The ALS Association | Digital Democracy

Related Organizations

Data about an organization is collected from a variety of government sources and there is no standardized name or common identifier across data sources. Digital Democracy experts make judgments about which entries are related, such as an organization that has various spellings or a corporation and its affiliates. Those relationships are used to determine financial contributions and advocacy on legislation. Below are the entities that Digital Democracy has linked to the organization above:

ALS Association Golden West Chapter
ALS Association
Als Association Golden West ChapterGreater Bay Area And Greater Los Angeles Chapter See Attachment
Als Association Golden West Chapter
ALS Association Golden West Chapter
Golden West Chapter Als Association
Greater San Diego Chapter Als Association
The Als Association Golden West Chapter
Als Association The
ALS Association Sacramento
Golden West Chapter of the ALS Association
ALS ASSOCIATION; THE

Past Affiliations

Year:

Known Affiliations

Lobbying Representations

This list shows when this lobbyist testified in a hearing, who they were representing and which bill was involved. The data covers 2015-18 and 2023-present.

Date	Lobbyist	Bill	Hearing	Testimony
April 23, 2025	Sara Noceto	SB 41	Health	Testimony Link
April 23, 2025	Sara Noceto	SB 306	Health	Testimony Link
April 10, 2024	Sara Noceto	SB 1120	Health	Testimony Link
July 12, 2023	Sara Noceto	AB 1157	Health	Testimony Link
April 25, 2023	Alexander Khan	AB 1157	Health	Testimony Link
April 19, 2023	Alexander Khan	SB 873	Health	Testimony Link
March 29, 2017	Bless Sheppard	SB 177	Health	Testimony Link
June 28, 2016	Bless Sheppard	SB 1135	Health	Testimony Link

Bill Alignment

Bill Alignments represents this person's position on legislation and, where it applies, the organization they were representing. These positions are captured from in-person testimony and written positions that have been submitted to committees. The data covers 2015-18 and 2023-present.

Year:

Bill	Representing	Last Recorded Position
SB 895: California Science and Health Research Bond Act.	Self	Support
SB 1047: Neurodegenerative disease registry program.	Self	Support
AB 539: Health care coverage: prior authorizations.	Self	Support
AB 1798: Genetic testing for life and disability insurance.	Self	Support
AB 1887: Prescription drug coverage for rare diseases.	Self	Support
SB 41: Pharmacy benefits.	Self	Support
SB 1002: Out-of-state physicians and surgeons: telehealth: license exemption.	Self	Support
SB 1199: Prescription drug cost sharing.	Self	Support
SB 306: Health care coverage: prior authorizations.	Self	Support
AB 512: Health care coverage: prior authorization.	Self	Support
AB 1312: Hospital pricing.	Self	Support
SB 363: Health care coverage: independent medical review.	Self	Support
SB 242: Medicare supplement coverage: open enrollment periods.	Self	Support
AB 510: Health care coverage: utilization review: peer-to-peer review.	Self	Support
AB 517: Medi-Cal: complex rehabilitation technology: wheelchairs.	Self	Support

Showing 1-10 of 15 rows

Bill	Representing	Last Recorded Position
SB 966: Pharmacy benefits.	Self	Support
Jun 25, 2024Assembly Standing Committee on Health		Support
Apr 15, 2024Senate Standing Committee on Business, Professions and Economic Development		Support
AB 2613: Jacqueline Marie Zbur Rare Disease Advisory Council.	Self	Support
ACR 190: Amyotrophic Lateral Sclerosis Awareness Month.	Self	Support
SB 1061: Consumer debt: medical debt.	Self	Support
Apr 24, 2024Senate Standing Committee on Health		Support
SB 1236: Medicare supplement coverage: open enrollment periods.	Self	Support
Apr 24, 2024Senate Standing Committee on Health		Support
AB 2180: Health care coverage: cost sharing.	Self	Support
Apr 23, 2024Assembly Standing Committee on Health		Support
SB 1120: Health care coverage: utilization review.	Self	Support
Apr 10, 2024Senate Standing Committee on Health		Support
AB 1157: Rehabilitative and habilitative services: durable medical equipment and services.	Self	Support
Jul 12, 2023Senate Standing Committee on Health		Support
Apr 25, 2023Assembly Standing Committee on Health		Support
SB 496: Biomarker testing.	Self	Support
AB 424: Neurodegenerative disease registry.	Self	Support
Jun 28, 2023Senate Standing Committee on Health		Support
AB 1369: Out-of-state physicians and surgeons: telehealth: license exemption.	Self	Support
Jun 26, 2023Senate Standing Committee on Business, Professions and Economic Development		Support
Jun 26, 2023Senate Standing Committee on Business, Professions and Economic Development		Support
Apr 11, 2023Assembly Standing Committee on Business and Professions		Support
SB 873: Prescription drugs: cost sharing.	Self	Support
Apr 19, 2023Senate Standing Committee on Health		Support
AB 511: Personal income taxes: voluntary contributions: California ALS Research Network Voluntary Tax Contribution Fund.	Self	Support
Apr 10, 2023Assembly Standing Committee on Revenue and Taxation		Support
ACR 11: National Caregivers Day.	Self	Support

Showing 1-10 of 14 rows

Bill	Representing	Last Recorded Position
SCR 141: Amyotrophic Lateral Sclerosis Awareness Month.	Self	Support
May 9, 2018Senate Floor		Support
May 9, 2018Senate Floor		Support
BUD 4260: Department of Health Care Services	Self	NA
Apr 30, 2018Assembly Budget Subcommittee No. 1 on Health and Human Services		NA
BUD 4265: Department of Public Health	Self	Support
Mar 22, 2018Senate Budget and Fiscal Review Subcommittee No. 3 on Health and Human Services		Support
AB 973: Remote accessible vote by mail system.	Self	Support
Sep 4, 2017Assembly Floor		Support
Jul 10, 2017Senate Standing Committee on Elections and Constitutional Amendments		Support
SB 177: Cognitively impaired adults: caregiver resource centers.	Self	Support
Mar 29, 2017Senate Standing Committee on Health		Support
Mar 27, 2017Senate Standing Committee on Health		Support
ACR 14: Rare Disease Day.	Self	Support

Bill	Representing	Last Recorded Position
SB 1135: Health care coverage: notice of timely access to care.	Self	Support
Aug 24, 2016Senate Floor		Support
Jun 28, 2016Assembly Standing Committee on Health		Support
Jun 2, 2016Senate Floor		Support
Apr 6, 2016Senate Standing Committee on Health		Support
AB 2507: Telehealth: access.	Self	Support
Apr 19, 2016Assembly Standing Committee on Health		Support
AB 1668: Investigational drugs, biological products, and devices.	Self	Support
Mar 15, 2016Assembly Standing Committee on Health		Support
SB 137: Health care coverage: provider directories.	Self	Support
Sep 10, 2015Assembly Floor		Support
Jul 14, 2015Assembly Standing Committee on Health		Support
AB 374: Health care coverage: prescription drugs.	Self	Support
Sep 8, 2015Senate Floor		Support
Jul 15, 2015Senate Standing Committee on Health		Support
Jul 15, 2015Senate Standing Committee on Health		Support
AB 159: Investigational drugs, biological products, and devices.	Self	Support
Sep 1, 2015Senate Floor		Support
Jun 10, 2015Senate Standing Committee on Health		Support
AB 366: Transactions and use taxes: City of Alameda.	Self	Support
Aug 17, 2015Senate Standing Committee on Appropriations		Support
SB 346: Health facilities: community benefits.	Self	Against
Apr 29, 2015Senate Standing Committee on Health		Against
SB 483: General acute care hospitals: observation services.	Self	Against
Apr 29, 2015Senate Standing Committee on Health		Against
SB 492: Coordinated Care Initiative: consumer educational and informational guide.	Self	NA
Apr 29, 2015Senate Standing Committee on Health		NA

Financials

Below is a list of financial exchanges between this organization and receivers including campaign donations, gifts, independent expenditures or travel expenses.

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Testimony

Session:

37MIN