SR 28
- Session Year: 2019-2020
- House: Senate
- Latest Version Date: 2019-05-14
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Date
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Status
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|---|---|
| May 13, 2019 | Read. Adopted. (Ayes 37. Noes 0.) |
| May 6, 2019 | Read second time. Ordered to third reading. |
| May 2, 2019 | From inactive file on motion of Senator Wilk. |
| Apr 4, 2019 | Ordered to inactive file on request of Senator Wilk. |
| Apr 3, 2019 | From committee: Ordered to third reading. |
| Mar 27, 2019 | Introduced. Referred to Com. on RLS. |
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Date
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Description
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Location
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Votes
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|---|---|---|---|---|
| May 13, 2019 | Senate 3rd Reading SR28 Wilk et al. | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 | SR 28 |
THIRD READING
Bill No: SR 28
Introduced: 3/27/19
SUBJECT: Prader-Willi Syndrome Awareness Month
SOURCE: Prader-Willi California Foundation
Prader-Willi Syndrome Association (USA)
DIGEST:
This resolution proclaims the month of May as Prader-Willi Syndrome Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
- Prader-Willi syndrome is a complex genetic disorder that occurs in approximately one out of every 15,000 births. It causes an extreme and insatiable appetite, often resulting in morbid obesity.
- Morbid obesity is the major cause of death for individuals with Prader-Willi syndrome.
- Prader-Willi syndrome causes cognitive and learning disabilities and behavioral difficulties, including obsessive-compulsive disorder and difficulty controlling emotions. The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment.
- There is no known cure for Prader-Willi syndrome.
- Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome.
- Increased research into Prader-Willi syndrome may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome and is likely to lead to a better understanding of common public health concerns, including childhood obesity and mental health.
This resolution proclaims the month of May as Prader-Willi Syndrome Awareness Month; supports raising awareness and educating the public about Prader-Willi syndrome and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; and recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
Prader-Willi California Foundation (co-source)
Prader-Willi Syndrome Association (USA) (co-source)
None received
ARGUMENTS IN SUPPORT: The sponsors of this bill write, “PWS is a rare disease, but it is one of the most common genetic causes of obesity, and one of the most common conditions seen in genetic clinics.
“While there is currently no known cure researchers are pressing on to identify the genetic cause of this disorder, and treatments are consistently improving. It is imperative that awareness for this disorder be raised so that we may continue to advance this work and eventually find a cure for this disease.”
Prepared by: Melissa Ward / SFA / (916) 651-1520
5/8/19 14:07:13
**** END ****
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 | SR 28 |
THIRD READING
Bill No: SR 28
Introduced: 3/27/19
SUBJECT: Prader-Willi Syndrome Awareness Month
SOURCE: Prader-Willi California Foundation
DIGEST:
This resolution proclaims the month of May as Prader-Willi Syndrome Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
- Prader-Willi syndrome is a complex genetic disorder that occurs in approximately one out of every 15,000 births. It causes an extreme and insatiable appetite, often resulting in morbid obesity.
- Morbid obesity is the major cause of death for individuals with Prader-Willi syndrome.
- Prader-Willi syndrome causes cognitive and learning disabilities and behavioral difficulties, including obsessive-compulsive disorder and difficulty controlling emotions. The hunger, metabolic, and behavioral characteristics of Prader-Willi syndrome force affected individuals to require constant and lifelong supervision in a controlled environment.
- There is no known cure for Prader-Willi syndrome.
- Early diagnosis of Prader-Willi syndrome allows families to access treatment, intervention services, and support from health professionals, advocacy organizations, and other families who are dealing with the syndrome.
- Increased research into Prader-Willi syndrome may lead to a better understanding of the syndrome, more effective treatments, and an eventual cure for the syndrome and is likely to lead to a better understanding of common public health concerns, including childhood obesity and mental health.
This resolution proclaims the month of May as Prader-Willi Syndrome Awareness Month; supports raising awareness and educating the public about Prader-Willi syndrome and applauds the efforts of advocates and organizations that encourage awareness, promote research, and provide education, support, and hope to those impacted by Prader-Willi syndrome; and recognizes the commitment of parents, families, researchers, health professionals, and others dedicated to finding an effective treatment and eventual cure for Prader-Willi syndrome.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
Prader-Willi California Foundation (source)
None received
ARGUMENTS IN SUPPORT: This bill’s sponsor, Prader-Willi California Foundation, writes, “PWS is a rare disease, but it is one of the most common genetic causes of obesity, and one of the most common conditions seen in genetic clinics.
“While there is currently no known cure researchers are pressing on to identify the genetic cause of this disorder, and treatments are consistently improving. It is imperative that awareness for this disorder be raised so that we may continue to advance this work and eventually find a cure for this disease.”
Prepared by: Melissa Ward / SFA / (916) 651-1520
4/3/19 15:21:15
**** END ****
Bill Author
Bill Co-Author(s):
