SR 29
- Session Year: 2015-2016
- House: Senate
- Latest Version Date: 2015-05-28
WHEREAS, Cystic fibrosis is the second most common chronic, progressive, and life-threatening genetic disease in the United States, and one for which there is no known cure; and
WHEREAS, Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year; and
WHEREAS, During the 1950s, few children with cystic fibrosis lived long enough to attend elementary school; and
WHEREAS, Due to progress in understanding and treating the disease, many people living with cystic fibrosis can now expect to live into their 40s and beyond; and
WHEREAS, One of every 3,500 babies born in the United States is born with cystic fibrosis; and
WHEREAS, The federal Centers for Disease Control and Prevention estimates that more than 12 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, The federal Centers for Disease Control and Prevention recommends that all states consider screening newborns for cystic fibrosis; and
WHEREAS, The Cystic Fibrosis Foundation urges all states to implement newborn screening for cystic fibrosis to facilitate early diagnosis and treatment that improves health and longevity; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; and
WHEREAS, Innovative research is progressing faster, and is being conducted more aggressively, than ever before, due, in part, to the Cystic Fibrosis Foundations establishment of a model clinical trials network; and
WHEREAS, Although the Cystic Fibrosis Foundation continues to fund a research pipeline for more than two dozen potential therapies and funds a nationwide network of care centers that extend the length and quality of life for people with cystic fibrosis, lives continue to be lost to this disease every day; and
WHEREAS, Education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis; and
WHEREAS, The Cystic Fibrosis Foundation will conduct activities to honor National Cystic Fibrosis Awareness Month during May 2015; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate proclaims the month of May 2015 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Senate honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote further public awareness and understanding of cystic fibrosis; and be it further
Resolved, That the Senate encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, Cystic fibrosis is the second most common chronic, progressive, and life-threatening genetic disease in the United States, and one for which there is no known cure; and
WHEREAS, Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year; and
WHEREAS, During the 1950s, few children with cystic fibrosis lived long enough to attend elementary school; and
WHEREAS, Due to progress in understanding and treating the disease, many people living with cystic fibrosis can now expect to live into their 40s and beyond; and
WHEREAS, One of every 3,500 babies born in the United States is born with cystic fibrosis; and
WHEREAS, The federal Centers for Disease Control and Prevention estimates that more than 12 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, The federal Centers for Disease Control and Prevention recommends that all states consider screening newborns for cystic fibrosis; and
WHEREAS, The Cystic Fibrosis Foundation urges all states to implement newborn screening for cystic fibrosis to facilitate early diagnosis and treatment that improves health and longevity; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, protein, and drug therapies beneficial to people who have the disease; and
WHEREAS, Innovative research is progressing faster, and is being conducted more aggressively, than ever before, due, in part, to the Cystic Fibrosis Foundations establishment of a model clinical trials network; and
WHEREAS, Although the Cystic Fibrosis Foundation continues to fund a research pipeline for more than two dozen potential therapies and funds a nationwide network of care centers that extend the length and quality of life for people with cystic fibrosis, lives continue to be lost to this disease every day; and
WHEREAS, Education of the public about cystic fibrosis, including the symptoms of the disease, increases knowledge and understanding of cystic fibrosis and promotes early diagnosis; and
WHEREAS, The Cystic Fibrosis Foundation will conduct activities to honor National Cystic Fibrosis Awareness Month during May 2015; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate proclaims the month of May 2015 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Senate honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote further public awareness and understanding of cystic fibrosis; and be it further
Resolved, That the Senate encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
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Date
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Status
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|---|---|
| May 18, 2015 | Introduced. Referred to Com. on RLS. |
| May 21, 2015 | From committee: Ordered to third reading. |
| May 28, 2015 | Read. Adopted. (Ayes 38. Noes 0. Page 1118.) |
| May 28, 2015 | Read. Adopted. (Ayes 38. Noes 0.) |
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Date
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Description
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Location
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Votes
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|---|---|---|---|---|
| May 28, 2015 | Senate 3rd Reading SR29 Runner | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
SR 29
Page 2
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Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 |
THIRD READING
Bill No: SR 29
Introduced: 5/18/15
SUBJECT: Cystic Fibrosis Awareness Month
DIGEST: This resolution proclaims the month of May 2015 as Cystic Fibrosis Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
Cystic fibrosis is the second most common chronic, progressive, and life-threatening genetic disease in the United States, and one for which there is no known cure.
Approximately 30,000 children and adults in the United States have cystic fibrosis and more than 1,000 new cases are diagnosed each year. One of every 3,500 babies born in the United States is born with cystic fibrosis.
The Centers for Disease Control and Prevention and the Cystic Fibrosis Foundation recommend that all states consider screening newborns for cystic fibrosis to facilitate early diagnosis and treatment that improves health and longevity.
Due to progress in understanding and treating the disease, many people living with cystic fibrosis can now expect to live into their 40s and beyond.
This resolution proclaims May 2015 as Cystic Fibrosis Awareness Month; honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote further public awareness and understanding of cystic fibrosis; and encourages early diagnosis and access to quality care for people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
None received
OPPOSITION: (Verified 5/21/15)
None received
Prepared by: Melissa Ward / SFA / (916) 651-1520
5/26/15 11:41:38
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Bill Author
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