SCR 8: Adrenoleukodystrophy Awareness Month.
- Session Year: 2015-2016
- House: Senate
- Latest Version Date: 2015-08-26
This measure would memorialize the month of November 2015 as Adrenoleukodystrophy Awareness Month.
This measure would memorialize the month of November 2015 as Adrenoleukodystrophy Awareness Month.
This measure would memorialize the month of November 2015 as Adrenoleukodystrophy Awareness Month.
WHEREAS, X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain; and
WHEREAS, Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome; and
WHEREAS, The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD; and
WHEREAS, X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill, Jr. of Bakersfield; and
WHEREAS, While nearly all patients with X-ALD suffer from adrenal insufficiency, also known as Addisons disease, the neurological symptoms can begin either in childhood or adulthood; and
WHEREAS, The childhood cerebral form is the most severe, with onset between ages four and 10; and
WHEREAS, The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance; and
WHEREAS, Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia; and
WHEREAS, The milder adult-onset form is known as adrenomyeloneuropathy (AMN), which typically begins between 21 and 35 years of age, and has symptoms that include progressive stiffness, weakness or paralysis of the lower limbs, and ataxia; and
WHEREAS, Almost one-half the women who are carriers of X-ALD will develop a milder form of AMN, but almost never will develop symptoms seen in boys with X-ALD; and
WHEREAS, Treatment with adrenal hormones can be lifesaving, and symptomatic and supportive treatments for X-ALD include physical therapy, psychological support, and special education; and
WHEREAS, Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive; and
WHEREAS, The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early; and
WHEREAS, Recent evidence suggests that a mixture of oleic acid and erucic acid, known as Lorenzos Oil, administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD; and
WHEREAS, Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset AMN deterioration will progress over decades; and
WHEREAS, November, the month of Jeremy Hill, Jr.s birthday, was chosen to acknowledge the struggles of Jeremy Hill, Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature does hereby proclaim the month of November 2015 as Adrenoleukodystrophy Awareness Month; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain; and
WHEREAS, Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome; and
WHEREAS, The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD; and
WHEREAS, X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill, Jr. of Bakersfield; and
WHEREAS, While nearly all patients with X-ALD suffer from adrenal insufficiency, also known as Addisons disease, the neurological symptoms can begin either in childhood or adulthood; and
WHEREAS, The childhood cerebral form is the most severe, with onset between ages four and 10; and
WHEREAS, The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance; and
WHEREAS, Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia; and
WHEREAS, The milder adult-onset form is known as adrenomyeloneuropathy (AMN), which typically begins between 21 and 35 years of age, and has symptoms that include progressive stiffness, weakness or paralysis of the lower limbs, and ataxia; and
WHEREAS, Almost one-half the women who are carriers of X-ALD will develop a milder form of AMN, but almost never will develop symptoms seen in boys with X-ALD; and
WHEREAS, Treatment with adrenal hormones can be lifesaving, and symptomatic and supportive treatments for X-ALD include physical therapy, psychological support, and special education; and
WHEREAS, Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive; and
WHEREAS, The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early; and
WHEREAS, Recent evidence suggests that a mixture of oleic acid and erucic acid, known as Lorenzos Oil, administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD; and
WHEREAS, Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset AMN deterioration will progress over decades; and
WHEREAS, November, the month of Jeremy Hill, Jr.s birthday, was chosen to acknowledge the struggles of Jeremy Hill, Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature does hereby proclaim the month of November 2015 as Adrenoleukodystrophy Awareness Month; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain; and
WHEREAS, Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome; and
WHEREAS, The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD; and
WHEREAS, X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill, Jr. of Bakersfield; and
WHEREAS, While nearly all patients with X-ALD suffer from adrenal insufficiency, also known as Addisons disease, the neurological symptoms can begin either in childhood or adulthood; and
WHEREAS, The childhood cerebral form is the most severe, with onset between ages four and 10; and
WHEREAS, The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance; and
WHEREAS, Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia; and
WHEREAS, The milder adult-onset form is known as adrenomyeloneuropathy (AMN), which typically begins between 21 and 35 years of age, and has symptoms that include progressive stiffness, weakness or paralysis of the lower limbs, and ataxia; and
WHEREAS, Almost one-half the women who are carriers of X-ALD will develop a milder form of AMN, but almost never will develop symptoms seen in boys with X-ALD; and
WHEREAS, Treatment with adrenal hormones can be lifesaving, and symptomatic and supportive treatments for X-ALD include physical therapy, psychological support, and special education; and
WHEREAS, Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive; and
WHEREAS, The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early; and
WHEREAS, Recent evidence suggests that a mixture of oleic acid and erucic acid, known as Lorenzos Oil, administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD; and
WHEREAS, Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset AMN deterioration will progress over decades; and
WHEREAS, November, the month of Jeremy Hill, Jr.s birthday, was chosen to acknowledge the struggles of Jeremy Hill, Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature does hereby proclaim the month of November 2015 as Adrenoleukodystrophy Awareness Month; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
|
Date
|
Status
|
|---|---|
| Jan 13, 2015 | Introduced. Referred to Com. on RLS. |
| Jan 29, 2015 | From committee: Ordered to third reading. |
| Feb 9, 2015 | Ordered to inactive file on request of Senator Fuller. |
| Jun 8, 2015 | From inactive file on motion of Senator Fuller. |
| Jun 8, 2015 | Ordered to second reading. |
| Jun 9, 2015 | Read second time. Ordered to third reading. |
| Jul 9, 2015 | In Assembly. Held at Desk. |
| Jul 9, 2015 | Read. Adopted. (Ayes 38. Noes 0. Page 1872.) Ordered to the Assembly. |
| Jul 9, 2015 | Read. Adopted. (Ayes 38. Noes 0.) Ordered to the Assembly. |
| Jul 13, 2015 | Referred to Com. on RLS. |
| Aug 17, 2015 | From committee: Be adopted. Ordered to consent calendar. (Ayes 11. Noes 0.) (August 17). |
| Aug 20, 2015 | In Senate. Ordered to engrossing and enrolling. |
| Aug 20, 2015 | Read. Adopted. Ordered to the Senate. |
| Aug 20, 2015 | Read. Adopted. (Ayes 79. Noes 0. Page 2534.) Ordered to the Senate. |
| Aug 26, 2015 | Chaptered by Secretary of State. Res. Chapter 140, Statutes of 2015. |
| Aug 26, 2015 | Enrolled and filed with the Secretary of State at 3:30 p.m. |
|
Date
|
Description
|
Location
|
Votes
|
|
|---|---|---|---|---|
| Aug 20, 2015 | SCR 8 Fuller Consent Calendar Second Day Regular Session | Assembly Floor |
Passed |
|
| Aug 17, 2015 | Be adopted. To Consent Calendar. | Assembly Standing Committee on Rules |
Passed |
|
| Jul 9, 2015 | Senate 3rd Reading SCR8 Fuller | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
SCR 8
Page 3
|
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 |
THIRD READING
Bill No: SCR 8
Introduced: 1/13/15
SUBJECT: Adrenoleukodystrophy Awareness Month
DIGEST: This resolution proclaims the month of November 2015 as Adrenoleukodystrophy Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain.
Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome. The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD.
X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill Jr. of Bakersfield. The childhood cerebral form is the most severe, with onset between ages four and 10.
The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance. Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia.
Treatment with adrenal hormones can be lifesaving, and recent evidence suggests that a mixture of oleic acid and erucic acid, known as “Lorenzo’s Oil,” administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD.
Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive.
The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early. Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset adrenomyeloneuropathy deterioration will progress over decades.
This resolution memorializes the month of November 2015 as Adrenoleukodystrophy Awareness Month. November, the month of Jeremy Hill Jr.’s birthday, was chosen to acknowledge the struggles of Jeremy Hill Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD.
Prior Legislation
SCR 126 (Fuller, Resolution Chapter 121, Statutes of 2014) proclaimed November 2014 as Adrenoleukodystrophy Awareness Month.
SCR 65 (Fuller, Resolution Chapter 119, Statutes of 2013) proclaimed November 2013 as Adrenoleukodystrophy Awareness Month.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
AFSCME
OPPOSITION: (Verified 6/10/15)
None received
Prepared by: Jonas Austin / SFA / (916) 651-1520
9/8/15 21:59:33
**** END ****
SCR 8
Page 2
Date of Hearing: August 17, 2015
ASSEMBLY COMMITTEE ON RULES
Richard Gordon, Chair
SCR 8
(Fuller) – As Introduced January 13, 2015
SENATE VOTE: 38-0
SUBJECT: Adrenoleukodystrophy Awareness Month.
SUMMARY: Memorialize the month of November 2015 as Adrenoleukodystrophy Awareness Month. Specifically, this resolution makes the following legislative findings:
X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain.
Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome.
X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill Jr. of Bakersfield.
The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance. Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia.
Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive.
The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early. Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD.
Recent evidence suggests that a mixture of oleic acid and erucic acid, known as “Lorenzo’s Oil,” administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD.
FISCAL EFFECT: None
REGISTERED SUPPORT / OPPOSITION:
Support
None on file
Opposition
None on file
Analysis Prepared by: Nicole Willis / RLS. / (916) 319-2800
SCR 8
Page 3
|
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 |
THIRD READING
Bill No: SCR 8
Introduced: 1/13/15
SUBJECT: Adrenoleukodystrophy Awareness Month
DIGEST: This resolution proclaims the month of November 2015 as Adrenoleukodystrophy Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain.
Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome. The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD.
X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill Jr. of Bakersfield. The childhood cerebral form is the most severe, with onset between ages four and 10.
The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance. Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia.
Treatment with adrenal hormones can be lifesaving, and recent evidence suggests that a mixture of oleic acid and erucic acid, known as “Lorenzo’s Oil,” administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD.
Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive.
The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early. Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset adrenomyeloneuropathy deterioration will progress over decades.
This resolution memorializes the month of November 2015 as Adrenoleukodystrophy Awareness Month. November, the month of Jeremy Hill Jr.’s birthday, was chosen to acknowledge the struggles of Jeremy Hill Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD.
Prior Legislation
SCR 126 (Fuller, Resolution Chapter 121, Statutes of 2014) proclaimed November 2014 as Adrenoleukodystrophy Awareness Month.
SCR 65 (Fuller, Resolution Chapter 119, Statutes of 2013) proclaimed November 2013 as Adrenoleukodystrophy Awareness Month.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
AFSCME
OPPOSITION: (Verified 6/10/15)
None received
Prepared by: Jonas Austin / SFA / (916) 651-1520
6/10/15 16:54:20
>
SCR 8
Page 2
|
Office of Senate Floor Analyses (916) 651-1520 Fax: (916) 327-4478 |
THIRD READING
Bill No: SCR 8
Introduced: 1/13/15
SUBJECT: Adrenoleukodystrophy Awareness Month
DIGEST: This resolution proclaims the month of November 2015 as Adrenoleukodystrophy Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
1. X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain.
2. Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome. The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD.
3. X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill Jr. of Bakersfield. The childhood cerebral form is the most severe, with onset between ages four and 10.
4. The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance. Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia.
5. Treatment with adrenal hormones can be lifesaving, and recent evidence suggests that a mixture of oleic acid and erucic acid, known as “Lorenzo’s Oil,” administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD.
6. Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive.
7. The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early. Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset adrenomyeloneuropathy deterioration will progress over decades.
This resolution memorializes the month of November 2015 as Adrenoleukodystrophy Awareness Month. November, the month of Jeremy Hill Jr.’s birthday, was chosen to acknowledge the struggles of Jeremy Hill Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD.
Prior Legislation
SCR 126 (Fuller, Resolution Chapter 121, Statutes of 2014) proclaimed November 2014 as Adrenoleukodystrophy Awareness Month.
SCR 65 (Fuller, Resolution Chapter 119, Statutes of 2013) proclaimed November 2013 as Adrenoleukodystrophy Awareness Month.
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
Prepared by: Jonas Austin / SFA / (916) 651-1520
2/4/15 13:01:18
SUPPORT/OPPOSITION: NONE RECEIVED
SCR 8
Page 2
SENATE RULES COMMITTEE Office of Senate Floor Analyses 1020 N Street, Suite 524 (916) 651-1520 Fax: (916) 327-4478 |
SCR 8
|
THIRD READING
Bill No: SCR 8
Author: Fuller (R)
Amended: As introduced
Vote: 21
SUBJECT: Adrenoleukodystrophy Awareness Month
SOURCE: Author
DIGEST: This resolution proclaims the month of November 2015 as Adrenoleukodystrophy Awareness Month.
ANALYSIS: This resolution makes the following legislative findings:
1. X-linked adrenoleukodystrophy (X-ALD) is one of a group of genetic disorders called the leukodystrophies that cause damage to the myelin sheath, an insulating membrane that surrounds nerve cells in the brain.
2. Women have two X chromosomes and are the carriers of the disease, but men are most severely affected because men only have one X chromosome and lack the protection provided by an extra X chromosome. The loss of myelin and the progressive dysfunction of the adrenal gland are the primary characteristics of X-ALD.
3. X-ALD affects an estimated one in every 20,000 boys, which is roughly 13,600 people in the United States, including boys like Jeremy Hill Jr. of Bakersfield. The childhood cerebral form is the most severe, with onset between ages four and 10.
4. The most common symptoms are behavioral changes, including abnormal withdrawal or aggression, poor memory, and poor school performance. Other symptoms include visual loss, learning disabilities, seizures, poorly articulated speech, difficulty swallowing, deafness, disturbances of gait and coordination, fatigue, intermittent vomiting, increased skin pigmentation, and progressive dementia.
5. Treatment with adrenal hormones can be lifesaving, and recent evidence suggests that a mixture of oleic acid and erucic acid, known as “Lorenzo’s Oil,” administered to boys with X-ALD prior to the onset of symptoms can prevent or delay, but not stop, the appearance of the childhood cerebral form of X-ALD.
6. Newborn screening is effective in catching and preventing the negative effects of X-ALD and is relatively inexpensive.
7. The prognosis for patients with childhood cerebral X-ALD is generally poor due to progressive neurological deterioration, unless bone marrow transplantation is performed early. Death usually occurs between one and 10 years after the onset of symptoms of childhood cerebral X-ALD, and in adult-onset adrenomyeloneuropathy deterioration will progress over decades.
This resolution memorializes the month of November 2015 as Adrenoleukodystrophy Awareness Month. November, the month of Jeremy Hill Jr.’s birthday, was chosen to acknowledge the struggles of Jeremy Hill Jr., his parents, Jeremy and Debra Hill, and his sister, Meagan Hill, in fighting X-ALD.
Prior Legislation
SCR 126 (Fuller, Resolution Chapter 121, Statutes of 2014) proclaimed November 2014 as Adrenoleukodystrophy Awareness Month.
SCR 65 (Fuller, Resolution Chapter 119, Statutes of 2013) proclaimed November 2013 as Adrenoleukodystrophy Awareness Month.
FISCAL EFFECT: Fiscal Com.: No
JA:j 1/27/15 Senate Floor Analyses
SUPPORT/OPPOSITION: NONE RECEIVED
**** END ****
Bill Author
Bill Co-Author(s):