ABX2 15: End of life.
- Session Year: 2015-2016
- House: Assembly
- Latest Version Date: 2015-10-05
Existing law authorizes an adult to give an individual health care instruction and to appoint an attorney to make health care decisions for that individual in the event of his or her incapacity pursuant to a power of attorney for health care.
This bill, until January 1, 2026, would enact the End of Life Option Act authorizing an adult who meets certain qualifications, and who has been determined by his or her attending physician to be suffering from a terminal disease, as defined, to make a request for a drug prescribed pursuant to these provisions for the purpose of ending his or her life. The bill would establish the procedures for making these requests. The bill would also establish specified forms to request an aid-in-dying drug, under specified circumstances, an interpreter declaration to be signed subject to penalty of perjury, thereby creating a crime and imposing a state-mandated local program, and a final attestation for an aid-in-dying drug. This bill would require specified information to be documented in the individuals medical record, including, among other things, all oral and written requests for an aid-in-dying drug.
This bill would prohibit a provision in a contract, will, or other agreement from being conditioned upon, or affected by, a person making or rescinding a request for the above-described drug. The bill would prohibit the sale, procurement, or issuance of any life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for any policy or plan contract, from being conditioned upon or affected by the request. The bill would prohibit an insurance carrier from providing any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. The bill would also prohibit any communication from containing both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
This bill would provide a person, except as provided, immunity from civil or criminal liability solely because the person was present when the qualified individual self-administered the drug, or the person assisted the qualified individual by preparing the aid-in-dying drug so long as the person did not assist with the ingestion of the drug, and would specify that the immunities and prohibitions on sanctions of a health care provider are solely reserved for conduct of a health care provider provided for by the bill. The bill would make participation in activities authorized pursuant to its provisions voluntary, and would make health care providers immune from liability for refusing to engage in activities authorized pursuant to its provisions. The bill would also authorize a health care provider to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under the act while on the premises owned or under the management or direct control of that prohibiting health care provider, or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
This bill would make it a felony to knowingly alter or forge a request for drugs to end an individuals life without his or her authorization or to conceal or destroy a withdrawal or rescission of a request for a drug, if it is done with the intent or effect of causing the individuals death. The bill would make it a felony to knowingly coerce or exert undue influence on an individual to request a drug for the purpose of ending his or her life, to destroy a withdrawal or rescission of a request, or to administer an aid-in-dying drug to an individual without their knowledge or consent. By creating a new crime, the bill would impose a state-mandated local program. The bill would provide that nothing in its provisions is to be construed to authorize ending a patients life by lethal injection, mercy killing, or active euthanasia, and would provide that action taken in accordance with the act shall not constitute, among other things, suicide or homicide.
This bill would require physicians to submit specified forms and information to the State Department of Public Health after writing a prescription for an aid-in-dying drug and after the death of an individual who requested an aid-in-dying drug. The bill would authorize the Medical Board of California to update those forms and would require the State Department of Public Health to publish the forms on its Internet Web site. The bill would require the department to annually review a sample of certain information and records, make a statistical report of the information collected, and post that report to its Internet Web site.
Existing constitutional provisions require that a statute that limits the right of access to the meetings of public bodies or the writings of public officials and agencies be adopted with findings demonstrating the interest protected by the limitation and the need for protecting that interest.
This bill would make legislative findings to that effect.
The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement.
This bill would provide that no reimbursement is required by this act for a specified reason.
Existing law authorizes an adult to give an individual health care instruction and to appoint an attorney to make health care decisions for that individual in the event of his or her incapacity pursuant to a power of attorney for health care.
This bill, until January 1, 2026, would enact the End of Life Option Act authorizing an adult who meets certain qualifications, and who has been determined by his or her attending physician to be suffering from a terminal disease, as defined, to make a request for a drug prescribed pursuant to these provisions for the purpose of ending his or her life. The bill would establish the procedures for making these requests. The bill would also establish specified forms to request an aid-in-dying drug, under specified circumstances, an interpreter declaration to be signed subject to penalty of perjury, thereby creating a crime and imposing a state-mandated local program, and a final attestation for an aid-in-dying drug. This bill would require specified information to be documented in the individuals medical record, including, among other things, all oral and written requests for an aid-in-dying drug.
This bill would prohibit a provision in a contract, will, or other agreement from being conditioned upon, or affected by, a person making or rescinding a request for the above-described drug. The bill would prohibit the sale, procurement, or issuance of any life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for any policy or plan contract, from being conditioned upon or affected by the request. The bill would prohibit an insurance carrier from providing any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. The bill would also prohibit any communication from containing both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
This bill would provide a person, except as provided, immunity from civil or criminal liability solely because the person was present when the qualified individual self-administered the drug, or the person assisted the qualified individual by preparing the aid-in-dying drug so long as the person did not assist with the ingestion of the drug, and would specify that the immunities and prohibitions on sanctions of a health care provider are solely reserved for conduct of a health care provider provided for by the bill. The bill would make participation in activities authorized pursuant to its provisions voluntary, and would make health care providers immune from liability for refusing to engage in activities authorized pursuant to its provisions. The bill would also authorize a health care provider to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under the act while on the premises owned or under the management or direct control of that prohibiting health care provider, or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
This bill would make it a felony to knowingly alter or forge a request for drugs to end an individuals life without his or her authorization or to conceal or destroy a withdrawal or rescission of a request for a drug, if it is done with the intent or effect of causing the individuals death. The bill would make it a felony to knowingly coerce or exert undue influence on an individual to request a drug for the purpose of ending his or her life, to destroy a withdrawal or rescission of a request, or to administer an aid-in-dying drug to an individual without their knowledge or consent. By creating a new crime, the bill would impose a state-mandated local program. The bill would provide that nothing in its provisions is to be construed to authorize ending a patients life by lethal injection, mercy killing, or active euthanasia, and would provide that action taken in accordance with the act shall not constitute, among other things, suicide or homicide.
This bill would require physicians to submit specified forms and information to the State Department of Public Health after writing a prescription for an aid-in-dying drug and after the death of an individual who requested an aid-in-dying drug. The bill would authorize the Medical Board of California to update those forms and would require the State Department of Public Health to publish the forms on its Internet Web site. The bill would require the department to annually review a sample of certain information and records, make a statistical report of the information collected, and post that report to its Internet Web site.
Existing constitutional provisions require that a statute that limits the right of access to the meetings of public bodies or the writings of public officials and agencies be adopted with findings demonstrating the interest protected by the limitation and the need for protecting that interest.
This bill would make legislative findings to that effect.
The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement.
This bill would provide that no reimbursement is required by this act for a specified reason.
Existing law authorizes an adult to give an individual health care instruction and to appoint an attorney to make health care decisions for that individual in the event of his or her incapacity pursuant to a power of attorney for health care.
This bill, until January 1, 2026, would enact the End of Life Option Act authorizing an adult who meets certain qualifications, and who has been determined by his or her attending physician to be suffering from a terminal disease, as defined, to make a request for a drug prescribed pursuant to these provisions for the purpose of ending his or her life. The bill would establish the procedures for making these requests. The bill would also establish the specified forms to request an aid-in-dying drug and, under specified circumstances, an interpreter declaration to be signed subject to penalty of perjury, thereby creating a crime and imposing a state-mandated local program, and a final attestation for an aid-in-dying drug. This bill would require specified information to be documented in the individuals medical record, including, among other things, all oral and written requests for an aid-in-dying drug.
This bill would prohibit a provision in a contract, will, or other agreement from being conditioned upon, or affected by, a person making or rescinding a request for the above-described drug. The bill would prohibit the sale, procurement, or issuance of any life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for any policy or plan contract, from being conditioned upon or affected by the request. The bill would prohibit an insurance carrier from providing any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. The bill would also prohibit any communication from containing both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
This bill would provide a person, except as provided, immunity from civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with the act, civil or criminal liability solely because the person was present when the qualified individual self-administered the drug, or the person assisted the qualified individual by preparing the aid-in-dying drug so long as the person did not assist with the ingestion of the drug, and would specify that the immunities and prohibitions on sanctions of a health care provider are solely reserved for conduct of a health care provider provided for by the bill. The bill would make participation in activities authorized pursuant to its provisions voluntary, and would make health care providers immune from liability for refusing to engage in activities authorized pursuant to its provisions. The bill would also authorize a health care provider to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under the act while on the premises owned or under the management or direct control of that prohibiting health care provider, or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
This bill would make it a felony to knowingly alter or forge a request for drugs to end an individuals life without his or her authorization or to conceal or destroy a withdrawal or rescission of a request for a drug, if it is done with the intent or effect of causing the individuals death. The bill would make it a felony to knowingly coerce or exert undue influence on an individual to request a drug for the purpose of ending his or her life or life, to destroy a withdrawal or rescission of a request. request, or to administer an aid-in-dying drug to an individual without their knowledge or consent. By creating a new crime, the bill would impose a state-mandated local program. The bill would provide that nothing in its provisions is to be construed to authorize ending a patients life by lethal injection, mercy killing, or active euthanasia, and would provide that action taken in accordance with the act shall not constitute, among other things, suicide or homicide.
This bill would require physicians to submit specified forms and information to the State Department of Public Health after writing a prescription for an aid-in-dying drug and after the death of an individual who requested an aid-in-dying drug. The bill would authorize the Medical Board of California to update those forms and would require the State Department of Public Health to publish the forms on its Internet Web site. The bill would require the department to annually review a sample of certain information and records, make a statistical report of the information collected, and post that report to its Internet Web site.
Existing constitutional provisions require that a statute that limits the right of access to the meetings of public bodies or the writings of public officials and agencies be adopted with findings demonstrating the interest protected by the limitation and the need for protecting that interest.
This bill would make legislative findings to that effect.
The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement.
This bill would provide that no reimbursement is required by this act for a specified reason.
Existing law authorizes an adult to give an individual health care instruction and to appoint an attorney to make health care decisions for that individual in the event of his or her incapacity pursuant to a power of attorney for health care.
This bill would enact the End of Life Option Act authorizing an adult who meets certain qualifications, and who has been determined by his or her attending physician to be suffering from a terminal disease, as defined, to make a request for a drug prescribed pursuant to these provisions for the purpose of ending his or her life. The bill would establish the procedures for making these requests. The bill would also establish the forms to request an aid-in-dying drug and, under specified circumstances, an interpreter declaration to be signed subject to penalty of perjury, thereby creating a crime and imposing a state-mandated local program. This bill would require specified information to be documented in the individuals medical record, including, among other things, all oral and written requests for an aid-in-dying drug.
This bill would prohibit a provision in a contract, will, or other agreement from being conditioned upon upon, or affected by by, a person making or rescinding a request for the above-described drug. The bill would prohibit the sale, procurement, or issuance of any life, health, or annuity policy, health care service plan, plan contract, or health benefit plan, or the rate charged for any policy or plan contract, from being conditioned upon or affected by the request. The bill would prohibit an insurance carrier from providing any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. The bill would also prohibit any communication from containing both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
This bill would provide immunity from civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with the act, and would specify that the immunities and prohibitions on sanctions of a health care provider are solely reserved for conduct provided for by the bill. The bill would make participation in activities authorized pursuant to its provisions voluntary, and would make health care providers immune from liability for refusing to engage in activities authorized pursuant to its provisions. The bill would also authorize a health care provider to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under the act while on the premises owned or under the management or direct control of that prohibiting health care provider, or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
This bill would make it a felony to knowingly alter or forge a request for drugs to end an individuals life without his or her authorization or to conceal or destroy a withdrawal or rescission of a request for a drug, if it is done with the intent or effect of causing the individuals death. The bill would make it a felony to knowingly coerce or exert undue influence on an individual to request a drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request. By creating a new crime, the bill would impose a state-mandated local program. The bill would provide that nothing in its provisions is to be construed to authorize ending a patients life by lethal injection, mercy killing, or active euthanasia, and would provide that action taken in accordance with the act shall not constitute, among other things, suicide or homicide.
This bill would require physicians to submit specified forms and information to the State Department of Public Health after writing a prescription for an aid-in-dying drug and after the death of an individual who requested an aid-in-dying drug. The bill would require authorize the Medical Board of California to update those forms on or before January 1, 2019, and would require the State Department of Public Health to publish the forms on its Internet Web site. The bill would require the department to annually review a sample of certain information and records and to records, make a statistical report of the information collected. collected, and post that report to its Internet Web site.
Existing constitutional provisions require that a statute that limits the right of access to the meetings of public bodies or the writings of public officials and agencies be adopted with findings demonstrating the interest protected by the limitation and the need for protecting that interest.
This bill would make legislative findings to that effect.
The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement.
This bill would provide that no reimbursement is required by this act for a specified reason.
Existing law authorizes an adult to give an individual health care instruction and to appoint an attorney to make health care decisions for that individual in the event of his or her incapacity pursuant to a power of attorney for health care.
This bill would enact the End of Life Option Act authorizing an adult who meets certain qualifications, and who has been determined by his or her attending physician to be suffering from a terminal disease, as defined, to make a request for a drug prescribed pursuant to these provisions for the purpose of ending his or her life. The bill would establish the procedures for making these requests. The bill would also establish the forms to request an aid-in-dying drug and, under specified circumstances, an interpreter declaration to be signed subject to penalty of perjury, thereby creating a crime and imposing state-mandated local program. This bill would require specified information to be documented in the individuals medical record, including, among other things, all oral and written requests for an aid-in-dying drug.
This bill would prohibit a provision in a contract, will, or other agreement from being conditioned upon or affected by a person making or rescinding a request for the above-described drug. The bill would prohibit the sale, procurement, or issuance of any life, health, or annuity policy, health care service plan, contract, or health benefit plan, or the rate charged for any policy or plan contract, from being conditioned upon or affected by the request. The bill would prohibit an insurance carrier from providing any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. The bill would also prohibit any communication from containing both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
This bill would provide immunity from civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with the act, and would specify that the immunities and prohibitions on sanctions of a health care provider are solely reserved for conduct provided for by the bill. The bill would make participation in activities authorized pursuant to its provisions voluntary, and would make health care providers immune from liability for refusing to engage in activities authorized pursuant to its provisions. The bill would authorize a health care provider to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under the act while on the premises owned or under the management or direct control of that prohibiting health care provider, or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
This bill would make it a felony to knowingly alter or forge a request for drugs to end an individuals life without his or her authorization or to conceal or destroy a withdrawal or rescission of a request for a drug, if it is done with the intent or effect of causing the individuals death. The bill would make it a felony to knowingly coerce or exert undue influence on an individual to request a drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request. By creating a new crime, the bill would impose a state-mandated local program. The bill would provide that nothing in its provisions is to be construed to authorize ending a patients life by lethal injection, mercy killing, or active euthanasia, and would provide that action taken in accordance with the act shall not constitute, among other things, suicide or homicide.
This bill would require physicians to submit specified forms and information to the State Department of Public Health after writing a prescription for an aid-in-dying drug and after the death of an individual who requested an aid-in-dying drug. The bill would require the Medical Board of California to update those forms on or before January 1, 2019, and the State Department of Public Health to publish the forms on its Internet Web site. The bill would require the department to annually review a sample of certain information and records and to make a statistical report of the information collected.
Existing constitutional provisions require that a statute that limits the right of access to the meetings of public bodies or the writings of public officials and agencies be adopted with findings demonstrating the interest protected by the limitation and the need for protecting that interest.
This bill would make legislative findings to that effect.
The California Constitution requires the state to reimburse local agencies and school districts for certain costs mandated by the state. Statutory provisions establish procedures for making that reimbursement.
This bill would provide that no reimbursement is required by this act for a specified reason.
This part shall be known and may be cited as the End of Life Option Act.
443.1.As used in this part, the following definitions shall apply:
(a)Adult means an individual 18 years of age or older.
(b)Aid-in-dying drug means a drug determined and prescribed by a physician for a qualified individual, which the qualified individual may choose to self-administer to bring about his or her death due to a terminal disease.
(c)Attending physician means the physician who has primary responsibility for the health care of an individual and treatment of the individuals terminal disease.
(d)Attending physician checklist and compliance form means a form, as described in Section 443.22, identifying each and every requirement that must be fulfilled by an attending physician to be in good faith compliance with this part should the attending physician choose to participate.
(e)Capacity to make medical decisions means that, in the opinion of an individuals attending physician, consulting physician, psychiatrist, or psychologist, pursuant to Section 4609 of the Probate Code, the individual has the ability to understand the nature and consequences of a health care decision, the ability to understand its significant benefits, risks, and alternatives, and the ability to make and communicate an informed decision to health care providers.
(f)Consulting physician means a physician who is independent from the attending physician and who is qualified by specialty or experience to make a professional diagnosis and prognosis regarding an individuals terminal disease.
(g)Department means the State Department of Public Health.
(h)Health care provider or provider of health care means any person licensed or certified pursuant to Division 2 (commencing with Section 500) of the Business and Professions Code; any person licensed pursuant to the Osteopathic Initiative Act or the Chiropractic Initiative Act; any person certified pursuant to Division 2.5 (commencing with Section 1797) of this code; and any clinic, health dispensary, or health facility licensed pursuant to Division 2 (commencing with Section 1200) of this code.
(i)Informed decision means a decision by an individual with a terminal disease to request and obtain a prescription for a drug that the individual may self-administer to end the individuals life, that is based on an understanding and acknowledgment of the relevant facts, and that is made after being fully informed by the attending physician of all of the following:
(1)The individuals medical diagnosis and prognosis.
(2)The potential risks associated with taking the drug to be prescribed.
(3)The probable result of taking the drug to be prescribed.
(4)The possibility that the individual may choose not to obtain the drug or may obtain the drug but may decide not to ingest it.
(5)The feasible alternatives or additional treatment opportunities, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(j)Medically confirmed means the medical diagnosis and prognosis of the attending physician has been confirmed by a consulting physician who has examined the individual and the individuals relevant medical records.
(k)Mental health specialist assessment means one or more consultations between an individual and a mental health specialist for the purpose of determining that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(l)Mental health specialist means a psychiatrist or a licensed psychologist.
(m)Physician means a doctor of medicine or osteopathy currently licensed to practice medicine in this state.
(n)Public place means any street, alley, park, public building, any place of business or assembly open to or frequented by the public, and any other place that is open to the public view, or to which the public has access.
(o)Qualified individual means an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied the requirements of this part in order to obtain a prescription for a drug to end his or her life.
(p)Self-administer means a qualified individuals affirmative, conscious, and physical act of administering and ingesting the aid-in-dying drug to bring about his or her own death.
(q)Terminal disease means an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
443.2.(a)An individual who is an adult with the capacity to make medical decisions and with a terminal disease may make a request to receive a prescription for an aid-in-dying drug if all of the following conditions are satisfied:
(1)The individuals attending physician has diagnosed the individual with a terminal disease.
(2)The individual has voluntarily expressed the wish to receive a prescription for an aid-in-dying drug.
(3)The individual is a resident of California and is able to establish residency through any of the following means:
(A)Possession of a California driver license or other identification issued by the State of California.
(B)Registration to vote in California.
(C)Evidence that the person owns or leases property in California.
(D)Filing of a California tax return for the most recent tax year.
(4)The individual documents his or her request pursuant to the requirements set forth in Section 443.3.
(5)The individual has the physical and mental ability to self-administer the aid-in-dying drug.
(b)A person shall not be considered a qualified individual under the provisions of this part solely because of age or disability.
(c)A request for a prescription for an aid-in-dying drug under this part shall be made solely and directly by the individual diagnosed with the terminal disease and shall not be made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decisionmaker.
443.3.(a)An individual seeking to obtain a prescription for an aid-in-dying drug pursuant to this part shall submit two oral requests, a minimum of 15 days apart, and a written request to his or her attending physician. The attending physician shall directly, and not through a designee, receive all three requests required pursuant to this section.
(b)A valid written request for an aid-in-dying drug under subdivision (a) shall meet all of the following conditions:
(1)The request shall be in the form described in Section 443.11.
(2)The request shall be signed and dated, in the presence of two witnesses, by the individual seeking the aid-in-dying drug.
(3)The request shall be witnessed by at least two other adult persons who, in the presence of the individual, shall attest that to the best of their knowledge and belief the individual is all of the following:
(A)An individual who is personally known to them or has provided proof of identity.
(B)An individual who voluntarily signed this request in their presence.
(C)An individual whom they believe to be of sound mind and not under duress, fraud, or undue influence.
(D)Not an individual for whom either of them is the attending physician, consulting physician, or mental health specialist.
(c)Only one of the two witnesses at the time the written request is signed may:
(1)Be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individuals estate upon death.
(2)Own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
(d)The attending physician, consulting physician, or mental health specialist of the individual shall not be one of the witnesses required pursuant to paragraph (3) of subdivision (b).
443.4.(a)An individual may at any time withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to the individuals mental state.
(b)A prescription for an aid-in-dying drug provided under this part may not be written without the attending physician directly, and not through a designee, offering the individual an opportunity to withdraw or rescind the request.
443.5.(a)Before prescribing an aid-in-dying drug, the attending physician shall do all of the following:
(1)Make the initial determination of all of the following:
(A)(i)Whether the requesting adult has the capacity to make medical decisions.
(ii)If there are indications of a mental disorder, the physician shall refer the individual for a mental health specialist assessment.
(iii)If a mental health specialist assessment referral is made, no aid-in-dying drugs shall be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(B)Whether the requesting adult has a terminal disease.
(C)Whether the requesting adult has voluntarily made the request for an aid-in-dying drug pursuant to Sections 443.2 and 443.3.
(D)Whether the requesting adult is a qualified individual pursuant to subdivision (o) of Section 443.1.
(2)Confirm that the individual is making an informed decision by discussing with him or her all of the following:
(A)His or her medical diagnosis and prognosis.
(B)The potential risks associated with ingesting the requested aid-in-dying drug.
(C)The probable result of ingesting the aid-in-dying drug.
(D)The possibility that he or she may choose to obtain the aid-in-dying drug but not take it.
(E)The feasible alternatives or additional treatment options, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(3)Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with the provisions of this part.
(4)Confirm that the qualified individuals request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required pursuant to this part, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
(5)Counsel the qualified individual about the importance of all of the following:
(A)Having another person present when he or she ingests the aid-in-dying drug prescribed pursuant to this part.
(B)Not ingesting the aid-in-dying drug in a public place.
(C)Notifying the next of kin of his or her request for an aid-in-dying drug. A qualified individual who declines or is unable to notify next of kin shall not have his or her request denied for that reason.
(D)Participating in a hospice program.
(E)Maintaining the aid-in-dying drug in a safe and secure location until the time that the qualified individual will ingest it.
(6)Inform the individual that he or she may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner.
(7)Offer the individual an opportunity to withdraw or rescind the request for an aid-in-dying drug before prescribing the aid-in-dying drug.
(8)Verify, immediately before writing the prescription for an aid-in-dying drug, that the qualified individual is making an informed decision.
(9)Confirm that all requirements are met and all appropriate steps are carried out in accordance with this part before writing a prescription for an aid-in-dying drug.
(10)Fulfill the record documentation required under Sections 443.8 and 443.19.
(11)Complete the attending physician checklist and compliance form, as described in Section 443.22, include it and the consulting physician compliance form in the individuals medical record, and submit both forms to the State Department of Public Health.
(12)Give the qualified individual the final attestation form, with the instruction that the form be filled out and executed by the qualified individual within 48 hours prior to the qualified individual choosing to self-administer the aid-in-dying drug.
(b)If the conditions set forth in subdivision (a) are satisfied, the attending physician may deliver the aid-in-dying drug in any of the following ways:
(1)Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individuals discomfort, if the attending physician meets all of the following criteria:
(A)Is authorized to dispense medicine under California law.
(B)Has a current United States Drug Enforcement Administration (USDEA) certificate.
(C)Complies with any applicable administrative rule or regulation.
(2)With the qualified individuals written consent, contacting a pharmacist, informing the pharmacist of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual and with the designation delivered to the pharmacist in writing or verbally.
(c)Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual may be made by personal delivery, or, with a signature required on delivery, by United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
443.6.Before a qualified individual obtains an aid-in-dying drug from the attending physician, the consulting physician shall perform all of the following:
(a)Examine the individual and his or her relevant medical records.
(b)Confirm in writing the attending physicians diagnosis and prognosis.
(c)Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision.
(d)If there are indications of a mental disorder, refer the individual for a mental health specialist assessment.
(e)Fulfill the record documentation required under this part.
(f)Submit the compliance form to the attending physician.
443.7.Upon referral from the attending or consulting physician pursuant to this part, the mental health specialist shall:
(a)Examine the qualified individual and his or her relevant medical records.
(b)Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision.
(c)Determine that the individual is not suffering from impaired judgment due to a mental disorder.
(d)Fulfill the record documentation requirements of this part.
443.8.All of the following shall be documented in the individuals medical record:
(a)All oral requests for aid-in-dying drugs.
(b)All written requests for aid-in-dying drugs.
(c)The attending physicians diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending physician has determined that the individual is not a qualified individual.
(d)The consulting physicians diagnosis and prognosis, and verification that the qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the consulting physician has determined that the individual is not a qualified individual.
(e)A report of the outcome and determinations made during a mental health specialists assessment, if performed.
(f)The attending physicians offer to the qualified individual to withdraw or rescind his or her request at the time of the individuals second oral request.
(g)A note by the attending physician indicating that all requirements under Sections 443.5 and 443.6 have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
443.9.(a)Within 30 calendar days of writing a prescription for an aid-in-dying drug, the attending physician shall submit to the State Department of Public Health a copy of the qualifying patients written request, the attending physician checklist and compliance form, and the consulting physician compliance form.
(b)Within 30 calendar days following the qualified individuals death from ingesting the aid-in-dying drug, or any other cause, the attending physician shall submit the attending physician followup form to the State Department of Public Health.
443.10.A qualified individual may not receive a prescription for an aid-in-dying drug pursuant to this part unless he or she has made an informed decision. Immediately before writing a prescription for an aid-in-dying drug under this part, the attending physician shall verify that the individual is making an informed decision.
443.11.(a)A request for an aid-in-dying drug as authorized by this part shall be in the following form:
| REQUEST FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I request that my attending physician prescribe an aid-in-dying drug that will end my life in a humane and dignified manner if I choose to take it, and I authorize my attending physician to contact any pharmacist about my request. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| I understand that I have the right to withdraw or rescind this request at any time. | |
| I understand the full import of this request and I expect to die if I take the aid-in-dying drug to be prescribed. My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this request voluntarily, without reservation, and without being coerced. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| DECLARATION OF WITNESSES | |
| We declare that the person signing this request: | |
| (a) is personally known to us or has provided proof of identity; | |
| (b) voluntarily signed this request in our presence; | |
| (c) is an individual whom we believe to be of sound mind and not under duress, fraud, or undue influence; and | |
| (d) is not an individual for whom either of us is the attending physician, consulting physician, or mental health specialist. | |
| ............................Witness 1/Date | |
| ............................Witness 2/Date | |
| NOTE: Only one of the two witnesses may be a relative (by blood, marriage, registered domestic partnership, or adoption) of the person signing this request or be entitled to a portion of the persons estate upon death. Only one of the two witnesses may own, operate, or be employed at a health care facility where the person is a patient or resident. |
(b)(1)The written language of the request shall be written in the same translated language as any conversations, consultations, or interpreted conversations or consultations between a patient and his or her attending or consulting physicians.
(2)Notwithstanding paragraph (1), the written request may be prepared in English even when the conversations or consultations or interpreted conversations or consultations were conducted in a language other than English if the English language form includes an attached interpreters declaration that is signed under penalty of perjury. The interpreters declaration shall state words to the effect that:
| I, (INSERT NAME OF INTERPRETER), am fluent in English and (INSERT TARGET LANGUAGE). | |
On (insert date) at approximately (insert time), I read the Request for an Aid-In-Dying Drug to End My Life to (insert name of individual/patient) in (insert target language). | |
Mr./Ms. (insert name of patient/qualified individual) affirmed to me that he/she understood the content of this form and affirmed his/her desire to sign this form under his/her own power and volition and that the request to sign the form followed consultations with an attending and consulting physician. | |
I declare that I am fluent in English and (insert target language) and further declare under penalty of perjury that the foregoing is true and correct. | |
Executed at (insert city, county, and state) on this (insert day of month) of (insert month), (insert year). | |
X______Interpreter signature | |
X______Interpreter printed name | |
X______Interpreter address |
(3)An interpreter whose services are provided pursuant to paragraph (2) shall not be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the persons estate upon death. An interpreter whose services are provided pursuant to paragraph (2) shall meet the standards promulgated by the California Healthcare Interpreting Association or the National Council on Interpreting in Health Care or other standards deemed acceptable by the department for health care providers in California.
(c)The final attestation form given by the attending physician to the qualified individual at the time the attending physician writes the prescription shall appear in the following form:
| FINAL ATTESTATION FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I have received the aid-in-dying drug and am fully aware that this aid-in-dying drug will end my life in a humane and dignified manner. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this decision to ingest the aid-in-dying drug to end my life in a humane and dignified manner. I understand I still may choose not to ingest the drug and by signing this form I am under no obligation to ingest the drug. I understand I may rescind this request at any time. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| Time:................................................. | |
(1)Within 48 hours prior to the individual self-administering the aid-in-dying drug, the individual shall complete the final attestation form. If aid-in-dying medication is not returned or relinquished upon the patients death as required in Section 443.20, the completed form shall be delivered by the individuals health care provider, family member, or other representative to the attending physician to be included in the patients medical record.
(2)Upon receiving the final attestation form the attending physician shall add this form to the medical records of the qualified individual.
443.12.(a)A provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug is not valid.
(b)An obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
443.13.(a)(1)The sale, procurement, or issuance of a life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for a policy or plan contract may not be conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
(2)Pursuant to Section 443.18, death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
(b)Notwithstanding any other law, a qualified individuals act of self-administering an aid-in-dying drug shall not have an effect upon a life, health, or annuity policy other than that of a natural death from the underlying disease.
(c)An insurance carrier shall not provide any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. Any communication shall not include both the denial of treatment and information as to the availability of aid-in-dying drug coverage. For the purposes of this subdivision, insurance carrier means a health care service plan as defined in Section 1345 of this code or a carrier of health insurance as defined in Section 106 of the Insurance Code.
443.14.(a)Notwithstanding any other law, a person shall not be subject to civil or criminal liability solely because the person was present when the qualified individual self-administers the prescribed aid-in-dying drug. A person who is present may, without civil or criminal liability, assist the qualified individual by preparing the aid-in-dying drug so long as the person does not assist the qualified person in ingesting the aid-in-dying drug.
(b)A health care provider or professional organization or association shall not subject an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with this part or for refusing to participate in accordance with subdivision (e).
(c)Notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this part, including, but not limited to, determining the diagnosis or prognosis of an individual, determining the capacity of an individual for purposes of qualifying for the act, providing information to an individual regarding this part, and providing a referral to a physician who participates in this part. Nothing in this subdivision shall be construed to limit the application of, or provide immunity from, Section 443.16 or 443.17.
(d)(1)A request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with the provisions of this part shall not provide the sole basis for the appointment of a guardian or conservator.
(2)No actions taken in compliance with the provisions of this part shall constitute or provide the basis for any claim of neglect or elder abuse for any purpose of law.
(e)(1)Participation in activities authorized pursuant to this part shall be voluntary. Notwithstanding Sections 442 to 442.7, inclusive, a person or entity that elects, for reasons of conscience, morality, or ethics, not to engage in activities authorized pursuant to this part is not required to take any action in support of an individuals decision under this part.
(2)Notwithstanding any other law, a health care provider is not subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for refusing to participate in activities authorized under this part, including, but not limited to, refusing to inform a patient regarding his or her rights under this part, and not referring an individual to a physician who participates in activities authorized under this part.
(3)If a health care provider is unable or unwilling to carry out a qualified individuals request under this part and the qualified individual transfers care to a new health care provider, the individual may request a copy of his or her medical records pursuant to law.
443.15.(a)Subject to subdivision (b), notwithstanding any other law, a health care provider may prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under this part while on premises owned or under the management or direct control of that prohibiting health care provider or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
(b)A health care provider that elects to prohibit its employees, independent contractors, or other persons or entities, including health care providers, from participating in activities under this part, as described in subdivision (a), shall first give notice of the policy prohibiting participation under this part to the individual or entity. A health care provider that fails to provide notice to an individual or entity in compliance with this subdivision shall not be entitled to enforce such a policy against that individual or entity.
(c)Subject to compliance with subdivision (b), the prohibiting health care provider may take action, including, but not limited to, the following, as applicable, against any individual or entity that violates this policy:
(1)Loss of privileges, loss of membership, or other action authorized by the bylaws or rules and regulations of the medical staff.
(2)Suspension, loss of employment, or other action authorized by the policies and practices of the prohibiting health care provider.
(3)Termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
(4)Imposition of any other nonmonetary remedy provided for in any lease or contract between the prohibiting health care provider and the individual or entity in violation of the policy.
(d)Nothing in this section shall be construed to prevent, or to allow a prohibiting health care provider to prohibit, any other health care provider, employee, independent contractor, or other person or entity from any of the following:
(1)Participating, or entering into an agreement to participate, in activities under this part, while on premises that are not owned or under the management or direct control of the prohibiting provider or while acting outside the course and scope of the participants duties as an employee of, or an independent contractor for, the prohibiting health care provider.
(2)Participating, or entering into an agreement to participate, in activities under this part as an attending physician or consulting physician while on premises that are not owned or under the management or direct control of the prohibiting provider.
(e)In taking actions pursuant to subdivision (c), a health care provider shall comply with all procedures required by law, its own policies or procedures, and any contract with the individual or entity in violation of the policy, as applicable.
(f)For purposes of this section:
(1)Notice means a separate statement in writing advising of the prohibiting health care provider policy with respect to participating in activities under this part.
(2)Participating, or entering into an agreement to participate, in activities under this part means doing or entering into an agreement to do any one or more of the following:
(A)Performing the duties of an attending physician as specified in Section 443.5.
(B)Performing the duties of a consulting physician as specified in Section 443.6.
(C)Performing the duties of a mental health specialist, in the circumstance that a referral to one is made.
(D)Delivering the prescription for, dispensing, or delivering the dispensed aid-in-dying drug pursuant to paragraph (2) of subdivision (b) of, and subdivision (c) of, Section 443.5.
(E)Being present when the qualified individual takes the aid-in-dying drug prescribed pursuant to this part.
(3)Participating, or entering into an agreement to participate, in activities under this part does not include doing, or entering into an agreement to do, any of the following:
(A)Diagnosing whether a patient has a terminal disease, informing the patient of the medical prognosis, or determining whether a patient has the capacity to make decisions.
(B)Providing information to a patient about this part.
(C)Providing a patient, upon the patients request, with a referral to another health care provider for the purposes of participating in the activities authorized by this part.
(g)Any action taken by a prohibiting provider pursuant to this section shall not be reportable under Sections 800 to 809.9, inclusive, of the Business and Professions Code. The fact that a health care provider participates in activities under this part shall not be the sole basis for a complaint or report by another health care provider of unprofessional or dishonorable conduct under Sections 800 to 809.9, inclusive, of the Business and Professions Code.
(h)Nothing in this part shall prevent a health care provider from providing an individual with health care services that do not constitute participation in this part.
443.16.(a)A health care provider may not be sanctioned for any of the following:
(1)Making an initial determination pursuant to the standard of care that an individual has a terminal disease and informing him or her of the medical prognosis.
(2)Providing information about the End of Life Option Act to a patient upon the request of the individual.
(3)Providing an individual, upon request, with a referral to another physician.
(b)A health care provider that prohibits activities under this part in accordance with Section 443.15 shall not sanction an individual health care provider for contracting with a qualified individual to engage in activities authorized by this part if the individual health care provider is acting outside of the course and scope of his or her capacity as an employee or independent contractor of the prohibiting health care provider.
(c)Notwithstanding any contrary provision in this section, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions of a health care provider taken pursuant to this part. Notwithstanding any contrary provision in this part, health care providers may be sanctioned by their licensing board or agency for conduct and actions constituting unprofessional conduct, including failure to comply in good faith with this part.
443.17.(a)Knowingly altering or forging a request for an aid-in-dying drug to end an individuals life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug is punishable as a felony if the act is done with the intent or effect of causing the individuals death.
(b)Knowingly coercing or exerting undue influence on an individual to request or ingest an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request, or to administer an aid-in-dying drug to an individual without his or her knowledge or consent, is punishable as a felony.
(c)For purposes of this section, knowingly has the meaning provided in Section 7 of the Penal Code.
(d)The attending physician, consulting physician, or mental health specialist shall not be related to the individual by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the individuals estate upon death.
(e)Nothing in this section shall be construed to limit civil liability.
(f)The penalties in this section do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this section.
443.18.Nothing in this part may be construed to authorize a physician or any other person to end an individuals life by lethal injection, mercy killing, or active euthanasia. Actions taken in accordance with this part shall not, for any purposes, constitute suicide, assisted suicide, homicide, or elder abuse under the law.
443.19.(a)The State Department of Public Health shall collect and review the information submitted pursuant to Section 443.9. The information collected shall be confidential and shall be collected in a manner that protects the privacy of the patient, the patients family, and any medical provider or pharmacist involved with the patient under the provisions of this part. The information shall not be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative, or other proceeding.
(b)On or before July 1, 2017, and each year thereafter, based on the information collected in the previous year, the department shall create a report with the information collected from the attending physician followup form and post that report to its Internet Web site. The report shall include, but not be limited to, all of the following based on the information that is provided to the department and on the departments access to vital statistics:
(1)The number of people for whom an aid-in-dying prescription was written.
(2)The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals.
(3)For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death.
(4)The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California.
(5)The number of physicians who wrote prescriptions for aid-in-dying drugs.
(6)Of people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
(A)Age at death.
(B)Education level.
(C)Race.
(D)Sex.
(E)Type of insurance, including whether or not they had insurance.
(F)Underlying illness.
(c)The State Department of Public Health shall make available the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, as described in Section 443.22, by posting them on its Internet Web site.
443.20.A person who has custody or control of any unused aid-in-dying drugs prescribed pursuant to this part after the death of the patient shall personally deliver the unused aid-in-dying drugs for disposal by delivering it to the nearest qualified facility that properly disposes of controlled substances, or if none is available, shall dispose of it by lawful means in accordance with guidelines promulgated by the California State Board of Pharmacy or a federal Drug Enforcement Administration approved take-back program.
443.21.Any governmental entity that incurs costs resulting from a qualified individual terminating his or her life pursuant to the provisions of this part in a public place shall have a claim against the estate of the qualified individual to recover those costs and reasonable attorney fees related to enforcing the claim.
443.215.This part shall remain in effect only until January 1, 2026, and as of that date is repealed, unless a later enacted statute, that is enacted before January 1, 2026, deletes or extends that date.
443.22.(a)The Medical Board of California may update the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, based on those provided in subdivision (b). Upon completion, the State Department of Public Health shall publish the updated forms on its Internet Web site.
(b)Unless and until updated by the Medical Board of California pursuant to this section, the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form shall be in the following form:
PRINTER PLEASE NOTE: TIP-IN MATERIAL TO BE INSERTEDSEC. 2.The Legislature finds and declares that Section 1 of this act, which adds Section 443.19 to the Health and Safety Code, imposes a limitation on the publics right of access to the meetings of public bodies or the writings of public officials and agencies within the meaning of Section 3 of Article I of the California Constitution. Pursuant to that constitutional provision, the Legislature makes the following findings to demonstrate the interest protected by this limitation and the need for protecting that interest:
(a)Any limitation to public access to personally identifiable patient data collected pursuant to Section 443.19 of the Health and Safety Code as proposed to be added by this act is necessary to protect the privacy rights of the patient and his or her family.
(b)The interests in protecting the privacy rights of the patient and his or her family in this situation strongly outweigh the public interest in having access to personally identifiable data relating to services.
(c)The statistical report to be made available to the public pursuant to subdivision (b) of Section 443.19 of the Health and Safety Code is sufficient to satisfy the publics right to access.
SEC. 3.The provisions of this part are severable. If any provision of this part or its application is held invalid, that invalidity shall not affect other provisions or applications that can be given effect without the invalid provision or application.
SEC. 4.No reimbursement is required by this act pursuant to Section 6 of Article XIIIB of the California Constitution because the only costs that may be incurred by a local agency or school district will be incurred because this act creates a new crime or infraction, eliminates a crime or infraction, or changes the penalty for a crime or infraction, within the meaning of Section 17556 of the Government Code, or changes the definition of a crime within the meaning of Section 6 of Article XIIIB of the California Constitution.
This part shall be known and may be cited as the End of Life Option Act.
443.1.As used in this part, the following definitions shall apply:
(a)Adult means an individual 18 years of age or older.
(b)Aid-in-dying drug means a drug determined and prescribed by a physician for a qualified individual, which the qualified individual may choose to self-administer to bring about his or her death due to a terminal disease.
(c)Attending physician means the physician who has primary responsibility for the health care of an individual and treatment of the individuals terminal disease.
(d)Attending physician checklist and compliance form means a form, as described in Section 443.22, identifying each and every requirement that must be fulfilled by an attending physician to be in good faith compliance with this part should the attending physician choose to participate.
(e)Capacity to make medical decisions means that, in the opinion of an individuals attending physician, consulting physician, psychiatrist, or psychologist, pursuant to Section 4609 of the Probate Code, the individual has the ability to understand the nature and consequences of a health care decision, the ability to understand its significant benefits, risks, and alternatives, and the ability to make and communicate an informed decision to health care providers.
(f)Consulting physician means a physician who is independent from the attending physician and who is qualified by specialty or experience to make a professional diagnosis and prognosis regarding an individuals terminal disease.
(g)Department means the State Department of Public Health.
(h)Health care provider or provider of health care means any person licensed or certified pursuant to Division 2 (commencing with Section 500) of the Business and Professions Code; any person licensed pursuant to the Osteopathic Initiative Act or the Chiropractic Initiative Act; any person certified pursuant to Division 2.5 (commencing with Section 1797) of this code; and any clinic, health dispensary, or health facility licensed pursuant to Division 2 (commencing with Section 1200) of this code.
(i)Informed decision means a decision by an individual with a terminal disease to request and obtain a prescription for a drug that the individual may self-administer to end the individuals life, that is based on an understanding and acknowledgment of the relevant facts, and that is made after being fully informed by the attending physician of all of the following:
(1)The individuals medical diagnosis and prognosis.
(2)The potential risks associated with taking the drug to be prescribed.
(3)The probable result of taking the drug to be prescribed.
(4)The possibility that the individual may choose not to obtain the drug or may obtain the drug but may decide not to ingest it.
(5)The feasible alternatives or additional treatment opportunities, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(j)Medically confirmed means the medical diagnosis and prognosis of the attending physician has been confirmed by a consulting physician who has examined the individual and the individuals relevant medical records.
(k)Mental health specialist assessment means one or more consultations between an individual and a mental health specialist for the purpose of determining that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(l)Mental health specialist means a psychiatrist or a licensed psychologist.
(m)Physician means a doctor of medicine or osteopathy currently licensed to practice medicine in this state.
(n)Public place means any street, alley, park, public building, any place of business or assembly open to or frequented by the public, and any other place that is open to the public view, or to which the public has access.
(o)Qualified individual means an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied the requirements of this part in order to obtain a prescription for a drug to end his or her life.
(p)Self-administer means a qualified individuals affirmative, conscious, and physical act of administering and ingesting the aid-in-dying drug to bring about his or her own death.
(q)Terminal disease means an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
443.2.(a)An individual who is an adult with the capacity to make medical decisions and with a terminal disease may make a request to receive a prescription for an aid-in-dying drug if all of the following conditions are satisfied:
(1)The individuals attending physician has diagnosed the individual with a terminal disease.
(2)The individual has voluntarily expressed the wish to receive a prescription for an aid-in-dying drug.
(3)The individual is a resident of California and is able to establish residency through any of the following means:
(A)Possession of a California driver license or other identification issued by the State of California.
(B)Registration to vote in California.
(C)Evidence that the person owns or leases property in California.
(D)Filing of a California tax return for the most recent tax year.
(4)The individual documents his or her request pursuant to the requirements set forth in Section 443.3.
(5)The individual has the physical and mental ability to self-administer the aid-in-dying drug.
(b)A person shall not be considered a qualified individual under the provisions of this part solely because of age or disability.
(c)A request for a prescription for an aid-in-dying drug under this part shall be made solely and directly by the individual diagnosed with the terminal disease and shall not be made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decisionmaker.
443.3.(a)An individual seeking to obtain a prescription for an aid-in-dying drug pursuant to this part shall submit two oral requests, a minimum of 15 days apart, and a written request to his or her attending physician. The attending physician shall directly, and not through a designee, receive all three requests required pursuant to this section.
(b)A valid written request for an aid-in-dying drug under subdivision (a) shall meet all of the following conditions:
(1)The request shall be in the form described in Section 443.11.
(2)The request shall be signed and dated, in the presence of two witnesses, by the individual seeking the aid-in-dying drug.
(3)The request shall be witnessed by at least two other adult persons who, in the presence of the individual, shall attest that to the best of their knowledge and belief the individual is all of the following:
(A)An individual who is personally known to them or has provided proof of identity.
(B)An individual who voluntarily signed this request in their presence.
(C)An individual whom they believe to be of sound mind and not under duress, fraud, or undue influence.
(D)Not an individual for whom either of them is the attending physician, consulting physician, or mental health specialist.
(c)Only one of the two witnesses at the time the written request is signed may:
(1)Be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individuals estate upon death.
(2)Own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
(d)The attending physician, consulting physician, or mental health specialist of the individual shall not be one of the witnesses required pursuant to paragraph (3) of subdivision (b).
443.4.(a)An individual may at any time withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to the individuals mental state.
(b)A prescription for an aid-in-dying drug provided under this part may not be written without the attending physician directly, and not through a designee, offering the individual an opportunity to withdraw or rescind the request.
443.5.(a)Before prescribing an aid-in-dying drug, the attending physician shall do all of the following:
(1)Make the initial determination of all of the following:
(A)(i)Whether the requesting adult has the capacity to make medical decisions.
(ii)If there are indications of a mental disorder, the physician shall refer the individual for a mental health specialist assessment.
(iii)If a mental health specialist assessment referral is made, no aid-in-dying drugs shall be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(B)Whether the requesting adult has a terminal disease.
(C)Whether the requesting adult has voluntarily made the request for an aid-in-dying drug pursuant to Sections 443.2 and 443.3.
(D)Whether the requesting adult is a qualified individual pursuant to subdivision (o) of Section 443.1.
(2)Confirm that the individual is making an informed decision by discussing with him or her all of the following:
(A)His or her medical diagnosis and prognosis.
(B)The potential risks associated with ingesting the requested aid-in-dying drug.
(C)The probable result of ingesting the aid-in-dying drug.
(D)The possibility that he or she may choose to obtain the aid-in-dying drug but not take it.
(E)The feasible alternatives or additional treatment options, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(3)Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with the provisions of this part.
(4)Confirm that the qualified individuals request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required pursuant to this part, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
(5)Counsel the qualified individual about the importance of all of the following:
(A)Having another person present when he or she ingests the aid-in-dying drug prescribed pursuant to this part.
(B)Not ingesting the aid-in-dying drug in a public place.
(C)Notifying the next of kin of his or her request for an aid-in-dying drug. A qualified individual who declines or is unable to notify next of kin shall not have his or her request denied for that reason.
(D)Participating in a hospice program.
(E)Maintaining the aid-in-dying drug in a safe and secure location until the time that the qualified individual will ingest it.
(6)Inform the individual that he or she may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner.
(7)Offer the individual an opportunity to withdraw or rescind the request for an aid-in-dying drug before prescribing the aid-in-dying drug.
(8)Verify, immediately before writing the prescription for an aid-in-dying drug, that the qualified individual is making an informed decision.
(9)Confirm that all requirements are met and all appropriate steps are carried out in accordance with this part before writing a prescription for an aid-in-dying drug.
(10)Fulfill the record documentation required under Sections 443.8 and 443.19.
(11)Complete the attending physician checklist and compliance form, as described in Section 443.22, include it and the consulting physician compliance form in the individuals medical record, and submit both forms to the State Department of Public Health.
(12)Give the qualified individual the final attestation form, with the instruction that the form be filled out and executed by the qualified individual within 48 hours prior to the qualified individual choosing to self-administer the aid-in-dying drug.
(b)If the conditions set forth in subdivision (a) are satisfied, the attending physician may deliver the aid-in-dying drug in any of the following ways:
(1)Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individuals discomfort, if the attending physician meets all of the following criteria:
(A)Is authorized to dispense medicine under California law.
(B)Has a current United States Drug Enforcement Administration (USDEA) certificate.
(C)Complies with any applicable administrative rule or regulation.
(2)With the qualified individuals written consent, contacting a pharmacist, informing the pharmacist of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual and with the designation delivered to the pharmacist in writing or verbally.
(c)Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual may be made by personal delivery, or, with a signature required on delivery, by United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
443.6.Before a qualified individual obtains an aid-in-dying drug from the attending physician, the consulting physician shall perform all of the following:
(a)Examine the individual and his or her relevant medical records.
(b)Confirm in writing the attending physicians diagnosis and prognosis.
(c)Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision.
(d)If there are indications of a mental disorder, refer the individual for a mental health specialist assessment.
(e)Fulfill the record documentation required under this part.
(f)Submit the compliance form to the attending physician.
443.7.Upon referral from the attending or consulting physician pursuant to this part, the mental health specialist shall:
(a)Examine the qualified individual and his or her relevant medical records.
(b)Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision.
(c)Determine that the individual is not suffering from impaired judgment due to a mental disorder.
(d)Fulfill the record documentation requirements of this part.
443.8.All of the following shall be documented in the individuals medical record:
(a)All oral requests for aid-in-dying drugs.
(b)All written requests for aid-in-dying drugs.
(c)The attending physicians diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending physician has determined that the individual is not a qualified individual.
(d)The consulting physicians diagnosis and prognosis, and verification that the qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the consulting physician has determined that the individual is not a qualified individual.
(e)A report of the outcome and determinations made during a mental health specialists assessment, if performed.
(f)The attending physicians offer to the qualified individual to withdraw or rescind his or her request at the time of the individuals second oral request.
(g)A note by the attending physician indicating that all requirements under Sections 443.5 and 443.6 have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
443.9.(a)Within 30 calendar days of writing a prescription for an aid-in-dying drug, the attending physician shall submit to the State Department of Public Health a copy of the qualifying patients written request, the attending physician checklist and compliance form, and the consulting physician compliance form.
(b)Within 30 calendar days following the qualified individuals death from ingesting the aid-in-dying drug, or any other cause, the attending physician shall submit the attending physician followup form to the State Department of Public Health.
443.10.A qualified individual may not receive a prescription for an aid-in-dying drug pursuant to this part unless he or she has made an informed decision. Immediately before writing a prescription for an aid-in-dying drug under this part, the attending physician shall verify that the individual is making an informed decision.
443.11.(a)A request for an aid-in-dying drug as authorized by this part shall be in the following form:
| REQUEST FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I request that my attending physician prescribe an aid-in-dying drug that will end my life in a humane and dignified manner if I choose to take it, and I authorize my attending physician to contact any pharmacist about my request. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| I understand that I have the right to withdraw or rescind this request at any time. | |
| I understand the full import of this request and I expect to die if I take the aid-in-dying drug to be prescribed. My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this request voluntarily, without reservation, and without being coerced. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| DECLARATION OF WITNESSES | |
| We declare that the person signing this request: | |
| (a) is personally known to us or has provided proof of identity; | |
| (b) voluntarily signed this request in our presence; | |
| (c) is an individual whom we believe to be of sound mind and not under duress, fraud, or undue influence; and | |
| (d) is not an individual for whom either of us is the attending physician, consulting physician, or mental health specialist. | |
| ............................Witness 1/Date | |
| ............................Witness 2/Date | |
| NOTE: Only one of the two witnesses may be a relative (by blood, marriage, registered domestic partnership, or adoption) of the person signing this request or be entitled to a portion of the persons estate upon death. Only one of the two witnesses may own, operate, or be employed at a health care facility where the person is a patient or resident. |
(b)(1)The written language of the request shall be written in the same translated language as any conversations, consultations, or interpreted conversations or consultations between a patient and his or her attending or consulting physicians.
(2)Notwithstanding paragraph (1), the written request may be prepared in English even when the conversations or consultations or interpreted conversations or consultations were conducted in a language other than English if the English language form includes an attached interpreters declaration that is signed under penalty of perjury. The interpreters declaration shall state words to the effect that:
| I, (INSERT NAME OF INTERPRETER), am fluent in English and (INSERT TARGET LANGUAGE). | |
On (insert date) at approximately (insert time), I read the Request for an Aid-In-Dying Drug to End My Life to (insert name of individual/patient) in (insert target language). | |
Mr./Ms. (insert name of patient/qualified individual) affirmed to me that he/she understood the content of this form and affirmed his/her desire to sign this form under his/her own power and volition and that the request to sign the form followed consultations with an attending and consulting physician. | |
I declare that I am fluent in English and (insert target language) and further declare under penalty of perjury that the foregoing is true and correct. | |
Executed at (insert city, county, and state) on this (insert day of month) of (insert month), (insert year). | |
X______Interpreter signature | |
X______Interpreter printed name | |
X______Interpreter address |
(3)An interpreter whose services are provided pursuant to paragraph (2) shall not be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the persons estate upon death. An interpreter whose services are provided pursuant to paragraph (2) shall meet the standards promulgated by the California Healthcare Interpreting Association or the National Council on Interpreting in Health Care or other standards deemed acceptable by the department for health care providers in California.
(c)The final attestation form given by the attending physician to the qualified individual at the time the attending physician writes the prescription shall appear in the following form:
| FINAL ATTESTATION FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I have received the aid-in-dying drug and am fully aware that this aid-in-dying drug will end my life in a humane and dignified manner. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this decision to ingest the aid-in-dying drug to end my life in a humane and dignified manner. I understand I still may choose not to ingest the drug and by signing this form I am under no obligation to ingest the drug. I understand I may rescind this request at any time. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| Time:................................................. | |
(1)Within 48 hours prior to the individual self-administering the aid-in-dying drug, the individual shall complete the final attestation form. If aid-in-dying medication is not returned or relinquished upon the patients death as required in Section 443.20, the completed form shall be delivered by the individuals health care provider, family member, or other representative to the attending physician to be included in the patients medical record.
(2)Upon receiving the final attestation form the attending physician shall add this form to the medical records of the qualified individual.
443.12.(a)A provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug is not valid.
(b)An obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
443.13.(a)(1)The sale, procurement, or issuance of a life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for a policy or plan contract may not be conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
(2)Pursuant to Section 443.18, death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
(b)Notwithstanding any other law, a qualified individuals act of self-administering an aid-in-dying drug shall not have an effect upon a life, health, or annuity policy other than that of a natural death from the underlying disease.
(c)An insurance carrier shall not provide any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. Any communication shall not include both the denial of treatment and information as to the availability of aid-in-dying drug coverage. For the purposes of this subdivision, insurance carrier means a health care service plan as defined in Section 1345 of this code or a carrier of health insurance as defined in Section 106 of the Insurance Code.
443.14.(a)Notwithstanding any other law, a person shall not be subject to civil or criminal liability solely because the person was present when the qualified individual self-administers the prescribed aid-in-dying drug. A person who is present may, without civil or criminal liability, assist the qualified individual by preparing the aid-in-dying drug so long as the person does not assist the qualified person in ingesting the aid-in-dying drug.
(b)A health care provider or professional organization or association shall not subject an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with this part or for refusing to participate in accordance with subdivision (e).
(c)Notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this part, including, but not limited to, determining the diagnosis or prognosis of an individual, determining the capacity of an individual for purposes of qualifying for the act, providing information to an individual regarding this part, and providing a referral to a physician who participates in this part. Nothing in this subdivision shall be construed to limit the application of, or provide immunity from, Section 443.16 or 443.17.
(d)(1)A request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with the provisions of this part shall not provide the sole basis for the appointment of a guardian or conservator.
(2)No actions taken in compliance with the provisions of this part shall constitute or provide the basis for any claim of neglect or elder abuse for any purpose of law.
(e)(1)Participation in activities authorized pursuant to this part shall be voluntary. Notwithstanding Sections 442 to 442.7, inclusive, a person or entity that elects, for reasons of conscience, morality, or ethics, not to engage in activities authorized pursuant to this part is not required to take any action in support of an individuals decision under this part.
(2)Notwithstanding any other law, a health care provider is not subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for refusing to participate in activities authorized under this part, including, but not limited to, refusing to inform a patient regarding his or her rights under this part, and not referring an individual to a physician who participates in activities authorized under this part.
(3)If a health care provider is unable or unwilling to carry out a qualified individuals request under this part and the qualified individual transfers care to a new health care provider, the individual may request a copy of his or her medical records pursuant to law.
443.15.(a)Subject to subdivision (b), notwithstanding any other law, a health care provider may prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under this part while on premises owned or under the management or direct control of that prohibiting health care provider or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
(b)A health care provider that elects to prohibit its employees, independent contractors, or other persons or entities, including health care providers, from participating in activities under this part, as described in subdivision (a), shall first give notice of the policy prohibiting participation under this part to the individual or entity. A health care provider that fails to provide notice to an individual or entity in compliance with this subdivision shall not be entitled to enforce such a policy against that individual or entity.
(c)Subject to compliance with subdivision (b), the prohibiting health care provider may take action, including, but not limited to, the following, as applicable, against any individual or entity that violates this policy:
(1)Loss of privileges, loss of membership, or other action authorized by the bylaws or rules and regulations of the medical staff.
(2)Suspension, loss of employment, or other action authorized by the policies and practices of the prohibiting health care provider.
(3)Termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
(4)Imposition of any other nonmonetary remedy provided for in any lease or contract between the prohibiting health care provider and the individual or entity in violation of the policy.
(d)Nothing in this section shall be construed to prevent, or to allow a prohibiting health care provider to prohibit, any other health care provider, employee, independent contractor, or other person or entity from any of the following:
(1)Participating, or entering into an agreement to participate, in activities under this part, while on premises that are not owned or under the management or direct control of the prohibiting provider or while acting outside the course and scope of the participants duties as an employee of, or an independent contractor for, the prohibiting health care provider.
(2)Participating, or entering into an agreement to participate, in activities under this part as an attending physician or consulting physician while on premises that are not owned or under the management or direct control of the prohibiting provider.
(e)In taking actions pursuant to subdivision (c), a health care provider shall comply with all procedures required by law, its own policies or procedures, and any contract with the individual or entity in violation of the policy, as applicable.
(f)For purposes of this section:
(1)Notice means a separate statement in writing advising of the prohibiting health care provider policy with respect to participating in activities under this part.
(2)Participating, or entering into an agreement to participate, in activities under this part means doing or entering into an agreement to do any one or more of the following:
(A)Performing the duties of an attending physician as specified in Section 443.5.
(B)Performing the duties of a consulting physician as specified in Section 443.6.
(C)Performing the duties of a mental health specialist, in the circumstance that a referral to one is made.
(D)Delivering the prescription for, dispensing, or delivering the dispensed aid-in-dying drug pursuant to paragraph (2) of subdivision (b) of, and subdivision (c) of, Section 443.5.
(E)Being present when the qualified individual takes the aid-in-dying drug prescribed pursuant to this part.
(3)Participating, or entering into an agreement to participate, in activities under this part does not include doing, or entering into an agreement to do, any of the following:
(A)Diagnosing whether a patient has a terminal disease, informing the patient of the medical prognosis, or determining whether a patient has the capacity to make decisions.
(B)Providing information to a patient about this part.
(C)Providing a patient, upon the patients request, with a referral to another health care provider for the purposes of participating in the activities authorized by this part.
(g)Any action taken by a prohibiting provider pursuant to this section shall not be reportable under Sections 800 to 809.9, inclusive, of the Business and Professions Code. The fact that a health care provider participates in activities under this part shall not be the sole basis for a complaint or report by another health care provider of unprofessional or dishonorable conduct under Sections 800 to 809.9, inclusive, of the Business and Professions Code.
(h)Nothing in this part shall prevent a health care provider from providing an individual with health care services that do not constitute participation in this part.
443.16.(a)A health care provider may not be sanctioned for any of the following:
(1)Making an initial determination pursuant to the standard of care that an individual has a terminal disease and informing him or her of the medical prognosis.
(2)Providing information about the End of Life Option Act to a patient upon the request of the individual.
(3)Providing an individual, upon request, with a referral to another physician.
(b)A health care provider that prohibits activities under this part in accordance with Section 443.15 shall not sanction an individual health care provider for contracting with a qualified individual to engage in activities authorized by this part if the individual health care provider is acting outside of the course and scope of his or her capacity as an employee or independent contractor of the prohibiting health care provider.
(c)Notwithstanding any contrary provision in this section, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions of a health care provider taken pursuant to this part. Notwithstanding any contrary provision in this part, health care providers may be sanctioned by their licensing board or agency for conduct and actions constituting unprofessional conduct, including failure to comply in good faith with this part.
443.17.(a)Knowingly altering or forging a request for an aid-in-dying drug to end an individuals life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug is punishable as a felony if the act is done with the intent or effect of causing the individuals death.
(b)Knowingly coercing or exerting undue influence on an individual to request or ingest an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request, or to administer an aid-in-dying drug to an individual without his or her knowledge or consent, is punishable as a felony.
(c)For purposes of this section, knowingly has the meaning provided in Section 7 of the Penal Code.
(d)The attending physician, consulting physician, or mental health specialist shall not be related to the individual by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the individuals estate upon death.
(e)Nothing in this section shall be construed to limit civil liability.
(f)The penalties in this section do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this section.
443.18.Nothing in this part may be construed to authorize a physician or any other person to end an individuals life by lethal injection, mercy killing, or active euthanasia. Actions taken in accordance with this part shall not, for any purposes, constitute suicide, assisted suicide, homicide, or elder abuse under the law.
443.19.(a)The State Department of Public Health shall collect and review the information submitted pursuant to Section 443.9. The information collected shall be confidential and shall be collected in a manner that protects the privacy of the patient, the patients family, and any medical provider or pharmacist involved with the patient under the provisions of this part. The information shall not be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative, or other proceeding.
(b)On or before July 1, 2017, and each year thereafter, based on the information collected in the previous year, the department shall create a report with the information collected from the attending physician followup form and post that report to its Internet Web site. The report shall include, but not be limited to, all of the following based on the information that is provided to the department and on the departments access to vital statistics:
(1)The number of people for whom an aid-in-dying prescription was written.
(2)The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals.
(3)For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death.
(4)The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California.
(5)The number of physicians who wrote prescriptions for aid-in-dying drugs.
(6)Of people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
(A)Age at death.
(B)Education level.
(C)Race.
(D)Sex.
(E)Type of insurance, including whether or not they had insurance.
(F)Underlying illness.
(c)The State Department of Public Health shall make available the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, as described in Section 443.22, by posting them on its Internet Web site.
443.20.A person who has custody or control of any unused aid-in-dying drugs prescribed pursuant to this part after the death of the patient shall personally deliver the unused aid-in-dying drugs for disposal by delivering it to the nearest qualified facility that properly disposes of controlled substances, or if none is available, shall dispose of it by lawful means in accordance with guidelines promulgated by the California State Board of Pharmacy or a federal Drug Enforcement Administration approved take-back program.
443.21.Any governmental entity that incurs costs resulting from a qualified individual terminating his or her life pursuant to the provisions of this part in a public place shall have a claim against the estate of the qualified individual to recover those costs and reasonable attorney fees related to enforcing the claim.
443.215.This part shall remain in effect only until January 1, 2026, and as of that date is repealed, unless a later enacted statute, that is enacted before January 1, 2026, deletes or extends that date.
443.22.(a)The Medical Board of California may update the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, based on those provided in subdivision (b). Upon completion, the State Department of Public Health shall publish the updated forms on its Internet Web site.
(b)Unless and until updated by the Medical Board of California pursuant to this section, the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form shall be in the following form:
PRINTER PLEASE NOTE: TIP-IN MATERIAL TO BE INSERTEDSEC. 2.The Legislature finds and declares that Section 1 of this act, which adds Section 443.19 to the Health and Safety Code, imposes a limitation on the publics right of access to the meetings of public bodies or the writings of public officials and agencies within the meaning of Section 3 of Article I of the California Constitution. Pursuant to that constitutional provision, the Legislature makes the following findings to demonstrate the interest protected by this limitation and the need for protecting that interest:
(a)Any limitation to public access to personally identifiable patient data collected pursuant to Section 443.19 of the Health and Safety Code as proposed to be added by this act is necessary to protect the privacy rights of the patient and his or her family.
(b)The interests in protecting the privacy rights of the patient and his or her family in this situation strongly outweigh the public interest in having access to personally identifiable data relating to services.
(c)The statistical report to be made available to the public pursuant to subdivision (b) of Section 443.19 of the Health and Safety Code is sufficient to satisfy the publics right to access.
SEC. 3.The provisions of this part are severable. If any provision of this part or its application is held invalid, that invalidity shall not affect other provisions or applications that can be given effect without the invalid provision or application.
SEC. 4.No reimbursement is required by this act pursuant to Section 6 of Article XIIIB of the California Constitution because the only costs that may be incurred by a local agency or school district will be incurred because this act creates a new crime or infraction, eliminates a crime or infraction, or changes the penalty for a crime or infraction, within the meaning of Section 17556 of the Government Code, or changes the definition of a crime within the meaning of Section 6 of Article XIIIB of the California Constitution.
This part shall be known and may be cited as the End of Life Option Act.
443.1.As used in this part, the following definitions shall apply:
(a)Adult means an individual 18 years of age or older.
(b)Aid-in-dying drug means a drug determined and prescribed by a physician for a qualified individual, which the qualified individual may choose to self-administer to bring about his or her death due to a terminal disease.
(c)Attending physician means the physician who has primary responsibility for the health care of an individual and treatment of the individuals terminal disease.
(d)Attending physician checklist and compliance form means a form, as described in Section 443.22, identifying each and every requirement that must be fulfilled by an attending physician to be in good faith compliance with this part should the attending physician choose to participate.
(e)Capacity to make medical decisions means that, in the opinion of an individuals attending physician, consulting physician, psychiatrist, or psychologist, pursuant to Section 4609 of the Probate Code, the individual has the ability to understand the nature and consequences of a health care decision, the ability to understand its significant benefits, risks, and alternatives, and the ability to make and communicate an informed decision to health care providers, including communication through a person familiar with the individuals manner of communicating, if that person is available. providers.
(f)Consulting physician means a physician who is independent from the attending physician and who is qualified by specialty or experience to make a professional diagnosis and prognosis regarding an individuals terminal disease.
(g)Department means the State Department of Public Health.
(h)Health care provider or provider of health care means any person licensed or certified pursuant to Division 2 (commencing with Section 500) of the Business and Professions Code; any person licensed pursuant to the Osteopathic Initiative Act or the Chiropractic Initiative Act; any person certified pursuant to Division 2.5 (commencing with Section 1797) of this code; and any clinic, health dispensary, or health facility licensed pursuant to Division 2 (commencing with Section 1200) of this code.
(i)Informed decision means a decision by an individual with a terminal disease to request and obtain a prescription for a drug that the individual may self-administer to end the individuals life, that is based on an understanding and acknowledgment of the relevant facts, and that is made after being fully informed by the attending physician of all of the following:
(1)The individuals medical diagnosis and prognosis.
(2)The potential risks associated with taking the drug to be prescribed.
(3)The probable result of taking the drug to be prescribed.
(4)The possibility that the individual may choose not to obtain the drug or may obtain the drug but may decide not to ingest it.
(5)The feasible alternatives or additional treatment opportunities, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(j)Medically confirmed means the medical diagnosis and prognosis of the attending physician has been confirmed by a consulting physician who has examined the individual and the individuals relevant medical records.
(k)Mental health specialist assessment means one or more consultations between an individual and a mental health specialist for the purpose of determining that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(l)Mental health specialist means a psychiatrist or a licensed psychologist.
(m)Physician means a doctor of medicine or osteopathy currently licensed to practice medicine in this state.
(n)Public place means any street, alley, park, public building, any place of business or assembly open to or frequented by the public, and any other place that is open to the public view, or to which the public has access.
(o)Qualified individual means an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied the requirements of this part in order to obtain a prescription for a drug to end his or her life.
(p)Self-administer means a qualified individuals affirmative, conscious, and physical act of administering and ingesting the aid-in-dying drug to bring about his or her own death.
(q)Terminal disease means an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
443.2.(a)An individual who is an adult with the capacity to make medical decisions and with a terminal disease may make a request to receive a prescription for an aid-in-dying drug if all of the following conditions are satisfied:
(1)The individuals attending physician has diagnosed the individual with a terminal disease.
(2)The individual has voluntarily expressed the wish to receive a prescription for an aid-in-dying drug.
(3)The individual is a resident of California and is able to establish residency through any of the following means:
(A)Possession of a California driver license or other identification issued by the State of California.
(B)Registration to vote in California.
(C)Evidence that the person owns or leases property in California.
(D)Filing of a California tax return for the most recent tax year.
(4)The individual documents his or her request pursuant to the requirements set forth in Section 443.3.
(5)The individual has the physical and mental ability to self-administer the aid-in-dying drug.
(b)A person shall not be considered a qualified individual under the provisions of this part solely because of age or disability.
(c)A request for a prescription for an aid-in-dying drug under this part shall be made solely and directly by the individual diagnosed with the terminal disease and shall not be made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decisionmaker.
443.3.(a)An individual seeking to obtain a prescription for an aid-in-dying drug pursuant to this part shall submit two oral requests, a minimum of 15 days apart, and a written request to his or her attending physician. The attending physician shall directly, and not through a designee, receive all three requests required pursuant to this section.
(b)A valid written request for an aid-in-dying drug under subdivision (a) shall meet all of the following conditions:
(1)The request shall be in the form described in Section 443.11.
(2)The request shall be signed and dated, in the presence of two witnesses, by the individual seeking the aid-in-dying drug.
(3)The request shall be witnessed by at least two other adult persons who, in the presence of the individual, shall attest that to the best of their knowledge and belief the individual is all of the following:
(A)An individual who is personally known to them or has provided proof of identity.
(B)An individual who voluntarily signed this request in their presence.
(C)An individual whom they believe to be of sound mind and not under duress, fraud, or undue influence.
(D)Not an individual for whom either of them is the attending physician, consulting physician, or mental health specialist.
(c)Only one of the two witnesses at the time the written request is signed may:
(1)Be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individuals estate upon death.
(2)Own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
(d)The attending physician, consulting physician, or mental health specialist of the individual shall not be one of the witnesses required pursuant to paragraph (3) of subdivision (b).
443.4.(a)An individual may at any time withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to the individuals mental state.
(b)A prescription for an aid-in-dying drug provided under this part may not be written without the attending physician directly, and not through a designee, offering the individual an opportunity to withdraw or rescind the request.
443.5.(a)Before prescribing an aid-in-dying drug, the attending physician shall do all of the following:
(1)Make the initial determination of all of the following:
(A)(i)Whether the requesting adult has the capacity to make medical decisions.
(ii)If there are indications of a mental disorder, the physician shall refer the individual for a mental health specialist assessment.
(iii)If a mental health specialist assessment referral is made, no aid-in-dying drugs shall be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(B)Whether the requesting adult has a terminal disease.
(C)Whether the requesting adult has voluntarily made the request for an aid-in-dying drug pursuant to Sections 443.2 and 443.3.
(D)Whether the requesting adult is a qualified individual pursuant to subdivision (o) of Section 443.1.
(2)Confirm that the individual is making an informed decision by discussing with him or her all of the following:
(A)His or her medical diagnosis and prognosis.
(B)The potential risks associated with ingesting the requested aid-in-dying drug.
(C)The probable result of ingesting the aid-in-dying drug.
(D)The possibility that he or she may choose to obtain the aid-in-dying drug but not take it.
(E)The feasible alternatives or additional treatment options, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(3)Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with the provisions of this part.
(4)Confirm that the qualified individuals request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required pursuant to this part, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
(5)Counsel the qualified individual about the importance of all of the following:
(A)Having another person present when he or she ingests the aid-in-dying drug prescribed pursuant to this part.
(B)Not ingesting the aid-in-dying drug in a public place.
(C)Notifying the next of kin of his or her request for an aid-in-dying drug. A qualified individual who declines or is unable to notify next of kin shall not have his or her request denied for that reason.
(D)Participating in a hospice program.
(E)Maintaining the aid-in-dying drug in a safe and secure location until the time that the qualified individual will ingest it.
(6)Inform the individual that he or she may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner.
(7)Offer the individual an opportunity to withdraw or rescind the request for an aid-in-dying drug before prescribing the aid-in-dying drug.
(8)Verify, immediately before writing the prescription for an aid-in-dying drug, that the qualified individual is making an informed decision.
(9)Confirm that all requirements are met and all appropriate steps are carried out in accordance with this part before writing a prescription for an aid-in-dying drug.
(10)Fulfill the record documentation required under Sections 443.8 and 443.19.
(11)Complete the attending physician checklist and compliance form, as described in Section 443.22, include it and the consulting physician compliance form in the individuals medical record, and submit both forms to the State Department of Public Health.
(12)Give the qualified individual the final attestation form, with the instruction that the form be filled out and executed by the qualified individual within 48 hours prior to the qualified individual choosing to self-administer the aid-in-dying drug.
(b)If the conditions set forth in subdivision (a) are satisfied, the attending physician may deliver the aid-in-dying drug in any of the following ways:
(1)Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individuals discomfort, if the attending physician meets all of the following criteria:
(A)Is authorized to dispense medicine under California law.
(B)Has a current United States Drug Enforcement Administration (USDEA) certificate.
(C)Complies with any applicable administrative rule or regulation.
(2)With the qualified individuals written consent, contacting a pharmacist, informing the pharmacist of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual and with the designation delivered to the pharmacist in writing or verbally.
(c)Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual may be made by personal delivery, or, with a signature required on delivery, by United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
443.6.Before a qualified individual obtains an aid-in-dying drug from the attending physician, the consulting physician shall perform all of the following:
(a)Examine the individual and his or her relevant medical records.
(b)Confirm in writing the attending physicians diagnosis and prognosis.
(c)Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision.
(d)If there are indications of a mental disorder, refer the individual for a mental health specialist assessment.
(e)Fulfill the record documentation required under this part.
(f)Submit the compliance form to the attending physician.
443.7.Upon referral from the attending or consulting physician pursuant to this part, the mental health specialist shall:
(a)Examine the qualified individual and his or her relevant medical records.
(b)Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision.
(c)Determine that the individual is not suffering from impaired judgment due to a mental disorder.
(d)Fulfill the record documentation requirements of this part.
443.8.All of the following shall be documented in the individuals medical record:
(a)All oral requests for aid-in-dying drugs.
(b)All written requests for aid-in-dying drugs.
(c)The attending physicians diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending physician has determined that the individual is not a qualified individual.
(d)The consulting physicians diagnosis and prognosis, and verification that the qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the consulting physician has determined that the individual is not a qualified individual.
(e)A report of the outcome and determinations made during a mental health specialists assessment, if performed.
(f)The attending physicians offer to the qualified individual to withdraw or rescind his or her request at the time of the individuals second oral request.
(g)A note by the attending physician indicating that all requirements under Sections 443.5 and 443.6 have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
443.9.(a)Within 30 calendar days of writing a prescription for an aid-in-dying drug, the attending physician shall submit to the State Department of Public Health a copy of the qualifying patients written request, the attending physician checklist and compliance form, and the consulting physician compliance form.
(b)Within 30 calendar days following the qualified individuals death from ingesting the aid-in-dying drug, or any other cause, the attending physician shall submit the attending physician followup form to the State Department of Public Health.
443.10.A qualified individual may not receive a prescription for an aid-in-dying drug pursuant to this part unless he or she has made an informed decision. Immediately before writing a prescription for an aid-in-dying drug under this part, the attending physician shall verify that the individual is making an informed decision.
443.11.(a)A request for an aid-in-dying drug as authorized by this part shall be in the following form:
| REQUEST FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I request that my attending physician prescribe an aid-in-dying drug that will end my life in a humane and dignified manner if I choose to take it, and I authorize my attending physician to contact any pharmacist about my request. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| I understand that I have the right to withdraw or rescind this request at any time. | |
| I understand the full import of this request and I expect to die if I take the aid-in-dying drug to be prescribed. My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this request voluntarily, without reservation, and without being coerced. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| DECLARATION OF WITNESSES | |
| We declare that the person signing this request: | |
| (a) is personally known to us or has provided proof of identity; | |
| (b) voluntarily signed this request in our presence; | |
| (c) is an individual whom we believe to be of sound mind and not under duress, fraud, or undue influence; and | |
| (d) is not an individual for whom either of us is the attending physician, consulting physician, or mental health specialist. | |
| ............................Witness 1/Date | |
| ............................Witness 2/Date | |
| NOTE: Only one of the two witnesses may be a relative (by blood, marriage, registered domestic partnership, or adoption) of the person signing this request or be entitled to a portion of the persons estate upon death. Only one of the two witnesses may own, operate, or be employed at a health care facility where the person is a patient or resident. |
(b)(1)The written language of the request shall be written in the same translated language as any conversations, consultations, or interpreted conversations or consultations between a patient and his or her attending or consulting physicians.
(2)Notwithstanding paragraph (1), the written request may be prepared in English even when the conversations or consultations or interpreted conversations or consultations were conducted in a language other than English if the English language form includes an attached interpreters declaration that is signed under penalty of perjury. The interpreters declaration shall state words to the effect that:
| I, (INSERT NAME OF INTERPRETER), am fluent in English and (INSERT TARGET LANGUAGE). | |
On (insert date) at approximately (insert time), I read the Request for an Aid-In-Dying Drug to End My Life to (insert name of individual/patient) in (insert target language). | |
Mr./Ms. (insert name of patient/qualified individual) affirmed to me that he/she understood the content of this form and affirmed his/her desire to sign this form under his/her own power and volition and that the request to sign the form followed consultations with an attending and consulting physician. | |
I declare that I am fluent in English and (insert target language) and further declare under penalty of perjury that the foregoing is true and correct. | |
Executed at (insert city, county, and state) on this (insert day of month) of (insert month), (insert year). | |
X______Interpreter signature | |
X______Interpreter printed name | |
X______Interpreter address |
(3)An interpreter whose services are provided pursuant to paragraph (2) shall not be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the persons estate upon death. An interpreter whose services are provided pursuant to paragraph (2) shall meet the standards promulgated by the California Healthcare Interpreting Association or the National Council on Interpreting in Health Care or other standards deemed acceptable by the department for health care providers in California.
(c)The final attestation form given by the attending physician to the qualified individual at the time the attending physician writes the prescription shall appear in the following form:
| FINAL ATTESTATION FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I have received the aid-in-dying drug and am fully aware that this aid-in-dying drug will end my life in a humane and dignified manner. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this decision to ingest the aid-in-dying drug to end my life in a humane and dignified manner. I understand I still may choose not to ingest the drug and by signing this form I am under no obligation to ingest the drug. I understand I may rescind this request at any time. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| Time:................................................. | |
(1)Within 48 hours prior to the individual self-administering the aid-in-dying drug, the individual shall complete the final attestation form. If aid-in-dying medication is not returned or relinquished upon the patients death as required in Section 443.20, the completed form shall be delivered by the individuals health care provider, family member, or other representative to the attending physician to be included in the patients medical record.
(2)Upon receiving the final attestation form the attending physician shall add this form to the medical records of the qualified individual.
443.12.(a)A provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug is not valid.
(b)An obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
443.13.(a)(1)The sale, procurement, or issuance of a life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for a policy or plan contract may not be conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
(2)Pursuant to Section 443.18, death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
(b)Notwithstanding any other law, a qualified individuals act of self-administering an aid-in-dying drug shall not have an effect upon a life, health, or annuity policy other than that of a natural death from the underlying disease.
(c)An insurance carrier shall not provide any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. Any communication shall not include both the denial of treatment and information as to the availability of aid-in-dying drug coverage. For the purposes of this subdivision, insurance carrier means a health care service plan as defined in Section 1345 of this code or a carrier of health insurance as defined in Section 106 of the Insurance Code.
443.14.(a)Notwithstanding any other law, a person shall not be subject to civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with this part, including an individual who is present when a qualified individual self-administers the prescribed aid-in-dying drug. civil or criminal liability solely because the person was present when the qualified individual self-administers the prescribed aid-in-dying drug. A person who is present may, without civil or criminal liability, assist the qualified individual by preparing the aid-in-dying drug so long as the person does not assist the qualified person in ingesting the aid-in-dying drug.
(b)A health care provider or professional organization or association shall not subject an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with this part or for refusing to participate in accordance with subdivision (e).
(c)Notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this part, including, but not limited to, determining the diagnosis or prognosis of an individual, determining the capacity of an individual for purposes of qualifying for the act, providing information to an individual regarding this part, and providing a referral to a physician who participates in this part. Nothing in this subdivision shall be construed to limit the application of, or provide immunity from, Section 443.16 or 443.17.
(d)(1)A request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with the provisions of this part shall not provide the sole basis for the appointment of a guardian or conservator.
(2)No actions taken in compliance with the provisions of this part shall constitute or provide the basis for any claim of neglect or elder abuse for any purpose of law.
(e)(1)Participation in activities authorized pursuant to this part shall be voluntary. Notwithstanding Sections 442 to 442.7, inclusive, a person or entity that elects, for reasons of conscience, morality, or ethics, not to engage in activities authorized pursuant to this part is not required to take any action in support of an individuals decision under this part.
(2)Notwithstanding any other law, a health care provider is not subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for refusing to participate in activities authorized under this part, including, but not limited to, refusing to inform a patient regarding his or her rights under this part, and not referring an individual to a physician who participates in activities authorized under this part.
(3)If a health care provider is unable or unwilling to carry out a qualified individuals request under this part and the qualified individual transfers care to a new health care provider, the individual may request a copy of his or her medical records pursuant to law.
443.15.(a)Subject to subdivision (b), notwithstanding any other law, a health care provider may prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under this part while on premises owned or under the management or direct control of that prohibiting health care provider or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
(b)A health care provider that elects to prohibit its employees, independent contractors, or other persons or entities, including health care providers, from participating in activities under this part, as described in subdivision (a), shall first give notice of the policy prohibiting participation under this part to the individual or entity. A health care provider that fails to provide notice to an individual or entity in compliance with this subdivision shall not be entitled to enforce such a policy against that individual or entity.
(c)Subject to compliance with subdivision (b), the prohibiting health care provider may take action, including, but not limited to, the following, as applicable, against any individual or entity that violates this policy:
(1)Loss of privileges, loss of membership, or other action authorized by the bylaws or rules and regulations of the medical staff.
(2)Suspension, loss of employment, or other action authorized by the policies and practices of the prohibiting health care provider.
(3)Termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
(4)Imposition of any other nonmonetary remedy provided for in any lease or contract between the prohibiting health care provider and the individual or entity in violation of the policy.
(d)Nothing in this section shall be construed to prevent, or to allow a prohibiting health care provider to prohibit, any other health care provider, employee, independent contractor, or other person or entity from any of the following:
(1)Participating, or entering into an agreement to participate, in activities under this part, while on premises that are not owned or under the management or direct control of the prohibiting provider or while acting outside the course and scope of the participants duties as an employee of, or an independent contractor for, the prohibiting health care provider.
(2)Participating, or entering into an agreement to participate, in activities under this part as an attending physician or consulting physician while on premises that are not owned or under the management or direct control of the prohibiting provider.
(e)In taking actions pursuant to subdivision (c), a health care provider shall comply with all procedures required by law, its own policies or procedures, and any contract with the individual or entity in violation of the policy, as applicable.
(f)For purposes of this section:
(1)Notice means a separate statement in writing advising of the prohibiting health care provider policy with respect to participating in activities under this part.
(2)Participating, or entering into an agreement to participate, in activities under this part means doing or entering into an agreement to do any one or more of the following:
(A)Performing the duties of an attending physician as specified in Section 443.5.
(B)Performing the duties of a consulting physician as specified in Section 443.6.
(C)Performing the duties of a mental health specialist, in the circumstance that a referral to one is made.
(D)Delivering the prescription for, dispensing, or delivering the dispensed aid-in-dying drug pursuant to paragraph (2) of subdivision (b) of, and subdivision (c) of, Section 443.5.
(E)Being present when the qualified individual takes the aid-in-dying drug prescribed pursuant to this part.
(3)Participating, or entering into an agreement to participate, in activities under this part does not include doing, or entering into an agreement to do, any of the following:
(A)Diagnosing whether a patient has a terminal disease, informing the patient of the medical prognosis, or determining whether a patient has the capacity to make decisions.
(B)Providing information to a patient about this part.
(C)Providing a patient, upon the patients request, with a referral to another health care provider for the purposes of participating in the activities authorized by this part.
(g)Any action taken by a prohibiting provider pursuant to this section shall not be reportable under Sections 800 to 809.9, inclusive, of the Business and Professions Code. The fact that a health care provider participates in activities under this part shall not be the sole basis for a complaint or report by another health care provider of unprofessional or dishonorable conduct under Sections 800 to 809.9, inclusive, of the Business and Professions Code.
(h)Nothing in this part shall prevent a health care provider from providing an individual with health care services that do not constitute participation in this part.
443.16.(a)A health care provider may not be sanctioned for any of the following:
(1)Making an initial determination pursuant to the standard of care that an individual has a terminal disease and informing him or her of the medical prognosis.
(2)Providing information about the End of Life Option Act to a patient upon the request of the individual.
(3)Providing an individual, upon request, with a referral to another physician.
(b)A health care provider that prohibits activities under this part in accordance with Section 443.15 shall not sanction an individual health care provider for contracting with a qualified individual to engage in activities authorized by this part if the individual health care provider is acting outside of the course and scope of his or her capacity as an employee or independent contractor of the prohibiting health care provider.
(c)Notwithstanding any contrary provision in this section, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions of a health care provider taken pursuant to this part, and those health part. Notwithstanding any contrary provision in this part, health care providers may be sanctioned by their licensing board or agency for conduct and actions not included and provided for in this part if the conduct and actions do not comply with the standards and practices set forth by the Medical Board of California. constituting unprofessional conduct, including failure to comply in good faith with this part.
443.17.(a)Knowingly altering or forging a request for an aid-in-dying drug to end an individuals life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug is punishable as a felony if the act is done with the intent or effect of causing the individuals death.
(b)Knowingly coercing or exerting undue influence on an individual to request or ingest an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request request, or to administer an aid-in-dying drug to an individual without his or her knowledge or consent, is punishable as a felony.
(c)For purposes of this section, knowingly has the meaning provided in Section 7 of the Penal Code.
(d)The attending physician, consulting physician, or mental health specialist shall not be related to the individual by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the individuals estate upon death.
(d)
(e)Nothing in this section shall be construed to limit civil liability.
(e)
(f)The penalties in this section do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this section.
443.18.Nothing in this part may be construed to authorize a physician or any other person to end an individuals life by lethal injection, mercy killing, or active euthanasia. Actions taken in accordance with this part shall not, for any purposes, constitute suicide, assisted suicide, homicide, or elder abuse under the law.
443.19.(a)The State Department of Public Health shall collect and review the information submitted pursuant to Section 443.9. The information collected shall be confidential and shall be collected in a manner that protects the privacy of the patient, the patients family, and any medical provider or pharmacist involved with the patient under the provisions of this part. The information shall not be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative, or other proceeding.
(b)On or before July 1, 2017, and each year thereafter, based on the information collected in the previous year, the department shall create a report with the information collected from the attending physician followup form and post that report to its Internet Web site. The report shall include, but not be limited to, all of the following based on the information that is provided to the department and on the departments access to vital statistics:
(1)The number of people for whom an aid-in-dying prescription was written.
(2)The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals.
(3)For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death.
(4)The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California.
(5)The number of physicians who wrote prescriptions for aid-in-dying drugs.
(6)Of people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
(A)Age at death.
(B)Education level.
(C)Race.
(D)Sex.
(E)Type of insurance, including whether or not they had insurance.
(F)Underlying illness.
(c)The State Department of Public Health shall make available the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, as described in Section 443.22, by posting them on its Internet Web site.
443.20.A person who has custody or control of any unused aid-in-dying drugs prescribed pursuant to this part after the death of the patient shall personally deliver the unused aid-in-dying drugs for disposal by delivering it to the nearest qualified facility that properly disposes of controlled substances, or if none is available, shall dispose of it by lawful means in accordance with guidelines promulgated by the California State Board of Pharmacy or a federal Drug Enforcement Administration approved take-back program.
443.21.Any governmental entity that incurs costs resulting from a qualified individual terminating his or her life pursuant to the provisions of this part in a public place shall have a claim against the estate of the qualified individual to recover those costs and reasonable attorney fees related to enforcing the claim.
443.215.This part shall remain in effect only until January 1, 2026, and as of that date is repealed, unless a later enacted statute, that is enacted before January 1, 2026, deletes or extends that date.
443.22.(a)The Medical Board of California may update the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, based on those provided in subdivision (b). Upon completion, the State Department of Public Health shall publish the updated forms on its Internet Web site.
(b)Unless and until updated by the Medical Board of California pursuant to this section, the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form shall be in the following form:
PRINTER PLEASE NOTE: TIP-IN MATERIAL TO BE INSERTEDSEC. 2.The Legislature finds and declares that Section 1 of this act, which adds Section 443.19 to the Health and Safety Code, imposes a limitation on the publics right of access to the meetings of public bodies or the writings of public officials and agencies within the meaning of Section 3 of Article I of the California Constitution. Pursuant to that constitutional provision, the Legislature makes the following findings to demonstrate the interest protected by this limitation and the need for protecting that interest:
(a)Any limitation to public access to personally identifiable patient data collected pursuant to Section 443.19 of the Health and Safety Code as proposed to be added by this act is necessary to protect the privacy rights of the patient and his or her family.
(b)The interests in protecting the privacy rights of the patient and his or her family in this situation strongly outweigh the public interest in having access to personally identifiable data relating to services.
(c)The statistical report to be made available to the public pursuant to subdivision (b) of Section 443.19 of the Health and Safety Code is sufficient to satisfy the publics right to access.
SEC. 3.The provisions of this part are severable. If any provision of this part or its application is held invalid, that invalidity shall not affect other provisions or applications that can be given effect without the invalid provision or application.
SEC. 4.No reimbursement is required by this act pursuant to Section 6 of Article XIIIB of the California Constitution because the only costs that may be incurred by a local agency or school district will be incurred because this act creates a new crime or infraction, eliminates a crime or infraction, or changes the penalty for a crime or infraction, within the meaning of Section 17556 of the Government Code, or changes the definition of a crime within the meaning of Section 6 of Article XIIIB of the California Constitution.
This part shall be known and may be cited as the End of Life Option Act.
443.1.As used in this part, the following definitions shall apply:
(a)Adult means an individual 18 years of age or older.
(b)Aid-in-dying drug means a drug determined and prescribed by a physician for a qualified individual, which the qualified individual may choose to self-administer to bring about his or her death due to a terminal disease.
(c)Attending physician means the physician who has primary responsibility for the health care of an individual and treatment of the individuals terminal disease.
(d)Attending physician checklist and compliance form means a form, as described in Section 443.22, identifying each and every requirement that must be fulfilled by an attending physician to be in good faith compliance with this part should the attending physician choose to participate.
(e)Capacity to make medical decisions means that, in the opinion of an individuals attending physician, consulting physician, psychiatrist, or psychologist, pursuant to Section 4609 of the Probate Code, the individual has the ability to understand the nature and consequences of a health care decision, the ability to understand its significant benefits, risks, and alternatives, and the ability to make and communicate an informed decision to health care providers, including communication through a person familiar with the individuals manner of communicating, if that person is available.
(f)Consulting physician means a physician who is independent from the attending physician and who is qualified by specialty or experience to make a professional diagnosis and prognosis regarding an individuals terminal disease.
(g)Department means the State Department of Public Health.
(h)Health care provider or provider of health care means any person licensed or certified pursuant to Division 2 (commencing with Section 500) of the Business and Professions Code; any person licensed pursuant to the Osteopathic Initiative Act or the Chiropractic Initiative Act; any person certified pursuant to Division 2.5 (commencing with Section 1797) of this code; and any clinic, health dispensary, or health facility licensed pursuant to Division 2 (commencing with Section 1200) of this code.
(i)Informed decision means a decision by an individual with a terminal disease to request and obtain a prescription for a drug that the individual may self-administer to end the individuals life, that is based on an understanding and acknowledgment of the relevant facts, and that is made after being fully informed by the attending physician of all of the following:
(1)The individuals medical diagnosis and prognosis.
(2)The potential risks associated with taking the drug to be prescribed.
(3)The probable result of taking the drug to be prescribed.
(4)The possibility that the individual may choose not to obtain the drug or may obtain the drug but may decide not to ingest it.
(5)The feasible alternatives or additional treatment opportunities, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(j)Medically confirmed means the medical diagnosis and prognosis of the attending physician has been confirmed by a consulting physician who has examined the individual and the individuals relevant medical records.
(k)Mental health specialist assessment means one or more consultations between an individual and a mental health specialist for the purpose of determining that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(l)Mental health specialist means a psychiatrist or a licensed psychologist.
(m)Physician means a doctor of medicine or osteopathy currently licensed to practice medicine in this state.
(n)Public place means any street, alley, park, public building, any place of business or assembly open to or frequented by the public, and any other place that is open to the public view, or to which the public has access.
(o)Qualified individual means an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied the requirements of this part in order to obtain a prescription for a drug to end his or her life.
(p)Self-administer means a qualified individuals affirmative, conscious, and physical act of administering and ingesting the aid-in-dying drug to bring about his or her own death.
(q)Terminal disease means an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
443.2.(a)An individual who is an adult with the capacity to make medical decisions and with a terminal disease may make a request to receive a prescription for an aid-in-dying drug if all of the following conditions are satisfied:
(1)The individuals attending physician has diagnosed the individual with a terminal disease.
(2)The individual has voluntarily expressed the wish to receive a prescription for an aid-in-dying drug.
(3)The individual is a resident of California and is able to establish residency through any of the following means:
(A)Possession of a California driver license or other identification issued by the State of California.
(B)Registration to vote in California.
(C)Evidence that the person owns or leases property in California.
(D)Filing of a California tax return for the most recent tax year.
(4)The individual documents his or her request pursuant to the requirements set forth in Section 443.3.
(5)The individual has the physical and mental ability to self-administer the aid-in-dying drug.
(b)A person shall not be considered a qualified individual under the provisions of this part solely because of age or disability.
(c)A request for a prescription for an aid-in-dying drug under this part shall be made solely and directly by the individual diagnosed with the terminal disease and shall not be made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decisionmaker.
443.3.(a)An individual seeking to obtain a prescription for an aid-in-dying drug pursuant to this part shall submit two oral requests, a minimum of 15 days apart, and a written request to his or her attending physician. The attending physician shall directly, and not through a designee, receive all three requests required pursuant to this section.
(b)A valid written request for an aid-in-dying drug under subdivision (a) shall meet all of the following conditions:
(1)The request shall be in the form described in Section 443.11.
(2)The request shall be signed and dated, in the presence of two witnesses, by the individual seeking the aid-in-dying drug.
(3)The request shall be witnessed by at least two other adult persons who, in the presence of the individual, shall attest that to the best of their knowledge and belief the individual is all of the following:
(A)An individual who is personally known to them or has provided proof of identity.
(B)An individual who voluntarily signed this request in their presence.
(C)An individual whom they believe to be of sound mind and not under duress, fraud, or undue influence.
(D)Not an individual for whom either of them is the attending physician, consulting physician, or mental health specialist.
(c)Only one of the two witnesses at the time the written request is signed may:
(1)Be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individuals estate upon death.
(2)Own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
(d)The attending physician, consulting physician, or mental health specialist of the individual shall not be one of the witnesses required pursuant to paragraph (3) of subdivision (b).
443.4.(a)An individual may at any time withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to the individuals mental state.
(b)A prescription for an aid-in-dying drug provided under this part may not be written without the attending physician directly, and not through a designee, offering the individual an opportunity to withdraw or rescind the request.
443.5.(a)Before prescribing an aid-in-dying drug, the attending physician shall do all of the following:
(1)Make the initial determination of all of the following:
(A)(i)Whether the requesting adult has the capacity to make medical decisions.
(ii)If there are indications of a mental disorder, the physician shall refer the individual for a mental health specialist assessment.
(iii)If a mental health specialist assessment referral is made, no aid-in-dying drugs shall be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(B)Whether the requesting adult has a terminal disease.
(C)Whether the requesting adult has voluntarily made the request for an aid-in-dying drug pursuant to Sections 443.2 and 443.3.
(D)Whether the requesting adult is a qualified individual pursuant to subdivision (o) of Section 443.1.
(2)Confirm that the individual is making an informed decision by discussing with him or her all of the following:
(A)His or her medical diagnosis and prognosis.
(B)The potential risks associated with ingesting the requested aid-in-dying drug.
(C)The probable result of ingesting the aid-in-dying drug.
(D)The possibility that he or she may choose to obtain the aid-in-dying drug but not take it.
(E)The feasible alternatives or additional treatment options, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(3)Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with the provisions of this part.
(4)Confirm that the qualified individuals request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required pursuant to this part, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
(5)Counsel the qualified individual about the importance of all of the following:
(A)Having another person present when he or she ingests the aid-in-dying drug prescribed pursuant to this part.
(B)Not ingesting the aid-in-dying drug in a public place.
(C)Notifying the next of kin of his or her request for an aid-in-dying drug. A qualified individual who declines or is unable to notify next of kin shall not have his or her request denied for that reason.
(D)Participating in a hospice program.
(E)Maintaining the aid-in-dying drug in a safe and secure location until the time that the qualified individual will ingest it.
(6)Inform the individual that he or she may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner.
(7)Offer the individual an opportunity to withdraw or rescind the request for an aid-in-dying drug before prescribing the aid-in-dying drug.
(8)Verify, immediately before writing the prescription for an aid-in-dying drug, that the qualified individual is making an informed decision.
(9)Confirm that all requirements are met and all appropriate steps are carried out in accordance with this part before writing a prescription for an aid-in-dying drug.
(10)Fulfill the record documentation required under Sections 443.8 and 443.19.
(11)Complete the attending physician checklist and compliance form, as described in Section 443.22, include it and the consulting physician compliance form in the individuals medical record, and submit it both forms to the State Department of Public Health.
(b)If the conditions set forth in subdivision (a) are satisfied, the attending physician may deliver the aid-in-dying drug in any of the following ways:
(1)Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individuals discomfort, if the attending physician meets all of the following criteria:
(A)Is authorized to dispense medicine under California law.
(B)Has a current United States Drug Enforcement Administration (USDEA) certificate.
(C)Complies with any applicable administrative rule or regulation.
(2)With the qualified individuals written consent, contacting a pharmacist, informing the pharmacist of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual and with the designation delivered to the pharmacist in writing or verbally.
(c)Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual may be made by personal delivery, or, with a signature required on delivery, by United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
443.6.Before a qualified individual obtains an aid-in-dying drug from the attending physician, the consulting physician shall perform all of the following:
(a)Examine the individual and his or her relevant medical records.
(b)Confirm in writing the attending physicians diagnosis and prognosis.
(c)Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision.
(d)If there are indications of a mental disorder, refer the individual for a mental health specialist assessment.
(e)Fulfill the record documentation required under this part.
(f)Submit the compliance form to the attending physician.
443.7.Upon referral from the attending or consulting physician pursuant to this part, the mental health specialist shall:
(a)Examine the qualified individual and his or her relevant medical records.
(b)Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision.
(c)Determine that the individual is not suffering from impaired judgment due to a mental disorder.
(d)Fulfill the record documentation requirements of this part.
443.8.All of the following shall be documented in the individuals medical record:
(a)All oral requests for aid-in-dying drugs.
(b)All written requests for aid-in-dying drugs.
(c)The attending physicians diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending physician has determined that the individual is not a qualified individual.
(d)The consulting physicians diagnosis and prognosis, and verification that the qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the consulting physician has determined that the individual is not a qualified individual.
(e)A report of the outcome and determinations made during a mental health specialists assessment, if performed.
(f)The attending physicians offer to the qualified individual to withdraw or rescind his or her request at the time of the individuals second oral request.
(g)A note by the attending physician indicating that all requirements under Sections 443.5 and 443.6 have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
443.9.(a)Within 30 calendar days of writing a prescription for an aid-in-dying drug, the attending physician shall submit to the State Department of Public Health a copy of the qualifying patients written request, the attending physician checklist and compliance form, and the consulting physician compliance form.
(b)Within 30 calendar days following the qualified individuals death from ingesting the aid-in-dying drug, or any other cause, the attending physician shall submit the attending physician followup form to the State Department of Public Health.
443.10.A qualified individual may not receive a prescription for an aid-in-dying drug pursuant to this part unless he or she has made an informed decision. Immediately before writing a prescription for an aid-in-dying drug under this part, the attending physician shall verify that the individual is making an informed decision.
443.11.(a)A request for an aid-in-dying drug as authorized by this part shall be in the following form:
| REQUEST FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I request that my attending physician prescribe an aid-in-dying drug that will end my life in a humane and dignified manner if I choose to take it, and I authorize my attending physician to contact any pharmacist about my request. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| I understand that I have the right to withdraw or rescind this request at any time. | |
| I understand the full import of this request and I expect to die if I take the aid-in-dying drug to be prescribed. My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this request voluntarily, without reservation, and without being coerced. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| DECLARATION OF WITNESSES | |
| We declare that the person signing this request: | |
| (a) is personally known to us or has provided proof of identity; | |
| (b) voluntarily signed this request in our presence; | |
| (c) is an individual whom we believe to be of sound mind and not under duress, fraud, or undue influence; and | |
| (d) is not an individual for whom either of us is the attending physician, consulting physician, or mental health specialist. | |
| ............................Witness 1/Date | |
| ............................Witness 2/Date | |
| NOTE: Only one of the two witnesses may be a relative (by blood, marriage, registered domestic partnership, or adoption) of the person signing this request or be entitled to a portion of the persons estate upon death. Only one of the two witnesses may own, operate, or be employed at a health care facility where the person is a patient or resident. |
(b)(1)The written language of the request shall be written in the same translated language as any conversations, consultations, or interpreted conversations or consultations between a patient and his or her attending or consulting physicians.
(2)Notwithstanding paragraph (1), the written request may be prepared in English even when the conversations or consultations or interpreted conversations or consultations were conducted in a language other than English if the English language form includes an attached interpreters declaration that is signed under penalty of perjury. The interpreters declaration shall state words to the effect that:
| I, (INSERT NAME OF INTERPRETER), am fluent in English and (INSERT TARGET LANGUAGE). | |
On (insert date) at approximately (insert time), I read the Request for an Aid-In-Dying Drug to End My Life to (insert name of individual/patient) in (insert target language). | |
Mr./Ms. (insert name of patient/qualified individual) affirmed to me that he/she understood the content of this form and affirmed his/her desire to sign this form under his/her own power and volition and that the request to sign the form followed consultations with an attending and consulting physician. | |
I declare that I am fluent in English and (insert target language) and further declare under penalty of perjury that the foregoing is true and correct. | |
Executed at (insert city, county, and state) on this (insert day of month) of (insert month), (insert year). | |
X______Interpreter signature | |
X______Interpreter printed name | |
X______Interpreter address |
(3)An interpreter whose services are provided pursuant to paragraph (2) shall not be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the persons estate upon death. An interpreter whose services are provided pursuant to paragraph (2) shall meet the standards promulgated by the California Healthcare Interpreting Association or the National Council on Interpreting in Health Care or other standards deemed acceptable by the department for health care providers in California.
443.12.(a)A provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug is not valid.
(b)An obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
443.13.(a)(1)The sale, procurement, or issuance of a life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for a policy or plan contract may not be conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
(2)Pursuant to Section 443.18, death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
(b)Notwithstanding any other law, a qualified individuals act of self-administering an aid-in-dying drug shall not have an effect upon a life, health, or annuity policy other than that of a natural death from the underlying disease.
(c)An insurance carrier shall not provide any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. Any communication shall not include both the denial of treatment and information as to the availability of aid-in-dying drug coverage. For the purposes of this subdivision, insurance carrier means a health care service plan as defined in Section 1345 of this code or a carrier of health insurance as defined in Section 106 of the Insurance Code.
443.14.(a)Notwithstanding any other law, a person shall not be subject to civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with this part, including an individual who is present when a qualified individual self-administers the prescribed aid-in-dying drug.
(b)A health care provider or professional organization or association shall not subject an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with this part or for refusing to participate in accordance with subdivision (e).
(c)Notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this part, including, but not limited to, determining the diagnosis or prognosis of an individual, determining the capacity of an individual for purposes of qualifying for the act, providing information to an individual regarding this part, and providing a referral to a physician who participates in this part.
(d)(1)A request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with the provisions of this part shall not provide the sole basis for the appointment of a guardian or conservator.
(2)No actions taken in compliance with the provisions of this part shall constitute or provide the basis for any claim of neglect or elder abuse for any purpose of law.
(e)(1)Participation in activities authorized pursuant to this part shall be voluntary. Notwithstanding Sections 442 to 442.7, inclusive, a person or entity that elects, for reasons of conscience, morality, or ethics, not to engage in activities authorized pursuant to this part is not required to take any action in support of an individuals decision under this part.
(2)Notwithstanding any other law, a health care provider is not subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for refusing to participate in activities authorized under this part, including, but not limited to, refusing to inform a patient regarding his or her rights under this part, and not referring an individual to a physician who participates in activities authorized under this part.
(3)If a health care provider is unable or unwilling to carry out a qualified individuals request under this part and the qualified individual transfers care to a new health care provider, the individual may request a copy of his or her medical records pursuant to law.
443.15.(a)Subject to subdivision (b), notwithstanding any other law, a health care provider may prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under this part while on premises owned or under the management or direct control of that prohibiting health care provider or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
(b)A health care provider that elects to prohibit its employees, independent contractors, or other persons or entities, including health care providers, from participating in activities under this part, as described in subdivision (a), shall first give notice of the policy prohibiting participation under this part to the individual or entity. A health care provider that fails to provide notice to an individual or entity in compliance with this subdivision shall not be entitled to enforce such a policy against that individual or entity.
(c)Subject to compliance with subdivision (b), the prohibiting health care provider may take action, including, but not limited to, the following, as applicable, against any individual or entity that violates this policy:
(1)Loss of privileges, loss of membership, or other action authorized by the bylaws or rules and regulations of the medical staff.
(2)Suspension, loss of employment, or other action authorized by the policies and practices of the prohibiting health care provider.
(3)Termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
(4)Imposition of any other nonmonetary remedy provided for in any lease or contract between the prohibiting health care provider and the individual or entity in violation of the policy.
(d)Nothing in this section shall be construed to prevent, or to allow a prohibiting health care provider to prohibit, any other health care provider, employee, independent contractor, or other person or entity from any of the following:
(1)Participating, or entering into an agreement to participate, in activities under this part, while on premises that are not owned or under the management or direct control of the prohibiting provider or while acting outside the course and scope of the participants duties as an employee of, or an independent contractor for, the prohibiting health care provider.
(2)Participating, or entering into an agreement to participate, in activities under this part as an attending physician or consulting physician while on premises that are not owned or under the management or direct control of the prohibiting provider.
(e)In taking actions pursuant to subdivision (c), a health care provider shall comply with all procedures required by law, its own policies or procedures, and any contract with the individual or entity in violation of the policy, as applicable.
(f)For purposes of this section:
(1)Notice means a separate statement in writing advising of the prohibiting health care provider policy with respect to participating in activities under this part.
(2)Participating, or entering into an agreement to participate, in activities under this part means doing or entering into an agreement to do any one or more of the following:
(A)Performing the duties of an attending physician as specified in Section 443.5.
(B)Performing the duties of a consulting physician as specified in Section 443.6.
(C)Performing the duties of a mental health specialist, in the circumstance that a referral to one is made.
(D)Delivering the prescription for, dispensing, or delivering the dispensed aid-in-dying drug pursuant to paragraph (2) of subdivision (b) of, and subdivision (c) of, Section 443.5.
(E)Being present when the qualified individual takes the aid-in-dying drug prescribed pursuant to this part.
(3)Participating, or entering into an agreement to participate, in activities under this part does not include doing, or entering into an agreement to do, any of the following:
(A)Diagnosing whether a patient has a terminal disease, informing the patient of the medical prognosis, or determining whether a patient has the capacity to make decisions.
(B)Providing information to a patient about this part.
(C)Providing a patient, upon the patients request, with a referral to another health care provider for the purposes of participating in the activities authorized by this part.
(g)Any action taken by a prohibiting provider pursuant to this section shall not be reportable under Sections 800 to 809.9, inclusive, of the Business and Professions Code. The fact that a health care provider participates in activities under this part shall not be the sole basis for a complaint or report by another health care provider of unprofessional or dishonorable conduct under Sections 800 to 809.9, inclusive, of the Business and Professions Code.
(h)Nothing in this part shall prevent a health care provider from providing an individual with health care services that do not constitute participation in this part.
443.16.(a)A health care provider may not be sanctioned for any of the following:
(1)Making an initial determination pursuant to the standard of care that an individual has a terminal disease and informing him or her of the medical prognosis.
(2)Providing information about the End of Life Option Act to a patient upon the request of the individual.
(3)Providing an individual, upon request, with a referral to another physician.
(b)A health care provider that prohibits activities under this part in accordance with Section 443.15 shall not sanction an individual health care provider for contracting with a qualified individual to engage in activities authorized by this part if the individual health care provider is acting outside of the course and scope of his or her capacity as an employee or independent contractor of the prohibiting health care provider.
(c)Notwithstanding any contrary provision in this section, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions taken pursuant to this part, and those health care providers may be sanctioned for conduct and actions not included and provided for in this part if the conduct and actions do not comply with the standards and practices set forth by the Medical Board of California.
443.17.(a)Knowingly altering or forging a request for an aid-in-dying drug to end an individuals life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug is punishable as a felony if the act is done with the intent or effect of causing the individuals death.
(b)Knowingly coercing or exerting undue influence on an individual to request an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request is punishable as a felony.
(c)For purposes of this section, knowingly has the meaning provided in Section 7 of the Penal Code.
(d)Nothing in this section shall be construed to limit civil liability.
(e)The penalties in this section do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this section.
443.18.Nothing in this part may be construed to authorize a physician or any other person to end an individuals life by lethal injection, mercy killing, or active euthanasia. Actions taken in accordance with this part shall not, for any purposes, constitute suicide, assisted suicide, homicide, or elder abuse under the law.
443.19.(a)The State Department of Public Health shall collect and review the information submitted pursuant to Section 443.9. The information collected shall be confidential and shall be collected in a manner that protects the privacy of the patient, the patients family, and any medical provider or pharmacist involved with the patient under the provisions of this part. The information shall not be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative, or other proceeding.
(b)On or before July 1, 2017, and each year thereafter, based on the information collected in the previous year, the department shall report create a report with the information collected from the attending physician follow-up form. followup form and post that report to its Internet Web site. The report shall include, but not be limited to, all of the following based on the information that is provided to the department and on the departments access to vital statistics:
(1)The number of people for whom an aid-in-dying prescription was written.
(2)The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals.
(3)For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death.
(4)The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California.
(5)The number of physicians who wrote prescriptions for aid-in-dying drugs.
(6)Of people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
(A)Age at death.
(B)Education level.
(C)Race.
(D)Sex.
(E)Type of insurance, including whether or not they had insurance.
(F)Underlying illness.
(c)The State Department of Public Health shall make available the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, as described in Section 443.22, by posting them on its Internet Web site.
443.20.A person who has custody or control of any unused aid-in-dying drugs prescribed pursuant to this part after the death of the patient shall personally deliver the unused aid-in-dying drugs for disposal by delivering it to the nearest qualified facility that properly disposes of controlled substances, or if none is available, shall dispose of it by lawful means in accordance with guidelines promulgated by the California State Board of Pharmacy or a federal Drug Enforcement Administration approved take-back program.
443.21.Any governmental entity that incurs costs resulting from a qualified individual terminating his or her life pursuant to the provisions of this part in a public place shall have a claim against the estate of the qualified individual to recover those costs and reasonable attorney fees related to enforcing the claim.
443.22.(a)On or before January 1, 2019, the The Medical Board of California shall develop, revise, and may update an the attending physician checklist and compliance form, a the consulting physician compliance form, and an the attending physician followup form, based on those provided in subdivision (b). Upon completion, the State Department of Public Health shall publish the updated forms on its Internet Web Site. site.
(b)Until the Medical Board of California develops and revises forms pursuant to subdivision (a), or January 1, 2019, whichever is later, Unless and until updated by the Medical Board of California pursuant to this section, the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form shall be in the following form:
PRINTER PLEASE NOTE: TIP-IN MATERIAL TO BE INSERTEDSEC. 2.The Legislature finds and declares that Section 1 of this act, which adds Section 443.19 to the Health and Safety Code, imposes a limitation on the publics right of access to the meetings of public bodies or the writings of public officials and agencies within the meaning of Section 3 of Article I of the California Constitution. Pursuant to that constitutional provision, the Legislature makes the following findings to demonstrate the interest protected by this limitation and the need for protecting that interest:
(a)Any limitation to public access to personally identifiable patient data collected pursuant to Section 443.19 of the Health and Safety Code as proposed to be added by this act is necessary to protect the privacy rights of the patient and his or her family.
(b)The interests in protecting the privacy rights of the patient and his or her family in this situation strongly outweigh the public interest in having access to personally identifiable data relating to services.
(c)The statistical report to be made available to the public pursuant to subdivision (b) of Section 443.19 of the Health and Safety Code is sufficient to satisfy the publics right to access.
SEC. 3.The provisions of this part are severable. If any provision of this part or its application is held invalid, that invalidity shall not affect other provisions or applications that can be given effect without the invalid provision or application.
SEC. 4.No reimbursement is required by this act pursuant to Section 6 of Article XIIIB of the California Constitution because the only costs that may be incurred by a local agency or school district will be incurred because this act creates a new crime or infraction, eliminates a crime or infraction, or changes the penalty for a crime or infraction, within the meaning of Section 17556 of the Government Code, or changes the definition of a crime within the meaning of Section 6 of Article XIIIB of the California Constitution.
This part shall be known and may be cited as the End of Life Option Act.
443.1.As used in this part, the following definitions shall apply:
(a)Adult means an individual 18 years of age or older.
(b)Aid-in-dying drug means a drug determined and prescribed by a physician for a qualified individual, which the qualified individual may choose to self-administer to bring about his or her death due to a terminal disease.
(c)Attending physician means the physician who has primary responsibility for the health care of an individual and treatment of the individuals terminal disease.
(d)Attending physician checklist and compliance form means a form, as described in Section 443.22, identifying each and every requirement that must be fulfilled by an attending physician to be in good faith compliance with this part should the attending physician choose to participate.
(e)Capacity to make medical decisions means that, in the opinion of an individuals attending physician, consulting physician, psychiatrist, or psychologist, pursuant to Section 4609 of the Probate Code, the individual has the ability to understand the nature and consequences of a health care decision, the ability to understand its significant benefits, risks, and alternatives, and the ability to make and communicate an informed decision to health care providers, including communication through a person familiar with the individuals manner of communicating, if that person is available.
(f)Consulting physician means a physician who is independent from the attending physician and who is qualified by specialty or experience to make a professional diagnosis and prognosis regarding an individuals terminal disease.
(g)Department means the State Department of Public Health.
(h)Health care provider or provider of health care means any person licensed or certified pursuant to Division 2 (commencing with Section 500) of the Business and Professions Code; any person licensed pursuant to the Osteopathic Initiative Act or the Chiropractic Initiative Act; any person certified pursuant to Division 2.5 (commencing with Section 1797) of this code; and any clinic, health dispensary, or health facility licensed pursuant to Division 2 (commencing with Section 1200) of this code.
(i)Informed decision means a decision by an individual with a terminal disease to request and obtain a prescription for a drug that the individual may self-administer to end the individuals life, that is based on an understanding and acknowledgment of the relevant facts, and that is made after being fully informed by the attending physician of all of the following:
(1)The individuals medical diagnosis and prognosis.
(2)The potential risks associated with taking the drug to be prescribed.
(3)The probable result of taking the drug to be prescribed.
(4)The possibility that the individual may choose not to obtain the drug or may obtain the drug but may decide not to ingest it.
(5)The feasible alternatives or additional treatment opportunities, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(j)Medically confirmed means the medical diagnosis and prognosis of the attending physician has been confirmed by a consulting physician who has examined the individual and the individuals relevant medical records.
(k)Mental health specialist assessment means one or more consultations between an individual and a mental health specialist for the purpose of determining that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(l)Mental health specialist means a psychiatrist or a licensed psychologist.
(m)Physician means a doctor of medicine or osteopathy currently licensed to practice medicine in this state.
(n)Public place means any street, alley, park, public building, any place of business or assembly open to or frequented by the public, and any other place that is open to the public view, or to which the public has access.
(o)Qualified individual means an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied the requirements of this part in order to obtain a prescription for a drug to end his or her life.
(p)Self-administer means a qualified individuals affirmative, conscious, and physical act of administering and ingesting the aid-in-dying drug to bring about his or her own death.
(q)Terminal disease means an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
443.2.(a)An individual who is an adult with the capacity to make medical decisions and with a terminal disease may make a request to receive a prescription for an aid-in-dying drug if all of the following conditions are satisfied:
(1)The individuals attending physician has diagnosed the individual with a terminal disease.
(2)The individual has voluntarily expressed the wish to receive a prescription for an aid-in-dying drug.
(3)The individual is a resident of California and is able to establish residency through any of the following means:
(A)Possession of a California driver license or other identification issued by the State of California.
(B)Registration to vote in California.
(C)Evidence that the person owns or leases property in California.
(D)Filing of a California tax return for the most recent tax year.
(4)The individual documents his or her request pursuant to the requirements set forth in Section 443.3.
(5)The individual has the physical and mental ability to self-administer the aid-in-dying drug.
(b)A person shall not be considered a qualified individual under the provisions of this part solely because of age or disability.
(c)A request for a prescription for an aid-in-dying drug under this part shall be made solely and directly by the individual diagnosed with the terminal disease and shall not be made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decisionmaker.
443.3.(a)An individual seeking to obtain a prescription for an aid-in-dying drug pursuant to this part shall submit two oral requests, a minimum of 15 days apart, and a written request to his or her attending physician. The attending physician shall directly, and not through a designee, receive all three requests required pursuant to this section.
(b)A valid written request for an aid-in-dying drug under subdivision (a) shall meet all of the following conditions:
(1)The request shall be in the form described in Section 443.11.
(2)The request shall be signed and dated, in the presence of two witnesses, by the individual seeking the aid-in-dying drug.
(3)The request shall be witnessed by at least two other adult persons who, in the presence of the individual, shall attest that to the best of their knowledge and belief the individual is all of the following:
(A)An individual who is personally known to them or has provided proof of identity.
(B)An individual who voluntarily signed this request in their presence.
(C)An individual whom they believe to be of sound mind and not under duress, fraud, or undue influence.
(D)Not an individual for whom either of them is the attending physician, consulting physician, or mental health specialist.
(c)Only one of the two witnesses at the time the written request is signed may:
(1)Be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individuals estate upon death.
(2)Own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
(d)The attending physician, consulting physician, or mental health specialist of the individual shall not be one of the witnesses required pursuant to paragraph (3) of subdivision (b).
443.4.(a)An individual may at any time withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to the individuals mental state.
(b)A prescription for an aid-in-dying drug provided under this part may not be written without the attending physician directly, and not through a designee, offering the individual an opportunity to withdraw or rescind the request.
443.5.(a)Before prescribing an aid-in-dying drug, the attending physician shall do all of the following:
(1)Make the initial determination of all of the following:
(A)(i)Whether the requesting adult has the capacity to make medical decisions.
(ii)If there are indications of a mental disorder, the physician shall refer the individual for a mental health specialist assessment.
(iii)If a mental health specialist assessment referral is made, no aid-in-dying drugs shall be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder.
(B)Whether the requesting adult has a terminal disease.
(C)Whether the requesting adult has voluntarily made the request for an aid-in-dying drug pursuant to Sections 443.2 and 443.3.
(D)Whether the requesting adult is a qualified individual pursuant to subdivision (o) of Section 443.1.
(2)Confirm that the individual is making an informed decision by discussing with him or her all of the following:
(A)His or her medical diagnosis and prognosis.
(B)The potential risks associated with ingesting the requested aid-in-dying drug.
(C)The probable result of ingesting the aid-in-dying drug.
(D)The possibility that he or she may choose to obtain the aid-in-dying drug but not take it.
(E)The feasible alternatives or additional treatment options, including, but not limited to, comfort care, hospice care, palliative care, and pain control.
(3)Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with the provisions of this part.
(4)Confirm that the qualified individuals request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required pursuant to this part, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
(5)Counsel the qualified individual about the importance of all of the following:
(A)Having another person present when he or she ingests the aid-in-dying drug prescribed pursuant to this part.
(B)Not ingesting the aid-in-dying drug in a public place.
(C)Notifying the next of kin of his or her request for an aid-in-dying drug. A qualified individual who declines or is unable to notify next of kin shall not have his or her request denied for that reason.
(D)Participating in a hospice program.
(E)Maintaining the aid-in-dying drug in a safe and secure location until the time that the qualified individual will ingest it.
(6)Inform the individual that he or she may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner.
(7)Offer the individual an opportunity to withdraw or rescind the request for an aid-in-dying drug before prescribing the aid-in-dying drug.
(8)Verify, immediately before writing the prescription for an aid-in-dying drug, that the qualified individual is making an informed decision.
(9)Confirm that all requirements are met and all appropriate steps are carried out in accordance with this part before writing a prescription for an aid-in-dying drug.
(10)Fulfill the record documentation required under Sections 443.8 and 443.19.
(11)Complete the attending physician checklist and compliance form, as described in Section 443.22, include it in the individuals medical record, and submit it to the State Department of Public Health.
(b)If the conditions set forth in subdivision (a) are satisfied, the attending physician may deliver the aid-in-dying drug in any of the following ways:
(1)Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individuals discomfort, if the attending physician meets all of the following criteria:
(A)Is authorized to dispense medicine under California law.
(B)Has a current United States Drug Enforcement Administration (USDEA) certificate.
(C)Complies with any applicable administrative rule or regulation.
(2)With the qualified individuals written consent, contacting a pharmacist, informing the pharmacist of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual and with the designation delivered to the pharmacist in writing or verbally.
(c)Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the qualified individual may be made by personal delivery, or, with a signature required on delivery, by United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
443.6.Before a qualified individual obtains an aid-in-dying drug from the attending physician, the consulting physician shall perform all of the following:
(a)Examine the individual and his or her relevant medical records.
(b)Confirm in writing the attending physicians diagnosis and prognosis.
(c)Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision.
(d)If there are indications of a mental disorder, refer the individual for a mental health specialist assessment.
(e)Fulfill the record documentation required under this part.
443.7.Upon referral from the attending or consulting physician pursuant to this part, the mental health specialist shall:
(a)Examine the qualified individual and his or her relevant medical records.
(b)Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision.
(c)Determine that the individual is not suffering from impaired judgment due to a mental disorder.
(d)Fulfill the record documentation requirements of this part.
443.8.All of the following shall be documented in the individuals medical record:
(a)All oral requests for aid-in-dying drugs.
(b)All written requests for aid-in-dying drugs.
(c)The attending physicians diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending physician has determined that the individual is not a qualified individual.
(d)The consulting physicians diagnosis and prognosis, and verification that the qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the consulting physician has determined that the individual is not a qualified individual.
(e)A report of the outcome and determinations made during a mental health specialists assessment, if performed.
(f)The attending physicians offer to the qualified individual to withdraw or rescind his or her request at the time of the individuals second oral request.
(g)A note by the attending physician indicating that all requirements under Sections 443.5 and 443.6 have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
443.9.(a)Within 30 calendar days of writing a prescription for an aid-in-dying drug, the attending physician shall submit to the State Department of Public Health a copy of the qualifying patients written request, the attending physician compliance form, and the consulting physician compliance form.
(b)Within 30 calendar days following the qualified individuals death from ingesting the aid-in-dying drug, or any other cause, the attending physician shall submit the attending physician followup form to the State Department of Public Health.
443.10.A qualified individual may not receive a prescription for an aid-in-dying drug pursuant to this part unless he or she has made an informed decision. Immediately before writing a prescription for an aid-in-dying drug under this part, the attending physician shall verify that the individual is making an informed decision.
443.11.(a)A request for an aid-in-dying drug as authorized by this part shall be in the following form:
| REQUEST FOR AN AID-IN-DYING DRUG TO END MY LIFE IN A HUMANE AND DIGNIFIED MANNER I, ......................................................, am an adult of sound mind and a resident of the State of California. | |
| I am suffering from ................, which my attending physician has determined is in its terminal phase and which has been medically confirmed. | |
| I have been fully informed of my diagnosis and prognosis, the nature of the aid-in-dying drug to be prescribed and potential associated risks, the expected result, and the feasible alternatives or additional treatment options, including comfort care, hospice care, palliative care, and pain control. | |
| I request that my attending physician prescribe an aid-in-dying drug that will end my life in a humane and dignified manner if I choose to take it, and I authorize my attending physician to contact any pharmacist about my request. | |
| INITIAL ONE: | |
| ............ I have informed one or more members of my family of my decision and taken their opinions into consideration. | |
| ............ I have decided not to inform my family of my decision. | |
| ............ I have no family to inform of my decision. | |
| I understand that I have the right to withdraw or rescind this request at any time. | |
| I understand the full import of this request and I expect to die if I take the aid-in-dying drug to be prescribed. My attending physician has counseled me about the possibility that my death may not be immediately upon the consumption of the drug. | |
| I make this request voluntarily, without reservation, and without being coerced. | |
| Signed:.............................................. | |
| Dated:............................................... | |
| DECLARATION OF WITNESSES | |
| We declare that the person signing this request: | |
| (a) is personally known to us or has provided proof of identity; | |
| (b) voluntarily signed this request in our presence; | |
| (c) is an individual whom we believe to be of sound mind and not under duress, fraud, or undue influence; and | |
| (d) is not an individual for whom either of us is the attending physician, consulting physician, or mental health specialist. | |
| ............................Witness 1/Date | |
| ............................Witness 2/Date | |
| NOTE: Only one of the two witnesses may be a relative (by blood, marriage, registered domestic partnership, or adoption) of the person signing this request or be entitled to a portion of the persons estate upon death. Only one of the two witnesses may own, operate, or be employed at a health care facility where the person is a patient or resident. |
(b)(1)The written language of the request shall be written in the same translated language as any conversations, consultations, or interpreted conversations or consultations between a patient and his or her attending or consulting physicians.
(2)Notwithstanding paragraph (1), the written request may be prepared in English even when the conversations or consultations or interpreted conversations or consultations were conducted in a language other than English if the English language form includes an attached interpreters declaration that is signed under penalty of perjury. The interpreters declaration shall state words to the effect that:
| I, (INSERT NAME OF INTERPRETER), am fluent in English and (INSERT TARGET LANGUAGE). | |
On (insert date) at approximately (insert time), I read the Request for an Aid-In-Dying Drug to End My Life to (insert name of individual/patient) in (insert target language). | |
Mr./Ms. (insert name of patient/qualified individual) affirmed to me that he/she understood the content of this form and affirmed his/her desire to sign this form under his/her own power and volition and that the request to sign the form followed consultations with an attending and consulting physician. | |
I declare that I am fluent in English and (insert target language) and further declare under penalty of perjury that the foregoing is true and correct. | |
Executed at (insert city, county, and state) on this (insert day of month) of (insert month), (insert year). | |
X______Interpreter signature | |
X______Interpreter printed name | |
X______Interpreter address |
(3)An interpreter whose services are provided pursuant to paragraph (2) shall not be related to the qualified individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the persons estate upon death. An interpreter whose services are provided pursuant to paragraph (2) shall meet the standards promulgated by the California Healthcare Interpreting Association or the National Council on Interpreting in Health Care or other standards deemed acceptable by the department for health care providers in California.
443.12.(a)A provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug is not valid.
(b)An obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
443.13.(a)(1)The sale, procurement, or issuance of a life, health, or annuity policy, health care service plan contract, or health benefit plan, or the rate charged for a policy or plan contract may not be conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
(2)Pursuant to Section 443.18, death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
(b)Notwithstanding any other law, a qualified individuals act of self-administering an aid-in-dying drug shall not have an effect upon a life, health, or annuity policy other than that of a natural death from the underlying disease.
(c)An insurance carrier shall not provide any information in communications made to an individual about the availability of an aid-in-dying drug absent a request by the individual or his or her attending physician at the behest of the individual. Any communication shall not include both the denial of treatment and information as to the availability of aid-in-dying drug coverage. For the purposes of this subdivision, insurance carrier means a health care service plan as defined in Section 1345 of this code or a carrier of health insurance as defined in Section 106 of the Insurance Code.
443.14.(a)Notwithstanding any other law, a person shall not be subject to civil, criminal, administrative, employment, or contractual liability or professional disciplinary action for participating in good faith compliance with this part, including an individual who is present when a qualified individual self-administers the prescribed aid-in-dying drug.
(b)A health care provider or professional organization or association shall not subject an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with this part or for refusing to participate in accordance with subdivision (e).
(c)Notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this part, including, but not limited to, determining the diagnosis or prognosis of an individual, determining the capacity of an individual for purposes of qualifying for the act, providing information to an individual regarding this part, and providing a referral to a physician who participates in this part.
(d)(1)A request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with the provisions of this part shall not provide the sole basis for the appointment of a guardian or conservator.
(2)No actions taken in compliance with the provisions of this part shall constitute or provide the basis for any claim of neglect or elder abuse for any purpose of law.
(e)(1)Participation in activities authorized pursuant to this part shall be voluntary. Notwithstanding Sections 442 to 442.7, inclusive, a person or entity that elects, for reasons of conscience, morality, or ethics, not to engage in activities authorized pursuant to this part is not required to take any action in support of an individuals decision under this part.
(2)Notwithstanding any other law, a health care provider is not subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for refusing to participate in activities authorized under this part, including, but not limited to, refusing to inform a patient regarding his or her rights under this part, and not referring an individual to a physician who participates in activities authorized under this part.
(3)If a health care provider is unable or unwilling to carry out a qualified individuals request under this part and the qualified individual transfers care to a new health care provider, the individual may request a copy of his or her medical records pursuant to law.
443.15.(a)Subject to subdivision (b), notwithstanding any other law, a health care provider may prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in activities under this part while on premises owned or under the management or direct control of that prohibiting health care provider or while acting within the course and scope of any employment by, or contract with, the prohibiting health care provider.
(b)A health care provider that elects to prohibit its employees, independent contractors, or other persons or entities, including health care providers, from participating in activities under this part, as described in subdivision (a), shall first give notice of the policy prohibiting participation under this part to the individual or entity. A health care provider that fails to provide notice to an individual or entity in compliance with this subdivision shall not be entitled to enforce such a policy against that individual or entity.
(c)Subject to compliance with subdivision (b), the prohibiting health care provider may take action, including, but not limited to, the following, as applicable, against any individual or entity that violates this policy:
(1)Loss of privileges, loss of membership, or other action authorized by the bylaws or rules and regulations of the medical staff.
(2)Suspension, loss of employment, or other action authorized by the policies and practices of the prohibiting health care provider.
(3)Termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
(4)Imposition of any other nonmonetary remedy provided for in any lease or contract between the prohibiting health care provider and the individual or entity in violation of the policy.
(d)Nothing in this section shall be construed to prevent, or to allow a prohibiting health care provider to prohibit, any other health care provider, employee, independent contractor, or other person or entity from any of the following:
(1)Participating, or entering into an agreement to participate, in activities under this part, while on premises that are not owned or under the management or direct control of the prohibiting provider or while acting outside the course and scope of the participants duties as an employee of, or an independent contractor for, the prohibiting health care provider.
(2)Participating, or entering into an agreement to participate, in activities under this part as an attending physician or consulting physician while on premises that are not owned or under the management or direct control of the prohibiting provider.
(e)In taking actions pursuant to subdivision (c), a health care provider shall comply with all procedures required by law, its own policies or procedures, and any contract with the individual or entity in violation of the policy, as applicable.
(f)For purposes of this section:
(1)Notice means a separate statement in writing advising of the prohibiting health care provider policy with respect to participating in activities under this part.
(2)Participating, or entering into an agreement to participate, in activities under this part means doing or entering into an agreement to do any one or more of the following:
(A)Performing the duties of an attending physician as specified in Section 443.5.
(B)Performing the duties of a consulting physician as specified in Section 443.6.
(C)Performing the duties of a mental health specialist, in the circumstance that a referral to one is made.
(D)Delivering the prescription for, dispensing, or delivering the dispensed aid-in-dying drug pursuant to paragraph (2) of subdivision (b) of, and subdivision (c) of, Section 443.5.
(E)Being present when the qualified individual takes the aid-in-dying drug prescribed pursuant to this part.
(3)Participating, or entering into an agreement to participate, in activities under this part does not include doing, or entering into an agreement to do, any of the following:
(A)Diagnosing whether a patient has a terminal disease, informing the patient of the medical prognosis, or determining whether a patient has the capacity to make decisions.
(B)Providing information to a patient about this part.
(C)Providing a patient, upon the patients request, with a referral to another health care provider for the purposes of participating in the activities authorized by this part.
(g)Any action taken by a prohibiting provider pursuant to this section shall not be reportable under Sections 800 to 809.9, inclusive, of the Business and Professions Code. The fact that a health care provider participates in activities under this part shall not be the sole basis for a complaint or report by another health care provider of unprofessional or dishonorable conduct under Sections 800 to 809.9, inclusive, of the Business and Professions Code.
(h)Nothing in this part shall prevent a health care provider from providing an individual with health care services that do not constitute participation in this part.
443.16.(a)A health care provider may not be sanctioned for any of the following:
(1)Making an initial determination pursuant to the standard of care that an individual has a terminal disease and informing him or her of the medical prognosis.
(2)Providing information about the End of Life Option Act to a patient upon the request of the individual.
(3)Providing an individual, upon request, with a referral to another physician.
(b)A health care provider that prohibits activities under this part in accordance with Section 443.15 shall not sanction an individual health care provider for contracting with a qualified individual to engage in activities authorized by this part if the individual health care provider is acting outside of the course and scope of his or her capacity as an employee or independent contractor of the prohibiting health care provider.
(c)Notwithstanding any contrary provision in this section, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions taken pursuant to this part, and those health care providers may be sanctioned for conduct and actions not included and provided for in this part if the conduct and actions do not comply with the standards and practices set forth by the Medical Board of California.
443.17.(a)Knowingly altering or forging a request for an aid-in-dying drug to end an individuals life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug is punishable as a felony if the act is done with the intent or effect of causing the individuals death.
(b)Knowingly coercing or exerting undue influence on an individual to request an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request is punishable as a felony.
(c)For purposes of this section, knowingly has the meaning provided in Section 7 of the Penal Code.
(d)Nothing in this section shall be construed to limit civil liability.
(e)The penalties in this section do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this section.
443.18.Nothing in this part may be construed to authorize a physician or any other person to end an individuals life by lethal injection, mercy killing, or active euthanasia. Actions taken in accordance with this part shall not, for any purposes, constitute suicide, assisted suicide, homicide, or elder abuse under the law.
443.19.(a)The State Department of Public Health shall collect and review the information submitted pursuant to Section 443.9. The information collected shall be confidential and shall be collected in a manner that protects the privacy of the patient, the patients family, and any medical provider or pharmacist involved with the patient under the provisions of this part. The information shall not be disclosed, discoverable, or compelled to be produced in any civil, criminal, administrative, or other proceeding.
(b)On or before July 1, 2017, and each year thereafter, based on the information collected in the previous year, the department shall report the information collected from the attending physician follow-up form. The report shall include, but not be limited to, all of the following based on the information that is provided to the department and on the departments access to vital statistics:
(1)The number of people for whom an aid-in-dying prescription was written.
(2)The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals.
(3)For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death.
(4)The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California.
(5)The number of physicians who wrote prescriptions for aid-in-dying drugs.
(6)Of people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
(A)Age at death.
(B)Education level.
(C)Race.
(D)Sex.
(E)Type of insurance, including whether or not they had insurance.
(F)Underlying illness.
(c)The State Department of Public Health shall make available the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form, as described in Section 443.22, by posting them on its Internet Web site.
443.20.A person who has custody or control of any unused aid-in-dying drugs prescribed pursuant to this part after the death of the patient shall personally deliver the unused aid-in-dying drugs for disposal by delivering it to the nearest qualified facility that properly disposes of controlled substances, or if none is available, shall dispose of it by lawful means in accordance with guidelines promulgated by the California State Board of Pharmacy or a federal Drug Enforcement Administration approved take-back program.
443.21.Any governmental entity that incurs costs resulting from a qualified individual terminating his or her life pursuant to the provisions of this part in a public place shall have a claim against the estate of the qualified individual to recover those costs and reasonable attorney fees related to enforcing the claim.
443.22.(a)On or before January 1, 2019, the Medical Board of California shall develop, revise, and update an attending physician checklist and compliance form, a consulting physician compliance form, and an attending physician followup form, based on those provided in subdivision (b). Upon completion, the State Department of Public Health shall publish the updated forms on its Internet Web Site.
(b)Until the Medical Board of California develops and revises forms pursuant to subdivision (a), or January 1, 2019, whichever is later, the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician followup form shall be in the following form:
PRINTER PLEASE NOTE: TIP-IN MATERIAL TO BE INSERTEDSEC. 2.The Legislature finds and declares that Section 1 of this act, which adds Section 443.19 to the Health and Safety Code, imposes a limitation on the publics right of access to the meetings of public bodies or the writings of public officials and agencies within the meaning of Section 3 of Article I of the California Constitution. Pursuant to that constitutional provision, the Legislature makes the following findings to demonstrate the interest protected by this limitation and the need for protecting that interest:
(a)Any limitation to public access to personally identifiable patient data collected pursuant to Section 443.19 of the Health and Safety Code as proposed to be added by this act is necessary to protect the privacy rights of the patient and his or her family.
(b)The interests in protecting the privacy rights of the patient and his or her family in this situation strongly outweigh the public interest in having access to personally identifiable data relating to services.
(c)The statistical report to be made available to the public pursuant to subdivision (b) of Section 443.19 of the Health and Safety Code is sufficient to satisfy the publics right to access.
SEC. 3.The provisions of this part are severable. If any provision of this part or its application is held invalid, that invalidity shall not affect other provisions or applications that can be given effect without the invalid provision or application.
SEC. 4.No reimbursement is required by this act pursuant to Section 6 of Article XIIIB of the California Constitution because the only costs that may be incurred by a local agency or school district will be incurred because this act creates a new crime or infraction, eliminates a crime or infraction, or changes the penalty for a crime or infraction, within the meaning of Section 17556 of the Government Code, or changes the definition of a crime within the meaning of Section 6 of Article XIIIB of the California Constitution.
|
Date
|
Status
|
|---|---|
| Sep 9, 2015 | In Senate. Read first time. To Com. on RLS. for assignment. |
| Oct 5, 2015 | Chaptered by Secretary of State. Chapter 1, Statutes of 2015-16 Second Extraordinary Session. |
| Oct 5, 2015 | Approved by the Governor. |
| Sep 25, 2015 | Enrolled and presented to the Governor at 2 p.m. |
| Sep 11, 2015 | Read third time. Passed. Ordered to the Assembly. (Ayes 23. Noes 15. Page 81.). |
| Sep 11, 2015 | Read third time. Passed. Ordered to the Assembly. |
| Sep 11, 2015 | In Assembly. Ordered to Engrossing and Enrolling. |
| Sep 10, 2015 | Read second time. Ordered to third reading. |
| Sep 9, 2015 | Withdrawn from committee. |
| Sep 9, 2015 | Read third time. Passed. Ordered to the Senate. (Ayes 44. Noes 35.) |
| Sep 9, 2015 | Read third time. Passed. Ordered to the Senate. (Ayes 44. Noes 35. Page 85.) |
| Sep 9, 2015 | Read third time. Passed. Ordered to the Senate. |
| Sep 9, 2015 | Ordered to second reading. |
| Aug 17, 2015 | Read first time. To print. |
| Sep 9, 2015 | (Ayes 24. Noes 14.) |
| Sep 9, 2015 | (Ayes 24. Noes 14. Page 72.) |
| Sep 8, 2015 | Read second time. Ordered to third reading. |
| Sep 4, 2015 | Re-referred to Com. on FINANCE. |
| Sep 4, 2015 | From committee: Do pass. (Ayes 5. Noes 3.) (September 4). |
| Sep 3, 2015 | Read second time and amended. |
| Sep 3, 2015 | Re-referred to Com. on FINANCE. |
| Sep 3, 2015 | From committee chair, with author's amendments: Amend, and re-refer to Com. on FINANCE. Read second time and amended. |
| Sep 2, 2015 | From committee: Amend, and do pass as amended and re-refer to Com. on FINANCE. (Ayes 10. Noes 3.) (September 1). |
| Aug 27, 2015 | Referred to Com. on P.H. & D.S. |
| Aug 18, 2015 | From printer. |
|
Date
|
Description
|
Location
|
Votes
|
|
|---|---|---|---|---|
| Sep 11, 2015 | Assembly 3rd Reading AB15 Eggman By Wolk and Monning | Senate Floor |
Passed |
|
| Sep 9, 2015 | AB 15 EGGMAN Assembly Third Reading Second Extraordinary Session | Assembly Floor |
Passed |
|
| Sep 4, 2015 | Do pass. | Assembly 1st Extraordinary Session on Finance |
Passed |
|
| Sep 1, 2015 | Do pass as amended and be re-referred to the Committee on [Finance] | Assembly 2nd Extraordinary Session on Public Health and Developmental Services |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
|
Organization
|
Position
|
Date
|
|---|---|---|
| Aging for California | * Against | Sep 1, 2015 |
| Agudath Israel Of California | ** Against | Sep 11, 2015 |
| Agudath Israel, CA | * Indeterminate | Sep 4, 2015 |
| Aids Healthcare Foundation | ** Support | Sep 11, 2015 |
| Aids Project Los Angeles | ** Support | Sep 11, 2015 |
| Alameda, California | * Support | Sep 1, 2015 |
| Alliance Of Catholic Health Care Inc. | * Against | Sep 4, 2015 |
| American Disabled For Attendant Programs | ** Against | Sep 4, 2015 |
| Arroyo Grande Community Hospital | ** Against | Sep 1, 2015 |
| Association Of Northern California Oncologists | * Against | Sep 4, 2015 |
| Autistic Self Advocacy Network | ** Against | Sep 1, 2015 |
| Bloom in the Desert Ministries | ** Support | Sep 1, 2015 |
| Board of Examiners of Nursing Homes in California | * Against | Sep 1, 2015 |
| California Association for Nurse Practitioners | ** Support | Sep 11, 2015 |
| California Association Of Marriage And Family Therapists | ** Support | Sep 11, 2015 |
| California Catholic Conference | * Against | Sep 4, 2015 |
| California Church Impact | ** Support | Sep 11, 2015 |
| California Commission on Aging | ** Support | Sep 11, 2015 |
| California Democratic Party | ** Support | Sep 11, 2015 |
| California Disability Alliance | ** Against | Sep 1, 2015 |
| California Foundation For Independent Living Centers | ** Against | Sep 1, 2015 |
| California Hospital Medical Center | ** Against | Sep 1, 2015 |
| California Nurses for Ethical Standards | * Against | Sep 1, 2015 |
| California Primary Care Association | ** Support | Sep 11, 2015 |
| California Psychological Association | ** Support | Sep 11, 2015 |
| California Senior Legislature | ** Support | Sep 11, 2015 |
| Campbell, California | * Support | Sep 1, 2015 |
| Cardinal Point at Mariner Square Residents' Association | ** Support | Sep 11, 2015 |
| Choice is an Illusion | ** Against | Sep 1, 2015 |
| City of Cathedral City | ** Support | Sep 11, 2015 |
| Coalition of Concerned Medical Professionals | ** Against | Sep 1, 2015 |
| Coastside Democrats | ** Support | Sep 11, 2015 |
| Communities Actively Living Independent and Free | ** Against | Sep 1, 2015 |
| Communities United in Defense of Olmstead | ** Against | Sep 1, 2015 |
| Community Hospital of San Bernardino | ** Against | Sep 1, 2015 |
| Compassion and Choices California | ** Support | Sep 11, 2015 |
| Conference of California Bar Associations | ** Support | Sep 11, 2015 |
| Cotati, California | * Support | Sep 1, 2015 |
| County of Santa Cruz Board of Supervisors | ** Support | Sep 4, 2015 |
| Davis Christian Assembly | * Against | Sep 1, 2015 |
| Davis, CA | * Against | Sep 1, 2015 |
| Death with Dignity National Center | ** Support | Sep 4, 2015 |
| Democratic Party of Orange County | ** Support | Sep 11, 2015 |
| Democratic Party of Santa Barbara County | ** Support | Sep 11, 2015 |
| Democratic Service Club of Santa Barbara County | ** Support | Sep 11, 2015 |
| Democratic Women of Monterey County | ** Support | Sep 4, 2015 |
| Democratic Women of Santa Barbra | ** Support | Sep 4, 2015 |
| Desert Ministries United Church of Christ | ** Support | Sep 11, 2015 |
| Desert Stonewall Democrats | ** Support | Sep 11, 2015 |
| Dignity Health | ** Against | Sep 1, 2015 |
| Disability Action Center | ** Against | Sep 1, 2015 |
| Disability Rights California | * Against | Sep 4, 2015 |
| Disability Rights Education & Defense Fund | * Against | Sep 1, 2015 |
| Disability Rights Education And Defense Fund (Dredf) | * Against | Sep 1, 2015 |
| Dominican Hospital | ** Against | Sep 1, 2015 |
| Equality California | ** Support | Sep 4, 2015 |
| Ethical Culture Society of Silicon Valley | ** Support | Sep 11, 2015 |
| Five Counties Central Labor Council | ** Support | Sep 11, 2015 |
| Five Counties Council Labor Council | ** Support | Sep 4, 2015 |
| FREED Center for Independent Living | ** Against | Sep 1, 2015 |
| Full Circle Living and Dying Collective | ** Support | Sep 11, 2015 |
| Gay and Lesbian Medical Association | ** Support | Sep 1, 2015 |
| Glendale Memorial Hospital and Health Center | ** Against | Sep 1, 2015 |
| GLMA Health Professionals Advancing LGBT Equality | ** Support | Sep 4, 2015 |
| GLMA: Health Professionals Advancing LGBT Equality | ** Support | Sep 11, 2015 |
| Gray Panthers | ** Support | Sep 4, 2015 |
| Gray Panthers of Long Beach | ** Support | Sep 11, 2015 |
| Humanist Society of Santa Barbara | ** Support | Sep 11, 2015 |
| Humboldt and Del Norte Counties Central Labor Council | ** Support | Sep 11, 2015 |
| Independent Living Center of Southern California | ** Against | Sep 1, 2015 |
| Independent Living Resource Center, San Francisco | ** Against | Sep 1, 2015 |
| Insurance Commissioner Dave Jones | ** Support | Sep 1, 2015 |
| Lafayette, CA | * Against | Sep 1, 2015 |
| Laguna Woods Democratic Club | ** Support | Sep 11, 2015 |
| League of United Latin American Citizens, Evergreen Council | ** Against | Sep 1, 2015 |
| League of United Latin American Citizens, Mayfair Council | ** Against | Sep 1, 2015 |
| Life Priority Network | ** Against | Sep 1, 2015 |
| Livermore, California | * Against | Sep 1, 2015 |
| Lompoc Valley Democratic Club | ** Support | Sep 11, 2015 |
| Los Angeles LGBT Center | ** Support | Sep 11, 2015 |
| Los Angeles, CA | * Against | Sep 1, 2015 |
| Mar Vista Community Council | ** Support | Sep 11, 2015 |
| Medical Oncology Association Of Southern California | * Against | Sep 4, 2015 |
| National Association of Pro-Life Nurses | * Against | Sep 1, 2015 |
| National Association Of Social Workers, California Chapter | ** Support | Sep 1, 2015 |
| National Legal Center for the Medically Dependent and Disabled | * Against | Sep 1, 2015 |
| Older Women's League, San Francisco | ** Support | Sep 1, 2015 |
| Palliative Care and Hospice Medicine | * Against | Sep 1, 2015 |
| Palo Alto, City Of | * Support | Sep 1, 2015 |
| People of Faith for Justice | ** Support | Sep 4, 2015 |
| Petaluma, CA | * Support | Sep 1, 2015 |
| Potrero Hill Democratic Club | ** Support | Sep 11, 2015 |
| Progressive Christians Uniting | ** Support | Sep 11, 2015 |
| Sacramento Central Labor Council, AFL-CIO | ** Support | Sep 11, 2015 |
| Sacramento, CA | * Against | Sep 1, 2015 |
| Sacramento, CA | * Support | Sep 1, 2015 |
| San Benito County Democratic Central Committee | ** Support | Sep 11, 2015 |
| San Francisco | * Support | Sep 1, 2015 |
| San Francisco Aids Foundation | ** Support | Sep 11, 2015 |
| San Mateo County Democracy for America | ** Support | Sep 11, 2015 |
| San Mateo County Medical Association | ** Support | Sep 11, 2015 |
| Santa Barbara County Board of Supervisors | ** Support | Sep 11, 2015 |
| Santa Barbara, County Of | ** Support | Sep 11, 2015 |
| Santa Cruz City Council | ** Support | Sep 11, 2015 |
| Seal Beach Leisure World Democratic Club | ** Support | Sep 4, 2015 |
| Shasta County Citizens for Democracy | ** Support | Sep 4, 2015 |
| South Orange County Democratic Club | ** Support | Sep 11, 2015 |
| The Community Church of California City | ** Support | Sep 4, 2015 |
| The San Mateo County Democratic Party | ** Support | Sep 4, 2015 |
| The Sierra County Democratic Central Committee | ** Support | Sep 4, 2015 |
| The Tehachapi Mountain Democratic Club | ** Support | Sep 4, 2015 |
| The Unitarian Universalist Church of the Desert | ** Support | Sep 4, 2015 |
| The Unitarian Universalist Church of the Verdugo Hills | ** Support | Sep 4, 2015 |
| UC Berkeley | * Support | Sep 4, 2015 |
| UC Davis | * Support | Sep 4, 2015 |
| Unitarian Universalist Congregation of Marin | * Support | Sep 1, 2015 |
| Ventura County Board of Supervisors | ** Support | Sep 11, 2015 |
| Visalia Democratic Club | ** Support | Sep 11, 2015 |
| Washington State | * Against | Sep 4, 2015 |
| West Hollywood United Church of Christ | ** Support | Sep 4, 2015 |
ABX2 15
Page 16
|
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 |
THIRD READING
Bill No: ABX2 15
Author: Eggman (D), Alejo (D), and Mark Stone (D), et al.
Amended: 9/3/15
ASSEMBLY FLOOR: 44-35, 9/9/15 - See last page for vote
DIGEST: This bill permits a competent, qualified individual who is an adult with a terminal disease to receive a prescription for an aid-in-dying drug if certain conditions are met, such as two oral requests, a minimum of 15 days apart, and a written request signed by two witnesses, is provided to his or her attending physician, the attending physician refers the patient to a consulting physician to confirm diagnosis and capacity to make medical decisions, and the attending physician refers the patient to a mental health specialist, if indicated. Sunsets these provisions on January 1, 2026.
Existing law:
Establishes requirements for health care providers when a provider makes a diagnosis that a patient has a terminal illness, including that the patient has a right to comprehensive information and counseling regarding legal end of life options, which includes information about hospice care at home or in a health care setting, that he or she has a right to comprehensive pain and symptom management at the end of life, including, but not limited to, adequate pain medication, treatment of nausea, palliative chemotherapy, relief from shortness of breath and fatigue, and other clinical treatments useful when a patient is actively dying.
Provides that a resident of a long term care facility lacks capacity to make a decision regarding his or her health care if the resident is unable to understand the nature and consequences of the proposed medical intervention, including its risks and benefits, or is unable to express a preference regarding the intervention. Requires the physician, in making the determination regarding capacity, to interview the patient, review the patient’s medical records, and consult with facility staff, family members and friends of the resident, if any have been identified.
Makes it a felony to deliberately aid, or advise, or encourage another to commit suicide.
This bill:
Permits an individual who is an adult with the capacity to make medical decisions and with a terminal disease to request and receive a prescription for an aid-in-dying drug if all of the following conditions exist:
The attending physician has diagnosed the individual with a terminal disease;
The individual has voluntarily expressed the wish to receive a prescription for an aid in dying drug;
The individual is a resident of California and is able to establish residency, as specified;
The individual documents his or her request for aid-in-dying drug, as specified; and,
The individual has the physical and mental ability to self-administer the aid-in-dying drug.
Requires a request for a prescription for an aid-in-dying drug to be made solely and directly by the individual diagnosed with the terminal disease and prohibits it from being made on behalf of the patient, including, but not limited to, through a power of attorney, an advance health care directive, or any other legally recognized health care decision-maker.
Requires a qualified individual wishing to receive a prescription for an aid-in-dying drug to submit two oral requests, a minimum of 15 days apart, and a witnessed written request, as specified, to his or her attending physician. Requires the attending physician to receive the three requests, directly, and not through a designee.
Requires at least two adult witnesses who attest that to the best of their knowledge and belief the individual is known to them or has provided proof of identity, voluntarily signed the request in their presence, is of sound mind and not under duress, fraud, or undue influence, and not an individual for whom either is the attending physician, consulting physician, or mental health specialist.
Permits one of the two witnesses to be related by blood, marriage, or adoption; or be a person entitled to a portion of the person’s estate upon death. Permits one of the two witnesses to own, operate, or be employed at a health care facility where the qualified individual is receiving medical treatment or resides. Prohibits the attending physician, consulting physician, or mental health specialist from being one of the witnesses.
Permits an individual at any time to withdraw or rescind his or her request for an aid-in-dying drug or decide not to ingest an aid-in-dying drug, without regard to the individual’s mental state.
Requires before prescribing an aid-in-dying drug the attending physician to:
Make the initial determination whether the requesting adult has the capacity to make medical decisions; if there are indications of a mental disorder the physician is required to refer the individual for a mental health assessment and cannot prescribe the aid-in-dying drug until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment; has a terminal disease, has voluntarily made the request, and is a qualified individual.
Confirm the individual is making an informed decision by discussing with him or her the medical diagnosis and prognosis, potential risks with taking the drug, the probable result of taking the drug, the possibility that he or she may choose to obtain the drug but not take it, and the feasible alternatives or additional treatment opportunities including, but not limited to, comfort care, hospice care, palliative care, and pain control.
Refer the individual to a consulting physician, (defined as a physician who is independent from the attending physician and is qualified by specialty or experience to make a professional diagnosis and prognosis regarding the individual’s terminal disease), for medical confirmation of the diagnosis, prognosis, and for a determination that the individual has the capacity to make medical decisions and has complied with this bill.
Refer the individual for a mental health specialist, if there are indications of a mental disorder. Defines counseling as one or more consultations, as necessary, between an individual and a California licensed psychiatrist or psychologist for the purpose of determining that the individual is competent and is not suffering from a psychiatric or psychological disorder or depression causing impaired judgment.
Confirm the qualified individual’s request does not arise from coercion or undue influence by another person by discussing with the qualified individual, outside of the presence of any other persons, except for an interpreter as required by this bill, whether or not the qualified individual is feeling coerced or unduly influenced by another person.
Counsel the individual about the importance of having another person present when he or she takes the drug and not taking the drug in a public place, notifying next of kin, participating in a hospice program, and maintaining the aid-in-dying drug in a safe and secure location until the time it will be ingested.
Inform the individual that he or she may rescind the request at any time and in any manner.
Offer the individual an opportunity to withdraw or rescind the request before prescribing the drug.
Verify, immediately prior to writing the prescription for medication, that the individual is making an informed decision.
Fulfill the record documentation, as specified.
Complete the attending physician checklist and compliance form, established in this bill, include it and the consulting physician compliance form, established in this bill, in the individual’s medical record, and submit both forms to the Department of Public Health (DPH).
Give the qualified individual the final attestation form, with the instruction that the form be filled out and executed by the qualified individual within 48 hours prior to the qualified individual choosing to self-administer the aid-in-dying drug.
Requires, prior to a qualified individual obtaining aid in dying medication from the attending physician, the consulting physician to perform all of the following:
Examine the individual and his or her relevant medical records;
Confirm in writing the diagnosis and prognosis;
Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision;
If there are indications of a mental disorder, refer the individual for a mental health specialist assessment;
Fulfill the record documentation requirement, as established in this bill; and,
Submit the compliance form to the attending physician.
Requires the mental health specialist, upon referral from the attending or consulting physician, to examine the qualified individual and his or her relevant medical records; determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision; determine that the individual is not suffering from impaired judgment due to a mental disorder; and fulfill the record documentation requirements established by this bill.
Requires within 30 calendar days of writing a prescription for aid-in-dying drug, the attending physician to submit to DPH a copy of the qualifying patient’s written request, the attending physician checklist and compliance form, and the consulting physician compliance form. Requires within 30 calendar days following the qualified individual’s death from ingestion of the aid-in-dying drug, or any cause, the attending physician to submit the attending physician follow-up form to DPH.
Establishes a format for the aid-in-dying drug request and requires that a request be in substantially the same form, and translated, as specified. Requires the interpreter to be qualified, as specified, and not related to the qualified individual by blood, marriage, or adoption or be entitled to a portion of the person’s estate upon death.
Establishes the format of the final attestation form given by the attending physician to the qualified individual at the time the attending physician writes the prescription. Requires the individual to complete the form within 48 hours prior to the individual self-administering the aid-in-dying drug. Requires if aid-in-dying medication is not returned or relinquished upon the patient’s death, as required by this bill, the completed form to be delivered by the individual’s health care provider, family member, or other representative to the attending physician to be included in the patient’s medical record. Requires upon receiving the final attestation form, the attending physician to add this form to the medical records of the qualified individual.
Makes a provision in a contract, will, or other agreement, executed on or after January 1, 2016, whether written or oral, affecting whether a person may make, withdraw or rescind a request for aid-in-dying drug, invalid. Prohibits an obligation owing under any contract in effect on or after January 1, 2016, from being conditioned upon or affected by a person making or rescinding a request for an aid-in-dying drug.
States that a death resulting from the self-administering of an aid-in-dying drug is not suicide and therefore prohibits health and insurance coverage from being exempted on that basis.
Provides, notwithstanding any other law, that a qualified individual’s act of self-administering aid-in-dying drug may not have an effect upon a life, health, or accident insurance or annuity policy other than that of a natural death from the underlying illness.
Prohibits an insurance carrier from providing any information in communications made about the availability of aid-in-dying drug absent a request by the individual or the individual’s attending physician at his or her behest. Prohibits any communication from including both the denial of treatment and information as to the availability of aid-in-dying drug coverage.
Prohibits a person from being subject to civil or criminal liability solely because the person was present when the qualified individual self-administers the prescribed aid-in-dying drug. Permits, without civil or criminal liability, a person who is present to assist the qualified individual by preparing the aid-in-dying drug so long as the person does not assist the qualified person in ingesting the drug.
Prohibits a health care provider or professional organization or association from censoring, disciplining, suspending, or revoking licensure, privileges, membership, or administering other penalty to an individual for participating or refusing to participate in good faith compliance with this bill.
Provides that a request by a qualified individual to an attending physician to provide aid-in-dying drug in good faith compliance with the provisions of this bill shall not provide the sole basis for the appointment of a guardian or conservator.
Provides, notwithstanding any other law, a health care provider shall not be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in this bill, as specified. States that nothing in this provision shall be construed to limit the application of, or provide immunity from 30)-34) below.
Permits a health care provider to prohibit its employees, independent contractors, or other persons from participating in activities under this bill while on premises owned or under the management or direct control of that prohibiting health care provider, as specified. Indicates that nothing shall be construed to prevent, or to allow a prohibiting health care provider to prohibit its employees or contractors from participating in activities under this bill outside the scope of the employee or contractor’s duties, or while on premises not owned by the prohibiting employer, as specified.
Prohibits a health care provider from being sanctioned for: making an initial determination that an individual has a terminal illness and informing him or her of the medical prognosis; providing information about the End of Life Option Act to a patient upon the request of the individual; providing an individual, upon request, with a referral to another physician; or, contracting with an individual to act outside the course and scope of the provider’s capacity as an employee or independent contractor of a health care provider that prohibits activities under this bill.
States that notwithstanding any contrary provision in this bill, the immunities and prohibitions on sanctions of a health care provider are solely reserved for actions of a health care provider taken pursuant to this bill. Additionally, health care providers may be sanctioned by their licensing board or agency for conduct and actions unprofessional conduct, including failure to comply in good faith with this bill.
Makes it a felony to knowingly alter or forge a request for aid-in-dying drug to end an individual’s life without his or her authorization or concealing or destroying a withdrawal or rescission of a request for an aid-in-dying drug if the act is done with the intent or effect of causing the individual’s death.
Makes it a felony to knowingly coerce or exert undue influence on an individual to request or ingest an aid-in-dying drug for the purpose of ending his or her life or to destroy a withdrawal or rescission of a request, or to administer an aid-in-dying drug to an individual without his or her knowledge or consent.
Indicates that 24) and 25) above shall not be construed to limit civil liability, and do not preclude criminal penalties applicable under any law for conduct inconsistent with the provisions of this bill.
Provides that nothing in this bill may be construed to authorize a physician or any other person to end an individual’s life by lethal injection, mercy killing, or active euthanasia. Provides that actions taken in accordance with this bill shall not, for any purpose, constitute suicide, assisted suicide, mercy killing, homicide, or elder abuse under the law.
Requires DPH to collect and review the specified information and to be collected in a manner that protects the privacy of the patient, the patient’s family, and any medical provider or pharmacist involved with the patient under this bill. Requires a report annually beginning on or before July 1, 2017, to be posted on the department’s website.
Requires a person who has custody or control of any unused aid in dying medication to personally deliver the unused medication to the nearest qualified facility that properly disposes of controlled substances, or if none is available, dispose of it by lawful means.
Sunsets this bill on January 1, 2026.
Comments
Author’s statement. According to the author, ABX2 15, the End of Life Option Act allows an adult in California with a terminal disease that has the capacity to make medical decisions and who has been given a prognosis of less than six months to live, to make end of life decisions. By giving these patients the legal right to ask for and receive an aid-in-dying prescription from his/her physician, ABX2 15 provides one more option to the number of options one has when faced with the end of their life. This bill includes strong provisions to safeguard patients from coercion and to allow voluntary participation by physicians, pharmacists and health care facilities. This medical practice is already recognized in five other states. There is substantial evidence from those states that prove this law can be used safely and effectively. Californians that are faced with a terminal disease should not have to leave the state in order to have a peaceful death. In the end, how each of us spends the end of our lives is a deeply personal decision. That decision should remain with the individual, as a matter of personal freedom and liberty, without criminalizing those who help to honor our wishes and ease our suffering.
Other States. According to the National Conference of State Legislatures, four states currently allow a person to request a drug to end one’s life, including: Montana, Oregon, Vermont, and Washington. Montana’s authorization was determined in the 2008 case of Baxter v. State of Montana. New Mexico’s authorization was determined in 2014 Morris v. New Mexico, however the New Mexico Attorney General appealed the district court’s ruling. According to the Albuquerque Journal News, a divided New Mexico Court of Appeals reversed the 2014 ruling in August 2015 but virtually guaranteed the issue to be revisited by the New Mexico Supreme Court. Oregon, Vermont, and Washington have authorized the practice in statute, by voter initiative in Oregon (passed in 1994 and enacted in 1997) and Washington (in 2008). In 2013, Vermont passed legislation to authorize physician aid in dying. Arkansas and Idaho have enacted laws which specifically prohibit physician aid in dying.
Other Countries. Belgium, the Netherlands, Luxembourg, Switzerland and, beginning next year, Canada, allow physician aid in dying. The Netherlands and Belgium also allow euthanasia (administered by a physician). Belgium extended its law in 2014 to include children of any age living with terminal illness. In the Netherlands, the law is not available to children under 12 years old and for teenagers, the law requires parental consent.
Oregon Data. According to the Oregon Public Health Division 2013 report, from 1998 to 2013, 1,173 were prescribed aid with dying medication and 752 deaths occurred as a result of ingesting prescribed medications. From 1998 to 2013, the gender break down of those who died from ingesting a lethal dose of medication was 52 percent male and 48 percent female. Less than 32 percent of the individuals who ingested the medication were between ages 18-64. Almost 70 percent were over aged 65. The race breakdown was white (97 percent), African American (.1 percent), American Indian (.3 percent), Asian (1.1 percent), Pacific Islander (.1 percent), other (.1 percent), two or more races (.3 percent), and Hispanic (.7 percent). Over 46 percent of those who ingested the medication were married and the remaining 64 percent were widowed, never married, divorced, or status was unknown (three individuals). Less than 28 percent of those who ingested the medication had a high school education or less and 72 percent had some college or higher education levels (five individuals had unknown status). Ninety percent of those who ingested the medication were enrolled in hospice. Sixty-three percent had private insurance, 35 percent had Medicare, Medicaid or other governmental insurance, and less than two percent were uninsured (35 individuals had unknown status). Almost 80 percent of those who ingested the medication had malignant neoplasms, seven percent had Amyotrophic lateral sclerosis, five percent had chronic lower respiratory disease, two percent had heart disease, one percent had HIV/AIDS and six percent had other illnesses. Six percent of those who ingested the medication were referred for psychiatric evaluation. Ninety-four informed their family of their decision. Ninety-five percent died at home, four percent died in long-term care, and .1 percent died in the hospital. Ninety-one percent of those who ingested the medication were concerned about loss of autonomy, 89 percent were concerned about being less able to engage in activities that make life enjoyable, 81 percent were concerned about loss of dignity, 50 percent were concerned about losing bodily function, 40 percent were concerned about being a burden on family, friends or caregivers, 23 percent were concerned about inadequate pain control, and three percent were concerned about financial implications of treatment. There were 22 complications of regurgitation reported and six individuals regained consciousness after ingesting the medications. A range of between 15 and 1,009 days elapsed from the first request for medication and death.
Brittany Maynard. According to Compassion and Choices, a nonprofit that works to expand end of life choices, Brittany Maynard was a California native with a terminal brain cancer diagnosis who moved to Oregon to access its death with dignity law. Brittany Maynard died in Oregon after taking aid-in-dying drug on November 1, 2014. In the final weeks of her life, Ms. Maynard partnered with Compassion and Choices to launch a campaign to make aid in dying an open and accessible medical practice in California and throughout the country. According to Brittany Maynard, as published on CNN Opinion Tuesday, October 7, 2014, “Because the rest of my body is young and healthy, I am likely to physically hang on for a long time even though cancer is eating my mind. I probably would have suffered in hospice care for weeks or even months. And my family would have had to watch that.” After moving to Oregon with her family, establishing the residency requirements, and finding new physicians, Ms. Maynard obtained aid-in-dying drug. “Now that I’ve had the prescription filled and it’s in my possession, I have experienced a tremendous sense of relief. And if I decide to change my mind about taking the medication, I will not take it…..When my suffering becomes too great, I can say to all those I love, I love you; come be by my side, and come say goodbye as I pass into whatever’s next.”
Concerns. Allstate Insurance Company is concerned that the language contained in Section 443.13 (a) and (b) could be interpreted to constrain a life insurer’s ability to conduct its traditional underwriting practice, including the consideration of the underlying terminal illness.
Related Legislation
SB
128 (Wolk and Monning) permits a qualified adult with capacity to
make medical decisions, who has been diagnosed with a terminal
disease to receive a prescription for an aid in dying drug if certain
conditions are met, such as two oral requests, a minimum of 15 days
apart and a signed written request witnessed by two individuals is
provided to his or her attending physician, the attending physician
refers the patient to an independent, consulting physician to confirm
diagnosis and capacity of the patient to make medical decisions, and
the attending physician refers the patient for a mental health
specialist assessment if there are indications of a mental disorder.
SB 128 is pending in the Assembly Health Committee.
FISCAL EFFECT: Appropriation: No Fiscal Com.: Yes Local: Yes
According to the Assembly Committee on Finance:
Department of Health Care Services
Potential minor costs and savings in Medi-Cal based on the Medi-Cal program choosing to cover this end-of-life option (General Fund (GF)).
Department of Public Health
One-time GF costs of $90,000 for information technology services, and ongoing GF costs in the range of $250,000. DPH anticipates that a secure drive with password protection would be needed to store the confidential data collected pursuant to this bill, and would require an SQL database to perform data collection and storage. DPH states that a database could be developed with one-time development costs of approximately $88,000, and ongoing yearly maintenance by Information Technology Services Division of approximately $10,000 per year, as shown in the chart below.
Database Development Task |
Hours |
Cost |
Application Development |
|
|
|
267 |
$16,000 |
|
133 |
$8,000 |
|
800 |
$48,000 |
|
133 |
$8,000 |
|
133 |
$8,000 |
|
|
|
Total One-Time Cost |
1466 |
$88,000 |
Ongoing yearly maintenance ($845 x 12) |
14/mo |
$10,140 |
Additionally, once the database is established, DPH estimates that two full-time positions would be required to perform confidential program and reporting duties outlined in this bill, with duties including:
Collect data, enter reports received, collect forms, track program utilization and associated deaths;
Follow-up with providers that submit incomplete reports;
Perform data analysis, cross-check decedent deaths with list of prescribed participants, and draft annual reports;
Prepare the annual report mandated by the bill;
Maintain program information on the public website, and respond to inquiries regarding program policy; and
Update website as needed, and make reporting forms available for download online.
Summary of Total Cost to DPH
Total Budget Year Cost |
Total Cost Budget Year + 1 |
$323,087 |
$245,227 |
Department of Managed Health Care
Due to the sensitive and controversial nature of aid-in-dying medication, the Department of Managed Health Care (DMHC) anticipates a high level of public interest, which will result in Public Records Act (PRA) or Information Practices Act (IPA) requests during the first three years. The Office of Legal Services (OLS) anticipates PRA/IPA requests regarding which health plans that cover aid-in-dying medications and under what terms the medications are covered, as well as information on relevant policy decisions, enforcement policies, and consumer grievances. OLS estimates that these tasks will have no cost in the current fiscal year, $276,000 (Managed Care Fund (MCF)) and 2.0 positions in the 2015-16 fiscal year, and $244,000 MCF and 2.0 positions each in the 2016-17 and 2017-18 fiscal years. OLS does not anticipate ongoing costs after the 2017-18 fiscal year.
The Help Center, Office of Administrative Services, Office of Technology and Innovation, Office of Enforcement, Office of Plan Licensing, Division of Plan Surveys, and Office of Financial Review anticipate absorbable workload that will have no significant fiscal impact on those programs.
Medical Board of California
Minor costs to the Medical Board to update several of the forms required by this bill as deemed necessary (Contingent Fund of the Medical Board of California).
Board of Pharmacy
Minor costs to the Board of Pharmacy. The Board would not need to amend or adopt any regulations. The Board estimates that any additional enforcement actions due to this bill would result in minor costs (Pharmacy Fund).
Advisory Council of the Central Coast Commission for Senior Citizens
AIDS Healthcare Foundation
AIDS Project Los Angeles
American Nurses Association\California
California Association for Nurse Practitioners
California Association of Marriage and Family Therapists
California Chapter of the National Association of Social Workers
California Church IMPACT
California Commission on Aging
California Democratic Party
California Primary Care Association
California Psychological Association
California Senior Legislature
Cardinal Point at Mariner Square Residents’ Association
Church Council of West Hollywood United Church of Christ
City of Cathedral City
City of Santa Barbara
Coastside Democrats
Compassion and Choices California
Conference of California Bar Associations
Democratic Party of Orange County
Democratic Party of Santa Barbara County
Democratic Service Club of Santa Barbara County
Desert Ministries United Church of Christ
Desert Stonewall Democrats
Ethical Culture Society of Silicon Valley
Five Counties Central Labor Council
Full Circle Living and Dying Collective
GLMA: Health Professionals Advancing LGBT Equality
Gray Panthers of Long Beach
Humanist Society of Santa Barbara
Humboldt and Del Norte Counties Central Labor Council
Laguna Woods Democratic Club
Lompoc Valley Democratic Club
Los Angeles LGBT Center
Mar Vista Community Council
Potrero Hill Democratic Club
Progressive Christians Uniting
Sacramento Central Labor Council, AFL-CIO
San Benito County Democratic Central Committee
San Francisco AIDS Foundation
San Mateo County Democracy for America
San Mateo County Democratic Party
San Mateo County Medical Association
Santa Barbara County Board of Supervisors
Santa Cruz City Council
Sierra County Democratic Central Committee
South Orange County Democratic Club
Tehachapi Mountain Democratic Club
Unitarian Universalist Church of the Verdugo Hills
Ventura County Board of Supervisors
Visalia Democratic Club
OPPOSITION: (Verified 9/10/15)
Agudath Israel of California
Alliance of Catholic Health Care
Association of Northern California Oncologists
California Catholic Conference
California Disability Alliance
California Foundation for Independent Living Centers
Coalition of Concerned Medical Professionals
Communities Actively Living Independent and Free
Communities United in Defense of Olmstead
Dignity Health
Disability Action Center
Disability Rights California
Disability Rights Education and Defense Fund
FREED Center for Independent Living
Independent Living Center of Southern California
Independent Living Resource Center of San Francisco
Medical Oncology Association of Southern California
Patients Rights Action Fund
Placer Independent Resource Services
Rabbinical Council of California
Silicon Valley Independent Living Center
The Arc of California
ARGUMENTS IN SUPPORT: Compassion and Choices writes that this bill will improve the quality of end-of-life care for terminally ill Californians and their families, while protecting physicians who care for them. According to Compassion and Choices less than one percent of dying Californians would take the medication, but many people would benefit from the peace of mind of having access to it if they need and want it. Simply knowing the option is available can provide a palliative effect for dying people. The Advisory Council of the Central Coast Commission for Senior Citizens, Area Agency on Aging based their support on the thorough efforts in the proposed legislation to provide safeguards to individuals. The AIDS Healthcare Foundation writes that this bill contains explicit protections against manipulation of the law for inappropriate purposes. These provisions ensure a balance between meeting the critical goal of the bill and protecting against acts by people who do not have the patients’ best interests in mind. The Conference of California Bar Associations indicates that this bill includes numerous safeguards to ensure that the medication is provided only to terminally ill individuals according to their own choice and knowing, well-considered decision after consideration of feasible alternatives and additional treatment opportunities. Proponents indicate that 20 years of data collected in Oregon demonstrate that this law works as intended, with no substantiated reports of abuse or coercion and it resulted in improved end-of-life pain management and increased use of hospice for all dying patients.
ARGUMENTS IN OPPOSITION: A coalition of physicians and other health care providers, organizations dedicated to the rights of people with disabilities, and faith-based organizations write in opposition that while protections for health care providers are present, it is the patient who remains without adequate protections. The coalition writes that physician suicide is bad for Californians, particularly those with low incomes who may lack adequate access to health care, including mental health services. The coalition writes that this bill does not require a psychiatrist to evaluate a patient before he/she decides to end their life; does not require anyone to be present when the patient takes his/her lethal prescription; allows the patient, or designated agent, to pick up their lethal prescription at the local pharmacy. In addition, the opponents believe this bill will have a devastating impact on the treatment of terminally ill and disabled patients because it will quickly become another treatment option, always being the cheapest. Disability Rights California writes that there is no oversight of the fatal dose once it has been dispensed and no way to know if the patient has changed her mind but is given the dose anyway. The Medical Oncology Association of Southern California, Inc, believes no matter how many parameters are placed around the practice, legalizing a form of suicide will have spillover effects in society at large. One physician writes that the “good faith” legal standard in this bill that protects physicians is found nowhere else in medical practice, where physicians are required to practice according to the higher “medical standard of care.”
ASSEMBLY FLOOR: 44-35, 9/9/15
AYES: Alejo, Baker, Bloom, Bonilla, Bonta, Burke, Calderon, Campos, Chau, Chiu, Chu, Cooley, Cooper, Dababneh, Dodd, Eggman, Frazier, Cristina Garcia, Eduardo Garcia, Gatto, Gomez, Gordon, Gray, Hadley, Holden, Irwin, Jones-Sawyer, Levine, Low, Maienschein, McCarty, Medina, Mullin, Nazarian, Perea, Quirk, Rendon, Salas, Mark Stone, Thurmond, Ting, Weber, Wood, Atkins
NOES: Achadjian, Travis Allen, Bigelow, Brough, Brown, Chang, Chávez, Dahle, Beth Gaines, Gallagher, Gipson, Gonzalez, Grove, Harper, Roger Hernández, Jones, Kim, Lackey, Linder, Lopez, Mathis, Mayes, Melendez, Obernolte, O'Donnell, Olsen, Patterson, Ridley-Thomas, Rodriguez, Santiago, Steinorth, Wagner, Waldron, Wilk, Williams
NO VOTE RECORDED: Daly
Prepared by: Teri Boughton / HEALTH /
9/10/15 23:36:14
**** END ****
AB 15 X2
Page 15
ASSEMBLY THIRD READING
AB 15 X2
(Eggman, et al.)
As Amended September 3, 2015
Majority vote
Committee |
Votes |
Ayes |
Noes |
Public Health |
10-3 |
Bonta, Maienschein, Baker, Bonilla, Campos, Eduardo Garcia, Levine, Mark Stone, Thurmond, Wood |
Mayes, Santiago, Steinorth |
Finance |
5-3 |
Weber, Bloom, Jones-Sawyer, McCarty, Ting |
Melendez, Bigelow, Obernolte |
SUMMARY: Enacts the End of Life Option Act allowing an adult diagnosed with a terminal disease, and with the capacity to make medical decisions, to receive a prescription for an aid-in-dying drug to end his or her life in a humane and dignified manner. Specifically, this bill:
Defines a qualified individual as an adult who has the capacity to make medical decisions, is a resident of California, and has satisfied all of the requirements of these provisions in order to obtain a prescription for a drug to end his or her life.
Defines various other terms for purposes of these provisions, including defining an adult as an individual 18 years of age or older, an aid-in-dying drug as a drug determined and prescribed by a physician for a qualified individual, and an attending physician as the physician who has primary responsibility for the health care of an individual and treatment of the individual's terminal disease. Defines terminal disease as an incurable and irreversible disease that has been medically confirmed and will, within reasonable medical judgment, result in death within six months.
Requires an individual requesting an aid-in-dying drug to have done so voluntarily.
Specifies that the individual must be a resident of California with the ability to establish residency through possession of a California driver's license or other identification issued by the State of California; registration to vote in California; or, filing of a California tax return for the most recent tax year.
Allows a request for a prescription for an aid-in-dying drug to be made only by the individual diagnosed with the terminal disease, not by others on behalf of the individual, including prohibiting requests through a power of attorney, an advance health care directive, a conservator, health care agent, surrogate, or any other legally recognized health care decision maker.
Specifies that a person will not be qualified to obtain an aid-in-dying drug solely because of age or disability.
Requires an individual requesting a prescription for an aid-in-dying drug to submit two oral requests, a minimum of 15 days apart, and a written request, and for the attending physician to personally receive all three requests. Requires written requests to be signed and dated by the individual in the presence of two witnesses who must attest to the best of their knowledge and belief that the individual is personally known to them or has provided proof of identity, is of sound mind, and not under duress, fraud, or undue influence.
Prohibits the attending physician, consulting physician, or the mental health specialist of the requesting individual from being a witness on the written request.
Allows only one of the witnesses to be related to the individual by blood, marriage, registered domestic partnership, or adoption or be entitled to a portion of the individual's estate upon death, and only one of the witnesses to own, operate, or be employed at a health care facility where the individual is receiving medical treatment or resides.
Specifies that at any time an individual may withdraw or rescind his or her request for an aid-in-dying drug, or decide not to ingest an aid-in-dying drug, without regard to their mental state.
Prohibits an attending physician from writing a prescription for an aid-in-dying drug without first personally offering the individual an opportunity to withdraw or rescind the request, and, requires the attending physician before prescribing to do all of the following:
Make an initial determination whether the requesting adult has the capacity to make medical decisions, and if there are indications of a mental disorder, to refer the individual for a mental health specialist assessment. If a mental health assessment referral is made, no aid-in-dying drugs will be prescribed until the mental health specialist determines that the individual has the capacity to make medical decisions and is not suffering from impaired judgment due to a mental disorder;
Determine whether the requesting adult has a terminal disease;
Determine whether the requesting adult has voluntarily made the request for an aid-in-dying drug and is a qualified individual;
Confirm that the individual is making an informed decision by discussing all of the following with them:
Their medical diagnosis and prognosis;
The potential risks associated with ingesting the requested aid-in-dying drug;
The possibility that they may choose to obtain the aid-in-dying drug but not take it; and,
Feasible alternatives or additional treatment options including, but not limited to, comfort care, hospice care, palliative care, and pain control.
Refer the individual to a consulting physician for medical confirmation of the diagnosis and prognosis, and for a determination that the individual has the capacity to make medical decisions;
Confirm that the individual's request does not arise from coercion or undue influence by another person by privately discussing, unless an interpreter is needed, whether or not the individual is feeling coerced or unduly influenced by another person;
Counsel the individual about the importance of all of the following:
Having another person present when they ingest the aid-in-dying drug;
Not ingesting the aid-in-dying drug in a public place;
Notifying the next of kin of their request for an aid-in-dying drug. An individual's inability or refusal to notify their next of kin does not constitute a reason to deny their request for an aid-in-dying drug;
Participating in a hospice program; and,
Maintaining the aid-in-dying drug in a safe and secure location until they will ingest it.
Inform the individual that they may withdraw or rescind the request for an aid-in-dying drug at any time and in any manner, and offer the individual an opportunity to withdraw or rescind the request for an aid-in dying drug before prescribing the aid-in-dying drug;
Verify, immediately prior to writing the prescription for the aid-in-dying drug, that the individual is making an informed decision;
Confirm that all the requirements for requesting an aid-in-dying drug have been met; and,
Fulfill all medical record documentation requirements, including completing the End of Life Option Act Checklist and Compliance Form and placing it in the individual's medical record.
Provide the individual with a final attestation form and instruct them to fill it out and sign it 48 hours prior to ingesting the aid-in-dying drug. The form attests, among other things, that the individual has been fully informed of their diagnosis and prognosis, counseled regarding feasible alternatives, including hospice and palliative care, and that the individual understands they may choose not to ingest the drug and is under no obligation to ingest the drug. Requires the form to be delivered by the individual's health care provider, family member, or other representative to the attending physician to be included in the patient's medical record.
Once all of the requirements have been met, allows the attending physician to deliver the aid-in-dying drug in any of the following ways:
Dispensing the aid-in-dying drug directly, including ancillary medication intended to minimize the qualified individual's discomfort, if the attending physician is authorized to dispense medicine under California law, has a current United States Drug Enforcement Administration certificate, and complies with any applicable administrative rule or regulation;
With the individual's written consent, contacting a pharmacist to inform them of the prescriptions, and delivering the written prescriptions personally, by mail, or electronically to the pharmacist, who may dispense the drug to the individual, the attending physician, or a person expressly designated by the individual and with the designation delivered to the pharmacist in writing or verbally; and,
Delivery of the dispensed drug to the qualified individual, the attending physician, or a person expressly designated by the individual may be made by personal delivery, or, with a signature required on delivery, by the United Parcel Service, United States Postal Service, Federal Express, or by messenger service.
Prior to the individual obtaining an aid-in-dying prescription from the attending physician, requires the consulting physician to:
Examine the individual and their medical records;
Confirm in writing the attending physician's diagnosis and prognosis;
Determine that the individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision;
Refer the individual for a mental health specialist assessment, if there are indications of a mental disorder; and,
Document all of the above in the individual's medical record.
If the attending or consulting physician refers the individual to a mental health specialist, requires the mental health specialist to:
Examine the qualified individual and their medical records;
Determine that the individual has the mental capacity to make medical decisions, act voluntarily, and make an informed decision;
Determine that the individual is not suffering from impaired judgment due to a mental disorder; and,
Document all of the above in the individual's medical record.
Requires all of the following to be documented in the individual's medical record:
All oral requests for aid-in-dying drugs;
All written requests for aid-in-dying drugs;
Both the attending physician's and consulting physician's diagnosis and prognosis, and the determination that a qualified individual has the capacity to make medical decisions, is acting voluntarily, and has made an informed decision, or that the attending or consulting physician has determined that the individual is not a qualified individual;
A report on the outcome and determinations made during a mental health specialist's assessment, if performed;
The attending physician's offer to the qualified individual to withdraw or rescind his or her request at the time of the individual's second oral request; and,
A note by the attending physician indicating that all requirements have been met and indicating the steps taken to carry out the request, including a notation of the aid-in-dying drug prescribed.
Requires the attending physician, within 30 calendar days of writing a prescription for an aid-in-dying drug, to submit a copy of the patient's written request, the attending physician compliance form, and the consulting physician compliance form to the State Department of Public Health (DPH).
Requires the attending physician, within 30 calendar days following the qualified individual's death from ingesting the aid-in-dying drug, or any other cause, to submit the attending physician follow-up form to DPH.
Outlines the requirements of the witnessed form an individual must submit to request an aid-in-dying drug. Requires the language of the request to be written in the same translated language as any conversations, consultations, or interpreted conversations between a patient and his or her attending or consulting physicians. Prohibits an interpreter from being related to the individual requesting the aid-in-dying drug and requires interpreters to meet certain professional association standards.
Makes a provision in a contract, will, or other agreement executed on or after January 1, 2016, whether written or oral, to the extent the provision would affect whether a person may make, withdraw, or rescind a request for an aid-in-dying drug, invalid.
Prohibits the sale, procurement, or issuance of a life, health, or accident insurance or annuity policy; health care service plan contract; or, health benefit plan, or the rate charged for a policy or plan contract from being conditioned upon or affected by a person making, withdrawing, or rescinding a request for an aid-in-dying drug. Also provides that an obligation owing under any contract executed on or after January 1, 2016, may not be conditioned or affected by a qualified individual making, withdrawing, or rescinding a request for an aid-in-dying drug.
Provides that death resulting from the self-administration of an aid-in-dying drug is not suicide, and therefore health and insurance coverage shall not be exempted on that basis.
Provides that a qualified individual's act of self-administering an aid-in-dying drug has no effect upon a life, health, or accident insurance or annuity policy other than that of a natural death from the underlying disease.
Prohibits an insurance carrier from providing any information in communications to an individual about the availability of an aid-in-dying drug unless requested by the individual or their attending physician at the behest of the individual. Clarifies that any communication must not include both a denial of treatment and information about the availability of aid-in-dying drug coverage.
Provides that a person will not be subject to civil or criminal liability solely because the person was present when the qualified individual self-administered the prescribed aid-in-dying drug, and that a person may, without civil or criminal liability assist the qualified individual by preparing the aid-in-dying drug, but not assist the individual in ingesting the aid-in-dying drug.
Prohibits a health care provider or professional organization or association from subjecting an individual to censure, discipline, suspension, loss of license, loss of privileges, loss of membership, or other penalty for participating in good faith compliance with these provisions, or for refusing to participate.
Prohibits a health care provider from being be subject to civil, criminal, administrative, disciplinary, employment, credentialing, professional discipline, contractual liability, or medical staff action, sanction, or penalty or other liability for participating in these provisions.
Specifies that the immunities and prohibitions on sanction of a health care provider are solely reserved for actions of a health care provider taken pursuant to these provisions, and clarifies a health care provider may be sanctioned by their licensing board or agency for conduct and actions constituting unprofessional conduct, including failure to comply in good faith with these provisions.
Specifies that a request by a qualified individual to an attending physician to provide an aid-in-dying drug in good faith compliance with these provisions does not constitute the sole basis for the appointment of a guardian or conservator, and actions taken in compliance with these provisions do not provide the basis for a claim of neglect or elder abuse.
Provides that participation in activities authorized by this bill must be voluntary, and further clarifies that an individual is not subject to any type of sanction for refusing to inform a patient regarding his or her rights under these provisions and not referring an individual to a physician who does participate in activities authorized by this bill.
Allows a health care provider, with advance notice, to prohibit its employees, independent contractors, or other persons or entities, including other health care providers, from participating in these provisions while on premises owned or under the management or control of the prohibiting health care provider.
Allows, if a health care provider has given notice, and an individual or entity violates the prohibition to participate in these provisions, the prohibiting provider to take action against an individual or entity, including, but not limited to, loss of privileges or membership, suspension, loss of employment, or termination of any lease or other contract between the prohibiting health care provider and the individual or entity that violates the policy.
Specifies that nothing in these provisions prevent a health care provider from providing an individual with services that do not constitute participation in these provisions, that a health care provider may not be sanctioned for making a determination that an individual has a terminal disease and informing them of their medical prognosis, or for providing information about the End of Life Option Act to a patient upon the request of the individual.
Makes knowingly altering or forging a request for an aid-in-dying drug to end an individual's life without their authorization, or concealing or destroying a withdrawal or rescission of a request, or administering an aid-in-dying drug to an individual without his or her knowledge or consent, punishable as a felony.
Prohibits the attending physician, consulting physician, or mental health specialist from being related to the qualified individual by blood, marriage, registered domestic partnership, or adoption, or be entitled to a portion of the individual's estate upon death.
Makes coercing or exerting undue influence on an individual to request or ingest an aid-in-dying drug punishable as a felony.
Specifies that nothing in these provisions may be construed to authorize a physician or any other person to end an individual's life by lethal injection, mercy killing, or active euthanasia.
Specifies that nothing in these provisions may be construed to limit civil liability.
Requires DPH to collect and review the information submitted by the attending physician on the patient's written request, the attending physician's compliance form, and the consulting physician's compliance form; requires the information to be confidential and collected in a manner that protects the privacy of the patient, the patient's family, and any medical provider or pharmacist involved with the patient under these provisions.
Requires DPH, on or before July 1, 2017, and each year thereafter, based on the information collected on the attending physician follow-up form in the previous year, and DPH's access to vital statistics, to compile a report which includes, but is not limited to all of the following:
The number of people for whom an aid-in-dying prescription was written;
The number of known individuals who died each year for whom aid-in-dying prescriptions were written, and the cause of death of those individuals;
For the period commencing January 1, 2016, to and including the previous year, cumulatively, the total number of aid-in-dying prescriptions written, the number of people who died due to use of aid-in-dying drugs, and the number of those people who died who were enrolled in hospice or other palliative care programs at the time of death;
The number of known deaths in California from using aid-in-dying drugs per 10,000 deaths in California;
The number of physicians who wrote prescriptions for aid-in-dying drugs;
Of the people who died due to using an aid-in-dying drug, demographic percentages organized by the following characteristics:
Age at death;
Education level;
Race;
Sex;
Type of insurance, including whether or not they had insurance; and,
Underlying illness.
Requires DPH to post the report on its Internet Web site.
Requires DPH to make the following forms available on its Internet Web site: the attending physician checklist and compliance form, the consulting physician compliance form, and the attending physician follow-up form. The forms identify each and every requirement that must be fulfilled by a health care provider to be in compliance with the End of Life Option Act.
Requires a person with any unused aid-in-dying drugs after the death of a patient, to personally deliver the unused drugs to the nearest qualified disposal facility, or if none is available, to dispose of the drugs in accordance with guidelines developed by the California State Board of Pharmacy (BOF) or a federal Drug Enforcement Administration approved take back program.
Provides that any governmental entity that incurs costs resulting from an individual terminating his or her life under these provisions in a public place will have a claim against the estate of the individual to recover those costs and reasonable attorney fees related to enforcing the claim.
Allows the Medical Board of California to develop, revise, and update an attending physician checklist and compliance form, a consulting physician compliance form, and an attending physician follow-up form, based on those already provided by DPH. Requires DPH, upon completion of the new forms, to publish them on its Internet Web site.
Specify that these provisions remain in effect only until January 1, 2026, and as of that date are repealed, unless a later enacted statute, that is enacted before January 1, 2026, deletes or extends that date.
Makes various findings and declarations, including that any limitation to public access to personally identifiable patient data collected pursuant to these provisions is necessary to protect the privacy rights of the patient and his or her family, and that the statistical report to be made available to the public is sufficient to satisfy the public's right to access.
Makes the provisions of this bill severable if any provision is held invalid.
EXISTING LAW: Requires a health care provider, who makes a diagnosis that a patient has a terminal illness, to notify the patient of his or her right to comprehensive information and counseling regarding legal end-of-life options, and requires the comprehensive information to include, but not be limited to:
Hospice care at home or in a health care setting;
A prognosis with and without the continuation of disease-targeted treatment;
The patient's right to refusal of or withdrawal from life-sustaining treatment;
The patient's right to continue to pursue disease-targeted treatment, with or without concurrent palliative care;
The patient's right to comprehensive pain and symptom management at the end of life; and,
The patient's right to give individual health care instruction, which provides the means by which a patient may provide written health care instruction, such as an advance health care directive, and the patient's right to appoint a legally recognized health care decision maker.
FISCAL EFFECT: According to the Assembly Finance Committee:
Department of Health Care Services
Potential minor costs and savings in Medi-Cal based on the Medi-Cal program choosing to cover this end-of-life option (General Fund (GF)).
DPH
DPH would incur one-time GF costs of $90,000 for information technology services, and ongoing GF costs in the range of $250,000.
DPH anticipates that a secure drive with password protection would be needed to store the confidential data collected pursuant to this bill, and would require a Structured Query Language (SQL) database to perform data collection and storage. DPH states that a database could be developed with one-time development costs of approximately $88,000, and ongoing yearly maintenance by Information Technology Services Division of approximately $10,000 per year, as shown in the chart below.
-
-
Database Development Task
Hours
Cost
Application Development
Requirements Specifications
267
$16,000
Design / Test Plan
133
$8,000
System Development / Code & Test
800
$48,000
Acceptance Testing / User Training
133
$8,000
Initial Internet / SQL DBA setup
133
$8,000
Total One-Time Cost
1466
$88,000
Ongoing yearly maintenance ($845 x 12)
14/mo
$10,140
-
Additionally, once the database is established, DPH estimates that two full-time positions would be required to perform confidential program and reporting duties outlined in this bill, with duties including:
Collect data, enter reports received, collect forms, track program utilization and associated deaths;
Follow-up with providers that submit incomplete reports;
Perform data analysis, cross-check decedent deaths with list of prescribed participants, and draft annual reports;
Prepare the annual report mandated by the bill;
Maintain program information on the public website, and respond to inquiries regarding program policy; and
Update website as needed, and make reporting forms available for download online.
Summary of Total Cost to DPH
Total Budget Year Cost |
Total Cost Budget Year + 1 |
$323,087 |
$245,227 |
Department of Managed Health Care (DMHC)
Due to the sensitive and controversial nature of aid-in-dying, DMHC anticipates a high level of public interest, which will result in Public Records Act (PRA) or Information Practices Act (IPA) requests during the first three years. The Office of Legal Services (OLS) anticipates PRA/IPA requests regarding which health plans that cover aid-in-dying medications and under what terms the medications are covered, as well as information on relevant policy decisions, enforcement policies, and consumer grievances. OLS estimates that these tasks will have no cost in the current fiscal year, $276,000 (Managed Care Fund (MCF)) and 2.0 positions in the 2015-16 fiscal year, and $244,000 MCF and 2.0 positions each in the 2016-17 and 2017-18 fiscal years. OLS does not anticipate ongoing costs after the 2017-18 fiscal year.
The Help Center, Office of Administrative Services, Office of Technology and Innovation, Office of Enforcement, Office of Plan Licensing, Division of Plan Surveys, and Office of Financial Review anticipate absorbable workload that will have no significant fiscal impact on those programs.
Medical Board of California
Minor costs to the Medical Board to update several of the forms required by this bill as deemed necessary (Contingent Fund of the Medical Board of California).
Board of Pharmacy (BOP)
Minor costs to the BOP. The BOP would not need to amend or adopt any regulations. The BOP estimates that any additional enforcement actions due to this bill would result in minor costs (Pharmacy Fund).
COMMENTS:
Purpose of this bill. According to the author, this bill would allow an adult in California with a terminal disease that has the capacity to make medical decisions and who has been given a prognosis of less than six months to live, to make end of life decisions. The author states by giving these patients the legal right to ask for and receive an aid-in-dying prescription from his/her physician, this bill would provide one more option to the number of options one has when faced with the end of their life. The author notes this bill includes strong provisions to safeguard patients from coercion and to allow voluntary participation by physicians, pharmacists, and health care facilities, and that this medical practice is already recognized in five other states. The author contends there is substantial evidence from those states that prove this law can be used safely and effectively. The author concludes, Californians that are faced with a terminal disease should not have to leave the state in order to have a peaceful death. In the end, how each of us spends the end of our lives is a deeply personal decision. That decision should remain with the individual, as a matter of personal freedom and liberty, without criminalizing those who help to honor our wishes and ease our suffering.
Five states have authorized what is referred to as Death with Dignity or Aid-in-Dying. Oregon and Washington enacted their legislation through voter initiatives that took effect in 1997 and 2009, respectively. Vermont enacted legislation in 2013. In Montana and New Mexico, the courts have effectively authorized doctors to engage in the practice. Belgium, the Netherlands, Luxembourg, and Switzerland all allow for physician aid-in-dying, and next year Canada will implement the practice as well.
Hospice and palliative care. At the center of hospice and palliative care is the belief that each of us has the right to die pain-free and with dignity, and that our families will receive the necessary support to allow us to do so. Hospice care is available to patients who no longer wish treatment directed at curing their disease. Patients are usually referred to hospice by their personal physician, although they can be referred by their families or even by themselves. Initially, a physician certifies that the patient has a life expectancy of six months or less if the disease follows its normal course. Hospice usually begins within 48 hours after a referral, and can begin sooner based on the circumstances. A hospice nurse evaluates what the person and family needs and develops a plan of care. The plan addresses the entire family's needs: medical; emotional; psychological; spiritual; and, support services. The nurse then coordinates the care with a physician and the full team of health professionals.
Palliative care is patient and family-centered care that optimizes quality of life by anticipating, preventing, and treating suffering. Palliative care involves addressing physical, intellectual, emotional, social, and spiritual needs and, to facilitate patient autonomy, access to information and choice. Palliative care is provided and services are coordinated by an interdisciplinary team - patients, families, palliative and non-palliative health care providers collaborate and communicate about care needs. Palliative care services are available concurrently with or independent of curative or life-prolonging care.
How we want to die. In February of 2012 the California HealthCare Foundation published a survey, "Final Chapter: Californians' Attitudes and Experiences with Death and Dying". The survey found that most Californians would prefer a natural death if they became severely ill, rather than have all possible care provided. We want to die at home rather than in a hospital or nursing home, and want to talk with our doctor about our wishes for end-of-life care. However, what we want isn't what we always get, as the survey numbers illustrate:
Seventy percent of Californians would prefer to die at home; however of deaths in 2009, 32% occurred at home, 42% in a hospital, and 18% in a nursing home;
Almost 80% say they definitely or probably would like to talk with a doctor about end of life wishes, but only 7% have had a doctor speak with them about it; and,
The survey also found that what matters most at the end of life varies by race and ethnicity, for example, Latinos rate living as long as possible more highly than do other groups. African Americans and Latinos are much more likely to place importance on being at peace spiritually. Asians and white/non-Latinos place the least importance on living as long as possible. Sixty percent of all respondents say it is extremely important that their family not be burdened by decisions regarding their care.
Current options at the end of life. While palliative care is generally agreed to be the standard of care for the dying, in some cases some patients who are very ill do not respond to pain medications or may be suffering in other ways that make comfort impossible. In these circumstances patients' last resort options include aggressive pain management, forgoing life-sustaining treatments, voluntarily stopping eating and drinking, and sedation to unconsciousness to relieve suffering.
With terminal sedation (TS), a patient will be given medications that induce sleep or unconsciousness until death occurs, often as a result of starvation or dehydration as in these instances artificial life support (such as tube feeding) is withheld, or as a result of the underlying illness or disease. Although death is certain in this instance, it may not happen for days or weeks. Because the patient is sedated, they are believed to be free of suffering. Some patients reject TS because they believe their dignity would be violated if they have to be unconscious for a prolonged period before they die, or that their families suffer unnecessarily while waiting for them to die.
Some patients who are physically capable of taking nourishment may choose to voluntarily stop eating and drinking (VSED), and then are gradually allowed to die, primarily of dehydration or some other complication. Legally, the right of competent, informed patients to refuse life-prolonging interventions is clear and voluntary cessation of eating and drinking could be considered an extension of that right. However, VSED may initially increase suffering because the patient may experience thirst and hunger and patients can lose mental clarity at the end of the process, which may undermine their sense of personal integrity, or raise questions about whether the action remains voluntary.
Oregon. Oregon's Death with Dignity Act (DWDA), enacted in late 1997, allows terminally-ill adult Oregonians to obtain and use prescriptions from their physicians for self-administered, lethal doses of medications. In 2011, the Oregon Public Health Division published a summary of DWDA activity up to 2010 which also examined the larger trends seen over 13 years of DWDA. The first prescriptions and deaths under DWDA occurred in 1998, with 24 prescriptions written and 16 self-administered deaths. At the end of 2010, a total of 821 prescriptions had been written and 525 patients had died from ingesting medication prescribed under DWDA. The report noted that demographic characteristics remained relatively unchanged over 13 years. Of the 65 patients who died under DWDA in 2010, most (70.8%) were over age 65; the median age was 72. One hundred percent of decedents were white, well-educated (42.2% had at least a baccalaureate degree), had cancer (78.5%), or amyotrophic lateral sclerosis (11%). As in previous years, the most commonly mentioned end of life concerns among those who died in 2010 were loss of autonomy (93.8%), decreasing ability to participate in activities that made life enjoyable (93.8%), and loss of dignity (78.5%). Since the law was passed in 1997, a total of 1,327 people have had DWDA prescriptions written and 859 patients have died from ingesting medications prescribed under DWDA. Over 90% of patients who used DWDA were enrolled in hospice.
Improved end of life care. A 2001 report published in the Journal of American Medicine, "Oregon Physicians' Attitudes About and Experiences with End-of-Life Care Since Passage of the Oregon Death with Dignity Act," found that a high proportion of physicians reported they had made efforts to improve their knowledge of palliative care since DWDA passed in 1994. Among the 2094 physicians who cared for at least one terminally ill patient in the previous year, 76% reported that they had made efforts to improve their knowledge of the use of pain medications in the terminally ill "somewhat" or "a great deal," 69% reported that they sought to improve their recognition of psychiatric disorders, such as depression, and 79% reported that their confidence in the prescribing of pain medications had improved.
Taking the end of life drug. The following narrative describes how end of life drugs are prepared and ingested. It was received from a retired Oregon family physician who wrote approximately 15 prescriptions for aid-in-dying drugs over the course of his career:
The most common drug prescribed is 10 grams of secobarbital (Seconal). A standard size Seconal capsule is 100 mg [milligram]. This drug was very commonly used as a sleeping pill before the invention of the benzodiazepines (e.g. Dalmane, or Valium) and then later zolpidem (Ambien). The 100 Seconal capsules are delivered in a bottle with a label stating they are for use in the Oregon Death with Dignity Law. In all of the cases I've been involved with, family members, volunteers, and hospice workers have all been very aware that the patient has been in possession of the medication, and I am not aware of a dose that is unaccounted for. In Oregon it is important to understand that it would be very unusual for a patient to actually obtain the drug and then not use it. It is much more common for the patient to request that the prescription be held on file at the pharmacy until they decide to use it. Pharmacies have been very willing to do this. When the patient decides to take the drug the capsules are opened and emptied by the pharmacist, a volunteer or family member, and the powder is mixed with about three ounces of liquid for use.
Seconal is not the only drug used in DWDA. According to the Oregon Public Health Division, DWDA 2013 annual report, since 2010, the trend has shifted to predominant use of pentobarbital (90% of all prescriptions in 2013). Patients are usually also prescribed an anti-nausea medication to take before ingesting an aid-in-dying drug.
Cost and coverage. This bill does not mandate coverage of the aid-in-dying medication. Individual insurers will determine whether or not to participate. However, federal funding cannot be used for services rendered under the End of Life Options Act. The Oregon Medicaid program, which is paid for in part with federal funds, ensures that charges for services rendered under their DWDA are paid only with state funds. According to Compassion & Choices (C&C), the current approximate cost of the medication in Oregon is $1,500.
Rough estimate of potential aid-in-dying participation in California. On average, over the last 17 years, 50 people a year have used DWDA in Oregon. Oregon has about 33,000 residents die each year. California is approximately seven times more populous than Oregon and has approximately 230,000 deaths each year. If the same percentage of people in California chooses to use the End of Life Options Act as in Oregon, we may have approximately 350 participants a year.
Shifting views on Death with Dignity. While Death with Dignity remains a very controversial issue, opinions have shifted significantly over the last several years. A Medscape survey of 17,000 United States doctors released in December 2014 found that 54% of doctors surveyed in 2014 think physician-assisted suicide should be allowed. That is up from 46% in 2010. A 2014 Gallup poll found that 69% of Americans support laws allowing doctors to "end the patient's life by some painless means" if the patient has an incurable disease. In the same poll, 58% of Americans said they support laws allowing doctors to "assist the patient to commit suicide" if the patient has an incurable disease and is in severe pain. A June 2015 phone survey of 601 likely November 2016 election voters, conducted by Goodwin Simon Strategic Research for C&C, shows nearly 69% of likely voters in California would favor a Death with Dignity measure, and support is significant among every voter subgroup, including:
Men (70%) and women (67%);
Younger voters (69% ages 18-54) and older voters (68% ages 55+);
Catholics (60%), non-evangelical Protestants (65%), and evangelical Christians (57%); and,
Democrats (73%), Independents (80%), and Republicans (55%).
Only 24% of Californians would oppose the measure.
Support. C&C supports this bill stating it will improve the quality of end of life care for terminally ill Californians and their families, while protecting physicians who care for them. C&C writes they want people to be free to choose how they live – and when the time comes, how they die. They contend that all Californians should have the option, in consultation with their families and doctors, to make the end of life decisions that are right for them in the final stages of a terminal illness.
AIDS Project Los Angeles supports this bill stating that this issue is particularly important because of its impact on the LGBT community, and noting that the roots of the death with dignity movement owes much to mothers of men dying painfully during the early days of the acquired immune deficiency syndrome (AIDS) epidemic.
The AIDS Healthcare Foundation (AHF) notes they have invested more than a quarter of a century to the palliative care necessary to minimize end of life pain and suffering. AHF states their medical staff has been witness to end stages for countless citizens that rob the patient of his or her dignity and impose unnecessary misery and they have employed every medical device available to them to reduce the misery, often with little or no success. AHF concludes, when a person with human immunodeficiency virus (HIV) reaches the end of life with treatment options no longer available, it is inhumane that we fail to provide them with the choice that would bring them peace.
Numerous other organizations support this bill including the California Council of Churches IMPACT, the California Association for Nurse Practitioners, and the California Commission on Aging because they value autonomy in making fundamental life decisions. These organizations also applaud the many patient protections in the bill, including provisions which make it a felony to coerce someone to request an aid-in-dying prescription.
Opposition. A broad coalition of opposition to this bill, including, Disability Rights Education & Defense Fund (DREDF), Silicon Valley Independent Living Center, and The ARC California all state physician assisted suicide is bad for Californians, particularly those with low incomes who may lack adequate access to health care, including mental health services. These organizations contend this bill will have a devastating impact on the treatment of terminally ill and disabled patients, stating that if assisted suicide is made legal it quickly becomes just another treatment option, always being the cheapest, and therefore, eventually the treatment of choice.
The California Catholic Conference notes that the mere fact that this bill has been introduced as part of the second extraordinary session, which was created to specifically address the state's future financing of our Medi-Cal and publicly financed healthcare systems, should invite concern and offer reason enough to not support this bill.
The Association of Northern California Oncologists states they oppose this bill for several specific reasons the first, being it is contrary to a physician's oath and primary responsibility to do no harm. Secondly, legalizing physician assisted suicide undermines the valuable and overwhelmingly successful work of their hospice and pain and palliative care colleagues. Finally, they state the legislation is based on a common misunderstanding that it is easy to determine when a patient is terminal, noting that despite a physician's prognosis, many patients outlive a terminal diagnosis.
Analysis Prepared by: Lara Flynn / HEALTH / (916) 319-2097 FN: 0002237
Bill Author
Bill Co-Author(s):