This measure would proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California.

This measure would proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California.

This measure would proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California.

WHEREAS, The Legislature is proud to proclaim March 2023 as Bleeding Disorders Awareness Month in this state; and

WHEREAS, Hemophilia is a rare genetic condition affecting at least 4,000 people in California, and Von Willebrand disease impacts at least 360,000 people in California; and

WHEREAS, Without treatment, people with hemophilia and other related bleeding disorders face frequent, spontaneous bleeding episodes in their joints, causing swelling in the joints, muscles, internal organs, and brain. Repeated bleeding episodes in the joints result in chronic degenerative arthritic conditions, which often lead to frequent hospitalizations, permanent disability, and chronic pain. Bleeding episodes involving internal organs and the brain can cause permanent damage, disability, and even death; and

WHEREAS, Many individuals with hemophilia became infected with human immunodeficiency virus (HIV) and hepatitis C in the 1980s due to the contamination of the blood supply and blood products; and

WHEREAS, With proper care and access to comprehensive medical resources, persons with hemophilia and other related bleeding disorders can control bleeding episodes and lead productive lives; and

WHEREAS, Visits to federally recognized hemophilia treatment centers reduce morbidity and mortality significantly; and

WHEREAS, The State of California is committed to proper care and treatment of children and adults with hemophilia and other related bleeding disorders through previously enacted legislation; and

WHEREAS, This awareness month will generate greater understanding of not only hemophilia but all inheritable bleeding disorders; and

WHEREAS, This awareness month will foster a greater sense of community and shared purpose among all individuals with inheritable bleeding disorders; and

WHEREAS, This awareness month will elevate the awareness of, and engagement in, the inheritable bleeding disorders journey beyond this community to the general public, enabling the prevention of illness, unnecessary procedures, and disability; now, therefore, be it

Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to proudly proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California; and be it further

Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.

WHEREAS, The Legislature is proud to proclaim March 2023 as Bleeding Disorders Awareness Month in this state; and

WHEREAS, Hemophilia is a rare genetic condition affecting at least 4,000 people in California, and Von Willebrand disease impacts at least 360,000 people in California; and

WHEREAS, Without treatment, people with hemophilia and other related bleeding disorders face frequent, spontaneous bleeding episodes in their joints, causing swelling in the joints, muscles, internal organs, and brain. Repeated bleeding episodes in the joints result in chronic degenerative arthritic conditions, which often lead to frequent hospitalizations, permanent disability, and chronic pain. Bleeding episodes involving internal organs and the brain can cause permanent damage, disability, and even death; and

WHEREAS, Many individuals with hemophilia became infected with human immunodeficiency virus (HIV) and hepatitis C in the 1980s due to the contamination of the blood supply and blood products; and

WHEREAS, With proper care and access to comprehensive medical resources, persons with hemophilia and other related bleeding disorders can control bleeding episodes and lead productive lives; and

WHEREAS, Visits to federally recognized hemophilia treatment centers reduce morbidity and mortality significantly; and

WHEREAS, The State of California is committed to proper care and treatment of children and adults with hemophilia and other related bleeding disorders through previously enacted legislation; and

WHEREAS, This awareness month will generate greater understanding of not only hemophilia but all inheritable bleeding disorders; and

WHEREAS, This awareness month will foster a greater sense of community and shared purpose among all individuals with inheritable bleeding disorders; and

WHEREAS, This awareness month will elevate the awareness of, and engagement in, the inheritable bleeding disorders journey beyond this community to the general public, enabling the prevention of illness, unnecessary procedures, and disability; now, therefore, be it

Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to proudly proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California; and be it further

Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.

WHEREAS, The Legislature is proud to proclaim March 2023 as Bleeding Disorders Awareness Month in this state; and

WHEREAS, Hemophilia is a rare genetic condition affecting at least 4,000 people in California, and Von Willebrand disease impacts at least 360,000 people in California; and

WHEREAS, Without treatment, people with hemophilia and other related bleeding disorders face frequent, spontaneous bleeding episodes in their joints, causing swelling in the joints, muscles, internal organs, and brain. Repeated bleeding episodes in the joints result in chronic degenerative arthritic conditions, which often lead to frequent hospitalizations, permanent disability, and chronic pain. Bleeding episodes involving internal organs and the brain can cause permanent damage, disability, and even death; and

WHEREAS, Many individuals with hemophilia became infected with human immunodeficiency virus (HIV) and hepatitis C in the 1980s due to the contamination of the blood supply and blood products; and

WHEREAS, With proper care and access to comprehensive medical resources, persons with hemophilia and other related bleeding disorders can control bleeding episodes and lead productive lives; and

WHEREAS, Visits to federally recognized hemophilia treatment centers reduce morbidity and mortality significantly; and

WHEREAS, The State of California is committed to proper care and treatment of children and adults with hemophilia and other related bleeding disorders through previously enacted legislation; and

WHEREAS, This awareness month will generate greater understanding of not only hemophilia but all inheritable bleeding disorders; and

WHEREAS, This awareness month will foster a greater sense of community and shared purpose among all individuals with inheritable bleeding disorders; and

WHEREAS, This awareness month will elevate the awareness of, and engagement in, the inheritable bleeding disorders journey beyond this community to the general public, enabling the prevention of illness, unnecessary procedures, and disability; now, therefore, be it

Resolved by the Assembly of the State of California, the Senate thereof concurring, That the Legislature pause in its deliberations to proudly proclaim the month of March 2023 as Bleeding Disorders Awareness Month in California; and be it further

Resolved, That the Chief Clerk of the Assembly transmit copies of this resolution to the author for appropriate distribution.

 THIRD READING 

Bill No: ACR 23

Author: Weber (D), et al.

Introduced: 2/21/23

Vote: 21

ASSEMBLY FLOOR: 75-0, 3/9/23 (Consent) - See last page for vote

SUBJECT: Bleeding Disorders Awareness Month

SOURCE: Hemophilia Council

DIGEST:

This resolution proclaims the month of March 2023 as Bleeding Disorders Awareness Month in California.

ANALYSIS: This resolution makes the following legislative findings:

1. The Legislature is proud to proclaim March 2023 as Bleeding Disorders Awareness Month in this state.
2. Hemophilia is a rare genetic condition affecting at least 4,000 people in California, and Von Willebrand disease impacts at least 360,000 people in California.
3. Without treatment, people with hemophilia and other related bleeding disorders face frequent, spontaneous bleeding episodes in their joints, causing swelling in the joints, muscles, internal organs, and brain. Repeated bleeding episodes in the joints result in chronic degenerative arthritic conditions, which often lead to frequent hospitalizations, permanent disability, and chronic pain. Bleeding episodes involving internal organs and the brain can cause permanent damage, disability, and even death.
4. Many individuals with hemophilia became infected with human immunodeficiency virus (HIV) and hepatitis C in the 1980s due to the contamination of the blood supply and blood products.
5. With proper care and access to comprehensive medical resources, persons with hemophilia and other related bleeding disorders can control bleeding episodes and lead productive lives.

This resolution proclaims the month of March 2023 as Bleeding Disorders Awareness Month in California.

Related/Prior Legislation

The following are the most recent measures proclaiming as Bleeding Disorders Awareness Month:

• SCR 74 (Pan, Resolution Chapter 43, Statutes of 2022).
• SCR 13 (Pan, Resolution Chapter 35, Statutes of 2021).
• SCR 84 (Pan, 2020) – Died at the Assembly Desk.

FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No

SUPPORT: (Verified 3/21/23)

Hemophilia Council (source)

OPPOSITION: (Verified 3/21/23)

None received

ASSEMBLY FLOOR: 75-0, 3/9/23

AYES: Addis, Aguiar-Curry, Alanis, Alvarez, Arambula, Bains, Bauer-Kahan, Bennett, Berman, Boerner Horvath, Bonta, Bryan, Calderon, Juan Carrillo, Cervantes, Chen, Connolly, Megan Dahle, Davies, Dixon, Essayli, Flora, Mike Fong, Vince Fong, Friedman, Gabriel, Garcia, Gipson, Grayson, Haney, Hart, Holden, Hoover, Jackson, Jones-Sawyer, Kalra, Lackey, Lee, Low, Lowenthal, Maienschein, Mathis, McCarty, Muratsuchi, Stephanie Nguyen, Ortega, Pacheco, Papan, Jim Patterson, Joe Patterson, Pellerin, Petrie-Norris, Quirk-Silva, Ramos, Reyes, Luz Rivas, Robert Rivas, Rodriguez, Blanca Rubio, Sanchez, Santiago, Schiavo, Soria, Ta, Ting, Valencia, Villapudua, Waldron, Wallis, Ward, Wicks, Wilson, Wood, Zbur, Rendon

NO VOTE RECORDED: Wendy Carrillo, Gallagher, Irwin, McKinnor, Weber

Prepared by: Karen Chow / SFA / (916) 651-1520

3/22/23 13:53:01

**** END ****

Date of Hearing: March 2, 2023

ASSEMBLY COMMITTEE ON RULES

James Ramos, Chair

ABPCA Bill Id:ACR 23 (

Author:Weber) – As Introduced Ver:February 21, 2023

SUBJECT: Bleeding Disorders Awareness Month.

SUMMARY: Proclaims the month of March 2023 as Bleeding Disorders Awareness Month in California. Specifically, this resolution makes the following legislative findings:

1. Hemophilia is a rare genetic condition affecting at least 4,000 people in California, and Von Willebrand disease impacts at least 360,000 people in California.
2. Without treatment, people with hemophilia and other related bleeding disorders face frequent, spontaneous bleeding episodes in their joints, causing swelling in the joints, muscles, internal organs, and brain. Repeated bleeding episodes in the joints result in chronic degenerative arthritic conditions, which often lead to frequent hospitalizations, permanent disability, and chronic pain. Bleeding episodes involving internal organs and the brain can cause permanent damage, disability, and even death.
3. With proper care and access to comprehensive medical resources, persons with hemophilia and other related bleeding disorders can control bleeding episodes and lead productive lives.
4. Visits to federally recognized hemophilia treatment centers reduce morbidity and mortality significantly. The State of California is committed to proper care and treatment of children and adults with hemophilia and other related bleeding disorders through previously enacted legislation.
5. The Legislature is proud to proclaim March 2023 as Bleeding Disorders Awareness Month in this state. This awareness month will foster a greater sense of community and shared purpose among all individuals with inheritable bleeding disorders.
6. This awareness month will also elevate the awareness of, and engagement in, the inheritable bleeding disorders journey beyond this community to the general public, enabling the prevention of illness, unnecessary procedures, and disability.

FISCAL EFFECT: None

REGISTERED SUPPORT / OPPOSITION:

Support

None on file

Opposition

None on file

Analysis Prepared by: Michael Erke / RLS. / (916) 319-2800