THIRD READING

Bill No: SR 43

Author: Becker (D)

Introduced: 5/12/25

Vote: Majority

SUBJECT: Myositis Awareness Month

SOURCE: Author

DIGEST:

This resolution observes the month of May 2025 as Myositis Awareness Month in California, and encourages all citizens of California to come together, learn more about all the forms of myositis and its symptoms, and support the families in our community who will benefit from greater awareness of these rare diseases.

ANALYSIS: This resolution makes the following legislative findings:

Idiopathic inflammatory myopathies, collectively referred to as myositis, are rare, chronic, autoimmune muscle wasting diseases.
Myositis often features debilitating muscle inflammation and other symptoms, including pain, fatigue, and trouble swallowing. Myositis can result in myositis-associated interstitial lung disease.
All who suffer with myositis experience reduced quality of life, especially as no cure has been found and life expectancy is shortened, especially for those with inclusion body myositis.
Myositis is difficult to diagnose, so treatment is often delayed, and individuals generally experience difficulty finding a health care provider with expertise in their condition.
More research is needed to identify the causes of, and modes of treatments for, the myositis group of diseases, including anti-MDA5 autoantibody positive myositis, anti-synthetase syndrome, dermatomyositis, juvenile dermatomyositis, immune-mediated necrotizing myopathy, inclusion body myositis, and polymyositis.
The Myositis Association is the leading international patient advocacy organization serving the myositis community, focusing on patient services, education, research, and public awareness, so as to achieve a world without myositis.

FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No

SUPPORT: (Verified 5/21/25)

None received

OPPOSITION: (Verified 5/21/25)

None received

Prepared by: Hunter Flynn / SFA / (916) 651-1520

5/21/25 15:50:34

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SR 43

Current Status:

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