SR 34
- Session Year: 2017-2018
- House: Senate
- Latest Version Date: 2017-05-09
WHEREAS, Cystic fibrosis, a chronic and progressive systemic disease, is the most common fatal genetic disease in the United States, and one for which there is no known cure; and
WHEREAS, Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year; and
WHEREAS, During the 1950s, few children with cystic fibrosis lived long enough to attend elementary school; and
WHEREAS, Due to progress in understanding and treating the disease, the average life expectancy of individuals diagnosed with cystic fibrosis is in the early 40s, though the median age of death is 30 years of age; and
WHEREAS, One of every 3,500 babies born in the United States is born with cystic fibrosis; and
WHEREAS, The federal Centers for Disease Control and Prevention estimates that more than 12 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, All states must screen newborns for cystic fibrosis; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; and
WHEREAS, Innovative research is progressing faster, and is being conducted more aggressively, with the assistance of increased clinical trials; and
WHEREAS, Cystic fibrosis research continues for potential therapies, and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis, yet lives continue to be lost to this disease; and
WHEREAS, Education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate proclaims the month of May 2017 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Senate honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis; and be it further
Resolved, That the Senate encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, Cystic fibrosis, a chronic and progressive systemic disease, is the most common fatal genetic disease in the United States, and one for which there is no known cure; and
WHEREAS, Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year; and
WHEREAS, During the 1950s, few children with cystic fibrosis lived long enough to attend elementary school; and
WHEREAS, Due to progress in understanding and treating the disease, the average life expectancy of individuals diagnosed with cystic fibrosis is in the early 40s, though the median age of death is 30 years of age; and
WHEREAS, One of every 3,500 babies born in the United States is born with cystic fibrosis; and
WHEREAS, The federal Centers for Disease Control and Prevention estimates that more than 12 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, All states must screen newborns for cystic fibrosis; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; and
WHEREAS, Innovative research is progressing faster, and is being conducted more aggressively, with the assistance of increased clinical trials; and
WHEREAS, Cystic fibrosis research continues for potential therapies, and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis, yet lives continue to be lost to this disease; and
WHEREAS, Education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate proclaims the month of May 2017 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Senate honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis; and be it further
Resolved, That the Senate encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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Date
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Status
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|---|---|
| May 8, 2017 | Read. Adopted. (Ayes 38. Noes 0. Page 977.) |
| May 3, 2017 | From committee: Ordered to third reading. |
| Apr 25, 2017 | Introduced. Referred to Com. on RLS. |
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Date
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Description
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Location
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Votes
|
|
|---|---|---|---|---|
| May 8, 2017 | Senate 3rd Reading SR34 Monning | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
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Organization
|
Position
|
Date
|
|---|---|---|
| Cystic Fibrosis Research, Inc. | ** Support | May 3, 2017 |
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 | SR 34 |
THIRD READING
Bill No: SR 34
Introduced: 4/25/17
SUBJECT: Cystic Fibrosis Awareness Month
DIGEST:
This resolution proclaims the month of May 2017 as Cystic Fibrosis Awareness Month
ANALYSIS: This resolution makes the following legislative findings:
- Cystic fibrosis, a chronic and progressive systemic disease, is the most common fatal genetic disease in the United States, and one for which there is no known cure.
- Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year.
- The federal Centers for Disease Control and Prevention estimates that more than 12 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children.
- Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease. During the 1950s, few children with cystic fibrosis lived long enough to attend elementary school. Due to progress in understanding and treating the disease, the average life expectancy of individuals diagnosed with cystic fibrosis is in the early 40s, though the median age of death is 30 years of age.
- Cystic fibrosis research continues for potential therapies, and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis, yet lives continue to be lost to this disease.
- Education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis.
This resolution:
- Proclaims the month of May 2017 as Cystic Fibrosis Awareness Month.
- Honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis.
- Encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis.
Comments
According to the author, “Cystic Fibrosis (CF) is the second most common chronic, life-threatening genetic disease in the United States, for which there is no known cure. The disease causes chronic lung infections, impacts multiple organs in the body, and leads to progressive lung damage and death. For many with CF, it is described as trying to breathe through a straw every day of your life.”
Related/Prior Legislation
SR 76 (Runner and Hill, 2016) proclaimed the month of May 2016 as Cystic Fibrosis Awareness Month. The resolution was adopted by the Senate on
May 16, 2016.
SR 29 (Runner, 2015) proclaimed the month of May 2015 as Cystic Fibrosis Awareness Month. The resolution was adopted by the Senate on May 28, 2015.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
Cystic Fibrosis Research, Inc.
OPPOSITION: (Verified 4/28/17)
None received
Prepared by: Jonas Austin / SFA / (916) 651-1520
5/3/17 15:18:27
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Bill Author
Bill Co-Author(s):