SCR 133: Gastroschisis Awareness Day.
- Session Year: 2015-2016
- House: Senate
- Latest Version Date: 2016-07-07
This measure would recognize July 30, 2016, as Gastroschisis Awareness Day in California.
This measure would recognize July 30, 2016, as Gastroschisis Awareness Day in California.
This measure would recognize July 30, 2016, as Gastroschisis Awareness Day in California.
WHEREAS, There are one in 2,229 individuals born with gastroschisis in the United States and roughly the same number born in California annually; and
WHEREAS, While this disease may affect small numbers of people, gastroschisis affects many Americans; and
WHEREAS, Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues; and
WHEREAS, Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and
WHEREAS, The cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research; and
WHEREAS, Hundreds of residents in California are among those affected by gastroschisis; and
WHEREAS, Averys Angels Gastroschisis Foundation (AAGF) is organizing a nationwide observance of Gastroschisis Awareness Day on July 30, 2016, and every year thereafter; and
WHEREAS, AAGF is based in Raleigh, North Carolina, and is the only nonprofit organization for gastroschisis support nationwide; and
WHEREAS, The founder of AAGFs son, Avery John Rauen, passed away from complications of his gastroschisis on July 30, 2009, at the University of North Carolina Hospital, and this date is to commemorate him and all others who are living with or who are deceased from gastroschisis; and
WHEREAS, A statewide proclamation can greatly benefit the families coping with this disease; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes July 30, 2016, as Gastroschisis Awareness Day in California; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, There are one in 2,229 individuals born with gastroschisis in the United States and roughly the same number born in California annually; and
WHEREAS, While this disease may affect small numbers of people, gastroschisis affects many Americans; and
WHEREAS, Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues; and
WHEREAS, Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and
WHEREAS, The cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research; and
WHEREAS, Hundreds of residents in California are among those affected by gastroschisis; and
WHEREAS, Averys Angels Gastroschisis Foundation (AAGF) is organizing a nationwide observance of Gastroschisis Awareness Day on July 30, 2016, and every year thereafter; and
WHEREAS, AAGF is based in Raleigh, North Carolina, and is the only nonprofit organization for gastroschisis support nationwide; and
WHEREAS, The founder of AAGFs son, Avery John Rauen, passed away from complications of his gastroschisis on July 30, 2009, at the University of North Carolina Hospital, and this date is to commemorate him and all others who are living with or who are deceased from gastroschisis; and
WHEREAS, A statewide proclamation can greatly benefit the families coping with this disease; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes July 30, 2016, as Gastroschisis Awareness Day in California; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, There are one in 2,229 individuals born with gastroschisis in the United States and roughly the same number born in California annually; and
WHEREAS, While this disease may affect small numbers of people, gastroschisis affects many Americans; and
WHEREAS, Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues; and
WHEREAS, Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment; and
WHEREAS, The cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research; and
WHEREAS, Hundreds of residents in California are among those affected by gastroschisis; and
WHEREAS, Averys Angels Gastroschisis Foundation (AAGF) is organizing a nationwide observance of Gastroschisis Awareness Day on July 30, 2016, and every year thereafter; and
WHEREAS, AAGF is based in Raleigh, North Carolina, and is the only nonprofit organization for gastroschisis support nationwide; and
WHEREAS, The founder of AAGFs son, Avery John Rauen, passed away from complications of his gastroschisis on July 30, 2009, at the University of North Carolina Hospital, and this date is to commemorate him and all others who are living with or who are deceased from gastroschisis; and
WHEREAS, A statewide proclamation can greatly benefit the families coping with this disease; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature recognizes July 30, 2016, as Gastroschisis Awareness Day in California; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
|
Date
|
Status
|
|---|---|
| Apr 18, 2016 | Introduced. Referred to Com. on RLS. |
| Apr 20, 2016 | From committee: Ordered to third reading. |
| May 2, 2016 | Read. Adopted. (Ayes 38. Noes 0. Page 3736.) Ordered to the Assembly. |
| May 2, 2016 | Read. Adopted. (Ayes 38. Noes 0.) Ordered to the Assembly. |
| May 3, 2016 | In Assembly. Held at Desk. |
| May 9, 2016 | Referred to Com. on RLS. |
| Jun 23, 2016 | From committee: Be adopted. Ordered to consent calendar. (Ayes 11. Noes 0.) (June 23). |
| Jun 30, 2016 | In Senate. Ordered to engrossing and enrolling. |
| Jun 30, 2016 | Read. Adopted. Ordered to the Senate. |
| Jun 30, 2016 | Read. Adopted. (Ayes 79. Noes 0. Page 5598.) Ordered to the Senate. |
| Jul 7, 2016 | Chaptered by Secretary of State. Res. Chapter 79, Statutes of 2016. |
| Jul 7, 2016 | Enrolled and filed with the Secretary of State at 2:30 p.m. |
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Date
|
Description
|
Location
|
Votes
|
|
|---|---|---|---|---|
| Jun 30, 2016 | SCR 133 Beall Consent Calendar Second Day Regular Session | Assembly Floor |
Passed |
|
| Jun 23, 2016 | Be adopted. To Consent Calendar. | Assembly Standing Committee on Rules |
Passed |
|
| May 2, 2016 | Senate 3rd Reading SCR133 Beall | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
Date of Hearing: June 23, 2016
ASSEMBLY COMMITTEE ON
, Chair
SBPCA Bill Id:
Author:() – As Ver:April 18, 2016
SENATE VOTE: 38-0
SUBJECT:
SUMMARY: Recognizes July 30, 2016, as Gastroschisis Awareness Day in California. Specifically, this resolution makes the following legislative findings:
- One in 2,229 individuals is born with gastroschisis in the United States and roughly the same number is born in California annually.
- Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues.
- Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment.
- Avery's Angels Gastroschisis Foundation (AAGF), a nonprofit organization based out of Raleigh, North Carolina, is organizing a nationwide observance of Gastroschisis Awareness Day on July 30, 2016, and every year thereafter.
- The founder of AAGF's son, Avery John Rauen, passed away from complications of his gastroschisis on July 30, 2009, at the University of North Carolina Hospital, and this date is to commemorate him and all others who are living with or who are deceased from gastroschisis.
FISCAL EFFECT: None
REGISTERED SUPPORT / OPPOSITION:
Support
Avery's Angels Gastroschisis Foundation (AAGF)
Opposition
None on file
Analysis Prepared by:
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 | SCR 133 |
THIRD READING
Bill No: SCR 133
Introduced: 4/18/16
SUBJECT: Gastroschisis Awareness Day
DIGEST:
This resolution recognizes July 30, 2016, as Gastroschisis Awareness Day in California.
ANALYSIS: This resolution makes the following legislative findings:
- There are one in 2,229 individuals born with gastroschisis in the United States and roughly the same number born in California annually.
- Many Americans living with gastroschisis have serious and debilitating conditions that have a significant impact on the lives of those affected, including, but not limited to, failure to thrive or slow growth, short bowel syndrome, multiple organ transplants, and long-term feeding issues.
- Individuals and families affected by gastroschisis often experience problems such as a sense of isolation, difficulty in obtaining an accurate and timely diagnosis, few treatment options, and problems related to accessing or being reimbursed for treatment.
- The cause of gastroschisis is relatively unknown, and patients and their families must bear a large share of the burden for things such as raising funds for research. A statewide proclamation can greatly benefit the families coping with this disease.
This resolution recognizes July 30, 2016, as Gastroschisis Awareness Day in California.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
None received
OPPOSITION: (Verified 4/20/16)
None received
Prepared by: Jonas Austin / SFA / (916) 651-1520
4/20/16 16:32:18
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Bill Author
Bill Co-Author(s):