SR 43
- Session Year: 2025-2026
- House: Senate
- Latest Version Date: 2025-05-30
Current Status:
In Progress
(2025-05-29: Read. Adopted. (Ayes 38. Noes 0. Page 1321.))
Introduced
In Committee
Awaiting First Chamber Vote
Passed First Chamber
In Committee
Awaiting Second Chamber Vote
Passed Second Chamber
Enacted
WHEREAS, Nearly one in 10 Americans have rare diseases, including residents of California affected by myositis; and
WHEREAS, Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases; and
WHEREAS, Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease; and
WHEREAS, More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis; and
WHEREAS, Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition; and
WHEREAS, All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis; and
WHEREAS, Women and people of color with all forms of myositis experience particularly pronounced health disparities; and
WHEREAS, The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis; and
WHEREAS, The Myositis Association is organizing a nationwide observance of Myositis Awareness Month for the month of May 2025; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, Nearly one in 10 Americans have rare diseases, including residents of California affected by myositis; and
WHEREAS, Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases; and
WHEREAS, Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease; and
WHEREAS, More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis; and
WHEREAS, Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition; and
WHEREAS, All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis; and
WHEREAS, Women and people of color with all forms of myositis experience particularly pronounced health disparities; and
WHEREAS, The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis; and
WHEREAS, The Myositis Association is organizing a nationwide observance of Myositis Awareness Month for the month of May 2025; now, therefore, be it
Resolved by the Senate of the State of California, That the Senate observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
|
Date
|
Status
|
|---|---|
| May 29, 2025 | Read. Adopted. (Ayes 38. Noes 0. Page 1321.) |
| May 27, 2025 | Ordered to special consent calendar. |
| May 21, 2025 | From committee: Ordered to third reading. |
| May 12, 2025 | Introduced. Referred to Com. on RLS. |
|
Date
|
Description
|
Location
|
Votes
|
|
|---|---|---|---|---|
| May 29, 2025 | Special Consent SR43 Becker | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
SENATE RULES COMMITTEE Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 | SR 43 |
THIRD READING
Bill No: SR 43
Author: Becker (D)
Introduced: 5/12/25
Vote: Majority
SUBJECT: Myositis Awareness Month
SOURCE: Author
DIGEST:
This resolution observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases.
ANALYSIS: This resolution makes the following legislative findings:
- Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases.
- Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease.
- All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis.
- Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition.
- More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis.
- The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis.
This resolution observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
SUPPORT: (Verified 5/21/25)
None received
OPPOSITION: (Verified 5/21/25)
None received
Prepared by: Hunter Flynn / SFA / (916) 651-1520
5/21/25 15:50:34
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Bill Author
Bill Co-Author(s):