This measure would proclaim the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California, and would encourage continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis.

This measure would proclaim the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California, and would encourage continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis.

This measure would proclaim the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California, and would encourage continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis.

WHEREAS, Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrigs disease, was first identified in 1869 and its cause, cure, and means of control are still unknown; and

WHEREAS, Recent years have generated new scientific understanding regarding the physiology of the disease; and

WHEREAS, Anyone can get ALS, which selectively destroys the motor neurons in the nervous system and, in its progression, the patient loses the ability to move, speak, swallow, and eventually breathe, while the mind remains unaffected and alert; and

WHEREAS, ALS is usually diagnosed between 40 and 70 years of age; and

WHEREAS, American military veterans have a higher incidence of ALS than the general population; and

WHEREAS, ALS is responsible for nearly two deaths per every 100,000 people. Each year, over 5,300 people in the United States are newly diagnosed and can expect a life expectancy, on average, from two to five years from the time of diagnosis; and

WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases public awareness of ALS and acknowledges the terrible impact this disease has, not only on patients, but on patients families as well, and recognizes the need for ALS research and for quality treatment, care, and support of patients and families living with ALS; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature of the State of California hereby proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California; and be it further

Resolved, That the Legislature encourages continued research in order to find treatments and eventually a cure for ALS and care and support for patients and families; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.

WHEREAS, Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrigs disease, was first identified in 1869 and its cause, cure, and means of control are still unknown; and

WHEREAS, Recent years have generated new scientific understanding regarding the physiology of the disease; and

WHEREAS, Anyone can get ALS, which selectively destroys the motor neurons in the nervous system and, in its progression, the patient loses the ability to move, speak, swallow, and eventually breathe, while the mind remains unaffected and alert; and

WHEREAS, ALS is usually diagnosed between 40 and 70 years of age; and

WHEREAS, American military veterans have a higher incidence of ALS than the general population; and

WHEREAS, ALS is responsible for nearly two deaths per every 100,000 people. Each year, over 5,300 people in the United States are newly diagnosed and can expect a life expectancy, on average, from two to five years from the time of diagnosis; and

WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases public awareness of ALS and acknowledges the terrible impact this disease has, not only on patients, but on patients families as well, and recognizes the need for ALS research and for quality treatment, care, and support of patients and families living with ALS; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature of the State of California hereby proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California; and be it further

Resolved, That the Legislature encourages continued research in order to find treatments and eventually a cure for ALS and care and support for patients and families; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.

WHEREAS, Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrigs disease, was first identified in 1869 and its cause, cure, and means of control are still unknown; and

WHEREAS, Recent years have generated new scientific understanding regarding the physiology of the disease; and

WHEREAS, Anyone can get ALS, which selectively destroys the motor neurons in the nervous system and, in its progression, the patient loses the ability to move, speak, swallow, and eventually breathe, while the mind remains unaffected and alert; and

WHEREAS, ALS is usually diagnosed between 40 and 70 years of age; and

WHEREAS, American military veterans have a higher incidence of ALS than the general population; and

WHEREAS, ALS is responsible for nearly two deaths per every 100,000 people. Each year, over 5,300 people in the United States are newly diagnosed and can expect a life expectancy, on average, from two to five years from the time of diagnosis; and

WHEREAS, Amyotrophic Lateral Sclerosis Awareness Month increases public awareness of ALS and acknowledges the terrible impact this disease has, not only on patients, but on patients families as well, and recognizes the need for ALS research and for quality treatment, care, and support of patients and families living with ALS; now, therefore, be it

Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature of the State of California hereby proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California; and be it further

Resolved, That the Legislature encourages continued research in order to find treatments and eventually a cure for ALS and care and support for patients and families; and be it further

Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.

Date of Hearing: May 25, 2018

ASSEMBLY COMMITTEE ON

, Chair

SBPCA Bill Id:

Author:() – As Ver:May 2, 2018

SENATE VOTE: 38-0

SUBJECT:

SUMMARY: Proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California and encourages continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis. Specifically, this resolution makes the following legislative findings:

1. Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, was first identified in 1869 and its cause, cure, and means of control are still unknown.
2. Anyone can get ALS, which selectively destroys the motor neurons in the nervous system and, in its progression, the patient loses the ability to move, speak, swallow, and eventually breathe, while the mind remains unaffected and alert.
3. ALS is usually diagnosed between 40 and 70 years of age and American military veterans have a higher incidence of ALS than the general population.
4. ALS is responsible for nearly two deaths per every 100,000 people; and, each year, over 5,300 people in the United States are newly diagnosed and can expect a life expectancy, on average, from two to five years from the time of diagnosis.
5. Amyotrophic Lateral Sclerosis Awareness Month increases public awareness of ALS and acknowledges the terrible impact this disease has, not only on patients, but on patients’ families as well, and recognizes the need for ALS research and for quality treatment, care, and support of patients and families living with ALS.

FISCAL EFFECT: None

REGISTERED SUPPORT / OPPOSITION:

Support

The ALS Association Golden West Chapter

Opposition

None on file

Analysis Prepared by:

 THIRD READING 

Bill No: SCR 141

Author: Moorlach (R)

Introduced: 5/2/18

Vote: 21

SUBJECT: Amyotrophic Lateral Sclerosis Awareness Month

SOURCE: Author

DIGEST:

This resolution proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California, and encourages continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis.

ANALYSIS: This resolution makes the following legislative findings:

1. Amyotrophic Lateral Sclerosis (ALS), also known as Lou Gehrig’s disease, was first identified in 1869 and its cause, cure, and means of control are still unknown. ALS is usually diagnosed between 40 and 70 years of age.
2. Anyone can get ALS, which selectively destroys the motor neurons in the nervous system and, in its progression, the patient loses the ability to move, speak, swallow, and eventually breathe, while the mind remains unaffected and alert.
3. ALS is responsible for nearly two deaths per every 100,000 people. Each year, over 5,300 people in the United States are newly diagnosed and can expect a life expectancy, on average, from two to five years from the time of diagnosis.
4. Amyotrophic Lateral Sclerosis Awareness Month increases public awareness of ALS and acknowledges the terrible impact this disease has, not only on patients, but on patients’ families as well, and recognizes the need for ALS research and for quality treatment, care, and support of patients and families living with ALS.

This resolution proclaims the month of May 2018 as Amyotrophic Lateral Sclerosis Awareness Month in California, and encourages continued research in order to find treatments and eventually a cure for amyotrophic lateral sclerosis.

FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No

SUPPORT: (Verified 5/8/18)

Golden West Chapter ALS Association

Greater Orange County ALS Association

Greater Sacramento Chapter ALS Association

Greater San Diego Chapter ALS Association

OPPOSITION: (Verified 5/8/18)

None received

ARGUMENTS IN SUPPORT: The ALS Associations state in support:

California is home to more people with ALS than any other state. With a lifetime risk of being diagnosed with ALS at 1:400, and with military veterans being diagnosed at twice the rate of the general population, most California families will know someone affected by ALS.

Our chapters are pleased to be on the front lines in maintaining a model of care throughout California for those diagnosed with ALS. This system of care has been a proven method of treatment enabling patients to live tonger and better adapt to new challenges as the disease progresses.

The unique nature of ALS makes clinical trials particularly challenging. California is a leader in drug discovery, innovation, infrastructure, and forward thinkers. California has become home to technology and biotech giants, and now represents the sixth largest economy in the world, largely because of its investment and support for innovation, incubation, and data driven investment.

Prepared by: Jonas Austin / SFA / (916) 651-1520

5/9/18 15:16:52

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