SCR 146: Cystic Fibrosis Awareness Month.
- Session Year: 2025-2026
- House: Senate
- Latest Version Date: 2026-05-29
Current Status:
Passed
(2026-05-29: Chaptered by Secretary of State. Res. Chapter 75, Statutes of 2026.)
Introduced
In Committee
Awaiting First Chamber Vote
Passed First Chamber
In Committee
Awaiting Second Chamber Vote
Passed Second Chamber
Enacted
This measure would proclaim the month of May 2026 as Cystic Fibrosis Awareness Month in California.
This measure would proclaim the month of May 2026 as Cystic Fibrosis Awareness Month in California.
This measure would proclaim the month of May 2026 as Cystic Fibrosis Awareness Month in California.
WHEREAS, Cystic fibrosis, a chronic and progressive systemic disease for which there is no known cure, is the most common fatal genetic disease in the United States; and
WHEREAS, Over 40,000 children and adults in the United States have been diagnosed with cystic fibrosis, and more than 1,000 new cases are diagnosed each year, predominantly through newborn screening; and
WHEREAS, Cystic fibrosis impacts individuals of every race and ethnicity, but due to health disparities and newborn screening panels that fail to capture rare cystic fibrosis transmembrane conductance regulator mutations, many individuals with cystic fibrosis are misdiagnosed or diagnosed late; and
WHEREAS, Due to new therapeutic advances, 50 percent of children diagnosed with cystic fibrosis after 2020 are predicted to survive to 65 years of age; and
WHEREAS, Despite advances in disease understanding and new therapies, the median age of death for those with cystic fibrosis remains under 40 years of age; and
WHEREAS, The federal National Institutes of Health estimates that more than 10,000,000 Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, messenger ribonucleic acid (mRNA), and drug therapies beneficial to people who have the disease; and
WHEREAS, The Cystic Fibrosis Research Institute (CFRI) was formed 51 years ago in 1975 by a group of parents whose children with cystic fibrosis were not expected to survive their teen years; and
WHEREAS, CFRIs mission is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support; and
WHEREAS, CFRI provides funding for innovative cystic fibrosis research at medical and academic centers in California and nationwide to expand understanding of the disease, seek new therapies, and ultimately find a cure for this challenging multisystemic disease; and
WHEREAS, CFRI seeks to improve the quality of life for all people with cystic fibrosis in California and the nation, as well as their family members, by providing educational and psychosocial support programs; and
WHEREAS, Support for those impacted by cystic fibrosis, a rare disease, begins with the raising of public awareness, and CFRI works within the diverse cystic fibrosis community on both the state and national level to advocate for continued research, access to quality care, and the development of new therapies to extend and enhance lives; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature proclaims the month of May 2026 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Legislature honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis and the diverse communities it impacts; and be it further
Resolved, That the Legislature encourages early diagnosis and access to quality care for all people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, Cystic fibrosis, a chronic and progressive systemic disease for which there is no known cure, is the most common fatal genetic disease in the United States; and
WHEREAS, Over 40,000 children and adults in the United States have been diagnosed with cystic fibrosis, and more than 1,000 new cases are diagnosed each year, predominantly through newborn screening; and
WHEREAS, Cystic fibrosis impacts individuals of every race and ethnicity, but due to health disparities and newborn screening panels that fail to capture rare cystic fibrosis transmembrane conductance regulator mutations, many individuals with cystic fibrosis are misdiagnosed or diagnosed late; and
WHEREAS, Due to new therapeutic advances, 50 percent of children diagnosed with cystic fibrosis after 2020 are predicted to survive to 65 years of age; and
WHEREAS, Despite advances in disease understanding and new therapies, the median age of death for those with cystic fibrosis remains under 40 years of age; and
WHEREAS, The federal National Institutes of Health estimates that more than 10,000,000 Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, messenger ribonucleic acid (mRNA), and drug therapies beneficial to people who have the disease; and
WHEREAS, The Cystic Fibrosis Research Institute (CFRI) was formed 51 years ago in 1975 by a group of parents whose children with cystic fibrosis were not expected to survive their teen years; and
WHEREAS, CFRIs mission is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support; and
WHEREAS, CFRI provides funding for innovative cystic fibrosis research at medical and academic centers in California and nationwide to expand understanding of the disease, seek new therapies, and ultimately find a cure for this challenging multisystemic disease; and
WHEREAS, CFRI seeks to improve the quality of life for all people with cystic fibrosis in California and the nation, as well as their family members, by providing educational and psychosocial support programs; and
WHEREAS, Support for those impacted by cystic fibrosis, a rare disease, begins with the raising of public awareness, and CFRI works within the diverse cystic fibrosis community on both the state and national level to advocate for continued research, access to quality care, and the development of new therapies to extend and enhance lives; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature proclaims the month of May 2026 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Legislature honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis and the diverse communities it impacts; and be it further
Resolved, That the Legislature encourages early diagnosis and access to quality care for all people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
WHEREAS, Cystic fibrosis, a chronic and progressive systemic disease for which there is no known cure, is the most common fatal genetic disease in the United States; and
WHEREAS, Over 40,000 children and adults in the United States have been diagnosed with cystic fibrosis, and more than 1,000 new cases are diagnosed each year, predominantly through newborn screening; and
WHEREAS, Cystic fibrosis impacts individuals of every race and ethnicity, but due to health disparities and newborn screening panels that fail to capture rare cystic fibrosis transmembrane conductance regulator mutations, many individuals with cystic fibrosis are misdiagnosed or diagnosed late; and
WHEREAS, Due to new therapeutic advances, 50 percent of children diagnosed with cystic fibrosis after 2020 are predicted to survive to 65 years of age; and
WHEREAS, Despite advances in disease understanding and new therapies, the median age of death for those with cystic fibrosis remains under 40 years of age; and
WHEREAS, The federal National Institutes of Health estimates that more than 10,000,000 Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children; and
WHEREAS, Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis; and
WHEREAS, Recent advances in cystic fibrosis research have produced promising leads in gene, messenger ribonucleic acid (mRNA), and drug therapies beneficial to people who have the disease; and
WHEREAS, The Cystic Fibrosis Research Institute (CFRI) was formed 51 years ago in 1975 by a group of parents whose children with cystic fibrosis were not expected to survive their teen years; and
WHEREAS, CFRIs mission is to be a global resource for the cystic fibrosis community while pursuing a cure through research, education, advocacy, and support; and
WHEREAS, CFRI provides funding for innovative cystic fibrosis research at medical and academic centers in California and nationwide to expand understanding of the disease, seek new therapies, and ultimately find a cure for this challenging multisystemic disease; and
WHEREAS, CFRI seeks to improve the quality of life for all people with cystic fibrosis in California and the nation, as well as their family members, by providing educational and psychosocial support programs; and
WHEREAS, Support for those impacted by cystic fibrosis, a rare disease, begins with the raising of public awareness, and CFRI works within the diverse cystic fibrosis community on both the state and national level to advocate for continued research, access to quality care, and the development of new therapies to extend and enhance lives; now, therefore, be it
Resolved by the Senate of the State of California, the Assembly thereof concurring, That the Legislature proclaims the month of May 2026 as Cystic Fibrosis Awareness Month; and be it further
Resolved, That the Legislature honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis and the diverse communities it impacts; and be it further
Resolved, That the Legislature encourages early diagnosis and access to quality care for all people with cystic fibrosis to improve the quality of their lives, advocates for increased support for people who have cystic fibrosis and their families, and supports research to find a cure for cystic fibrosis; and be it further
Resolved, That the Secretary of the Senate transmit copies of this resolution to the author for appropriate distribution.
|
Date
|
Status
|
|---|---|
| May 29, 2026 | Chaptered by Secretary of State. Res. Chapter 75, Statutes of 2026. |
| May 29, 2026 | Enrolled and filed with the Secretary of State at 3 p.m. |
| May 21, 2026 | In Senate. Ordered to engrossing and enrolling. |
| May 21, 2026 | Read. Adopted. Ordered to the Senate. |
| May 21, 2026 | Read. Adopted. (Ayes 68. Noes 0. Page 5232.) Ordered to the Senate. |
| May 18, 2026 | From committee: Be adopted. Ordered to consent calendar. (Ayes 9. Noes 0.) (May 18). |
| May 11, 2026 | Referred to Com. on RLS. |
| May 4, 2026 | In Assembly. Held at Desk. |
| May 4, 2026 | Read. Adopted. (Ayes 40. Noes 0. Page 4127.) Ordered to the Assembly. |
| May 4, 2026 | Read. Adopted. (Ayes 40. Noes 0.) Ordered to the Assembly. |
| Mar 25, 2026 | From committee: Ordered to third reading. |
| Mar 16, 2026 | Introduced. Referred to Com. on RLS. |
|
Date
|
Description
|
Location
|
Votes
|
|
|---|---|---|---|---|
| May 21, 2026 | SCR 146 Laird Consent Calendar Second Day Regular Session | Assembly Floor |
Passed |
|
| May 18, 2026 | Be adopted. To Consent Calendar. | Assembly Standing Committee on Rules |
Passed |
|
| May 4, 2026 | Senate 3rd Reading SCR146 Laird | Senate Floor |
Passed |
This list shows positions taken on this bill by organizations on the date displayed, which is linked to the original source.
Positions by individuals are not included.
Date of Hearing: May 18, 2026
ASSEMBLY COMMITTEE ON
, Chair
SBPCA Bill Id:
Author:() – As Ver:
SENATE VOTE:
SUBJECT:
SUMMARY: Proclaims the month of May 2026 as Cystic Fibrosis Awareness Month; and, honors the goals and ideals of Cystic Fibrosis Awareness Month so as to promote public awareness and understanding of cystic fibrosis and the diverse communities it impacts. Specifically, this resolution makes the following legislative findings:
- Cystic fibrosis, a chronic and progressive systemic disease for which there is no known cure, is the most common fatal genetic disease in the United States.
- Over 40,000 children and adults in the United States have been diagnosed with cystic fibrosis, and more than 1,000 new cases are diagnosed each year, predominantly through newborn screening.
- Cystic fibrosis impacts individuals of every race and ethnicity, but due to health disparities and newborn screening panels that fail to capture rare cystic fibrosis transmembrane conductance regulator mutations, many individuals with cystic fibrosis are misdiagnosed or diagnosed late.
- Despite advances in disease understanding and new therapies, the median age of death for those with cystic fibrosis remains under 40 years of age.
- Prompt, aggressive treatment of the symptoms of cystic fibrosis can extend the lives of people who have the disease and a nationwide network of care centers exists to improve the length and quality of life for individuals with cystic fibrosis.
- Recent advances in cystic fibrosis research have produced promising leads in gene, messenger ribonucleic acid (mRNA), and drug therapies beneficial to people who have the disease.
- The Cystic Fibrosis Research Institute (CFRI) was formed 51 years ago in 1975 by a group of parents whose children with cystic fibrosis were not expected to survive their teen years. CFRI seeks to improve the quality of life for all people with cystic fibrosis in California and the nation, as well as their family members, by providing educational and psychosocial support programs.
FISCAL EFFECT: This resolution is keyed non-fiscal by Legislative Counsel.
REGISTERED SUPPORT / OPPOSITION:
Support
None on file
Opposition
None on file
Analysis Prepared by:
SENATE RULES COMMITTEE Office of Senate Floor Analyses (916) 651-4171 | SCR 146 |
THIRD READING
Bill No: SCR 146
Author: Laird (D)
Introduced: 3/16/26
Vote: 21
SUBJECT: Cystic Fibrosis Awareness Month
SOURCE: Author
DIGEST:
This resolution proclaims the month of May 2026 as Cystic Fibrosis Awareness Month in California.
ANALYSIS: This resolution makes the following legislative findings:
- Cystic fibrosis impacts individuals of every race and ethnicity, but due to health disparities and newborn screening panels that fail to capture rare cystic fibrosis transmembrane conductance regulator mutations, many individuals with cystic fibrosis are misdiagnosed or diagnosed late.
- The federal National Institutes of Health estimates that more than 10 million Americans are unknowing, symptomless carriers of the cystic fibrosis gene and have high odds of passing the gene to their children.
- Support for those impacted by cystic fibrosis, a rare disease, begins with the raising of public awareness, and CFRI works within the diverse cystic fibrosis community on both the state and national level to advocate for continued research, access to quality care, and the development of new therapies to extend and enhance lives.
This resolution proclaims the month of May 2026 as Cystic Fibrosis Awareness Month in California.
Related/Prior Legislation
SCR 51 (Laird, Resolution Chapter 114, Statutes of 2025)
SCR 124 (Laird, Resolution Chapter 116, Statutes of 2024)
SCR 49 (Laird, Resolution Chapter 82, Statutes of 2023)
FISCAL EFFECT: Appropriation: No Fiscal Com.: No Local: No
SUPPORT: (Verified 3/24/26)
None received
OPPOSITION: (Verified 3/24/26)
None received
Prepared by: Aizenia Randhawa / SFA / (916) 651-4171
3/25/26 16:15:07
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Bill Author
Bill Co-Author(s):