    So you know, there were issues with that, but we didn't lose the investment we made in documenting lessons learned, but also the requirements of what we need to do. It's just being folded in.

  • Pete Cervinka

    Person

    So we have one big bright thing and we are cautiously optimistic that by the time we engage with the community through the next three months or so, write the federal and state funding approval documents and get those things approved, we should have something on the street.

  • Pete Cervinka

    Person

    Street don't hold me to it because all those timelines aren't all up to me. Somewhere between January and March of 26, we should have something out on the street for vendors to respond to. This is not small, not simple. They will have multiple months to respond to our proposal.

  • Pete Cervinka

    Person

    We will do back and forth question and answers like all good procurements do so that we are close to what we want and we have a lot of lessons learned from across state government and what it takes to review work as it's underway.

  • Pete Cervinka

    Person

    We don't, we don't anymore write checks and tell somebody to give it to us in three or four years. We are along the along the road with them in the development, making sure that that's really what we want and how we want it. Thanks for indulging me. I'm sure I blew a five minute clock.

  • Corey Jackson

    Legislator

    Not a problem.

  • Unidentified Speaker

    Person

    Department of Finance Department of Finance nothing.

  • Karina Hendren

    Person

    Further said Aleo Karina Hendren. Lao Director Chervinka laid out the need for the project and the merits of of the proposal. Those are certainly well documented. Our comments mainly revolve around legislative oversight of the project moving forward.

  • Karina Hendren

    Person

    Given that this is such an important project and that it addresses a sensitive population, we do recommend that the Legislature use its oversight authority to ensure that the project can be completed on time and within budget. The Director noted that the Department is collecting more stakeholder feedback on desires for the project this year.

  • Karina Hendren

    Person

    This is in addition to feedback that had been collected previously and is already documented with the California Department of Technology.

  • Karina Hendren

    Person

    So our recommendation is just really that the Legislature ensure that it is receiving updated documents to reflect reflect the stakeholder outreach that's going to take place this year in addition to what's already been documented and as noted in the agenda. Lao would be happy to work with the Subcommitee to draft SRL to this effect.

  • Corey Jackson

    Legislator

    I'm so glad you said that because we're going to ask you to help us draft SRL to facilitate legislative oversight throughout the planning, development and implementation of the LOW project.

  • Karina Hendren

    Person

    Yes, thank you to Nicole for giving us a heads up about that.

  • Corey Jackson

    Legislator

    Thank you very much. Questions from Committee Members. Good. Okay. Moving. Thank you so very much. Moving on to issue number seven. Federal threats to Developmental Services, Rehabilitation communities. Director, please tell us, what are the potential threats coming from the Federal Government?

  • Corey Jackson

    Legislator

    Yep. We'll start off with DDS and then we'll do DOR.

  • Pete Cervinka

    Person

    Appreciate that. So we, we are of course grateful to the Federal Government across numbers of fronts for its support of the populations we serve in California.

  • Pete Cervinka

    Person

    I will start by saying our, our newsletter that was released on Monday night, our monthly newsletter to the community, called out the fact that California is unique in its entitlement to services among all other states. We view that Lanterman act promise as significantly important for people in California.

  • Pete Cervinka

    Person

    And perhaps the most important thing of all in terms of Developmental Services. I'll also provide a little bit of context just around what our Department does.

  • Pete Cervinka

    Person

    There's been some implicit and I think a couple explicit mentions that we are kind of the payer of last resort in California, that entitlement to services exists after you've exhausted natural supports and what we call generic services.

  • Pete Cervinka

    Person

    In California, two of our largest generic services outside of K12 system are the Medi Cal program and the In Home Supportive Services program, ihss.

  • Pete Cervinka

    Person

    And what both of those two, both of those two, both of those programs have in common is that they're funded by a federal Medicaid Fund source which provides for eligible populations and generally speaking, 50% match for the cost of services to people. What we see happen at the federal level. I'm sorry, let me, let me back up.

  • Pete Cervinka

    Person

    In addition, that that same Medicaid funding source under the waivers listed on page 37 of our agenda today for the department, 37% of our total budget through regional centers is composed of that Medicaid Fund source as well.

  • Pete Cervinka

    Person

    And the reason that I call that out, one, it's significant all on its own, just for our department in that adjustments to available Medicaid funding pose a risk.

  • Pete Cervinka

    Person

    But also the fact that we are payer of last resort with an entitlement to services in California means that when any cuts happen to Medi Cal or to ihss, the In Home Supportive Services program, we become then the general fund backstop for those services.

  • Pete Cervinka

    Person

    So not only for us is the threat, potential changes to the Medicaid program, but also the threat that the services that we have committed to maintaining on behalf of people in California under the Lanterman entitlement become a general fund problem.

  • Pete Cervinka

    Person

    In addition, all of this is context to say what we have seen in Congress is a budget reconciliation bill. That budget reconciliation bill lays out spending targets for congressional committees.

  • Pete Cervinka

    Person

    The Congressional Budget Office has told the committee that considers Medicare and Medicaid that if it cut every single program within its jurisdiction, that it would still need to cut somewhere between 250 and $300 billion in that timeframe, the Medicaid and Medicare programs in order to meet the spending targets in the budget reconciliation bill.

  • Pete Cervinka

    Person

    The budget reconciliation bill is guide for the congressional committees, but it doesn't have specific instructions on how to meet those targets. That's what they will do in congress when they prepare the actual budget bill. Given the magnitude of those potential reductions.

  • Pete Cervinka

    Person

    Of course we are obviously worried a lot can happen between now and enact of the federal budget. The federal fiscal year starts October 1st. And so there's a lot of time between now and then for advocacy efforts, education efforts, revenue maneuvers, other alternative spending solutions. I don't want to speculate.

  • Pete Cervinka

    Person

    What I will say is that we are of course deeply worried about the impact on the people we serve because many of them go to medical, go to in home supportive services, go to K12 education before coming to our department.

  • Pete Cervinka

    Person

    And not only are we worried they potentially will come to us if they can't get there, but we worry about the direct hit to us as well of potential cuts. So I don't want to speculate any further on what Congress is going to do, but let's just say that it's a really significant concern for us.

  • Pete Cervinka

    Person

    We're looking at for our department $6.5 billion in the proposed budget. Budget which starts July 1, not October 1. So I worry personally that we will be in a situation of enacting a budget when we may not quite yet have an idea of what the Federal Government's going to do.

  • Pete Cervinka

    Person

    Again, appreciate we got $58 million from early start, we got $1.0 million for Foster Grandparent program, and between the title 20 social services, Brock Grant and TANF, we got just over $200 million a year as well. So there are some other Fund sources that are smaller and not as well talked about.

  • Pete Cervinka

    Person

    And we don't know what Congress will do. But appreciate the agenda's clear layout of the sources of that and what it represents, I'm happy to turn it over to my colleague.

  • Kim Rutledge

    Person

    Yeah, it's not on the notes. All right. Good afternoon, Chair Jackson, Members of the Committee and staff. Kim Rutledge, Director, Department of Rehabilitation, DOR is closely monitoring several actions at the federal level that could have a significant impact on our services and the disability community as a whole.

  • Kim Rutledge

    Person

    Our foremost concern is the Executive Order eliminating the United States Department of Education and related reduction in force. The Rehabilitative Services Administration sits within the Office of Special Education and Rehabilitative Services at the Department of Education. The VR program receives federal oversight and roughly 80% of its funding from the Rehabilitation Services Administration.

  • Kim Rutledge

    Person

    Our federal membership organization has been asked if this administration that sits under the Department of Education should sit within the federal Department of Labor or the Department of Health and Human Services.

  • Kim Rutledge

    Person

    If it is, if the Department of Education is completely eliminated as we anticipate, we have reason to believe right now that the Federal Government is exploring both options. If federal oversight of vocational rehabilitation is transferred to a different agency, we may see shifts in program priorities.

  • Kim Rutledge

    Person

    A new agency may not have the same expertise or established framework for supporting individuals with disabilities, potentially leading to misaligned policies that do not adequately reflect the unique needs of our population. DOR did not experience a disruption in funding in January when the Office of Management and Budget issued a memorandum instructing the freezing of funds.

  • Kim Rutledge

    Person

    However, some of our independent living centers that also fall under the Department of Rehabilitation reported a temporary disruption in their funding for one day. The independent living centers are funded by the Administration for Community Living, which sits under the Department of Health and Human Services.

  • Kim Rutledge

    Person

    Additionally to the elimination of the Department of Education, DOR is also monitoring the reauthorization of the Rehabilitation Act. The Rehabilitation act was Last reauthorized in 2014 under Title 4 of the Workforce Innovation and Opportunity act, and that reauthorization expired in 2021. While funding continues through annual congressional appropriations, there is no long term guarantee.

  • Kim Rutledge

    Person

    Without this reauthorization, the vocational rehabilitation program is more susceptible to reductions, restructuring, and restrictive policy changes. The latest workforce authorization Bill excludes vocational rehabilitation, signaling that Congress at the federal level is not prioritizing updates to the Rehabilitation Act.

  • Kim Rutledge

    Person

    Our biggest concern right now really is not an immediate funding cut, but rather a gradual erosion of services over time. Programs without reauthorization are more vulnerable to flat funding that does not keep pace with inflation, restrictive policy changes, or even potential block grants that could cap funding at lower levels.

  • Kim Rutledge

    Person

    So there's several really significant funding significant threats to vocational rehabilitation right now that we're closely watching. In addition, we are also monitoring a few other threats that would impact the disability community in General that have not previously been mentioned. The first one is a threat to Section 504 of the Rehabilitation Act of 1973.

  • Kim Rutledge

    Person

    That is the civil rights law that prohibits discrimination against individuals with disabilities in any program or activity that receives federal funding. That includes schools, government agencies, healthcare providers, and employers that receive federal funds. 17 states filed Texas v. Becerra, a lawsuit against the Biden Administration, seeking to have section 504 declared unconstitutional constitutional in its entirety.

  • Kim Rutledge

    Person

    While the case remains active. It is currently paused with no immediate legal proceedings underway. However, if Section 504 were declared unconstitutional, it would eliminate critical civil rights protections for people with disabilities, allowing federally funded programs to deny accommodations or exclude individuals based on disability. This would dismantle decades of progress in disability rights.

  • Kim Rutledge

    Person

    Additionally, weakening Section 504 could also undermine the vocational rehabilitation program nationwide. Without strong workforce protections, employment outcomes for people with disabilities could decline. This could lead to federal funding reductions again for VR services.

  • Kim Rutledge

    Person

    And while section 504 and the Americans with Disabilities act both prohibit disability discrimination, section 504 applies specifically to programs and activities that receive federal funding, whereas the Ada applies more broadly to private sector employers and public businesses.

  • Kim Rutledge

    Person

    If 504 were struck down, the most likely impacts would be the loss of disability protections in federally funded schools, health care programs, and small nonprofits that are not fully covered by the Ada.

  • Kim Rutledge

    Person

    DOR is additionally closely monitoring the elimination of DEIA programs and policies, as these programs are critical to maintaining equity for people with disabilities in all areas of life, including employment. DOR currently has two federal Disability Innovation grants that focus on diversity, equity and inclusion aimed at improving employment outcomes for people with disabilities.

  • Kim Rutledge

    Person

    These grants have been critical in addressing systemic barriers and ensuring equitable access to education. And one of those grants is actually our Subminimum Wage to Competitive Integrated Employment grant, which as previous panelists have brought up today, is critical for our piece to making sure that individuals who are leaving submitted minimum wage go into those competitive integrated jobs.

  • Kim Rutledge

    Person

    And so those are what we are tracking.

  • Corey Jackson

    Legislator

    Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance we'd like to know that the finance continues to track, to monitor policy and legislative developments to assess potential impacts on funds the state receives from the Federal Government.

  • Corey Jackson

    Legislator

    LAO.

  • Karina Hendren

    Person

    Karina Hendren, LAO. Similar to what the Administration stated, including Department of Finance, we are monitoring the situation and once Congress provides more details on its budget actions, the LAO will be ready to assist the Legislature in assessing potential impacts.

  • Corey Jackson

    Legislator

    Thank you very much. Questions from Committee Members. Assembly Member Ahrens.

  • Patrick Ahrens

    Legislator

    Thank you. Mr.

  • Patrick Ahrens

    Legislator

    Chair, I just want to say thank you so much for providing your testimony to the Committee and I want to thank the Chair for holding this topic in particular right now and how timely it is and, and and how important it is to be monitoring these these cuts and getting this information out there as much as possible because it's, it's hard to to grapple with the devastation that these potential cuts would have on our social safety net services in California.

  • Patrick Ahrens

    Legislator

    And it's, it, it's so devastating that it's it's hard to, to even think about from a budgetary standpoint and what it would mean for the State of California and our obligation to help our most needy Californians.

  • Patrick Ahrens

    Legislator

    And I just want to appreciate the chair for continuing to highlight this because I don't think we're talking about it enough as a body in California and sounding that five alarm fire that I think is potentially coming. And I do think that I appreciate the stakeholders and continuing to monitor these situations.

  • Patrick Ahrens

    Legislator

    But we've got to do more than monitor and would love to partner with stakeholders in this room, our legislative body and, you know, all of our partners to urge more than monitoring because these potential cuts would be absolutely devastating.

  • Patrick Ahrens

    Legislator

    I know all of you know that, but we need to start using stronger language and focusing more on how these impacts and cuts would affect, you know, so many people who don't have any other options. And I don't think we do as a Legislature given how massively impactful these cuts would be on our budget as well.

  • Corey Jackson

    Legislator

    So thank you, thank you very much for this item for today. It's important that we understand just how many, many Members of the public does not, do not understand all the different things that Medicare and Medicaid Funds Fund in terms of the various services. It's not just about going to the hospital.

  • Corey Jackson

    Legislator

    And it's particularly important for the IDD community to understand that this affects you too. And we have got to make sure that you are letting your Member of Congress know that they need to keep their hands off of Medicare and Medicaid. And we're just not talking about dollar amounts. We're just not talking about not eliminating programs.

  • Corey Jackson

    Legislator

    We need to talk about leave the rules alone, leave the eligibility alone, leave all the different tricks that people will be thinking about in order to make the program simply just unusable. And so please make sure you are doing that.

  • Corey Jackson

    Legislator

    And also be careful about when you hear things like eliminating DEI, diversity equity inclusion, because it's not just about the color of your skin when it comes to DEI. We're talking about women, we're talking about the IDD community, we're talking about all the different people who may need individualized services. Right?

  • Corey Jackson

    Legislator

    And so please do please, please, please pay attention, play closer attention and raise your voice to making sure the people who profess to be your representatives in Congress, making sure that they're truly representing your needs and your family's needs. Thank you so much for this panel.

  • Corey Jackson

    Legislator

    Moving on to issue number eight, the final one, we are doing great. Issue number eight, disaster response directors kick us Off.

  • Kim Rutledge

    Person

    All right, well, the mic is already with. The mic is already with me, so I'll just keep going here. Go for it. All right, so. During the devastating Los Angeles wildfires last month, 10 DOR offices in Los Angeles County were closed only intermittently due to road closures, evacuations or power outages.

  • Kim Rutledge

    Person

    We were very lucky that we didn't have any building damage or any offices that we had to completely close during that period. As soon as it was safe and power was restored, our offices were reopened and service to serve and support the public.

  • Kim Rutledge

    Person

    In addition, our staff in our Los Angeles based offices took several immediate actions to support the fire victims, such as putting together a resource guide, adopting families in the area, and also on the workforce front, collecting and donating professional clothing for people who had lost everything in the fires.

  • Kim Rutledge

    Person

    One independent living center, Southern California Resource Services for Independent Living, had to temporarily close an office location, but continued to provide services remotely and in shelters. Several other LA area independent living centers shifted to remote services to continue supporting their consumers and also supported evacuation shelters.

  • Kim Rutledge

    Person

    Families experienced significant disruptions in accessing essential services provided by the independent living centers, including housing. The independent living centers worked closely with shelter staff to provide critical support to individuals who are in the shelters, including durable medical equipment, mobility aids, financial assistance when possible, or partnering with other organizations to support the efforts.

  • Kim Rutledge

    Person

    Overall, what I would say though is that the wildfire disaster highlighted ongoing gaps in our systems that support people with disabilities. Notably, evacuation was very, very difficult for people. Transportation to shelters for people who need special transportation was very difficult because so many paratransit and other such services were redirected. Also, durable medical equipment was difficult for people.

  • Kim Rutledge

    Person

    People had to evacuate so quickly that they often went without med or ventilators, wheelchairs, the things that they need in order to be independent. So I think that hopefully what will come out of this moving forward is more ongoing collaboration at the ground level and better real time response to support these communities.

  • Kim Rutledge

    Person

    Because when you're a person with a disability and you have to suddenly someone knocks on your door and says that you have to evacuate right now. It's not just always as easy as jumping in your car and running down the street. You have to find the proper transportation.

  • Kim Rutledge

    Person

    You have to make sure that you have care lined up. You have to make sure that if you have to go live somewhere else for a while that it's accessible to you in every possible way. And then we also. It exacerbated people's physical health conditions too due to asthma and other issues.

  • Kim Rutledge

    Person

    So really I think what this disaster showed for us, even though the impacts to our Department were very, very minimal, what it did show was just how difficult it is to evacuate people in an emergency like this in an area that is as large as Los Angeles.

  • Corey Jackson

    Legislator

    Thank you very much.

  • Pete Cervinka

    Person

    Thank you, Mr. Chair. You know, obviously a painful event in Los Angeles. You know, our hearts go out. There were 253 individuals receiving Regional Center services who lost their homes. There were Regional Center employees that lost their homes as well. There were service provider licensed facilities and offices that were completely destroyed as well.

  • Pete Cervinka

    Person

    And we're aware of one death of an individual receiving Regional Center services. So, you know, let me start. Our hearts go out to them. You know, the agenda asks us to talk about what the Department does, and I'll kind of give a more generic answer to that.

  • Pete Cervinka

    Person

    First, you know, our emergency preparedness team, and including myself, gets daily weather updates and threat updates from California Office of Emergency Services. And so we're monitoring that. Part of that includes a seven day weather forecast.

  • Pete Cervinka

    Person

    And so you will hear in the things that follow a lot of emphasis on preparedness, sharing that information with Regional Centers, where the threats are, what type of weather to be ready for. And we do that. You know, rainstorms and fire burn areas. You know, it can be all kinds of things.

  • Pete Cervinka

    Person

    Heavy snows, closed freeways, lack of access to transportation, giving advance notice both to Regional Centers and sometimes to the community. You know, we on pain of being technical, we maintain a geographic information system that has a map of everybody in California receiving Regional Center services, where they live, which Regional Center serves them.

  • Pete Cervinka

    Person

    And we're able to overlay that with wildfire maps, with weather threat briefings. We can look at wildfire threat areas, not just active burn areas. So we have some sense of things both kind of historically where power has been shut off repeatedly to prevent wildfires. We know where some of our high risk areas are in California.

  • Pete Cervinka

    Person

    Back in 2021, the Legislature and Administration partnered to make some basic investments in Regional Center infrastructure.

  • Pete Cervinka

    Person

    We established a dedicated emergency services coordinator at each of the 21 Regional Centers we funded for people living in areas where they're both dependent on electricity for key life saving equipment, but also in areas where the, we call them PSPS events, public safety power shutoff events happen frequently.

  • Pete Cervinka

    Person

    We invested in 400 batteries, portable batteries for people to keep that equipment running if that happens again. We've purchased roughly 14,000 what we call go kits or go bags, containing basics of things that people should be taking with them as a condition of getting those bags in those areas.

  • Pete Cervinka

    Person

    We ask people to complete training on kind of how to use the stuff in the bag, where to go, what to know, what to take with you. There are things not in the bag like the list of medications that you take and the emergency contact people for the people important to you in your life.

  • Pete Cervinka

    Person

    So the people who've lived in those areas, you know, preparing them, that education and training and the equipping of them to deal with it is really important. Obviously during an event, close communication with Regional Centers. That geographic information system that I mentioned is access to it is through all 21 Regional Centers.

  • Pete Cervinka

    Person

    And they have the capability of alerting people directly when there's an evacuation warning or an evacuation order. They can tweak the message to do a health and safety well being check. They can ask things like are you safe? Are you okay? Are you with family? Where did you go?

  • Pete Cervinka

    Person

    So they can communicate with people through text and email messages through that platform as well. Obviously continuing to monitor local evacuations situations on the ground. At 1.0 we had 1400 individuals served by seven Regional Centers involved in active evacuation orders where they were actually told do leave. Not just the warning.

  • Pete Cervinka

    Person

    The other significant impact, which is often lost to people, but was across the LA basin was the closure for a week of the school districts due to health quality impacts and just family disruptions in General. Suddenly people had to balance care for their kids and the work during an event.

  • Pete Cervinka

    Person

    We get recurring reports from Regional Centers about the status, any unmet needs in the midst of a crisis. The last thing anybody wants is one more reporting obligation to somebody.

  • Pete Cervinka

    Person

    But they understand the importance of keeping the Department in the loop because we take those reports, we synthesize them and we elevate them through our agency and Cal OES so that if needs on the ground, change, change, we've basically been brought along for the ride and everybody's aware of what's happening and what potentially could happen.

  • Pete Cervinka

    Person

    Then we do other things for the community. We have, you know, California has a disaster guide. Listos California has a bunch of resources and so we're sharing that proactively in real time with the community. We do that either localized or statewide. Usually statewide. We amplify what Cal OES puts out through social media.

  • Pete Cervinka

    Person

    So there's lots of that kind of stuff. And then post event, obviously connecting Regional Centers with information about local recovery centers, local assistance centers, opportunities to connect with federal FEMA, those kinds of things happening. We shared opportunities with our community to provide donations.

  • Pete Cervinka

    Person

    The Regional Centers in LA each have a nonprofit arm to receive donations specific to events. So all of that kind of stuff is what happens. We were appreciative.

  • Pete Cervinka

    Person

    Earlier this month, our Office of Special Education Programs at the Federal Government came out and they met both with San Gabriel Pomona Regional Center and Westside Regional Center and some local education agencies to talk through the experience and understand what exactly happened. We're asked to talk about lessons learned. There's always a few, right.

  • Pete Cervinka

    Person

    So you know, again, an emphasis on preparedness. You can never be too ready, too prepared to know where you're going to go, what you're going to take with you. Grab those medications, the list of people that can help you, your emergency list, your emergency contact list. We have people that may need assistive communication devices.

  • Pete Cervinka

    Person

    Kind of take the stuff with you that you need. Right. You know, sadly. But in every emergency it seems to be a lesson learned. If you're told evacuate, please just go. Kind of common sense, but you'd be amazed. Please just go the establishment too. And I guess this falls in preparedness as well.

  • Pete Cervinka

    Person

    There's nothing like cold calling strangers in the middle of an emergency and a expecting them to help you. You have to have the local relationships built with your local OES Department, with your local school districts, your transportation providers. People should know what's expected of them when the time comes and who that person is calling from.

  • Pete Cervinka

    Person

    We all have phones now and you don't answer numbers that come to you that aren't in your contacts already. Right. You let those go to voicemail and figure it out later. Don't do that in an emergency. Have those local relationships there. Regional Centers I think are always reinforced. They have a 24 hour duty line.

  • Pete Cervinka

    Person

    In an emergency, one or two people taking calls after hours is not good enough. I'm not saying this was a problem here. What I'm saying is reinforce the importance of having the right people with the right information ready at the right time. More training on that. I talked about it as the geographic information system.

  • Pete Cervinka

    Person

    More specifically, Everbridge has just been an invaluable communication tool. You can't have 400 service coordinators calling individuals and families robocalling. It just doesn't work. You've got to do that messaging quickly and promptly with timely info.

  • Pete Cervinka

    Person

    We know from survey experiences and other things that our contact information for individuals, people move, they change their number, they change their email, their family moves, their emergency contact info has to be kept current if we're going to reach people.

  • Pete Cervinka

    Person

    And so right behind some other data elements, contact information is on the data cleanup list for that lowest project. I didn't talk about Prepping what we have for migration to the new system. But data quality and consistency is a huge issue and contact information is one of those.

  • Pete Cervinka

    Person

    And you just need to have clear roles and responsibilities when the time comes. You have to have clear approval, kind of authorized approvers for messages going out in the Everbridge system. You need to know where your local shelters are and how to get that information to people when they're told to evacuate.

  • Pete Cervinka

    Person

    You've just got to know some of those basics. And so clear roles and responsibilities and planning ahead for 247 coverage. It's no longer 8 to 5. We had lots of very sleep deprived Regional Center heroes in this emergency.

  • Pete Cervinka

    Person

    But we've got to be planning ahead for who's covering what lines and what shifts and getting people a break because mistakes happen in crises and those are the worst times for them to happen. So lots of awesome, amazing work happened here.

  • Pete Cervinka

    Person

    I talked a lot about what the Department does, what Regional Centers do, community taking care of community, helping each other out, making donations, opening their homes to people. This was all of California response and I don't give it short rift by closing with it.

  • Pete Cervinka

    Person

    But it's just huge to see how resilient the community is in the face of of adversity like we just faced in La. Thanks again for going over time.

  • Corey Jackson

    Legislator

    No problem. Thank you very much. Department of Finance.

  • Omar Sanchez

    Person

    Omar Sanchez, Department of Finance. Nothing further to add.

  • Corey Jackson

    Legislator

    LAO.

  • Karina Hendren

    Person

    Karina Hendren LAO. No comments to add at this time.

  • Corey Jackson

    Legislator

    Obviously we want to make sure that we're covering all the various communities who have been devastated by these fires which is why this is a continuing agenda item for all of our hearings.

  • Corey Jackson

    Legislator

    Thank you very much for all of those who've been going be above and beyond the call of duty when it comes to many of these communities and providing this very valuable services. Thank you very much for this panel. I want to make sure that we are about to go into public comment before we start.

  • Corey Jackson

    Legislator

    I just want to give a special thanks to Karina at the LAO who we have been relying on heavily on her excellent and comprehensive analysis. Very well done. Very well done. This ends the panel presentation portion of our hearing for today.

  • Corey Jackson

    Legislator

    There have been no requests to discuss the non presentation issues that are on part of issue nine. We will take public comment at this time. Please state your name for the record and remember your name and affiliation for the record and remember that each individual has a maximum of 2 minutes each. 2 minutes each.

  • Corey Jackson

    Legislator

    Do not test the Chair.

  • Tiffany Whiten

    Person

    I'm feeling a little spicy today. No, just kidding.

  • Corey Jackson

    Legislator

    Name an affiliation please.

  • Tiffany Whiten

    Person

    Tiffany Whiten with SEIU, California thank you so much for the hearing today and for all the great information as a Member of the Master Plan on Developmental Disabilities. Really appreciate all the work that went into it. Special shout out to Victor.

  • Tiffany Whiten

    Person

    He led my work group three which I was on and really dedicated a lot of time to service coordinators and their opinion and their feedback and really sincerely appreciate that. Look forward to implementing some of the recommendations that come out of it and then really want to touch on respite.

  • Tiffany Whiten

    Person

    It is something that we have been concerned with for many years. We know that there are issues with respite and we have continued to try to get access not only for recipients but also make it easier for our service coordinators within the Regional Centers to be able to match folks up with respite.

  • Tiffany Whiten

    Person

    We have been lucky to have the opportunity to work with Assemblymember McKinnor through the legislative process. We currently have a bill, AB617 and so really look forward to working with you guys to see how we can get more access to respite. So really appreciate the hearing today and look forward to working with you guys. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation please.

  • Mark Melanson

    Person

    Good afternoon. Mark Melanson, California Community Living Network. I'll be quick because I got to catch a train so you'll be happy. I might be less than two minutes. Thank you Committee Chair Members and staff for a very detailed meeting. So many important topics. Ditto from Tiffany on the Master plan comments that she made.

  • Mark Melanson

    Person

    My comment on rate reform and QIP as the PAVE project mentioned in the LAO's comments is on track. Thanks to the amazing collaborative teamwork from both the DDS, CCL and PAVE team, we are testing individual outcome measures now as we prepare for implementation phase of the first Regional Center.

  • Mark Melanson

    Person

    CCLN also looks forward to working with everyone to address the many concerns expressed today with the current 9010 rate issues. Rate penalties won't improve quality. Thanks so much.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation please.

  • Carl London Ii

    Person

    Mr. Chairman of Members, all the Members that are here, Carl London here on behalf of the Alliance Supporting people with IDD like to just start today by thanking you for a lengthy hearing on a number of topics. Great work on your part. Also want to make a very positive comment on the Director of Developmental Services.

  • Carl London Ii

    Person

    I'll say this for him, he answers emails, picks up his phone whenever he's asked and is very responsive and we greatly appreciate that. I do want to make a comment about the rates issue just briefly.

  • Carl London Ii

    Person

    I heard you talk about the cuts that are potentially in play if the Federal Government takes certain actions and how that could devastate programs and make them go away and how we don't need that to happen. We also have to be very clear that the rates could have the same effect.

  • Carl London Ii

    Person

    If the rates aren't done correctly and factor in all the cost expenditures that programs face in trying to provide services, they will go away. They won't be able to survive. It's just a fact. You also heard about the workforce.

  • Carl London Ii

    Person

    The other way they go away is by not being able to hire competent people to do the job and present services to the consumers that need it. The other thing that I'd just like to raise really quickly on employment, we really need to take this seriously.

  • Carl London Ii

    Person

    We just got rid of the below minimum wage category of workers out there, approximately 4,000, as noted in the analysis. Still we're in those programs. We like to all think that it's a big victory if we move some of those people over to a job where they make minimum wage or higher. And in some respects that's right.

  • Carl London Ii

    Person

    But we have to do better qualitative and qualitative analysis than that. We need to know where those people went. Were they working a 20 hour a week job before? But now we celebrate the fact that they have a minimum wage or higher job and they're only working three hours a week.

  • Carl London Ii

    Person

    What that then means is the other 17 hours have to be filled. They're typically filled in a day program which ends up costing the State of California more money because day program rates are higher.

  • Carl London Ii

    Person

    So these are the kinds of qualitative analyses we need to look at as we try to fulfill this promise of employment being the top priority for this population in the State of California. I can assure you from 2013 when that law was passed to today, the rates of employment have not improved.

  • Carl London Ii

    Person

    And we need to take that seriously. Somebody needs to take accountability for that and finally sort of hold everybody sort of accountable for that. Ask for hard data. If we give you money for paid internship programs and competitive integrated employment, what happened? Did they succeed or not? How many people did they stay in the jobs?

  • Carl London Ii

    Person

    Did they get a new job? We need to know those answers. Thank you very much.

  • Corey Jackson

    Legislator

    That's a warning.

  • Jacqueline Foss

    Person

    I didn't. I didn't do anything yet. Hi, I'm Jacqueline Foss. I'm the board President of the California Community Living Network and the founder of an agency here locally that has supported living and independent living 30 years. I'm now retired. Ish. Workforce, workforce, workforce. I want to go back to what you said earlier.

  • Jacqueline Foss

    Person

    Legislative action happen when you put into the budget. Direct support, professional University and bilingual pay. Both of those have yet to be implemented. If we implement direct support, professional University, that equals pay for the direct support professionals, bilingual pay, that is recognition of the diversity that is necessary within our community. It is there, it's in the budget.

  • Jacqueline Foss

    Person

    It's just not being yet implemented. We can't talk about if we don't talk about workforce, workforce, workforce. The other is you really touched on me when you talked about those individuals that are aging. Preventative health care.

  • Jacqueline Foss

    Person

    We have got to figure out how we are coordinating with the health care systems to make sure people are getting preventative health care. I know three of the individuals I have supported for years, all three have been diagnosed with breast cancer, stage one. They're getting care, they're surviving. And one of those is an 80 year old woman.

  • Jacqueline Foss

    Person

    And that takes for the provider to do the mammogram to catch the cancer in time. So I just think preventative health care has to have a bigger conversation because that is about the quality of life for people with disabilities. Thank you.

  • Corey Jackson

    Legislator

    Thank you. Name and affiliation please.

  • Jordan Lindsay

    Person

    Thank you. Mr. Chair and staff. Jordan Lindsay with The Arc of California and The Arc of United Cerebral Palsy California Collaboration. It was wonderful to see new Members of the Subcommitee join here us as well and I hope they continue to join us quickly on item number one, the Master Plan.

  • Jordan Lindsay

    Person

    Just wanted to heavily encourage major legislative involvement in any decisions that come out of the Master Plan. I think the Legislature needs to have a very big role in that. Number two on Employment first policy. Align my comments with those of Mr. London.

  • Jordan Lindsay

    Person

    The Legislature and Administration chose to take something away from a service that people had for often decades and now we have to do better to make sure they don't have no option but actually a better option in its place in item number three, respite services.

  • Jordan Lindsay

    Person

    As somebody who began this journey in this career as a respite worker, I really want to thank you Mr. Chair for highlighting the importance of respite for families and for item number five, rate reform implementation. Align my comments with those of Mr.

  • Jordan Lindsay

    Person

    Giardini at the panel and just really want to urge the Committee to look at the proposal from Assemblywoman Nguyen so that we can make these corrections moving forward. And then finally in disaster response we've been our organization's been highlighting that there is a major disaster waiting to happen in schools.

  • Jordan Lindsay

    Person

    School districts are not required and by large do not have. I know it's a little out of this Committee, but do not have a requirement to have individualized disaster response for children, students who need individualization in that. And so we've been trying to highlight that and we've been unofficial from Cal oes.

  • Jordan Lindsay

    Person

    They just need one position funding for one position to coordinate with with California Department of Education to create a standard template for school districts and schools to create individualized disaster responses for students with IEPs who may need that. Thank you very much.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation please.

  • Alex Mountford

    Person

    Hello Chair. My name is Alex Mountford. I'm the President of the California Respite Association. We represent 60 different respite providers who serve the majority of who serve and support the majority of folks receiving respite in the California service system. I want to thank you for bringing respite up as it is such a.

  • Corey Jackson

    Legislator

    Have I ever met you before?

  • Alex Mountford

    Person

    I've been around before. I tend to stick in the background but I tend to blend in with all the other bald folks here too. So we have our own coalition that we stick with too.

  • Corey Jackson

    Legislator

    I want you to come see me.

  • Alex Mountford

    Person

    I will. I will again too. I really want to thank you for bringing up respite as it is a critical issue because respite services really have an important role.

  • Alex Mountford

    Person

    They build trust and they also ensure that folks stay in their homes and local communities staying in their homes and local communities ensure that they do not need access to higher intensity and more costly services later on as well as also fulfilling the person centered aspect of it too. In the aspect of trust too.

  • Alex Mountford

    Person

    This is also very important.

  • Alex Mountford

    Person

    Ensuring that people can access respite really builds trust within the service system, a connection to the Regional Center and also especially in this time where ICE is abound and there are other major issues and concerns with families and especially with a large majority of folks being Hispanic or non English speakers accessing respite, it is critical that that trust is respected and continue to be built.

  • Alex Mountford

    Person

    So I wanted to thank you for bringing that up as well as offer the California Respite Association's assistance and expertise in any of these matters and make those available to you as well as any other committee as you see fit. Thank you very much.

  • Corey Jackson

    Legislator

    Thank you very much. Come see me. Oh, here's Trouble.

  • Evelyn Chavaard

    Person

    Evelyn Chavaard with California Disability Services Association. Represent 120 service providers across the state. First like to applaud DDS for prioritizing the creation of an updated data infrastructure system. This is really vital to any other improvements we want to make.

  • Evelyn Chavaard

    Person

    Accurate and accessible data is key to really actualizing the goals of the rate study and any sort of incentive model. CDSA would also like to voice our support for the DDS trailer bill proposal that focuses on improving access to employment services.

  • Evelyn Chavaard

    Person

    To further eliminate barriers to these programs, we would ask for the inclusion of language that would eliminate the requirement for an outside accreditation in order to offer these programs through the Regional Center system. And then finally to best serve Californians. With intellectual and developmental disabilities. We ask the Subcommitee to support these.

  • Evelyn Chavaard

    Person

    Ask and any other that would help stabilize this system during an uncertain time. Thank you.

  • Corey Jackson

    Legislator

    Thank you. Name and affiliation please.

  • Eric Champ

    Person

    Hello, Eric Champ of the United Cerebral Palsy and also with the California Respite Association with Alex. Thank you for offering that conversation around respite. Like to have some comments around respite and transportation. You asked as a provider. Want to give you some feedback. Please remember as we're talking about respite to not complicate the process. Keep it simple.

  • Eric Champ

    Person

    Make sure that we can get access to service right away. If there is an assessment for respite, we want to really make sure that eligibility determinations are done correctly that services can get initiated. We can then adapt those services over time. Respite is the most utilized service.

  • Eric Champ

    Person

    So if we do that right, we solve a lot of problems. If we do it wrong, those problems continue to the future. I also wanted to remember that 25 of the folks percent of the folks that we serve are over 18.

  • Eric Champ

    Person

    On page 23 it said that for folks that are over 60 years of old, 20% of them still live at home and are likely eligible for respite. So it's also a housing resource to make sure that our folks can live in the community. We mentioned dei. We mentioned making sure that respite can have access.

  • Eric Champ

    Person

    So really focusing on protecting the family's ability to bring in people they already trust from their communities to enhance or expand their circle of supports. We think that's really important for our rural communities. Please remember them. They need mileage to get to those families. And for folks that have enhanced respite needs, we talked about medical and behavioral.

  • Eric Champ

    Person

    I just want to know that was not included in the rate study. So and those systems are broken. Often a referral to a medical or respite because of higher needs results in a denial of service. So we'd like to see that brought back up for reconsideration so that we can make sure that everybody can access respite.

  • Eric Champ

    Person

    And then in closing, just as a reminder, we still have work to do on the rate study. The transportation rates are broken. Transportation not just supports folks from exhibiting experiencing isolation, supports all these services. It's essential in a disaster. So we want to make sure that those rates get addressed in the future. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation, please.

  • Andrea Ball

    Person

    Thank you. Mr. Chair. Andrea Ball, here on behalf of the California Speech Language Hearing Association. We represent speech language pathologists that provide early start services through Department of Developmental Services. We provided a written position statement that was developed by speech language pathologists working in this area.

  • Andrea Ball

    Person

    I think it really the recommendations are directly related to item issue 1 and 5. And really on the rate reform, really the recommendations focus on increasing the consistency of the practices of the rates. Used the service codes directives from DDS. We shared it with DDS and are continuing to meet with them.

  • Andrea Ball

    Person

    But really we think these recommendations address challenges the providers face and in turn will really help to increase access if they're addressed. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation, please.

  • Patrick Ahrens

    Legislator

    Hola.

  • Griselda Estrada

    Person

    Lo Tregue, Escrito and Ingles.

  • Corey Jackson

    Legislator

    Hola.

  • Griselda Estrada

    Person

    Good afternoon, Assembly Member Dr. Corey Jackson and all attendees. My name is Griselda Estrada and I am the mother of two adults with severe nonverbal autism. Autism. A 19 year old and a 20 year old high functioning autism. I have attended almost every Master Plan meeting. Listening and posting my comments in the chat.

  • Griselda Estrada

    Person

    And what I have seen is a back and forth negotiation about the Regional Center's priorities versus the needs of my children and the entire IDD community. Ultimately, I am not certain they will respect the few recommendations they chose to include in the final document. Once again, they pulled the wool over our eyes.

  • Griselda Estrada

    Person

    Despite the fact that the Governor sent us this Master Plan so that our needs would be taken into account, that was not the case today. We're here to let you know that families who need Regional Center services continue. To support the self determination program and.

  • Griselda Estrada

    Person

    That this entire process would have a degree of Training transparency if SB 1281 were taken into account. That's it.

  • Griselda Estrada

    Person

    Thank you. Gracias. And this is my son.

  • Corey Jackson

    Legislator

    Gracias.

  • Corey Jackson

    Legislator

    Yes. Hola.

  • Andrea Ball

    Person

    Say hola.

  • Unidentified Speaker

    Person

    Hi.

  • Corey Jackson

    Legislator

    Hi.

  • Unidentified Speaker

    Person

    I support Oscar's testimony on SB 128. I support Oscar's testimony on SB 128. Thank you.

  • Corey Jackson

    Legislator

    Thank you. Appreciate it. Yes, yes. Thank you. Thank you. Name and affiliation please.

  • Reyna Rangel

    Person

    Hi, my name is Reyna Rangel. I have two kids in Regional Center. This is my kids, and I'm here for autodeterminación. We support autodeterminación. No extra voice is in self determination.

  • Corey Jackson

    Legislator

    Thank you.

  • Reyna Rangel

    Person

    [Translated] I want to support Oscar Mercado because he becomes the voice of our children because my children are nonverbal.

  • Corey Jackson

    Legislator

    Gracias.

  • Dora Contreras

    Person

    She said that... Did you understand that? She said that she supports Oscar Mercado because he becomes the voice of our community.

  • Corey Jackson

    Legislator

    Thank you.

  • Dora Contreras

    Person

    I was part of the master plan. In fact I was given this as a gift. This is my grandson and I want...

  • Corey Jackson

    Legislator

    Go ahead and turn that around for the cameras. You have it upside down.

  • Dora Contreras

    Person

    Oh, sorry. That's how nervous I am.

  • Corey Jackson

    Legislator

    I don't want you getting home and watching the video and then say oh Lord, what was I... How come nobody told me?

  • Dora Contreras

    Person

    And I would say that to you, Dr. Jackson. My name is Dora Contreras and I have a grandson that's going to be 32 in the system. He has been there since, it's been three, since he was three years old. And I want to support Oscar Mercado's testimonials as well as Vivian Haun's.

  • Dora Contreras

    Person

    Both have really told the story of the plights that we continue to face. I want to especially talk about two recommendations that were given by the master plan that were addressed in the master plan. And one is that one is the conservatorship. The master plan states that we want to reduce the number of conservatorship.

  • Dora Contreras

    Person

    I would like to eliminate the conservatorships and go towards the self decision making, supported decision making. Mainly because I had quite an experience when my grandson was in a care home and I was not allowed to say anything about his medications. They just kept over medicating him until I got the conservatorship.

  • Dora Contreras

    Person

    Then they stepped aside and I was able. So that's very, very dear and very dear to me. The other is that I would like to advocate for an implementation committee that includes families from the community, self advocates, leaders in the community, and people that represent the entities that are involved in the master plan implementation. Thank you.

  • Corey Jackson

    Legislator

    Thank you. Name and affiliation please.

  • Blanca Mercado

    Person

    Hi, my name is Blanca Mercado, mother of Oscar Mercado. I don't speak English, but I'm going to try my best. Okay.

  • Corey Jackson

    Legislator

    Yes, or you can speak in Spanish. It's up to you.

  • Blanca Mercado

    Person

    But I would like everybody try to understand me.

  • Corey Jackson

    Legislator

    Okay, no problem.

  • Blanca Mercado

    Person

    Chairman Jackson, the community pleads and hopes that this master plan will be an opportunity to greatly reduce bureaucracy, a bureaucracy that has diminished or cast individuals with IDD to this day to continue facing barriers that should no longer exist, leaving individuals behind or with no services at all.

  • Blanca Mercado

    Person

    If Regional Centers are supported of with a program of independent social coordinators who work directly with families and understand their needs firsthand, it would be progress. Also, we implore that the families be heard and have an active role in the master plan implementation. Thank you very much.

  • Corey Jackson

    Legislator

    Thank you. Name and affiliation, please.

  • Aaron Carruthers

    Person

    Hello. Aaron Carruthers with the State Council on Developmental Disabilities with public comments on two items, the disaster response and federal threats. On disaster response, our role in those moments is to assess what's happening to community and to people.

  • Aaron Carruthers

    Person

    And we're able to do that in this situation through our office in Glendale, Los Angeles, and very happy to report all the planning and preparation worked pretty well. Evidence of that is just what was the focus of this Committee's discussion, which was update. There weren't critical issues that we're talking about, major breakdowns that we needed to address.

  • Aaron Carruthers

    Person

    The Regional Centers, emergency response, counties worked well. That allowed us in a moment to go into gap analysis. Were there other things that we could fill, and that ended up just being donations for other items that aren't typically provided. Want to share that the disaster is over, but the recovery is not.

  • Aaron Carruthers

    Person

    Those donations and that focus continue and we continue to fill that role, most recently with a couple of pallets of baby formula. Regarding federal threats, Assembly Member Ahrens stated that we can't just monitor, and through our independent capacity, we are able to do a little bit more at the State Council. And that's actually talk with people and tell them the situation and tell them what they can do.

  • Aaron Carruthers

    Person

    Many people are frozen. They're afraid. They're scared. But there are things they can do and people snap into action when knowing that telling their story is the most effective thing they can do. I've directly personally trained about over 2,000 people in the last 34 weeks on how to tell your story, who to tell your story to, and give them specific tools to make it easier so people are out there raising their voices. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation, please.

  • Stephanie Jimenez

    Person

    Hello, Chair and Members. Stephanie Tapia Jiménez on behalf of the Special Olympics of Northern and Southern California. Thank you to Members of this Committee as well as your colleagues in the Assembly and Senate for meeting with our delegation of over 20 athletes and their families and staff here in Sacramento over the last three days to discuss the work of the Special Olympics throughout the state.

  • Stephanie Jimenez

    Person

    We also have discussed our efforts to secure funding to continue to operate our health screening and healthy athletes programs, as well as our Unified Champions Program, which is an integrated sports program of students with and without disabilities that have been allowed to expand over 1,100 schools with funding from the Governor in 2022. Assembly Member Stephanie Nguyen submitted the request to the Committee on our behalf, and we look forward to working with all of you to continue to advocate for this critical funding for the Special Olympics. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation, please.

  • Alicia Priego

    Person

    Alicia Priego on behalf of Sevita, which is also known as the California Mentor Network, which provides services and support to adults and children with IDD. And the good thing about being almost close to the end is I can align my comments with our partners that have already spoken like the Arc, the Alliance, and CDSA. And just want to emphasize and add our voice to protect the disability service system, that these are important programs that build rich and independent lives as well as provide essential services. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. Name and affiliation, please.

  • Jose Flores

    Person

    [Translated] Hi, my name is Jose Flores. I speak Spanish, no problem. Okay. We fully support self-determination for our children. This has helped us give our children greater independence and a better life. And we fully support SB 1281. Thank you.

  • Corey Jackson

    Legislator

    Gracias. Name and affiliation, please.

  • Oscar Mercado

    Person

    Hello again. Oscar Mercado, self advocate and with the ICC. I know there was a lot of talk earlier about the implementation of the master plan, and I understand that there are financial concerns, but... And I also understand the hard work of the legislative and the departments.

  • Oscar Mercado

    Person

    But I do want to emphasize that the implementation should always include, at first, the impact it will have. Excuse me. The impact it will have on people with IDD and categorize the recommendations with how it will completely change the game for individuals with intellectual and developmental disabilities and reduce racial and geographic disparities.

  • Oscar Mercado

    Person

    Also, the timing should be included as well. Is this something that can be done this year? Is this something that can be done within two to five years? That's also important. The degree of difficulty that the changes are made without too much, too much difficulty with the Legislature or with the departments, or it can be something that can move pretty quickly. And finally, of course, the cost. But the cost should never be at the top.

  • Oscar Mercado

    Person

    This is a work of heart, and we are talking about individuals that are completely vulnerable. We have to do the best that we can to support them. So I encourage everybody that when we're talking about implementation and what to prioritize, we always consider the effect and impact it will have with people with developmental disabilities. Thank you.

  • Corey Jackson

    Legislator

    Thank you very much. You're turning into a pro using the panel and public comment. I'm watching you. Okay, before... That concludes public comment. Before we conclude this hearing, I'd like to extend my heartfelt thanks to my fellow Assembly Members who are freshmen Members who are putting in the time to learn the issues. Very impressive.

  • Corey Jackson

    Legislator

    Of course, our Committee staff, many of you have done shout outs to Nicole. I'm jealous. My personal staff, and the dedicated support teams from the Assembly Sergeant's Office, Assembly TV, our sign language interpreters, and many others working tirelessly behind the scenes. Your hard work and dedication is appreciated. Thank you all very much. And we are adjourned.

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